diet complications - Bill/

[Guest guest]

Undetected Pancreatis (sp?) was another one I think? And the heart fatality

was from prolonged QT syndrome, but the child had a long period of v high BHBs

and yes, I think was on concurrent AEDs.

's cardiac problems that were picked up in late 2002 were when his

ketones were v high, and when he was on 3 meds (including my friend not - a high

dose benzo..). He had always had ventricular ectopics, prior to starting keto,

but the echo in 2002 showed he had also developed atrial ectopics (so from a

different chamber) and reduced ventricular function. So began our journey into

the cardiac world alongside the neuro appts.....

Anyways - The echo he had done 2 weeks ago showed he no longer has the

ventricular dysfunction, and no ectopics were picked up in the brief ECG in the

clinic. However, he then had a 24 hr ECG holter monitoring him at home here, and

I don't yet have the results. My pick is that he will still have them, but a lot

less in number, as any ECG strip previously, like even for 25 secs used to pick

them up.

Sooooo.....my biased conclusion is - high ketones in conjunction with a

med cocktail is the one to watch for, in all areas, including liver and heart.

The checking for cardiac abnormalities, especially prolonged QT syndrome, is

something I believe that should be set out in any diet protocol - the paper

outlining the fatal case and potential cardiac complications is in the files

section,

----- Original Message -----

From: Bill Barber

Even the common side effects can be fatal if not addressed promptly;

diarrhea, constipation, vomiting, dehydration, etc. For the less common

ones, they range from liver failure to kidney stones, to heart problems.

I don't have my old files here right now, but I can vaguely recollect

problems with liver especially. Some of the patients were on concurrent

regimes of one or more medications, so this can also be a hazard when

going on the diet. These were articles from medical journals. Perhaps a

computerized search would be able to locate them?

Some of the children are very young and some are also considered

medically fragile and some are unable to communicate distress.

Even the difficulties of insufficient vitamins and minerals and possible

effects of bone loss and high cholesterol can be serious in the long

term. And for many of us, the diet is long term.

Bill

mmc@... wrote:

> Bill Barber wrote:

>

>

>> There are many common negative side effects to the diet. There are

>>also

>>some rare but very serious, even fatal side effects.

>

>

> Just curious Bill, what are the fatal ones? Only ones I know of can

> potentially come from a few rare pre-existing conditions which should be

> screened out before keto is started

>