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Zanna, when you do get yourself to a doctor, I'd request your pancreas

checked out, as well. That can be done through a blood test. I haven't

admitted it yet, but I get what sounds the same type pain you have been

having. I get it every so often, and it's miserable. I don't know what causes

it, but have suspected gall bladder, pancreas, diverticulitis, or simply a

bad case of trapped intestinal gas. Sometimes it lasts several days but I

havent' had it last as long as you've had.once it went on for about a week. I

tend to have abdominal bloating when it occurs, too. At the very least, if

you can get those organs ruled out, that's a good thing :) I've had

pancreatitis twice and been told the pain is worse than kidney stones. I

don't want to ever have a kidney stone so I can compare, though! With the

acute pancreatitis, I had to be heavily drugged all the time in order to

withstand the pain. In the hospital, the nurse would come in well before the

last shot of demerol in the butt wore off.I never had to ask for it. I hadn't

realized this before, but being on Prednisone and perhaps some of these other

meds can make one more susceptible to pancreatitis. I doubt that's your

problem, because you'd not be able to stand it-period. When I had it, I

honestly thought I was going to die. Still, it's worth checking these things

out thoroughly. That internist should be fully capable of checking out the

possibilities for your pain, and he's nice and kind and interested, so I hope

you go! J.

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Zanna, when you do get yourself to a doctor, I'd request your pancreas

checked out, as well. That can be done through a blood test.

I did mention all the organs in that area when I requested my blood test tonight. Didn't think it was necessary......ARG. I have two lab orders that my rhuemy had given me to have done when I came back, so I will do that tomorrow after my treatment. I am not even so sure I should have my treatment tomorrow or not. I am still not convinced that there is not something wrong that is related to the treatment.

I hate to say it but I am pretty sure it is not trapped gas. I don't usually have a problem of it being 'trapped'!!! It gets itself free pretty often!!! LOL.

Zanna

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Zanna, when you do get yourself to a doctor, I'd request your pancreas

checked out, as well. That can be done through a blood test.

I did mention all the organs in that area when I requested my blood test tonight. Didn't think it was necessary......ARG. I have two lab orders that my rhuemy had given me to have done when I came back, so I will do that tomorrow after my treatment. I am not even so sure I should have my treatment tomorrow or not. I am still not convinced that there is not something wrong that is related to the treatment.

I hate to say it but I am pretty sure it is not trapped gas. I don't usually have a problem of it being 'trapped'!!! It gets itself free pretty often!!! LOL.

Zanna

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  • 2 weeks later...

Hi Zanna, LIT is where the inject the woman with some white blood cells from the husband to stimulate the immune system to 'block' the baby from attack.

That is very interesting. I have never heard of that. Boy the things they can do these days.....

Do you have any children yet?? I will say a prayer for you.

Dex is dexamethasone another steroid with less side effects. I don't even bother

with my local rheumies anymore. They were shockingly uninformed.

I didn't realize that there was another steroid choice. I will have to look this one up.

As far as rhuemies being shockingly uniformed-you said it, girl!!!!

My next step now that I have my reproductive issues addressed is to go to an

academic center like Hopkins to see if I have myositis, polymyositis etc. and meniere's disease.

I hope you are dx soon. The waiting and not knowing is the hardest part.

My hearing loss improved greatly with prednisone.

good to 'hear'. I couldn't resisist. LOL. You take care of yourself and get that dx so you can start to heal. Where do you live???

God bless,

Zanna

Zanna's myositis page

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