Guest guest Posted November 14, 2004 Report Share Posted November 14, 2004 Lyn Thanks so much We're getting closer to getting comfort for my daughter. Mine has been a tough challenge though---so far tolerable isn't in the vocabulary. W/C being in the vocab doesn't help either. The doc keeps trying though. He's told me that he won't give up. In a message dated 11/13/2004 7:34:27 PM Eastern Standard Time, RSD-CRPSofAmerica writes: Subject: and StaceyHi ,I hope you and Stacey are getting some relief. In several posts it sounds like you are unable to get pain relief to a tolerable level. I hope that has changed for you and your daughter. This is one tough ordeal. I hope to hear some good news soon. With love,Lyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2004 Report Share Posted November 14, 2004 , Good at least it is going in the right direction for Stacey. I'll keep up the prayers and hope you get something good soon. Lyn KM86@a... wrote: > > Lyn > > Thanks so much > > We're getting closer to getting comfort for my daughter. > > Mine has been a tough challenge though---so far tolerable isn't in the > vocabulary. W/C being in the vocab doesn't help either. The doc keeps trying > though. He's told me that he won't give up. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2004 Report Share Posted November 14, 2004 , Good at least it is going in the right direction for Stacey. I'll keep up the prayers and hope you get something good soon. Lyn KM86@a... wrote: > > Lyn > > Thanks so much > > We're getting closer to getting comfort for my daughter. > > Mine has been a tough challenge though---so far tolerable isn't in the > vocabulary. W/C being in the vocab doesn't help either. The doc keeps trying > though. He's told me that he won't give up. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2004 Report Share Posted November 18, 2004 Raynaud's is a circulatory disorder that you hand and feet are always cold regardless of the temp outside...but during cold weather or rainy weather is gets worse and painful for me. I have been dx with lots of auto-immune disorders since i was 16 yrs old...so for more then half my life now I have had JRA and osteo arthritis..and more and more dx's of auto-immune disorders since then. RSD can also affect the circulatory system...so there is common factors in both RSD and Raynaud's. I have never had warm hands in my life...until RSD started affecting both of my arms and hands...now I have red hot almost burning hands. It's very weird...but better for me in some ways I guess to have warm hands then cold especially now that winter is here. Hugs..Ginnylynlorraine wrote: Ginny and Cathy, I agree it makes no sense yet somehow there is something that happens that is repeating itself in all of us to start this syndrome. I'm wondering....I don't remember...did you have auto immune disorders before RSD? What is the cause or system disorder involved of Raynard's syndrome? Isn't it in the hands with coldness and loss of blood circulation and very painful? Lyn Ginny Barrientos <hisloss123@y...> wrote:> Cathy,> > I have raynard's syndrome and have since I can remember back. I have had mri's of the head and x-rays but no one has mentioned any abnormality in shaping of it or anything at all. i do have tons of auto-immune dosorders...But I am Dark hair and Dark skin...Mostly Irish..A little Italian...But have more of a Black Irish look then Italian in most ways. I agree there must be a correlation and predispodistion. I know people who have crushed almost every bone in the body in motorccle accidents that don't get RSD..but with a cervicle sprain i got RSD...Makes no sense at all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2004 Report Share Posted November 18, 2004 Raynaud's is a circulatory disorder that you hand and feet are always cold regardless of the temp outside...but during cold weather or rainy weather is gets worse and painful for me. I have been dx with lots of auto-immune disorders since i was 16 yrs old...so for more then half my life now I have had JRA and osteo arthritis..and more and more dx's of auto-immune disorders since then. RSD can also affect the circulatory system...so there is common factors in both RSD and Raynaud's. I have never had warm hands in my life...until RSD started affecting both of my arms and hands...now I have red hot almost burning hands. It's very weird...but better for me in some ways I guess to have warm hands then cold especially now that winter is here. Hugs..Ginnylynlorraine wrote: Ginny and Cathy, I agree it makes no sense yet somehow there is something that happens that is repeating itself in all of us to start this syndrome. I'm wondering....I don't remember...did you have auto immune disorders before RSD? What is the cause or system disorder involved of Raynard's syndrome? Isn't it in the hands with coldness and loss of blood circulation and very painful? Lyn Ginny Barrientos <hisloss123@y...> wrote:> Cathy,> > I have raynard's syndrome and have since I can remember back. I have had mri's of the head and x-rays but no one has mentioned any abnormality in shaping of it or anything at all. i do have tons of auto-immune dosorders...But I am Dark hair and Dark skin...Mostly Irish..A little Italian...But have more of a Black Irish look then Italian in most ways. I agree there must be a correlation and predispodistion. I know people who have crushed almost every bone in the body in motorccle accidents that don't get RSD..but with a cervicle sprain i got RSD...Makes no sense at all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2004 Report Share Posted November 18, 2004 i have a blood disease called iga deficiency with t cell defect. i did not know i had this until my son was 18 months old. no ne in family has this blood disease. so i was born with blood and immune disord. cathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2004 Report Share Posted November 18, 2004 i have a blood disease called iga deficiency with t cell defect. i did not know i had this until my son was 18 months old. no ne in family has this blood disease. so i was born with blood and immune disord. cathy Quote Link to comment Share on other sites More sharing options...
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