Guest guest Posted April 20, 2003 Report Share Posted April 20, 2003 Debbie, Welcome to the group. First, you need to realize that even if you have Ashermans or scarring in the uterus, there is treatment available and many women do go on to have children. Second, please try to talk to your doctor in detail on Monday (as I am sure you have already planned). Ashermans Syndrome is the clinical name for scarring in the uterus because the doctor who originally discovered it was named Asherman. My doctor never told me (originally anyway) that I had Ashermans (AS), he only used the term scarring in the uterus. Once I spoke to an RE and specialists in the field of reproductivity and fertility, did they call it Ashermans. Please read the files and database sections from the home page of this site as it will answer many questions you have about AS. The most common reason for getting AS is because of a D&C on a recently pregnant uterus (either from miscarriage or after birth). Infection is another common thread among the women with AS, but most of them had D&C's as well. Since you had a D&C or possibly two, it is likely that you do have scarring in the uterus. Please ask as many questions as necessary and the women of this group will amaze you at the knowledge they have gained from each other and from going thru this experience themselves. One final note, if at all possible, please look up the A & B list of recommended doctors to see if they are near you. There is a better chance at a successful pregnancy if you see a specialist, or at least someone who has performed this type of surgery many times in the past. Good luck.....nancy w Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2003 Report Share Posted April 20, 2003 --- Thank you . I am planning on talking with my doctor tomorrow. I checked the list and Dr. Copperman is in NY, which is only about 1 hour and a half away. I am planning on asking my doctor all of the questions that were posted on this site (it is an amazing site!) tomorrow. I am not sure if I should stay with him or see Dr. Copperman. I am going to call to see if I can get an appointment with Dr. Copperman tomorrow as well. If my current doctor says that he has experience and has performed the surgery successfully and has all the right answers (I read about the things I should HOPE he says in his answers on this site as well), should I trust him? My husband and I are very angry that this has happened. We feel cheated by our last doctor. We were considering about sueing. Do you think this is practical? After treatment, how long until I can ttc again? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2003 Report Share Posted April 20, 2003 If you would like info on Dr. Copperman, feel free to email me. I had severe AS, and I am now scar free. I used Dr. Copperman. Several others have used him recently. I would not recommend seeing your current doctor. My OB was an award winning hysteroscopic surgeon. He messed me up the second time worse than the first. I wish I went to Copperman, or an A list doctor......not my ignorant, idiot, OB! Feel free to email me, susiekunin@...dredding31 wrote: --- Thank you . I am planning on talking with my doctor tomorrow. I checked the list and Dr. Copperman is in NY, which is only about 1 hour and a half away. I am planning on asking my doctor all of the questions that were posted on this site (it is an amazing site!)tomorrow. I am not sure if I should stay with him or see Dr. Copperman. I am going to call to see if I can get an appointment with Dr. Copperman tomorrow as well. If my current doctor says that he has experience and has performed the surgery successfully and has all the right answers (I read about the things I should HOPE he says in his answers on this site as well), should I trust him?My husband and I are very angry that this has happened. We feel cheated by our last doctor. We were considering about sueing. Do you think this is practical?After treatment, how long until I can ttc again? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2003 Report Share Posted April 21, 2003 Hi again. I did not get your name, but I will try my best to answer your quesitons. 1)I would definitely see another doctor even if it is just to get a 2nd opinion. The A list doctors are on this site for a reason and I don't mean to sound as if other doctors are not good at all. There have been some successes with non A list doctors, but the majority of the women here have had unsuccessful treatment with non A list docs. Once you see an A list, you will more than likely see and feel the difference in what he knows about AS and feel that letting a doc perform surgery on you who has done 10-20 AS surgeries is not worth it. Most of the A list docs here perform this surgery frequently and non specialists might perform it 10 times in their entire career. There are several women here who have used Dr man with success, please email or talk to as she is currently 32-33 weeks pregnant after success with man. 2)I don't trust very many doctors anymore after what I have been through, but there are a few out there that know what they are doing in this matter. Once you find the right doctor, you will know it is right for you. This is your fertility you are dealing with and you want and need the best. Even with the correct answers, please try to get an appt with an A-list, like man if he is in your area, etc. I live in South Georgia and flew to NY and stayed a week for treatment with Dr Palter, who is also an excellent surgeon. If you are only an hour away by car, that is great. Call for an appt asap. 3)Lawsuits are difficult but not impossible. I recently asked a question of the group and found that there are a few cases in progress in the US, but non have been won or settled (I think). There are several women outside the US who have won or settled with the hospitals or doctors due to results relating to their D&C's, standard of care, loss of fertiltiy, etc. Some of these things are very difficult to prove, but it really depends on your case. You would need to find an attorney to discuss this with as I am just another woman with her own opinion. 4)Once your uterus is open (after surgery), the docs usually want you to take estrogen for about 6 weeks. After that, they will usually perform an ultrasound to examine your uterus and endometrium. Sometimes you can ttc as early as 6-8 weeks after surgery, but I think this is best case situation. Many docs want you to have 2 or 3 healthy natural periods after surgery to make sure all is fine in there. Therefore, sometimes you might not get the green light to TTC until 3 or more months. And sometimes, it does take more than one surgery to open the uterus and remove all the scar tissue. It truly depends on your severity and your unique situation. Good luck getting an appt with man. I know you will be happy you did. W (sorry so long, I feel very passionate about this cause) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2003 Report Share Posted April 21, 2003 W and all, I did mention this to Debbie when she emiled me. I would like to mention this agian. With the rising issues of med malpractice, the A listers are not to anxious to discuss lawsuits. Remember, they are about to do surgery on you! I know Palter and Coppeman get a little jumpy about the discussion. They may say it would not have been the way they would have treated you, but they truly do not look as if they want to get involved. grantmeyer99 wrote: > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2003 Report Share Posted April 25, 2003 HI . Thank you so much for emailing back and answering some of my questions. I did find a doctor. He wasn’t on the A list but he has performed hysteroscopies for Asherman’s many many times. I went in for surgery on Wednesday. Unfortunately, he wasn’t able to get to the scar tissue. He wasn’t able to get into the uterus because of the scarring or because of what he called a “false route”. In other words, the route that was there may not have been the main route but a route that was created as a result of the D and C. Either way, he did not want to risk a uterine puncture so he stopped. He wants me to try to conceive this month without having a laparoscopy. He feels that there is a possibility of having a normal pregnancy and wants me to try at least for this month. I am hoping that it works because I would rather not have the surgery if I don’t have to. It sounds terrible. Have you had it done? -----Original Message----- From: grantmeyer99 Sent: Sunday, April 20, 2003 8:44 PM To: Ashermans Subject: Re: Worried about trusting a doctor Debbie, Welcome to the group. First, you need to realize that even if you have Ashermans or scarring in the uterus, there is treatment available and many women do go on to have children. Second, please try to talk to your doctor in detail on Monday (as I am sure you have already planned). Ashermans Syndrome is the clinical name for scarring in the uterus because the doctor who originally discovered it was named Asherman. My doctor never told me (originally anyway) that I had Ashermans (AS), he only used the term scarring in the uterus. Once I spoke to an RE and specialists in the field of reproductivity and fertility, did they call it Ashermans. Please read the files and database sections from the home page of this site as it will answer many questions you have about AS. The most common reason for getting AS is because of a D & C on a recently pregnant uterus (either from miscarriage or after birth). Infection is another common thread among the women with AS, but most of them had D & C's as well. Since you had a D & C or possibly two, it is likely that you do have scarring in the uterus. Please ask as many questions as necessary and the women of this group will amaze you at the knowledge they have gained from each other and from going thru this experience themselves. One final note, if at all possible, please look up the A & B list of recommended doctors to see if they are near you. There is a better chance at a successful pregnancy if you see a specialist, or at least someone who has performed this type of surgery many times in the past. Good luck.....nancy w Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2003 Report Share Posted April 25, 2003 HI . Thank you so much for emailing back and answering some of my questions. I did find a doctor. He wasn’t on the A list but he has performed hysteroscopies for Asherman’s many many times. I went in for surgery on Wednesday. Unfortunately, he wasn’t able to get to the scar tissue. He wasn’t able to get into the uterus because of the scarring or because of what he called a “false route”. In other words, the route that was there may not have been the main route but a route that was created as a result of the D and C. Either way, he did not want to risk a uterine puncture so he stopped. He wants me to try to conceive this month without having a laparoscopy. He feels that there is a possibility of having a normal pregnancy and wants me to try at least for this month. I am hoping that it works because I would rather not have the surgery if I don’t have to. It sounds terrible. Have you had it done? -----Original Message----- From: grantmeyer99 Sent: Sunday, April 20, 2003 8:44 PM To: Ashermans Subject: Re: Worried about trusting a doctor Debbie, Welcome to the group. First, you need to realize that even if you have Ashermans or scarring in the uterus, there is treatment available and many women do go on to have children. Second, please try to talk to your doctor in detail on Monday (as I am sure you have already planned). Ashermans Syndrome is the clinical name for scarring in the uterus because the doctor who originally discovered it was named Asherman. My doctor never told me (originally anyway) that I had Ashermans (AS), he only used the term scarring in the uterus. Once I spoke to an RE and specialists in the field of reproductivity and fertility, did they call it Ashermans. Please read the files and database sections from the home page of this site as it will answer many questions you have about AS. The most common reason for getting AS is because of a D & C on a recently pregnant uterus (either from miscarriage or after birth). Infection is another common thread among the women with AS, but most of them had D & C's as well. Since you had a D & C or possibly two, it is likely that you do have scarring in the uterus. Please ask as many questions as necessary and the women of this group will amaze you at the knowledge they have gained from each other and from going thru this experience themselves. One final note, if at all possible, please look up the A & B list of recommended doctors to see if they are near you. There is a better chance at a successful pregnancy if you see a specialist, or at least someone who has performed this type of surgery many times in the past. Good luck.....nancy w Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2003 Report Share Posted April 25, 2003 HI . Thank you so much for emailing back and answering some of my questions. I did find a doctor. He wasn’t on the A list but he has performed hysteroscopies for Asherman’s many many times. I went in for surgery on Wednesday. Unfortunately, he wasn’t able to get to the scar tissue. He wasn’t able to get into the uterus because of the scarring or because of what he called a “false route”. In other words, the route that was there may not have been the main route but a route that was created as a result of the D and C. Either way, he did not want to risk a uterine puncture so he stopped. He wants me to try to conceive this month without having a laparoscopy. He feels that there is a possibility of having a normal pregnancy and wants me to try at least for this month. I am hoping that it works because I would rather not have the surgery if I don’t have to. It sounds terrible. Have you had it done? -----Original Message----- From: grantmeyer99 Sent: Sunday, April 20, 2003 8:44 PM To: Ashermans Subject: Re: Worried about trusting a doctor Debbie, Welcome to the group. First, you need to realize that even if you have Ashermans or scarring in the uterus, there is treatment available and many women do go on to have children. Second, please try to talk to your doctor in detail on Monday (as I am sure you have already planned). Ashermans Syndrome is the clinical name for scarring in the uterus because the doctor who originally discovered it was named Asherman. My doctor never told me (originally anyway) that I had Ashermans (AS), he only used the term scarring in the uterus. Once I spoke to an RE and specialists in the field of reproductivity and fertility, did they call it Ashermans. Please read the files and database sections from the home page of this site as it will answer many questions you have about AS. The most common reason for getting AS is because of a D & C on a recently pregnant uterus (either from miscarriage or after birth). Infection is another common thread among the women with AS, but most of them had D & C's as well. Since you had a D & C or possibly two, it is likely that you do have scarring in the uterus. Please ask as many questions as necessary and the women of this group will amaze you at the knowledge they have gained from each other and from going thru this experience themselves. One final note, if at all possible, please look up the A & B list of recommended doctors to see if they are near you. There is a better chance at a successful pregnancy if you see a specialist, or at least someone who has performed this type of surgery many times in the past. Good luck.....nancy w Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2003 Report Share Posted April 26, 2003 Debbie, I am butting in here, so excuse me if I am way off base, but I would not TTC with this information you've been given (if I'm understanding it correctly). If your Dr. couldn't get into your uterus, what makes him think it is safe/possible for a baby to be there? I had a mild case of AS, then a hyst by someone who doesn't have a clue, then severe AS (entire uterus obliterated). I didn't have this group, so no A-list, but went to an RE who I think did a good job. He spent more than 3 hours taking out my scar tissue and still left in 25% because he did not want to puncture my uterus. He told me not to get pregnant, that he would do a " touch up " when I returned from a 7 week vacation, but I very unexpectedly got pregnant. I tell you all of this because I lost that baby at 23w1d. I had an undiagnosed incompetent cervix which was the main cause of my loss, but my peri said a contributing factor could have been the scar tissue (my bag of water did not attach where there was scar tissue and got too heavy?). The pregnancy was therapuetic for my uterus as my scarring is down to less than 1%, but NOT my emotions. A laparoscopy/hysteroscopy would have been a much easier route. I tell you all this to beg you to get a second opinion, even if you can't get one from an A-list!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2003 Report Share Posted April 26, 2003 Debbie, I am butting in here, so excuse me if I am way off base, but I would not TTC with this information you've been given (if I'm understanding it correctly). If your Dr. couldn't get into your uterus, what makes him think it is safe/possible for a baby to be there? I had a mild case of AS, then a hyst by someone who doesn't have a clue, then severe AS (entire uterus obliterated). I didn't have this group, so no A-list, but went to an RE who I think did a good job. He spent more than 3 hours taking out my scar tissue and still left in 25% because he did not want to puncture my uterus. He told me not to get pregnant, that he would do a " touch up " when I returned from a 7 week vacation, but I very unexpectedly got pregnant. I tell you all of this because I lost that baby at 23w1d. I had an undiagnosed incompetent cervix which was the main cause of my loss, but my peri said a contributing factor could have been the scar tissue (my bag of water did not attach where there was scar tissue and got too heavy?). The pregnancy was therapuetic for my uterus as my scarring is down to less than 1%, but NOT my emotions. A laparoscopy/hysteroscopy would have been a much easier route. I tell you all this to beg you to get a second opinion, even if you can't get one from an A-list!!! Quote Link to comment Share on other sites More sharing options...
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