Re: LELIA ~ Dues for MAA

[Guest guest]

Here's one document from the conference:

http://myositis.org/2002_conference/article_new_directions.htm

Update on New Directions in Myositis Research by Dr. Fred

See esp. paragraph e. This is a brand new concept to me and very

interesting.

The Outlook link just goes to the frontpage. Can't access the rest of

the newsletter. The SSFoundation does this kind of thing, too. I think

it's terrible to restrict access to important medical information!

Here's the Conference Reports on Dermatomyositis:

http://myositis.org/2002_conference/article_new_directions.htm

Skin Problems Experienced by DM Patients

This is a slideshow imported from PowerPoint. The first five slides or

so are basically an ad for Iowa (if you consider American Gothic a

positive enticement!) and the university dept of rheumatology. Slide 7

shows a collection of photos of DM skin changes. Then each slide is

shown enlarged. These photos could be very helpful for those with DM

to identify the different kinds of rashes.

Sure would be nice if MAA posted more documents from the conference

for those who were unable to attend.

Tenayahh

>

>

> Hi Lelia....

>

> ****dues will be reduced to $35 from $50 and an associate member

dues

> are $15.

> I'm not totally sure what you get for the $15.****

>

> Well it's about time... When I first joined it was $30.00 per year

then

> the following year it jumped to $50.00. Now in my book that's a big

> jump and they should have considered that most of us are on SSI/SSD

> which affords us little extra money to spend. Especially with all

the

> insurance companies raising there rates and dropping brand name

drugs...

> we can ill afford to pay $50.00 for a membership fee. I believe

they

> said that the increase was due to the high cost of copy and sending

out

> the newsletter. They need to shop around.

>

> I found this on there web site.... doesn't mention the reduction of

> membership fee.

>

> Associate - $15 or more

> We welcome everyone who needs our services. If you do not choose

full

> membership we invite you to join us as an TMA Associate. You will

> receive a one-year subscription to The OutLook and have the

opportunity

> to join " KIT " .

>

> Member - $50 or more

> Membership includes the quarterly newsletter, participation in our

Keep

> in Touch ( " KIT " ) support network, and a certificate of membership

that

> identifies you as an active participant in the fight for a cure.

>

> Unless they've changed the $15.00 assoc membership... it doesn't

include

> any conferences....

>

> I still have not heard one word about the conference last Oct. Has

> anyone else heard about it? If so, how did it go? I can't open up

the

> PDF file they have listed.... I'm sure that would tell me everything

I

> need to know..

>

> Vicki