Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 Well, we went to CT on May 1 for Devlan's casting, and his DOCBand arrived early, so he's been wearing it since May 11. We had to go back on the 12th for a tiny adjustment, but they saw us Friday afternoon with no problem. For the most part, he seems to be adjusting fine, but we are having an issue with heat rash under his cheek pieces. I towel him off several times a day, and clean with 91% alcohol. Has anyone else seen this? Any advice? On the insurance side, things are moving along...s l o w l y. Even though we were approved for Hanger, the ortho there had only done " six to ten " (her words) helmets in the year she's been doing helmets, so we decided to go with CT. Our ped gave us a retro- referral for DOC, but then that has to be denied by the HMO contractor before we can actually appeal to BlueShield. We'd like them to cover CT at the same level they would cover Hanger, but I think we're in for an uphill battle. Most of the appeal letters here are trying to get coverage, but we're going for a different (more qualified) provider. Hazel's letter was helpful, but she unfortunately had a huge mess she could point to to prove her point. Thanks in part to this group, we decided to go straight to CT rather than give a rather inexperienced ortho a crack at Devlan's skull, but in some ways that limits our ability to provide proof that Hanger is not qualified. (But better that than the possibility of things not working right). Anyone else in this position? Any advice/resources/success stories? Best regards, Mom to Devlan, 10 1/2 months, DOCBand Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006 Hi , It's great to hear that Devlan is on his way to a rounder noggin! It takes some babies some time to adjust their body temp to their band. Once he does, he shouldn't get anymore heat rashes. Are you dressing him lighter than you normally do? I'm sorry I can't help you with your insurance questions. Keep us posted on Devlan's progress and your insurance. Good luck! > > Well, we went to CT on May 1 for Devlan's casting, and his DOCBand arrived early, so he's > been wearing it since May 11. We had to go back on the 12th for a tiny adjustment, but > they saw us Friday afternoon with no problem. > > For the most part, he seems to be adjusting fine, but we are having an issue with heat rash > under his cheek pieces. I towel him off several times a day, and clean with 91% alcohol. > Has anyone else seen this? Any advice? > > On the insurance side, things are moving along...s l o w l y. Even though we were > approved for Hanger, the ortho there had only done " six to ten " (her words) helmets in the > year she's been doing helmets, so we decided to go with CT. Our ped gave us a retro- > referral for DOC, but then that has to be denied by the HMO contractor before we can > actually appeal to BlueShield. We'd like them to cover CT at the same level they would > cover Hanger, but I think we're in for an uphill battle. > > Most of the appeal letters here are trying to get coverage, but we're going for a different > (more qualified) provider. Hazel's letter was helpful, but she unfortunately had a huge > mess she could point to to prove her point. Thanks in part to this group, we decided to > go straight to CT rather than give a rather inexperienced ortho a crack at Devlan's skull, > but in some ways that limits our ability to provide proof that Hanger is not qualified. (But > better that than the possibility of things not working right). Anyone else in this position? > Any advice/resources/success stories? > > Best regards, > > > Mom to Devlan, 10 1/2 months, DOCBand > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006 Hi , Yes, I've striped him down to just a onesie. Before, I would usually have him in a footed playsuit. We've actually gone a little too cool and I think he was having trouble sleeping because his legs got too cold (that is, trouble aside from the thing on his head ), so I've been experimenting with different clothing/blanket/fan options for naps and bedtime. He actually likes to be really bundled up to sleep, but we've switched to a cooler cotton blanket from his usual fleece, so between that and lighter clothing, I think things are about where he needs them to be comfortable. Unfortunately, the ceiling fan is an issue for my older son, Logan. The two of them share a room, and Logan has some convoluted reasoning with leaps of logic only a 4 year old can make about why the ceiling fan is bad and would cut off his head. I think we'll have to get to the bottom of that particular problem as the weather warms up though. The heat rash looked a bit better this evening - so I guess he's adjusting. Regards, > > > > Well, we went to CT on May 1 for Devlan's casting, and his DOCBand > arrived early, so he's > > been wearing it since May 11. We had to go back on the 12th for a > tiny adjustment, but > > they saw us Friday afternoon with no problem. > > > > For the most part, he seems to be adjusting fine, but we are having > an issue with heat rash > > under his cheek pieces. I towel him off several times a day, and > clean with 91% alcohol. > > Has anyone else seen this? Any advice? > > > > On the insurance side, things are moving along...s l o w l y. Even > though we were > > approved for Hanger, the ortho there had only done " six to ten " (her > words) helmets in the > > year she's been doing helmets, so we decided to go with CT. Our ped > gave us a retro- > > referral for DOC, but then that has to be denied by the HMO > contractor before we can > > actually appeal to BlueShield. We'd like them to cover CT at the > same level they would > > cover Hanger, but I think we're in for an uphill battle. > > > > Most of the appeal letters here are trying to get coverage, but > we're going for a different > > (more qualified) provider. Hazel's letter was helpful, but she > unfortunately had a huge > > mess she could point to to prove her point. Thanks in part to this > group, we decided to > > go straight to CT rather than give a rather inexperienced ortho a > crack at Devlan's skull, > > but in some ways that limits our ability to provide proof that > Hanger is not qualified. (But > > better that than the possibility of things not working right). > Anyone else in this position? > > Any advice/resources/success stories? > > > > Best regards, > > > > > > Mom to Devlan, 10 1/2 months, DOCBand > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006 I'd love to be in the mind of a 4 year old. I'd love to know what and how they think. Pretty amazing stuff I'm sure. :-) I hope you're able to get to the bottom of why he thinks the ceiling fan will cut off his little head. Let us know what happens, please. I'm glad the heat rash looks better now. Keep us posted! -- In Plagiocephaly , " sigma147100 " <sigma147100@...> wrote: > > Hi , > > Yes, I've striped him down to just a onesie. Before, I would usually have him in a footed > playsuit. We've actually gone a little too cool and I think he was having trouble sleeping > because his legs got too cold (that is, trouble aside from the thing on his head ), so I've > been experimenting with different clothing/blanket/fan options for naps and bedtime. He > actually likes to be really bundled up to sleep, but we've switched to a cooler cotton > blanket from his usual fleece, so between that and lighter clothing, I think things are > about where he needs them to be comfortable. > > Unfortunately, the ceiling fan is an issue for my older son, Logan. The two of them share a > room, and Logan has some convoluted reasoning with leaps of logic only a 4 year old can > make about why the ceiling fan is bad and would cut off his head. I think we'll have to get > to the bottom of that particular problem as the weather warms up though. > > The heat rash looked a bit better this evening - so I guess he's adjusting. > > Regards, > > > > > > > > > > > > Well, we went to CT on May 1 for Devlan's casting, and his DOCBand > > arrived early, so he's > > > been wearing it since May 11. We had to go back on the 12th for a > > tiny adjustment, but > > > they saw us Friday afternoon with no problem. > > > > > > For the most part, he seems to be adjusting fine, but we are having > > an issue with heat rash > > > under his cheek pieces. I towel him off several times a day, and > > clean with 91% alcohol. > > > Has anyone else seen this? Any advice? > > > > > > On the insurance side, things are moving along...s l o w l y. Even > > though we were > > > approved for Hanger, the ortho there had only done " six to ten " (her > > words) helmets in the > > > year she's been doing helmets, so we decided to go with CT. Our ped > > gave us a retro- > > > referral for DOC, but then that has to be denied by the HMO > > contractor before we can > > > actually appeal to BlueShield. We'd like them to cover CT at the > > same level they would > > > cover Hanger, but I think we're in for an uphill battle. > > > > > > Most of the appeal letters here are trying to get coverage, but > > we're going for a different > > > (more qualified) provider. Hazel's letter was helpful, but she > > unfortunately had a huge > > > mess she could point to to prove her point. Thanks in part to this > > group, we decided to > > > go straight to CT rather than give a rather inexperienced ortho a > > crack at Devlan's skull, > > > but in some ways that limits our ability to provide proof that > > Hanger is not qualified. (But > > > better that than the possibility of things not working right). > > Anyone else in this position? > > > Any advice/resources/success stories? > > > > > > Best regards, > > > > > > > > > Mom to Devlan, 10 1/2 months, DOCBand > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006 Great to hear that Devlan has started with therapy. Hang in there as far as insurance goes. Sandy Willow's mom > > Well, we went to CT on May 1 for Devlan's casting, and his DOCBand arrived early, so he's > been wearing it since May 11. We had to go back on the 12th for a tiny adjustment, but > they saw us Friday afternoon with no problem. > > For the most part, he seems to be adjusting fine, but we are having an issue with heat rash > under his cheek pieces. I towel him off several times a day, and clean with 91% alcohol. > Has anyone else seen this? Any advice? > > On the insurance side, things are moving along...s l o w l y. Even though we were > approved for Hanger, the ortho there had only done " six to ten " (her words) helmets in the > year she's been doing helmets, so we decided to go with CT. Our ped gave us a retro- > referral for DOC, but then that has to be denied by the HMO contractor before we can > actually appeal to BlueShield. We'd like them to cover CT at the same level they would > cover Hanger, but I think we're in for an uphill battle. > > Most of the appeal letters here are trying to get coverage, but we're going for a different > (more qualified) provider. Hazel's letter was helpful, but she unfortunately had a huge > mess she could point to to prove her point. Thanks in part to this group, we decided to > go straight to CT rather than give a rather inexperienced ortho a crack at Devlan's skull, > but in some ways that limits our ability to provide proof that Hanger is not qualified. (But > better that than the possibility of things not working right). Anyone else in this position? > Any advice/resources/success stories? > > Best regards, > > > Mom to Devlan, 10 1/2 months, DOCBand > Quote Link to comment Share on other sites More sharing options...
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