Jen

[Guest guest]

Jen

So sorry to hear that you're getting the w/c shuffle, we don't care attitude.

Can you not set up with the w/c doc to be seen everytime the bottles run out. Bet he'd do refills then LOL

By the time I finally stood up to the w/c doc, I had infection from my hand to my shoulder. He was to keep doing his half a$$ treatment, so I finally told him to send me to a 'real doctor' or get out his malpractice policy. He sent me with our mployee health nurse in tow to a hand surgeon that day.

I'm on neurontin, elavil, baclofen, morphine, celebrex, lidocaine patches, valium, remeron, clonidine patch, phenergan, provigil, and ultram.

Yes Tonia--I'm still on Neurontin, and we have no plans to switch it. It was bad enough having to give up the Vioxx and go onto Celebrex.

In a message dated 11/13/2004 11:42:23 PM Eastern Standard Time, RSD-CRPSofAmerica writes:

Subject: /DonnaI was actually attacked by a schizophrenic client. Although, mysupervisor was forcing us to force him to do something he didn'twant... so it was expected. Actually, I'm not on any meds. I can onlyget 2 doctors to see me - the WC doc who originally saw the signs ofRSD and sent me to be diagnosed but is now saying that there'sabsolutely nothing wrong with me, and a neurologist I saw inIndianapolis. But I can't get into him until the middle of January. Somy primary doc is the WC doc who doesn't do crap for me. I'm on nomeds, no pt, no nothing. Because my RSD originated in my left hand, Ican't even get any docs to look at my legs now that it's spread. I had5 stellate ganglion nerve blocks that were successful, but didn't givethe desired length of time and then the pain management docs keptswitching around my meds. I had a lot of side effects, but the onlything that worked was mexilatine 200mg daily. But the neurologist tookme off of that since the risks outweigh the benefits and put me onBextra which doesn't work. I was on elavil for a week, but the WC docdidn't give my any refills and hasn't seen me since. Okay.. I've been rambling. Sorry. I tend to do that. Have a good dayall. This seems to be a much more active group than the other I'm in.I like it. )Jen

[Guest guest]

Jen,

Hello, my name is Lyn. I joined this group recently although I

first developed RSD in 1994. I hope you find a dr right away to help

you with the pain. Unfortunately we not only have to battle the

disease but we have to battle the drs too. Glad you are here and

hope you will keep posting and make the special connections here

that can help you manage this crazy disease. With love and caring,

Lyn

>

>

> From: " Jen " <jdstephenson@m...>

> Subject: /Donna

>

>

> I was actually attacked by a schizophrenic client. Although, my

> supervisor was forcing us to force him to do something he didn't

> want... so it was expected. Actually, I'm not on any meds. I can

only

> get 2 doctors to see me - the WC doc who originally saw the signs

of

> RSD and sent me to be diagnosed but is now saying that there's

> absolutely nothing wrong with me, and a neurologist I saw in

> Indianapolis. But I can't get into him until the middle of

January. So

> my primary doc is the WC doc who doesn't do crap for me. I'm on no

> meds, no pt, no nothing. Because my RSD originated in my left

hand, I

> can't even get any docs to look at my legs now that it's spread.

I had

> 5 stellate ganglion nerve blocks that were successful, but didn't

give

> the desired length of time and then the pain management docs kept

> switching around my meds. I had a lot of side effects, but the

only

> thing that worked was mexilatine 200mg daily. But the neurologist

took

> me off of that since the risks outweigh the benefits and put me on

> Bextra which doesn't work. I was on elavil for a week, but the WC

doc

> didn't give my any refills and hasn't seen me since.

>

> Okay.. I've been rambling. Sorry. I tend to do that. Have a good

day

> all. This seems to be a much more active group than the other I'm

in.

> I like it. )

>

> Jen