VICKIE - Steroid Myopathy

[Guest guest]

Hi Vickie

****Right now I am on 60 mg pred****

If you've been on this high dose for a few months now... it could be

that you're like me and some others around here, that you've developed

what they call Steroid Myopathy. It's where the Pred is making you

worse because of the high dose... Your Methx should be raised and your

Pred lowered.... I found that when I got down to 20mgs I did a whole lot

better. Call you doctor on Monday and tell him something has to

change.... You can't keep going like this. I felt the exact same way

you are feeling now when I was on 60mgs.... It was a horrible feeling.

I wish I wrote all this down but I didn't, I think I dropped 10 mgs

every week until I got down to 20mgs and I stayed there for a long

while.

*****60 mg prozac*****

I took prozac at one time and it made me so tired all day long I had to

get off. I slept almost round the clock. If I wasn't sleeping I was

thinking about it. Yet, like much of the other meds, I believe it's

Annette that's been taking Prozac for years and loves it. This is

another drug that could be making you very tired all the time.

****My upper arms are bothering me more lately and that makes it harder

to get up out of chairs and typing at the computer is more

uncomfortable.****

It could be either one of the drugs.... you might try changing the

prozac first but call your doctor and tell hime what's going on.

Also, now that you've decided to change your lifestyle, your CPK's might

start to fall. It's so important to rest as much as possible when

you've got this disease. Getting it under control is the hardest part

and resting our bodies is much needed.

Hope today is much better for you kiddo. Take care,

Vicki