Unwindings and all things physical...

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In a message dated 2/1/04 6:31:12 PM, Mike writes:

> The main concern I would have in this case is

> to be sure that the restriction isn't there in the first place to

> compensate for something like a weak joint. This is why you want to

> see someone who understands about hypermobility.

>

That's my point, ultimately, if I didn't express it right (I probably didn't

-- it was not a grand day yesterday). How do you tell whether something's an

adaptation to HM, or something else entirely? I can't even be sure with my own

body, let alone trust someone else with it. And if it is an adaptation, do

you go on living with it, or treat it -- and how do you treat it -- as a

symptom of EDS or as its own pathology? That's the message behind the numbness

issue

to me -- it's probably a result of stretching, OK, but -- do I seek treatment

(which I can't find, anyway) or simply consider it another symptom and leave

it alone (except for taking as much care as I can...)

These days, I have to consider every little thing, no matter how useful or

unlikely..major treatment responses like unwinding (I really didn't intend to

make it sound trivial, I know things happen when they're ready) can be

particularly alarming, and the little things are important. Even how long I'm

likely to

be left sitting can have a large impact on my day, something I can't seem to

make doctors and nurses understand....