Re: Los Angeles Lehrman vs. DOC band dilemma

[Guest guest]

YEA!!!!!!! I am so glad that you were able to get in to see a dr at Childrens and that they were able to get you where you need to be. I am so sorry you lost time w/ Lerman - What did the dr at childrens say about her asymmetry?

Is there a board somewhere that you can write a letter to about Lerman???

Jen

Mommy to 4...and 1 more!!!!

LULI'S HERE!

"Luli"

www.babiesonline.com/babies/j/jens5th/

[Guest guest]

I'm so glad that I found this group and that you all share your stories so generously. My ped referred me to Dr. Graham who doesn't have time to see us until the end of July/beginning of August, so he referred me directly to Lerman & Sons. Thanks because you may have helped me from suffering a similar experience to yours. Hopefully, this new path works- good luck!ennuigirl323 <mhack@...> wrote: I wanted to give you an update on our continuing helmet saga. Abrawas diagnosed with plagio at 5 mos and since we were at Cedars the pedrecommended us use Lehrman and Sons for a passive helmet. The helmetwas a real problem from the start. She developed a couple of bad hotspots and we couldn't use the helmet for a week. Then the ped, whoalso felt uncomfortable about the fit of the

helmet, sent us to aspecialist, Dr. Graham. Dr. Grahman, who is probably an excellentresearch doctor, has the bedside manner of a mortician. He manhandledour dd so badly that I was actually concerned for her safety. He tookmeasurements that did not even come close to matching the measurementsbeing taken by Lehrman. Further, he saw that the helmet was notfitting correctly and asked Lehrman to give us a new one – free ofcharge. I feel we lost valuable correction time due to the illfitting helmet. At 6½ months she got a new helmet which once again had fit problems. She developed foul oozing sores from it and once again it had to beremoved. The ped prescribed an antibacterial ointment ($75!!) and itseemed to resolve the problem but we still went into Lehrman at least5 times because of lining and fit issues. The final straw is when Inoticed that Abra was developing

asymmetry in her face. All of asudden my beautiful little girl was getting a crooked face. THAT DIDIT! Fortunately in Los Angeles there is another specialist, a pedneurologist, Dr. Krieger at Children's Hospital. We saw himyesterday and what a difference - Great communication skills andbedside manner. He told us that he couldn't recommend the Lehrmanhelmet because he feels that it doesn't correct the problem. Even ifa parent requests it, he will not write a prescription for it. Hehighly recommended the DOC band and we are going in today for a fitting. I really really hope that the DOC band is as good as he says becausewe are at our wits end. Further, she is now 7 mos and I feel thisdebacle with Lerhman cost us valuable correction time. Krieger feelsthat we are ok at 7 mos but the helmet has to be done now. He doesn'tlike to wait past 10 mos.

I will keep you updated as to our progresswith the DOC band and thank you for your support.

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[Guest guest]

Hi Tina,

Welcome to the group! What are your plans now? Keep us posted.

I wanted to give you an update on

our continuing helmet saga. Abra

> was diagnosed with plagio at 5 mos and since we were at Cedars the ped

> recommended us use Lehrman and Sons for a passive helmet. The helmet

> was a real problem from the start. She developed a couple of bad hot

> spots and we couldn't use the helmet for a week. Then the ped, who

> also felt uncomfortable about the fit of the helmet, sent us to a

> specialist, Dr. Graham. Dr. Grahman, who is probably an excellent

> research doctor, has the bedside manner of a mortician. He manhandled

> our dd so badly that I was actually concerned for her safety. He took

> measurements that did not even come close to matching the measurements

> being taken by Lehrman. Further, he saw that the helmet was not

> fitting correctly and asked Lehrman to give us a new one – free of

> charge. I feel we lost valuable correction time due to the ill

> fitting helmet.

>

> At 6½ months she got a new helmet which once again had fit problems.

> She developed foul oozing sores from it and once again it had to be

> removed. The ped prescribed an antibacterial ointment ($75!!) and it

> seemed to resolve the problem but we still went into Lehrman at least

> 5 times because of lining and fit issues. The final straw is when I

> noticed that Abra was developing asymmetry in her face. All of a

> sudden my beautiful little girl was getting a crooked face. THAT DID

> IT! Fortunately in Los Angeles there is another specialist, a ped

> neurologist, Dr. Krieger at Children's Hospital. We saw him

> yesterday and what a difference - Great communication skills and

> bedside manner. He told us that he couldn't recommend the Lehrman

> helmet because he feels that it doesn't correct the problem. Even if

> a parent requests it, he will not write a prescription for it. He

> highly recommended the DOC band and we are going in today for a

fitting.

>

> I really really hope that the DOC band is as good as he says because

> we are at our wits end. Further, she is now 7 mos and I feel this

> debacle with Lerhman cost us valuable correction time. Krieger feels

> that we are ok at 7 mos but the helmet has to be done now. He doesn't

> like to wait past 10 mos. I will keep you updated as to our progress

> with the DOC band and thank you for your support.

>

>

>

>

>

>

>

>

> For more plagio info