Guest guest Posted November 2, 2004 Report Share Posted November 2, 2004 In a message dated 10/31/2004 5:27:21 PM Eastern Standard Time, RSD-CRPSofAmerica writes: Janet, Jai, Donna, ......... Oh My, All of you wonderful fellow RSDer's. God Bless you all and thank you all for being here for so many of us! We all need this Family here as most in our lives don't understand us. Prayers to all and Pray for the CURE. Love and Hugs, Nannyshere, aka, Janet M Hi Janet, thank you for such a nice post. It was very refreshing and uplifting! You are very sweet! Take care, Love Jai Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2004 Report Share Posted November 3, 2004 Janet, I am so glad that you are not leaving . I have read about the ketamine, but what I read was just a clinical trial. So I am not sure if it is out there for the general public as they say, but I could be wrong, it's been known to happen once in awhile. hope you are having a low pain day, Lin -- Re: lots lol- April/May meeting Hi Group, Just wanted to jump in and say ho! Lin: I am not leaving the group. I guess my post did sound a little like I was leaving. lol But, no way! I love it here! Pam: Where are you going to a doctor in PA? Maybe it is close to where I live. I live at the end of the North East Extension of the PA Turnpike. Last exit before NJ Turnpike. Levittown, PA. Right on the Delaware. 20 mins. from Philly. I've talked to some family in Oswego and they do know some people with your X's last name. Are you related to Jocko Rietz? Know him very well. I am not younger then you! I am ... choke... choke... 59 yrs old. Yikes! Hate to see that in writing! lol JoAnn: which this age thing leads me into the Nanny thing. I am a grandmom of 6, almost 7 at the end of Jan. For some very odd reason, people in PA call some grandparents Nanny and Poppy. Hense, Nannyshere. I know that where I come from, upstate NY, a nanny is an old maid aunt that lives with you and babysits! LOL But not me. Except I do babysit sometimes. Very hard though with this RSD. Ginny: Are you in charge of this meeting we are going to try to do? I am diffently going if close enough for me to drive or Hubby drop me off. Weather here on PA and NJ border is great in April and May. (Hint) Here is my address. Janet Meskers, 30 South Lane, Levittown, PA 19055. Phone # . Please put me down as a most likely. Has anyone here been to Doctor Swartzman in Philly? I just looked him up in Medicare booklet and he is in there for my insurance. I am going to call today to TRY to get an appointment with him to talk about the Ketimine infusion. Has anyone here had this done? My RSD pain is in left leg and ankle and foot. BURNING pain, stabbing pain in foot when I am out longer then an hour with shoes on. I have to take them off in car to hold foot in hands till stabbing goes away. I have it in my left shoulder and arm. My back and neck is in constant pain because of ruptured discs 4 places. I opted not to have back surgery back in 1990. The ortho wanted to put 4 medal plates and screws in my back for a slip vertibrea. Couldn't go there!!! Glad I didn't. Lots of problems with that operation back then. screws and plates would break and many became crippled. Does anyone know if Ketamine infusion helps the type of pain I have? This disease is so strange! Sorry for long post. Just wanted to say hi and let you all know I am here and read all posts. Thank you all for being here and helping each other. You guys are great. Love and God Bless to all. Praying for the CURE, Nannyshere aka Janet M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2004 Report Share Posted November 3, 2004 Janet, I am so glad that you are not leaving . I have read about the ketamine, but what I read was just a clinical trial. So I am not sure if it is out there for the general public as they say, but I could be wrong, it's been known to happen once in awhile. hope you are having a low pain day, Lin -- Re: lots lol- April/May meeting Hi Group, Just wanted to jump in and say ho! Lin: I am not leaving the group. I guess my post did sound a little like I was leaving. lol But, no way! I love it here! Pam: Where are you going to a doctor in PA? Maybe it is close to where I live. I live at the end of the North East Extension of the PA Turnpike. Last exit before NJ Turnpike. Levittown, PA. Right on the Delaware. 20 mins. from Philly. I've talked to some family in Oswego and they do know some people with your X's last name. Are you related to Jocko Rietz? Know him very well. I am not younger then you! I am ... choke... choke... 59 yrs old. Yikes! Hate to see that in writing! lol JoAnn: which this age thing leads me into the Nanny thing. I am a grandmom of 6, almost 7 at the end of Jan. For some very odd reason, people in PA call some grandparents Nanny and Poppy. Hense, Nannyshere. I know that where I come from, upstate NY, a nanny is an old maid aunt that lives with you and babysits! LOL But not me. Except I do babysit sometimes. Very hard though with this RSD. Ginny: Are you in charge of this meeting we are going to try to do? I am diffently going if close enough for me to drive or Hubby drop me off. Weather here on PA and NJ border is great in April and May. (Hint) Here is my address. Janet Meskers, 30 South Lane, Levittown, PA 19055. Phone # . Please put me down as a most likely. Has anyone here been to Doctor Swartzman in Philly? I just looked him up in Medicare booklet and he is in there for my insurance. I am going to call today to TRY to get an appointment with him to talk about the Ketimine infusion. Has anyone here had this done? My RSD pain is in left leg and ankle and foot. BURNING pain, stabbing pain in foot when I am out longer then an hour with shoes on. I have to take them off in car to hold foot in hands till stabbing goes away. I have it in my left shoulder and arm. My back and neck is in constant pain because of ruptured discs 4 places. I opted not to have back surgery back in 1990. The ortho wanted to put 4 medal plates and screws in my back for a slip vertibrea. Couldn't go there!!! Glad I didn't. Lots of problems with that operation back then. screws and plates would break and many became crippled. Does anyone know if Ketamine infusion helps the type of pain I have? This disease is so strange! Sorry for long post. Just wanted to say hi and let you all know I am here and read all posts. Thank you all for being here and helping each other. You guys are great. Love and God Bless to all. Praying for the CURE, Nannyshere aka Janet M Quote Link to comment Share on other sites More sharing options...
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