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CATHY IT DOSEN'T SEEM RIGHT THAT A DOCTOR CAN REFUSE TO TREAT YOU BUT I HAVE HAD THE SAME THING. IT'S LIKE WE HAVE A CONTAGIOUS DIEASE OR SOME THING.BUT YOU CAN NOT GIVE UP YOU HAVE TO KEEP TRYING TO GET A DOCTOR, AS THEY SAY YOU MAY GO THRU 25 TO FIND ONE THAT IS GOOD. I AM CALLING EVERY WHERE AND TRYING TO GET A DOCTOR. NOW MY COUNSELOR IS CHECKING OUT DOCTORS THAT MY BE ABLE TO HELP ME ,I WAS SO SURPRIZED WHEN SHE SAID THAT SHE WAS GOING TO DO THAT. BUT YOU NEVER KNOW. PLEASE TAKE CARE AND KNOW THAT EVERY ONE CARES ABOUT YOU.. SOFT HUGS TO YOU PAMfishthatsmiles@... wrote: hand up and say i will not treatyo and get up and walk out. then theyput in m chart problem patient. they do not tell their side of thestory. i know it s against the law. but they do it alal the time. sobefore i leave the office i say i want to talk to this doctor again forone min ute and then when they come and seee e i yell o the top of mylungs in their wating room what they did to me and i tell them i dare

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CATHY IT DOSEN'T SEEM RIGHT THAT A DOCTOR CAN REFUSE TO TREAT YOU BUT I HAVE HAD THE SAME THING. IT'S LIKE WE HAVE A CONTAGIOUS DIEASE OR SOME THING.BUT YOU CAN NOT GIVE UP YOU HAVE TO KEEP TRYING TO GET A DOCTOR, AS THEY SAY YOU MAY GO THRU 25 TO FIND ONE THAT IS GOOD. I AM CALLING EVERY WHERE AND TRYING TO GET A DOCTOR. NOW MY COUNSELOR IS CHECKING OUT DOCTORS THAT MY BE ABLE TO HELP ME ,I WAS SO SURPRIZED WHEN SHE SAID THAT SHE WAS GOING TO DO THAT. BUT YOU NEVER KNOW. PLEASE TAKE CARE AND KNOW THAT EVERY ONE CARES ABOUT YOU.. SOFT HUGS TO YOU PAMfishthatsmiles@... wrote: hand up and say i will not treatyo and get up and walk out. then theyput in m chart problem patient. they do not tell their side of thestory. i know it s against the law. but they do it alal the time. sobefore i leave the office i say i want to talk to this doctor again forone min ute and then when they come and seee e i yell o the top of mylungs in their wating room what they did to me and i tell them i dare

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pretty good all they wantis me to go away and die. so i will. lve ya cathy

Cathy,

I know I am a couple of days late. But don't go away and die!!

Please never say that again!!

What you should do is call your local news station and or paper and let people know what is going on!!! We have got to make people know how doctors are treating people with pain.

Okay I will carefully get off my high horse for today.

I hope you are doing better, and I will see a better e-mail later.

love ya,

Lin

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> pretty good all they want

> is me to go away and die. so i will. lve ya cathy

>

Cathy

I know that there are many drs out there that just dont seem to care,

that they would rather we disappeared than to ever show up at their

offices again, BUT just the same there are those out there who would

search high and low to find a treatment that works for us and those

are the ones you need to try and find! Call every Dr you can locate

and ask them if they know what RSD is? If they can give you an

explanation about then your onto a good start, if they dont, steer

clear of them! But don't ever ever give up Cathy. Keep fighting for

yourself, your family and your friends!

We care Cathy, never doubt that!

Hugs and wishes for a less painful day!

Donna

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> pretty good all they want

> is me to go away and die. so i will. lve ya cathy

>

Cathy

I know that there are many drs out there that just dont seem to care,

that they would rather we disappeared than to ever show up at their

offices again, BUT just the same there are those out there who would

search high and low to find a treatment that works for us and those

are the ones you need to try and find! Call every Dr you can locate

and ask them if they know what RSD is? If they can give you an

explanation about then your onto a good start, if they dont, steer

clear of them! But don't ever ever give up Cathy. Keep fighting for

yourself, your family and your friends!

We care Cathy, never doubt that!

Hugs and wishes for a less painful day!

Donna

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  • 4 weeks later...

Lyn,

both were prior conditions for me...Have been dx with raynaud's for 7-8 yrs and fibro for 10 yrs now. Hugs..Ginnylynlorraine wrote:

Hi Jo, Do you remember if Fibro and raynaud's were prior conditions or if after RSD? Guess you've already done a lot of work that helps us with our questions! I noticed that there is a place to set up polls but not too many have participated. Do we need to get approval for a poll? Thanks,Lynjomal1@a... wrote:> I do note some patterns.. fibro and raynauds are fairly common > co-diagnosis.. > I've tried keeping track of hundreds of people and what they all have in > common,

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HI JO,,,,,,WELL HERE IS SOME MORE INFO FOR YOU WHEN MY RSD STARTED 10 YEARS AGO I DID NOT SMOKE AT ALL UNTIL 3 YEARS AGO...BUT I DONT KNOW IF THIS MATTERS IN MY CASE BUT I THOUGHT I THROW THAT IN OK....HUGS TO YA PAMjomal1@... wrote:

I wish I could answer why we were the "lucky" ones who wound up with RSD.. I do note some patterns.. fibro and raynauds are fairly common co-diagnosis..

I find that MOST people who have RSD currently or have, smoked... but not all.

I've tried keeping track of hundreds of people and what they all have in common, and the answer to that is not everyone has everything in common.

Must be some pre-disposition to develop RSD, much the same one is pre-disposed to other diseases, such as cancer, diabetes, etc.

If anyone finds the reason why, a cure can't be far behind.. I'll keep praying for that!

Hugs,

JO

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