Questions about surgery

[Guest guest]

Hi there : I am in NS,Canada am 58 years of age and have had the gall

bladder surgery 7 yrs ago. Was told the same thing as yourself. I went through

a battery of tests relating to pulmonary functions prior and ended up being

incubated while I was fully awake through the nasal passage. The procedure for

me was more nerve racking then the actual procedure. I had mind made up that it

was going to be a horror before they stared but it for me was stroll in the park

if you can imagine that

The hardest part for me was the two days after recovering as I found it painful

not wanting to use the pain pump which I soon changed my mind and there after

twas all down hill. Funniest part was that a nurse on the floor as they do

with most post ops want you out of bed the day after and felt a need to get me

up to walk around not realizing that I was an incomplete quad and she became

very insistent. So with the help of my wife an another and three hoses coming

out of me I tried sitting up on ye side of the bed where I promptly started to

pass out due to pain. Eventually she was reprimanded by my doctor for not

referring properly to my chart. Wasn't funny then but thinking back it was

understanding how some of these supposedly professional care people get these

jobs Not knowing your complete physical situation I would basically

recommend that you find a comfort zone and don't dwell on the procedure as it's

not as bad as it sounds. Calming your nerves should be the " key " I

think.

The best of luck to you and if I can help with any questions don't hesitate to

drop me a note and please let us know hoe things go.

God bless

Bernie

patricia healey <pidgieh@...> wrote:

Hi all- I joined this group a few months ago but I haven't posted anything

since my intro. But I have been reading the posts and they've helped me alot.

For the past 4 1/2 months I have been having problems w/ my gallbladder. The

docs here say its risky to operate because of my sma2. I'm 46, use a bipap at

night and during the day if I have a URI. Dr. Bach said I could have the surg.

at his hosp. (I live in MA)

OK here's my problem- My jaw is very tight and I can't open my mouth more

than 1/2 of an inch. These experts who say sma doesn't affect your jaw are full

of it. Anyway, the anasthesiologist here in MA said if they did the surg here

they would have to intubate me thru my nose prior to surgery while I am fully

awake. I am scared to death of this and angry that they can't do it another way-

its so barbaric. Life's been pretty good for 46 years in spite of, you know, the

usual resp infections, several times in hosp, but I am happily married etc. and

had never been too angry about having sma. HOWEVER, now i'm angry and feeling

sorry for myself- can you all help with this and tell me the real deal about

being intubated? I know I need to get my gallbladder out, but I'm terrified. I

hate not being in control of myself.

I'll try to get more involved and post more messages

Oh yeah- I loved your website- you reminded me of me during my

college years. Go, girl!

God bless,

---------------------------------

FareChase - Search multiple travel sites in one click.

[Guest guest]

,

I'm sorry you have to have surgery. I'm 39, w/SMA2, and vent-

dependent. I have been intubated 2x in the last 2 1/2 years for

surgery. They are only able to tube me through my nose...my jaw is

tight also. They used a very light gas to anesthetize me and then

they tubed me. It wasn't easy to intubate me, and took a little

while, but they simply bagged me between attempts. I didn't have to

be awake for that unpleasant experience.

Alana

>

> Hi all- I joined this group a few months ago but I haven't posted

anything since my intro. But I have been reading the posts and

they've helped me alot. For the past 4 1/2 months I have been having

problems w/ my gallbladder. The docs here say its risky to operate

because of my sma2. I'm 46, use a bipap at night and during the day

if I have a URI. Dr. Bach said I could have the surg. at his hosp. (I

live in MA)

> OK here's my problem- My jaw is very tight and I can't open my

mouth more than 1/2 of an inch. These experts who say sma doesn't

affect your jaw are full of it. Anyway, the anasthesiologist here in

MA said if they did the surg here they would have to intubate me thru

my nose prior to surgery while I am fully awake. I am scared to death

of this and angry that they can't do it another way- its so barbaric.

Life's been pretty good for 46 years in spite of, you know, the usual

resp infections, several times in hosp, but I am happily married etc.

and had never been too angry about having sma. HOWEVER, now i'm angry

and feeling sorry for myself- can you all help with this and tell me

the real deal about being intubated? I know I need to get my

gallbladder out, but I'm terrified. I hate not being in control of

myself.

> I'll try to get more involved and post more messages

> Oh yeah- I loved your website- you reminded me of me

during my college years. Go, girl!

>

> God bless,

>

>

>

> ---------------------------------

> FareChase - Search multiple travel sites in one click.

>

>

[Guest guest]

In a message dated 11/15/2005 1:48:03 PM Central Standard Time,

ChrisN1220@... writes:

Which Hospital is Dr. Bach located?

Dr. Bach is out of UMDNJ...people fly from all over to see him.

Amy M.

[Guest guest]

In a message dated 11/15/2005 10:23:28 PM Eastern Standard Time,

Ames24@... writes:

Dr. Bach is out of UMDNJ...people fly from all over to see him.

Thanks, Amy--That's what I thought b/c I had visited his web-site, but when

mentioned that she was here in MA, I was hoping that maybe he also

spent time in Boston.................

~

[Guest guest]

I've had it done too-not fun, but honey, if you can get resp infections, be

in hosp, etc..then you can do this! piece of cake! go get em!

j e s s ! c a

personal webpage: http://hometown.aol.com/heaven20seven/index.html

[Guest guest]

Is Dr. Bach really that good? Would he know how to get rid of my arm pain?

~Meg.

( My Blog = http://meg77.blogspot.com )

" Life is not what happens to you,

But how you react to it...

For what caused you react will surely pass,

But how you continue to react,

Can only be passed by you. "

Re: questions about surgery

In a message dated 11/15/2005 10:23:28 PM Eastern Standard Time,

Ames24@... writes:

Dr. Bach is out of UMDNJ...people fly from all over to see him.

Thanks, Amy--That's what I thought b/c I had visited his web-site, but when

mentioned that she was here in MA, I was hoping that maybe he also

spent time in Boston.................

~

[Guest guest]

I don't think he would know much about your arm pain. He's a

respiratory rehabilitation doctor. I think the reason people usually go

to UMDNJ for surgeries is for respiratory concerns post surgery. They

are probably the best place to assure you won't be given a trachea just

because you have a little trouble following the surgery. Bach is really

good at knowing how to handle delicate respiratory situations in

non-invasive ways.

Jay

Re: questions about surgery

In a message dated 11/15/2005 10:23:28 PM Eastern Standard Time,

Ames24@... writes:

Dr. Bach is out of UMDNJ...people fly from all over to see him.

Thanks, Amy--That's what I thought b/c I had visited his web-site, but

when

mentioned that she was here in MA, I was hoping that maybe he

also

spent time in Boston.................

~

[Guest guest]

How long are they kept in the hospital? Blood trans? What is post op

like? How long til they are able to travel, airplane ride etc? Our

daughter is having surgery next month and with the holidays coming up

we just wanted to know what we should expect and not expect too much.

Thanks

Maddie 15 mo (13 1/2 adj)

2 starbands since May 2006

Plagio, Tort and PVL