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Red thumb - Bizarre!

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I had to post this.

I am sitting in class last night. It is very cold in there...thank

goodness. So I am just my " normal " pink, no red flare on my face.

I feel heat on my left thumb. I look down and my thumb is red! No

where else. My hand and other fingers were white. It was like a

rosacea flare on my thumb. I was not sitting on it, I did not hurt it,

nothing.

I found this bizarre, then I thought about the overproduction of

Nitric Oxide in the bodies of ceans. Can we have a flare on our

thumb? This is just too strange sometimes...and embarrassing.

We were about to start lab with our partner. I was praying it went

back to it's normal color. It did, after about 10 minutes or so.

Oh how I wish we had a pill form of nitric oxide inhibitors to prevent

this. AND tell me someone had experienced this.

Thanks guys!

Strange!!!

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It happens to me too. That my index finger or the palms of one of my

hands get bright red and itches. I used to attribute it to eczmea but

I don't get watery bumps that I get with eczema. I think you may have

hit on something here with excessive NO coming to the skin's surface

for some unknown reason!

Take care,

Matija

> I had to post this.

>

> I am sitting in class last night. It is very cold in there...thank

> goodness. So I am just my " normal " pink, no red flare on my face.

>

> I feel heat on my left thumb. I look down and my thumb is red! No

> where else. My hand and other fingers were white. It was like a

> rosacea flare on my thumb. I was not sitting on it, I did not hurt

it,

> nothing.

>

> I found this bizarre, then I thought about the overproduction of

> Nitric Oxide in the bodies of ceans. Can we have a flare on our

> thumb? This is just too strange sometimes...and embarrassing.

>

> We were about to start lab with our partner. I was praying it went

> back to it's normal color. It did, after about 10 minutes or so.

>

> Oh how I wish we had a pill form of nitric oxide inhibitors to

prevent

> this. AND tell me someone had experienced this.

>

> Thanks guys!

>

> Strange!!!

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It happens to me too. That my index finger or the palms of one of my

hands get bright red and itches. I used to attribute it to eczmea but

I don't get watery bumps that I get with eczema. I think you may have

hit on something here with excessive NO coming to the skin's surface

for some unknown reason!

Take care,

Matija

> I had to post this.

>

> I am sitting in class last night. It is very cold in there...thank

> goodness. So I am just my " normal " pink, no red flare on my face.

>

> I feel heat on my left thumb. I look down and my thumb is red! No

> where else. My hand and other fingers were white. It was like a

> rosacea flare on my thumb. I was not sitting on it, I did not hurt

it,

> nothing.

>

> I found this bizarre, then I thought about the overproduction of

> Nitric Oxide in the bodies of ceans. Can we have a flare on our

> thumb? This is just too strange sometimes...and embarrassing.

>

> We were about to start lab with our partner. I was praying it went

> back to it's normal color. It did, after about 10 minutes or so.

>

> Oh how I wish we had a pill form of nitric oxide inhibitors to

prevent

> this. AND tell me someone had experienced this.

>

> Thanks guys!

>

> Strange!!!

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You may have Erythromelalgia, which is a disease that causes redness

and burning in your extremities, like hands and feet.

Meg

> This is my first time to post to the group, but I just had to reply

to this

> e-mail.

>

> You are not the only one who gets redness in the thumbs. I have the

> strangest thing going on with my hands. They flush bright red when

my face

> flushes – and sometimes independent of it. My hands can actually

get redder

> than my face at times. I haven't worried too much about it, because

not many

> people notice your hands. Still, my hands get bright red several

times a

> day. My left hand gets redder than my right. They are also

really " creepy "

> feeling. Sort of dry, and " rubbery " but almost more numb. It feel

sort of

> like someone rubbed Novacane all over them. Plus, the skin on my

hands has

> gotten rather wrinkled, like 20 years older-looking than they

should. When

> my parents were in town recently, my Mom looked at my hands and

remarked,

> " What is wrong with your hands. " I was wearing a red T-shirt that

day, and

> my Dad says, " I think they just got sweaty and he just rubbed them

on his

> shirt. " Wrong. But what's really going on? Who knows?

>

> I've been to the dermatologist several times about the red-hands

issue, with

> no luck. The doctor even took a biopsy of my hands. After it came

back from

> the lab, he told me I had " sub-cutaneous mucinosis " (some kind of

protein

> deposit). He said he didn't know if the redness in my hands had

anything to

> do with my cea or not, but thought maybe I could be some sort

of " new

> case " (OK...great...now I'm REALLY feeling like a freak). He

suggested I go

> to the Mayo Clinic in Rochester, Minnesota.

>

> At this point I say HALT. I just knew running more tests wasn't

going to

> work. I've had noticable rosacea for over 4 years now, and nothing

any

> dermatologist suggested has helped at all. I somehow knew I'd fly

all the

> way up to Minnesota, spend a week off from work and get charged for

a bunch

> of things my insurance wouldn't cover. And after all this, the

doctor would

> come in and say " Hmmm, looks like you have 'chronic-inflamed-

undefined-XYZ

> '. . .There's no known cure for it, but you can try this

medicine. " I would

> then spring for " this medicine " and it wouldn't do squat. I hate to

sound

> jaded and cynical, but I've been dealing with this skin stuff for a

long

> time.

>

> It was at this point that I first heard about ETS surgery, and then

> subsequently this web-site. I heard about ETS from a radio

commercial for

> Hyperhidrosis and was all prepared to have the surgery done. Even

though I

> don't really have sweating of the hands and face, I was ready to go

ahead

> with ETS just to get rid of the flushing and redness in my face (and

> hopefully my hands).

>

> Now I'm really glad I opted not to have the surgery performed. I

haven't

> ruled it out, but I've since learned that ETS is a LAST step, not a

FIRST

> one. Finding this group was like a gift from God. I bought Dr.

Nase's book,

> and I'm reading it cover to cover; highlighting and taking notes.

It feels

> like I'm back in college again. And man, do I hope to do WELL on

this final!

> This is the first time I've had any hope concerning my skin in a

long time.

> I stopped even going to dermatologists over a year ago. Come to

find out,

> Dr. Nase points out about 5 things the dermatologist told me to do

were

> TOTALLY wrong.

>

> I had gotten to the point where I'd just stopped looking in

mirrors. It

> upset me to much to look and see my beat-red face. Whenever I'd go

in the

> bathroom, department store, gym or whatever, I'd just avert my

eyes. And

> after awhile, I also stopped looking people in the eyes as much.

This

> disease has really become a problem for me.

>

> Anyway, I don't have much to report just yet. I'm still reading,

studying,

> researching and forming my strategy. I've decided that I'll fly to

Antartica

> if necessary to find the right photoderm specialist. I live here in

Austin,

> Texas. If anyone else lives in the central Texas region and has any

advice

> on cea specialists/dermatologists, Bitter's trained Photoderm

> practicioners, etc, I would REALLY appreciate some input.

Thankfully, if I

> ever DO decide to go ahead with the surgury, it sounds like Dr.

Neilsen in

> San (only 1 hour away) would be a great choice.

>

> I don't have ANY advice for what to do about red hands/thumbs. I

just wanted

> to let you know you're not alone. And I'd be glad to hear from

anyone that

> can enlighten us all.

>

> That's it for now.

>

> Kent

>

> > ----------

> > From: dklein1016@y...

> > Sent: Thursday, June 7, 2001 11:07 AM

> > To: rosacea-support@y...

> > Subject: Red thumb - Bizarre!

> >

> > I had to post this.

> >

> > I am sitting in class last night. It is very cold in

there...thank

> > goodness. So I am just my " normal " pink, no red flare on my face.

> >

> > I feel heat on my left thumb. I look down and my thumb is red! No

> > where else. My hand and other fingers were white. It was like a

> > rosacea flare on my thumb. I was not sitting on it, I did not

hurt it,

> > nothing.

> >

> > I found this bizarre, then I thought about the overproduction of

> > Nitric Oxide in the bodies of ceans. Can we have a flare on

our

> > thumb? This is just too strange sometimes...and embarrassing.

> >

> > We were about to start lab with our partner. I was praying it

went

> > back to it's normal color. It did, after about 10 minutes or so.

> >

> > Oh how I wish we had a pill form of nitric oxide inhibitors to

prevent

> > this. AND tell me someone had experienced this.

> >

> > Thanks guys!

> >

> > Strange!!!

> >

> >

> >

> > --

> > Please read the list highlights before posting to the whole

group. See

> > http://rosacea.ii.net/toc.html

> >

> > To leave the list send any email to

> > rosacea-support-unsubscribe@y...

> >

> >

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Just to add my two pence worth, my hands get red / blue easily too to

the usual rosacea triggers. Not all of them but certainly heat /

cold / alcohol.

.

> Thank goodness I am not alone!

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I am 30..and my hands look worse than my mom's. Weird colors,

vascular damage, something is just not right. It is like my skin is

not strong enough to with stand the environment. I beat myself up for

having taken accutane 3 years ago. That is when I started have

irritation and redness. Though I will never know for sure.

> > Plus, the skin on my hands has

> > gotten rather wrinkled, like 20 years older-looking than they

> should.

>

> Me too. Within the past yr (I'm 32), my hands have started reminding

> me of my grandmother's. I think it's that the skin has gotten very

> thin for some reason. I try not to put them in hot water--only warm.

> Use dishwashing gloves, etc. Seems to help. And yes, especially when

> run under hot water, they are red like nobody's business.

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Meg is right. The symptoms described by Kent Portman's message suggest

possibility of erythromelalgia. This condition can co-exist with rosacea.

Sy MD

Sy Skin Care

http://www.lindasy.com

Voice:Toll-free 877-sy (546-3279)

Outside U.S.:

FAX:

Re: Red thumb - Bizarre!

You may have Erythromelalgia, which is a disease that causes redness

and burning in your extremities, like hands and feet.

Meg

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For those who have these symptoms, there

is a yahoo support group, as well at

http://groups.yahoo.com/group/EM.

If you are not sure, check out these websites:

http://archderm.ama-assn.org/issues/v136n3/ffull/ded9027.html

http://emhelp.cjb.net/

http://www.erythromelalgia.org/

http://www.erythromelalgia.cjb.net/ .

Meg

Re: Red thumb - Bizarre!

Meg is right. The symptoms described by Kent Portman's message suggest

possibility of erythromelalgia. This condition can co-exist with rosacea.

Sy MD

Sy Skin Care

http://www.lindasy.com

Voice:Toll-free 877-sy (546-3279)

Outside U.S.:

FAX:

Re: Red thumb - Bizarre!

You may have Erythromelalgia, which is a disease that causes redness

and burning in your extremities, like hands and feet.

Meg

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