Guest guest Posted December 28, 2002 Report Share Posted December 28, 2002 Vicki and Sue... I gave my son and three step-daughters a packet of information on DM before I even got out of the hospital when I was diagnosed. I gathered up as much paperwork as I could find from everyone (doctors, nurses, on line, etc.,) and just gave it to them to read. It made things so much easier for me and I think for them as well. These diseases are hard to describe and there's not a lot of info out there, but I think families should know at least as much as we do. It's hard on them too. Annette -----Original Message-----From: anzavic@... Sent: Saturday, December 28, 2002 5:44 AMTo: OurMyositis Subject: SUE G. - DaughtersHi Sue...In regards to your daughter... my daughter was somewhat the same way.She was in denial big time ... we finally talked about it one daybecause I told her "I" needed to talk to HER... She kept saying "I don'twant to hear it".. " I don't want to hear it".... then it all cameout.... She said "I'm her mother" and I shouldn't be sick.... In theirmind we're suppose to be the strong one THEY can lean on and when aparent gets sick, for some kids, it can be very traumatic. Maybe yourdaughter doesn't want to face it because she might learn something shedoesn't want to hear... It is denial... and she needs to face it oneday... So, have her over for lunch or dinner one day and explain all ofthis to her. Or, if that won't work, mail her a complete packet ofyour disease. That way, she can read it when she wants to. My daughter now asks how I'm doing but more importantly, it's made hertake a long hard look at her own health and is now eliminating allstress in it as much as she can. I'm sure your daughter will comearound one day...Take care,Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2002 Report Share Posted December 28, 2002 Vicki and Sue... I gave my son and three step-daughters a packet of information on DM before I even got out of the hospital when I was diagnosed. I gathered up as much paperwork as I could find from everyone (doctors, nurses, on line, etc.,) and just gave it to them to read. It made things so much easier for me and I think for them as well. These diseases are hard to describe and there's not a lot of info out there, but I think families should know at least as much as we do. It's hard on them too. Annette -----Original Message-----From: anzavic@... Sent: Saturday, December 28, 2002 5:44 AMTo: OurMyositis Subject: SUE G. - DaughtersHi Sue...In regards to your daughter... my daughter was somewhat the same way.She was in denial big time ... we finally talked about it one daybecause I told her "I" needed to talk to HER... She kept saying "I don'twant to hear it".. " I don't want to hear it".... then it all cameout.... She said "I'm her mother" and I shouldn't be sick.... In theirmind we're suppose to be the strong one THEY can lean on and when aparent gets sick, for some kids, it can be very traumatic. Maybe yourdaughter doesn't want to face it because she might learn something shedoesn't want to hear... It is denial... and she needs to face it oneday... So, have her over for lunch or dinner one day and explain all ofthis to her. Or, if that won't work, mail her a complete packet ofyour disease. That way, she can read it when she wants to. My daughter now asks how I'm doing but more importantly, it's made hertake a long hard look at her own health and is now eliminating allstress in it as much as she can. I'm sure your daughter will comearound one day...Take care,Vicki Quote Link to comment Share on other sites More sharing options...
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