Guest guest Posted March 14, 2002 Report Share Posted March 14, 2002 I had a similar experiece when I was put on Zyrtec for the first (and only) time. I went in to the dr. with my " normal " hives (cholinergic, fairly small on my hands, arms, feet, legs) - after I took the first dose, within hours I had huge hives all over my body. I had hives in places I hadn't seen in the 3 years I had delt with them. I called the dr. and he said to double the dose! Although I thought it sounded crazy, I did what he said. I just got worse. Needless to say, I stopped the meds and my hives returned to normal. Since then, I have been afraid to try antihistamines and have been just living with things the way they are. I know the dr. did not believe that the Zyrtec made me worse -- I know better. It has been over a year since then I am getting desparate to find something that will help. I just may give meds a try again. If I get the same results, I guess my theory will be proven. Good luck to you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2002 Report Share Posted March 14, 2002 I had a similar experiece when I was put on Zyrtec for the first (and only) time. I went in to the dr. with my " normal " hives (cholinergic, fairly small on my hands, arms, feet, legs) - after I took the first dose, within hours I had huge hives all over my body. I had hives in places I hadn't seen in the 3 years I had delt with them. I called the dr. and he said to double the dose! Although I thought it sounded crazy, I did what he said. I just got worse. Needless to say, I stopped the meds and my hives returned to normal. Since then, I have been afraid to try antihistamines and have been just living with things the way they are. I know the dr. did not believe that the Zyrtec made me worse -- I know better. It has been over a year since then I am getting desparate to find something that will help. I just may give meds a try again. If I get the same results, I guess my theory will be proven. Good luck to you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2002 Report Share Posted March 14, 2002 I had a similar experiece when I was put on Zyrtec for the first (and only) time. I went in to the dr. with my " normal " hives (cholinergic, fairly small on my hands, arms, feet, legs) - after I took the first dose, within hours I had huge hives all over my body. I had hives in places I hadn't seen in the 3 years I had delt with them. I called the dr. and he said to double the dose! Although I thought it sounded crazy, I did what he said. I just got worse. Needless to say, I stopped the meds and my hives returned to normal. Since then, I have been afraid to try antihistamines and have been just living with things the way they are. I know the dr. did not believe that the Zyrtec made me worse -- I know better. It has been over a year since then I am getting desparate to find something that will help. I just may give meds a try again. If I get the same results, I guess my theory will be proven. Good luck to you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2002 Report Share Posted March 15, 2002 Dear Sue, Thank you for this article. I really have always wanted to know more about MSG. If I eat Japenese food (restaurant) my fingers will swell a little and I feel tired. Now I can find out why. Thanks again. Love Carolyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2002 Report Share Posted March 15, 2002 Dear Sue, Thank you for this article. I really have always wanted to know more about MSG. If I eat Japenese food (restaurant) my fingers will swell a little and I feel tired. Now I can find out why. Thanks again. Love Carolyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2003 Report Share Posted January 20, 2003 of those with ibm who get ivig, do you have problems with your potassiun level? Ann, I have PM but I did have a bad time with potassium. After one of my treatments, I misunderstood the doctors orders and didn't take the potassium supplements and had a defeciency which caused vomitting, diarrhea, muscle cramping and severe nausea. It was like the flu times 100. It was horrible but the good thing is that if you take the supplement, you are back to 'normal' almost immediately...... Zanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2003 Report Share Posted January 20, 2003 of those with ibm who get ivig, do you have problems with your potassiun level? Ann, I have PM but I did have a bad time with potassium. After one of my treatments, I misunderstood the doctors orders and didn't take the potassium supplements and had a defeciency which caused vomitting, diarrhea, muscle cramping and severe nausea. It was like the flu times 100. It was horrible but the good thing is that if you take the supplement, you are back to 'normal' almost immediately...... Zanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2003 Report Share Posted January 20, 2003 What good timing! I have been feeling really tired since last Thursday. Have had diarrhea twice. Been having hot flashes and cold chills. Have to sleep a lot. Wondering when I am going to get better. I will try taking some potassium for a few days and see if it helps. Everything takes so long to do. I don't even want to go out of the house anymore...so much work. Glad to see everyone posting again. I was going into withdrawals last night when no one was around! Vickie of those with ibm who get ivig, do you have problems with your potassiun level? Ann, I have PM but I did have a bad time with potassium. After one of my treatments, I misunderstood the doctors orders and didn't take the potassium supplements and had a defeciency which caused vomitting, diarrhea, muscle cramping and severe nausea. It was like the flu times 100. It was horrible but the good thing is that if you take the supplement, you are back to 'normal' almost immediately...... Zanna Check out my website: http//:www.vickieenkoff.com Check my Ebay Auctions: http://members.ebay.com/aboutme/vickieenkoff/ Creative Choices Group: http://groups.yahoo.com/group/creativechoices/promote  Creative Chaos group: http://groups.yahoo.com/group/creativechaos/promote  Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2003 Report Share Posted January 20, 2003 What good timing! I have been feeling really tired since last Thursday. Have had diarrhea twice. Been having hot flashes and cold chills. Have to sleep a lot. Wondering when I am going to get better. I will try taking some potassium for a few days and see if it helps. Everything takes so long to do. I don't even want to go out of the house anymore...so much work. Glad to see everyone posting again. I was going into withdrawals last night when no one was around! Vickie of those with ibm who get ivig, do you have problems with your potassiun level? Ann, I have PM but I did have a bad time with potassium. After one of my treatments, I misunderstood the doctors orders and didn't take the potassium supplements and had a defeciency which caused vomitting, diarrhea, muscle cramping and severe nausea. It was like the flu times 100. It was horrible but the good thing is that if you take the supplement, you are back to 'normal' almost immediately...... Zanna Check out my website: http//:www.vickieenkoff.com Check my Ebay Auctions: http://members.ebay.com/aboutme/vickieenkoff/ Creative Choices Group: http://groups.yahoo.com/group/creativechoices/promote  Creative Chaos group: http://groups.yahoo.com/group/creativechaos/promote  Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2003 Report Share Posted January 20, 2003 Vickie, Are you taking a diruetic too? I am on a diuretic and potassium. I took the diuretic and not the potassium when that happened. That was my big mistake. I couldn't stand up for about 24 hours except to get to the bathroom because I had too. Zanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2003 Report Share Posted January 20, 2003 No I am not on a diruetic. I don't know what is setting me off, but have been having problems with diarrhea, cramps, more weakness, falling -- all since thursday. I don't think I was all that active last week. I'm having a meltdown....not able to get things done, not able to sleep, but my body is so tired. I think I am starting to stress over the bills and wondering how long I will be off work and if I can figure out how to make enough money to not have to go back to work. I went out with my sister-in-law today. We went to lunch and to 2 bookstores. I was in the wheelchair, so just getting in and out to the car was the most effort. I came home and I was so wiped out. We were only gone less than 4 hours. I just feel so frustrated. The house is getting so messy and I just can't get it together to even make sure the checkbook is balanced and the bills are paid. Most of them are on automatic deductions, so I haven't had any major problems, but I just don't know where we stand. I don't think my family and friends really understand how hard it is for me. I sent them Stan's website so I hope they read it. Sometimes I feel like they think I am faking it or being a drama queen. Anyway, guess I will go try to balance my checkbook and at least know where we stand. I think I have to find $500 from somewhere to pay this weeks bills. Sorry to vent, shouldn't send this, but sometimes this is the only place where I feel understood. Vickie a message dated 1/20/2003 10:37:14 PM Pacific Standard Time, mrsxanadu@... writes: Vickie, Are you taking a diruetic too? I am on a diuretic and potassium. I took the diuretic and not the potassium when that happened. That was my big mistake. I couldn't stand up for about 24 hours except to get to the bathroom because I had too. Zanna Check out my website: http//:www.vickieenkoff.com Check my Ebay Auctions: http://members.ebay.com/aboutme/vickieenkoff/ Creative Choices Group: http://groups.yahoo.com/group/creativechoices/promote  Creative Chaos group: http://groups.yahoo.com/group/creativechaos/promote  Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2003 Report Share Posted January 20, 2003 No I am not on a diruetic. I don't know what is setting me off, but have been having problems with diarrhea, cramps, more weakness, falling -- all since thursday. I don't think I was all that active last week. I'm having a meltdown....not able to get things done, not able to sleep, but my body is so tired. I think I am starting to stress over the bills and wondering how long I will be off work and if I can figure out how to make enough money to not have to go back to work. I went out with my sister-in-law today. We went to lunch and to 2 bookstores. I was in the wheelchair, so just getting in and out to the car was the most effort. I came home and I was so wiped out. We were only gone less than 4 hours. I just feel so frustrated. The house is getting so messy and I just can't get it together to even make sure the checkbook is balanced and the bills are paid. Most of them are on automatic deductions, so I haven't had any major problems, but I just don't know where we stand. I don't think my family and friends really understand how hard it is for me. I sent them Stan's website so I hope they read it. Sometimes I feel like they think I am faking it or being a drama queen. Anyway, guess I will go try to balance my checkbook and at least know where we stand. I think I have to find $500 from somewhere to pay this weeks bills. Sorry to vent, shouldn't send this, but sometimes this is the only place where I feel understood. Vickie a message dated 1/20/2003 10:37:14 PM Pacific Standard Time, mrsxanadu@... writes: Vickie, Are you taking a diruetic too? I am on a diuretic and potassium. I took the diuretic and not the potassium when that happened. That was my big mistake. I couldn't stand up for about 24 hours except to get to the bathroom because I had too. Zanna Check out my website: http//:www.vickieenkoff.com Check my Ebay Auctions: http://members.ebay.com/aboutme/vickieenkoff/ Creative Choices Group: http://groups.yahoo.com/group/creativechoices/promote  Creative Chaos group: http://groups.yahoo.com/group/creativechaos/promote  Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2003 Report Share Posted January 20, 2003 No I am not on a diruetic. I don't know what is setting me off, but have been having problems with diarrhea, cramps, more weakness, falling -- all since thursday. I don't think I was all that active last week. I'm having a meltdown....not able to get things done, not able to sleep, but my body is so tired. I think I am starting to stress over the bills and wondering how long I will be off work and if I can figure out how to make enough money to not have to go back to work. I went out with my sister-in-law today. We went to lunch and to 2 bookstores. I was in the wheelchair, so just getting in and out to the car was the most effort. I came home and I was so wiped out. We were only gone less than 4 hours. I just feel so frustrated. The house is getting so messy and I just can't get it together to even make sure the checkbook is balanced and the bills are paid. Most of them are on automatic deductions, so I haven't had any major problems, but I just don't know where we stand. I don't think my family and friends really understand how hard it is for me. I sent them Stan's website so I hope they read it. Sometimes I feel like they think I am faking it or being a drama queen. Anyway, guess I will go try to balance my checkbook and at least know where we stand. I think I have to find $500 from somewhere to pay this weeks bills. Sorry to vent, shouldn't send this, but sometimes this is the only place where I feel understood. Vickie a message dated 1/20/2003 10:37:14 PM Pacific Standard Time, mrsxanadu@... writes: Vickie, Are you taking a diruetic too? I am on a diuretic and potassium. I took the diuretic and not the potassium when that happened. That was my big mistake. I couldn't stand up for about 24 hours except to get to the bathroom because I had too. Zanna Check out my website: http//:www.vickieenkoff.com Check my Ebay Auctions: http://members.ebay.com/aboutme/vickieenkoff/ Creative Choices Group: http://groups.yahoo.com/group/creativechoices/promote  Creative Chaos group: http://groups.yahoo.com/group/creativechaos/promote  Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2003 Report Share Posted January 20, 2003 No I am not on a diruetic. I don't know what is setting me off, but have been having problems with diarrhea, cramps, more weakness, falling -- all since thursday. Have you called your doctor about all of this?? I think you should have them test your potassium levels. You should have it tested though because you can have a problem with too much too! I don't think I was all that active last week. I'm having a meltdown....not able to get things done, not able to sleep, but my body is so tired. I think I am starting to stress over the bills and wondering how long I will be off work and if I can figure out how to make enough money to not have to go back to work. I can relate!! Tired all day, wide awake at night, tired body. I sometimes wonder what I can do to make myself go just 10 more minutes or 5 more feet.... I went out with my sister-in-law today. We went to lunch and to 2 bookstores. I was in the wheelchair, so just getting in and out to the car was the most effort. I came home and I was so wiped out. We were only gone less than 4 hours. I just feel so frustrated. Just being out can tire you out. I went to San Diego Zoo with my sister 2 years ago and I rented and electric scooter and I was beat by the end of the day. It is frustrating. Have you gotten on an anti-depressant yet?? You should if you havent' already. The house is getting so messy and I just can't get it together to even make sure the checkbook is balanced and the bills are paid. Most of them are on automatic deductions, so I haven't had any major problems, but I just don't know where we stand. I can't keep up with my housework. My paperwork is so far behind but I am trying to finish it this week because I need to start getting our tax stuff together...I went on-line to check my account today and found out that the groceries I paid for last week (266.00) were charged to my account twice. I emailed them and told them that if I bounced any checks due to their error, I would hold them responsible for the fees and that they need to fix this error immediately......I am a little frantic about that. I don't think my family and friends really understand how hard it is for me. I sent them Stan's website so I hope they read it. Sometimes I feel like they think I am faking it or being a drama queen. Family and friends are the hardest ones sometimes to convince because they see you at your good times too and for the simple fact that they just don't want to face that this is happening 'to them'....You should send them mine and Vicki's website's too, as many as you can find. I printed mine for my MIL because they don't have internet and she has had a new found respect for me ever since she read it. She even confessed to me that she cried when she read it because she didn't realize how this was really affecting me I tend to tell everyone 'I am fine' because I don't want to explain it all.....my FIL asked me the other day 'do you go to the doctor EVERY week???'. I said ,'YES, sometimes I do, if I have to...'. He is the hard one. I don't think he believes that I should be at home. I think he thinks I am perfectly healthy. He is one of those people that can't deal with anything that is not perfect. Well, his idea of perfect anyway. Anyway, guess I will go try to balance my checkbook and at least know where we stand. I think I have to find $500 from somewhere to pay this weeks bills. Good luck with finding the extra money. If you can figure it out, let me know how it's done!! LOL. I could use some extra too!!! Sorry to vent, shouldn't send this, but sometimes this is the only place where I feel understood. Don't apologize for venting, that is why we are are. I feel more understood here than anywhere else too..... Take care and don't stress, it will make the disease worse... Zanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2003 Report Share Posted January 20, 2003 No I am not on a diruetic. I don't know what is setting me off, but have been having problems with diarrhea, cramps, more weakness, falling -- all since thursday. Have you called your doctor about all of this?? I think you should have them test your potassium levels. You should have it tested though because you can have a problem with too much too! I don't think I was all that active last week. I'm having a meltdown....not able to get things done, not able to sleep, but my body is so tired. I think I am starting to stress over the bills and wondering how long I will be off work and if I can figure out how to make enough money to not have to go back to work. I can relate!! Tired all day, wide awake at night, tired body. I sometimes wonder what I can do to make myself go just 10 more minutes or 5 more feet.... I went out with my sister-in-law today. We went to lunch and to 2 bookstores. I was in the wheelchair, so just getting in and out to the car was the most effort. I came home and I was so wiped out. We were only gone less than 4 hours. I just feel so frustrated. Just being out can tire you out. I went to San Diego Zoo with my sister 2 years ago and I rented and electric scooter and I was beat by the end of the day. It is frustrating. Have you gotten on an anti-depressant yet?? You should if you havent' already. The house is getting so messy and I just can't get it together to even make sure the checkbook is balanced and the bills are paid. Most of them are on automatic deductions, so I haven't had any major problems, but I just don't know where we stand. I can't keep up with my housework. My paperwork is so far behind but I am trying to finish it this week because I need to start getting our tax stuff together...I went on-line to check my account today and found out that the groceries I paid for last week (266.00) were charged to my account twice. I emailed them and told them that if I bounced any checks due to their error, I would hold them responsible for the fees and that they need to fix this error immediately......I am a little frantic about that. I don't think my family and friends really understand how hard it is for me. I sent them Stan's website so I hope they read it. Sometimes I feel like they think I am faking it or being a drama queen. Family and friends are the hardest ones sometimes to convince because they see you at your good times too and for the simple fact that they just don't want to face that this is happening 'to them'....You should send them mine and Vicki's website's too, as many as you can find. I printed mine for my MIL because they don't have internet and she has had a new found respect for me ever since she read it. She even confessed to me that she cried when she read it because she didn't realize how this was really affecting me I tend to tell everyone 'I am fine' because I don't want to explain it all.....my FIL asked me the other day 'do you go to the doctor EVERY week???'. I said ,'YES, sometimes I do, if I have to...'. He is the hard one. I don't think he believes that I should be at home. I think he thinks I am perfectly healthy. He is one of those people that can't deal with anything that is not perfect. Well, his idea of perfect anyway. Anyway, guess I will go try to balance my checkbook and at least know where we stand. I think I have to find $500 from somewhere to pay this weeks bills. Good luck with finding the extra money. If you can figure it out, let me know how it's done!! LOL. I could use some extra too!!! Sorry to vent, shouldn't send this, but sometimes this is the only place where I feel understood. Don't apologize for venting, that is why we are are. I feel more understood here than anywhere else too..... Take care and don't stress, it will make the disease worse... Zanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2003 Report Share Posted January 20, 2003 No I am not on a diruetic. I don't know what is setting me off, but have been having problems with diarrhea, cramps, more weakness, falling -- all since thursday. Have you called your doctor about all of this?? I think you should have them test your potassium levels. You should have it tested though because you can have a problem with too much too! I don't think I was all that active last week. I'm having a meltdown....not able to get things done, not able to sleep, but my body is so tired. I think I am starting to stress over the bills and wondering how long I will be off work and if I can figure out how to make enough money to not have to go back to work. I can relate!! Tired all day, wide awake at night, tired body. I sometimes wonder what I can do to make myself go just 10 more minutes or 5 more feet.... I went out with my sister-in-law today. We went to lunch and to 2 bookstores. I was in the wheelchair, so just getting in and out to the car was the most effort. I came home and I was so wiped out. We were only gone less than 4 hours. I just feel so frustrated. Just being out can tire you out. I went to San Diego Zoo with my sister 2 years ago and I rented and electric scooter and I was beat by the end of the day. It is frustrating. Have you gotten on an anti-depressant yet?? You should if you havent' already. The house is getting so messy and I just can't get it together to even make sure the checkbook is balanced and the bills are paid. Most of them are on automatic deductions, so I haven't had any major problems, but I just don't know where we stand. I can't keep up with my housework. My paperwork is so far behind but I am trying to finish it this week because I need to start getting our tax stuff together...I went on-line to check my account today and found out that the groceries I paid for last week (266.00) were charged to my account twice. I emailed them and told them that if I bounced any checks due to their error, I would hold them responsible for the fees and that they need to fix this error immediately......I am a little frantic about that. I don't think my family and friends really understand how hard it is for me. I sent them Stan's website so I hope they read it. Sometimes I feel like they think I am faking it or being a drama queen. Family and friends are the hardest ones sometimes to convince because they see you at your good times too and for the simple fact that they just don't want to face that this is happening 'to them'....You should send them mine and Vicki's website's too, as many as you can find. I printed mine for my MIL because they don't have internet and she has had a new found respect for me ever since she read it. She even confessed to me that she cried when she read it because she didn't realize how this was really affecting me I tend to tell everyone 'I am fine' because I don't want to explain it all.....my FIL asked me the other day 'do you go to the doctor EVERY week???'. I said ,'YES, sometimes I do, if I have to...'. He is the hard one. I don't think he believes that I should be at home. I think he thinks I am perfectly healthy. He is one of those people that can't deal with anything that is not perfect. Well, his idea of perfect anyway. Anyway, guess I will go try to balance my checkbook and at least know where we stand. I think I have to find $500 from somewhere to pay this weeks bills. Good luck with finding the extra money. If you can figure it out, let me know how it's done!! LOL. I could use some extra too!!! Sorry to vent, shouldn't send this, but sometimes this is the only place where I feel understood. Don't apologize for venting, that is why we are are. I feel more understood here than anywhere else too..... Take care and don't stress, it will make the disease worse... Zanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2003 Report Share Posted January 20, 2003 Hi Zanna, I think I will call my doctor tomorrow and see if anything needs to be done. Last September I remember talking to her because my potassium and salt levels were getting messed up (that was before I was diagnosed) and she was monitoring it for awhile, but I haven't been to my regular doctor since. I had just been seeing my neurologist and my rheumy since I was diagnosed in October. The regular doctor went on maternity leave and I haven't rescheduled since she has been back. I'm on 2 antidepressants--Prozac, 60 mg, and Trazedone 150 mg. first in the morning and 2nd at night. I don't know if I am depressed. I want to do things and enjoy when I can do things. I think it is more stress than depression. I guess we shall see if it continues. Geesh, hard enough to stay calm about the bills, without them charging you twice! I will figure out something to do about the money. Hubby just stresses out too much and it gets me going. I think you are right about family and friends. They see me move around ok one time and the next time I can't do something and they wonder what is going on. And it is so hard for me to ask people to do things. I hate to impose and I hate being dependent. I know I just need to be more patient and wait for the meds to start working. I really appreciate your being here! Vickie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2003 Report Share Posted January 20, 2003 Hi Zanna, I think I will call my doctor tomorrow and see if anything needs to be done. Last September I remember talking to her because my potassium and salt levels were getting messed up (that was before I was diagnosed) and she was monitoring it for awhile, but I haven't been to my regular doctor since. I had just been seeing my neurologist and my rheumy since I was diagnosed in October. The regular doctor went on maternity leave and I haven't rescheduled since she has been back. I'm on 2 antidepressants--Prozac, 60 mg, and Trazedone 150 mg. first in the morning and 2nd at night. I don't know if I am depressed. I want to do things and enjoy when I can do things. I think it is more stress than depression. I guess we shall see if it continues. Geesh, hard enough to stay calm about the bills, without them charging you twice! I will figure out something to do about the money. Hubby just stresses out too much and it gets me going. I think you are right about family and friends. They see me move around ok one time and the next time I can't do something and they wonder what is going on. And it is so hard for me to ask people to do things. I hate to impose and I hate being dependent. I know I just need to be more patient and wait for the meds to start working. I really appreciate your being here! Vickie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2003 Report Share Posted January 20, 2003 Hi Zanna, I think I will call my doctor tomorrow and see if anything needs to be done. Last September I remember talking to her because my potassium and salt levels were getting messed up (that was before I was diagnosed) and she was monitoring it for awhile, but I haven't been to my regular doctor since. I had just been seeing my neurologist and my rheumy since I was diagnosed in October. The regular doctor went on maternity leave and I haven't rescheduled since she has been back. I'm on 2 antidepressants--Prozac, 60 mg, and Trazedone 150 mg. first in the morning and 2nd at night. I don't know if I am depressed. I want to do things and enjoy when I can do things. I think it is more stress than depression. I guess we shall see if it continues. Geesh, hard enough to stay calm about the bills, without them charging you twice! I will figure out something to do about the money. Hubby just stresses out too much and it gets me going. I think you are right about family and friends. They see me move around ok one time and the next time I can't do something and they wonder what is going on. And it is so hard for me to ask people to do things. I hate to impose and I hate being dependent. I know I just need to be more patient and wait for the meds to start working. I really appreciate your being here! Vickie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2003 Report Share Posted January 21, 2003 Thanks Dawn! Yes, I tell my doctor every visit that I am not getting better and he keeps saying to give it time. He is going to reassess my treatment plan after my 3rd IVIg which is Jan 31. I know what you mean about being afraid to tell hubby about the bills. Mine gets so stressed out, that it makes me stressed out. I am still current on all the bills and trying hard to stay that way. We have a lot of credit card debt and I have low interest rates on them, but if I get behind on anything, the interest rates will go up and I don't know if we could handle the payments at higher interest rates! I am going to find some extra stuff to sell on ebay and hopefully that will keep me up-to-date. I balanced the checkbook and looked at our budget last night and I don't have to worry for another month, so that helps. I would love to hire someone to clean the house. I used to do that every once in awhile when I was working, but can't afford that right now. My daughter said she would help me this weekend, so I hope she does. Vickie Feel free to vent anytime you need to, Vickie. That's what's so great about this group. Even when we don't feel able to turn to our friends or family, the rest of us are always here to lean on. I'm sorry you're still feeling so crummy. Seems to me you should be feeling better by now. Have you mentioned this to your Dr. since you've been taking IVIg? I too am really fretting about $$. I worked out a budget and we were doing pretty good at following it, until I landed in the hospital (which coincided with Christmas) and ever since, we're doing TERRIBLY with our finances. Well, we're a month behind on all our bills and have yet to pay Jan. rent. I'm really beginning to panic and I'm too scared to tell hubby. I'm hoping he can get some $$ from his mom again. Anyway, I definately know where you're coming from. As for the house and the rest, don't fret. It will still be there when you are feeling better (unfortunately). Actually, when I start getting my disability, I want to have someone come in to clean for me just a few hours a week. I think that would lighten the load somewhat. I love to cook, but can't stand the cleaning part. Dawn chaosposte@... wrote: > No I am not on a diruetic. I don't know what is setting me off, but >have been having problems with diarrhea, cramps, more weakness, >falling -- all since thursday. I don't think I was all that active >last week. I'm having a meltdown....not able to get things done, not >able to sleep, but my body is so tired. I think I am starting to >stress over the bills and wondering how long I will be off work and if >I can figure out how to make enough money to not have to go back to >work. > >I went out with my sister-in-law today. We went to lunch and to 2 >bookstores. I was in the wheelchair, so just getting in and out to >the car was the most effort. I came home and I was so wiped out. We >were only gone less than 4 hours. I just feel so frustrated. The >house is getting so messy and I just can't get it together to even >make sure the checkbook is balanced and the bills are paid. Most of >them are on automatic deductions, so I haven't had any major problems, >but I just don't know where we stand. > >I don't think my family and friends really understand how hard it is >for me. I sent them Stan's website so I hope they read it. Sometimes >I feel like they think I am faking it or being a drama queen. > >Anyway, guess I will go try to balance my checkbook and at least know >where we stand. I think I have to find $500 from somewhere to pay >this weeks bills. > >Sorry to vent, shouldn't send this, but sometimes this is the only >place where I feel understood. > >Vickie > >a message dated 1/20/2003 10:37:14 PM Pacific Standard Time, >mrsxanadu@... writes: > > >>Vickie, >>Are you taking a diruetic too? I am on a diuretic and potassium. I >>took the diuretic and not the potassium when that happened. That >>was my big mistake. I couldn't stand up for about 24 hours except >>to get to the bathroom because I had too. >> >>Zanna > > Check out my website: http//:www.vickieenkoff.com Check my Ebay Auctions: http://members.ebay.com/aboutme/vickieenkoff/ Creative Choices Group: http://groups.yahoo.com/group/creativechoices/promote  Creative Chaos group: http://groups.yahoo.com/group/creativechaos/promote  Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2003 Report Share Posted January 21, 2003 Thanks Dawn! Yes, I tell my doctor every visit that I am not getting better and he keeps saying to give it time. He is going to reassess my treatment plan after my 3rd IVIg which is Jan 31. I know what you mean about being afraid to tell hubby about the bills. Mine gets so stressed out, that it makes me stressed out. I am still current on all the bills and trying hard to stay that way. We have a lot of credit card debt and I have low interest rates on them, but if I get behind on anything, the interest rates will go up and I don't know if we could handle the payments at higher interest rates! I am going to find some extra stuff to sell on ebay and hopefully that will keep me up-to-date. I balanced the checkbook and looked at our budget last night and I don't have to worry for another month, so that helps. I would love to hire someone to clean the house. I used to do that every once in awhile when I was working, but can't afford that right now. My daughter said she would help me this weekend, so I hope she does. Vickie Feel free to vent anytime you need to, Vickie. That's what's so great about this group. Even when we don't feel able to turn to our friends or family, the rest of us are always here to lean on. I'm sorry you're still feeling so crummy. Seems to me you should be feeling better by now. Have you mentioned this to your Dr. since you've been taking IVIg? I too am really fretting about $$. I worked out a budget and we were doing pretty good at following it, until I landed in the hospital (which coincided with Christmas) and ever since, we're doing TERRIBLY with our finances. Well, we're a month behind on all our bills and have yet to pay Jan. rent. I'm really beginning to panic and I'm too scared to tell hubby. I'm hoping he can get some $$ from his mom again. Anyway, I definately know where you're coming from. As for the house and the rest, don't fret. It will still be there when you are feeling better (unfortunately). Actually, when I start getting my disability, I want to have someone come in to clean for me just a few hours a week. I think that would lighten the load somewhat. I love to cook, but can't stand the cleaning part. Dawn chaosposte@... wrote: > No I am not on a diruetic. I don't know what is setting me off, but >have been having problems with diarrhea, cramps, more weakness, >falling -- all since thursday. I don't think I was all that active >last week. I'm having a meltdown....not able to get things done, not >able to sleep, but my body is so tired. I think I am starting to >stress over the bills and wondering how long I will be off work and if >I can figure out how to make enough money to not have to go back to >work. > >I went out with my sister-in-law today. We went to lunch and to 2 >bookstores. I was in the wheelchair, so just getting in and out to >the car was the most effort. I came home and I was so wiped out. We >were only gone less than 4 hours. I just feel so frustrated. The >house is getting so messy and I just can't get it together to even >make sure the checkbook is balanced and the bills are paid. Most of >them are on automatic deductions, so I haven't had any major problems, >but I just don't know where we stand. > >I don't think my family and friends really understand how hard it is >for me. I sent them Stan's website so I hope they read it. Sometimes >I feel like they think I am faking it or being a drama queen. > >Anyway, guess I will go try to balance my checkbook and at least know >where we stand. I think I have to find $500 from somewhere to pay >this weeks bills. > >Sorry to vent, shouldn't send this, but sometimes this is the only >place where I feel understood. > >Vickie > >a message dated 1/20/2003 10:37:14 PM Pacific Standard Time, >mrsxanadu@... writes: > > >>Vickie, >>Are you taking a diruetic too? I am on a diuretic and potassium. I >>took the diuretic and not the potassium when that happened. That >>was my big mistake. I couldn't stand up for about 24 hours except >>to get to the bathroom because I had too. >> >>Zanna > > Check out my website: http//:www.vickieenkoff.com Check my Ebay Auctions: http://members.ebay.com/aboutme/vickieenkoff/ Creative Choices Group: http://groups.yahoo.com/group/creativechoices/promote  Creative Chaos group: http://groups.yahoo.com/group/creativechaos/promote  Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2003 Report Share Posted January 21, 2003 Thanks Dawn! Yes, I tell my doctor every visit that I am not getting better and he keeps saying to give it time. He is going to reassess my treatment plan after my 3rd IVIg which is Jan 31. I know what you mean about being afraid to tell hubby about the bills. Mine gets so stressed out, that it makes me stressed out. I am still current on all the bills and trying hard to stay that way. We have a lot of credit card debt and I have low interest rates on them, but if I get behind on anything, the interest rates will go up and I don't know if we could handle the payments at higher interest rates! I am going to find some extra stuff to sell on ebay and hopefully that will keep me up-to-date. I balanced the checkbook and looked at our budget last night and I don't have to worry for another month, so that helps. I would love to hire someone to clean the house. I used to do that every once in awhile when I was working, but can't afford that right now. My daughter said she would help me this weekend, so I hope she does. Vickie Feel free to vent anytime you need to, Vickie. That's what's so great about this group. Even when we don't feel able to turn to our friends or family, the rest of us are always here to lean on. I'm sorry you're still feeling so crummy. Seems to me you should be feeling better by now. Have you mentioned this to your Dr. since you've been taking IVIg? I too am really fretting about $$. I worked out a budget and we were doing pretty good at following it, until I landed in the hospital (which coincided with Christmas) and ever since, we're doing TERRIBLY with our finances. Well, we're a month behind on all our bills and have yet to pay Jan. rent. I'm really beginning to panic and I'm too scared to tell hubby. I'm hoping he can get some $$ from his mom again. Anyway, I definately know where you're coming from. As for the house and the rest, don't fret. It will still be there when you are feeling better (unfortunately). Actually, when I start getting my disability, I want to have someone come in to clean for me just a few hours a week. I think that would lighten the load somewhat. I love to cook, but can't stand the cleaning part. Dawn chaosposte@... wrote: > No I am not on a diruetic. I don't know what is setting me off, but >have been having problems with diarrhea, cramps, more weakness, >falling -- all since thursday. I don't think I was all that active >last week. I'm having a meltdown....not able to get things done, not >able to sleep, but my body is so tired. I think I am starting to >stress over the bills and wondering how long I will be off work and if >I can figure out how to make enough money to not have to go back to >work. > >I went out with my sister-in-law today. We went to lunch and to 2 >bookstores. I was in the wheelchair, so just getting in and out to >the car was the most effort. I came home and I was so wiped out. We >were only gone less than 4 hours. I just feel so frustrated. The >house is getting so messy and I just can't get it together to even >make sure the checkbook is balanced and the bills are paid. Most of >them are on automatic deductions, so I haven't had any major problems, >but I just don't know where we stand. > >I don't think my family and friends really understand how hard it is >for me. I sent them Stan's website so I hope they read it. Sometimes >I feel like they think I am faking it or being a drama queen. > >Anyway, guess I will go try to balance my checkbook and at least know >where we stand. I think I have to find $500 from somewhere to pay >this weeks bills. > >Sorry to vent, shouldn't send this, but sometimes this is the only >place where I feel understood. > >Vickie > >a message dated 1/20/2003 10:37:14 PM Pacific Standard Time, >mrsxanadu@... writes: > > >>Vickie, >>Are you taking a diruetic too? I am on a diuretic and potassium. I >>took the diuretic and not the potassium when that happened. That >>was my big mistake. I couldn't stand up for about 24 hours except >>to get to the bathroom because I had too. >> >>Zanna > > Check out my website: http//:www.vickieenkoff.com Check my Ebay Auctions: http://members.ebay.com/aboutme/vickieenkoff/ Creative Choices Group: http://groups.yahoo.com/group/creativechoices/promote  Creative Chaos group: http://groups.yahoo.com/group/creativechaos/promote  Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2003 Report Share Posted January 21, 2003 Hi Lynn! I know what you mean about being a government employee. I've been a federal employee and a county employee. The work just doesn't let up and they keep adding more until you just can't take it anymore! You are in my thoughts and I hope that you don't get caught in the cut. Vickie It's hard to worry about $$ -- I do, too. At my work, they are doing these expensive reviews to figure out how to downsize. It's scary, in light of how much time I've been off and all. They offered an early out (I couldn't take it) and hoped to get 400-600 people to go, they only got about 250. So the reductions have to come from somewhere...yet the workload doesn't change. And people continue to make fun of us federal employees...they have no clue how hard we work...well, that's life! But, Dawn, you have to tell Kirk. The longer you wait, the worse it will be! How can he borrow, if he doesn't know there's a need? The longer you wait, the worse it will be...you know that. Gosh, I wish I could help you guys! Darn.... Lynn Check out my website: http//:www.vickieenkoff.com Check my Ebay Auctions: http://members.ebay.com/aboutme/vickieenkoff/ Creative Choices Group: http://groups.yahoo.com/group/creativechoices/promote  Creative Chaos group: http://groups.yahoo.com/group/creativechaos/promote  Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2003 Report Share Posted January 21, 2003 Hi Lynn! I know what you mean about being a government employee. I've been a federal employee and a county employee. The work just doesn't let up and they keep adding more until you just can't take it anymore! You are in my thoughts and I hope that you don't get caught in the cut. Vickie It's hard to worry about $$ -- I do, too. At my work, they are doing these expensive reviews to figure out how to downsize. It's scary, in light of how much time I've been off and all. They offered an early out (I couldn't take it) and hoped to get 400-600 people to go, they only got about 250. So the reductions have to come from somewhere...yet the workload doesn't change. And people continue to make fun of us federal employees...they have no clue how hard we work...well, that's life! But, Dawn, you have to tell Kirk. The longer you wait, the worse it will be! How can he borrow, if he doesn't know there's a need? The longer you wait, the worse it will be...you know that. Gosh, I wish I could help you guys! Darn.... Lynn Check out my website: http//:www.vickieenkoff.com Check my Ebay Auctions: http://members.ebay.com/aboutme/vickieenkoff/ Creative Choices Group: http://groups.yahoo.com/group/creativechoices/promote  Creative Chaos group: http://groups.yahoo.com/group/creativechaos/promote  Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2003 Report Share Posted January 21, 2003 Hi Lynn! I know what you mean about being a government employee. I've been a federal employee and a county employee. The work just doesn't let up and they keep adding more until you just can't take it anymore! You are in my thoughts and I hope that you don't get caught in the cut. Vickie It's hard to worry about $$ -- I do, too. At my work, they are doing these expensive reviews to figure out how to downsize. It's scary, in light of how much time I've been off and all. They offered an early out (I couldn't take it) and hoped to get 400-600 people to go, they only got about 250. So the reductions have to come from somewhere...yet the workload doesn't change. And people continue to make fun of us federal employees...they have no clue how hard we work...well, that's life! But, Dawn, you have to tell Kirk. The longer you wait, the worse it will be! How can he borrow, if he doesn't know there's a need? The longer you wait, the worse it will be...you know that. Gosh, I wish I could help you guys! Darn.... Lynn Check out my website: http//:www.vickieenkoff.com Check my Ebay Auctions: http://members.ebay.com/aboutme/vickieenkoff/ Creative Choices Group: http://groups.yahoo.com/group/creativechoices/promote  Creative Chaos group: http://groups.yahoo.com/group/creativechaos/promote  Quote Link to comment Share on other sites More sharing options...
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