Re: Doctor-Patient Communication Survey

[Guest guest]

I also need control group participants who do not have EDS. Please share

the survey with anyone you know without EDS, just ask them to let me know if

they are the EDS or Control group.

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Doctor-Patient Communication Survey

The following survey is designed to find out how people with EDS view

communications with their doctor. The results will be used for a paper on

doctor-patient communication in my communications class and will later be

incorporated as a chapter in a future publication on EDS.

Your input on this survey will be greatly appreciated. Please return

completed surveys to kdavis@... no later than January 24, 2004.

Sorry for the short notice, we were only given a few weeks to complete the

assignment.

For each of the following questions, refer only to your primary care doctor.

Answer Yes or No with the exception of question 30.

1.. Do you feel you have good communication with your doctor?

2.. Does your doctor explain treatments or procedures clearly and make

certain that you understand them before proceeding?

3.. Do you feel you are made fully aware of all your treatment options?

4.. Do you believe your doctor withholds information about potential

treatments that are not covered by your medical insurance?

5.. Are you comfortable asking your doctor questions?

6.. Does your doctor explain all potential side effects of any new

medication?

7.. Does your doctor know about all non-prescription health supplements

and vitamins you may be taking?

8.. Does your doctor use complex medical jargon when communicating to you?

9.. Does your doctor employ the use of visual aids, such as skeletal

models, diagrams or photos when explaining what is happening to your body?

10.. Has your doctor ever provided you with a patient-education pamphlet

on any condition or medication?

11.. Have you ever left your doctor's office more confused than when you

arrived?

12.. If you call to ask a question, does your doctor return your call

personally?

13.. Does your doctor full explain your lab results?

14.. Do you feel rushed during your appointment?

15.. Do you feel your doctor listens to all your concerns?

16.. Do you feel your doctor believes your complaints (i.e. pain,

dislocations)?

17.. Do you feel your doctor gives you adequate time to appropriate

address your problems?

18.. Does your doctor ever deny you referrals for services because your

insurance provider will not cover it?

19.. Does your doctor tell you about alternative therapy options that are

available to you (i.e. massage, acupuncture, etc.)?

20.. Does your doctor take an interest in asking about your personal life?

21.. Does your doctor treat you with respect?

22.. Does your doctor talk-down to as if you are stupid?

23.. Do you feel intimidated by your doctor?

24.. Do you rely solely on the information your doctor gives you?

25.. Do you do your own research and share it with your doctor?

26.. Does your doctor respect information you provide (i.e. EDS articles)?

27.. Does your doctor discount any information you find on the Internet?

28.. When you bring information to your doctor, does he/she ask you

questions?

29.. Does your doctor ask enough questions to get the whole picture of

what is going on with your body?

30.. Do you feel your doctor addresses just the symptom or the whole

person?

31.. Is your doctor your primary source for medical information?

32.. If you suggest a treatment plan to your doctor, does your doctor

evaluate the plan with you to determine if it is appropriate for you?

33.. If you suggest a treatment plan to your doctor, does your doctor

reject it completely?

34.. Do you feel your doctor communicates well with you?

35.. Do you feel you communicate well with your doctor?

For the next section, please share as much or as little information as you

wish.

Have you ever had an experience where poor communication with your doctor

resulted in problems with your health? Explain.

Thank you for taking the time to participate in this survey. Your responses

questions will be kept anonymous.

If I want to use your answer to the final question in the narrative of my

paper, I will contact you directly for permission to quote you. Please

include your email address below so I may contact you if I have questions.

Sincerely,

Barbara J. Uggen-

kdavis@...