Question .....can you help?

[Guest guest]

Hi all,

I am writing to inquire if anyone has had, or knows of someone with

Ehlers-Danlos Syndrome who has dealt with the problem of producing

excessive amounts of mucus. This child's symptoms are similar to asthma. A

mucous biopsy revealed nothing. No infections, no allergies. The child

has a hard time breathing in and out, and all breathing tests

showed normal breathing capacity.

The child takes adult doses of Advair - 500, 2 times a day and combivent, 2

times a days with minimal results.

If anyone can help please post me at rrogers@... It doesn't

matter where you live.....anywhere on this planet!

Thanks,

Joyce

[Guest guest]

I make excessive amounts of mucus at times for NO known reason. I am

classified as an allergic asthmatic (and am unsure why) as well as an

Atopic person wiht so many allegies.

I take asthma and allergy medications (Ventolin, Oxis, Pulmicort,

Polaramine, Beconase hayfever nasal spray etc etc).

I have NEVER had any piopsy tests or anythign and no one has ever

said it was anything unusual but I do know it is more than normal.

Has the child been tested for Cystic Fibrosis and other related

disorders??? as these can cause excessive mucus.

I am more worried about not having enouigh as my Mum had Sjogren's

Disease an auto-immune disease of the mucus membranes that halt mucus

production (including tears).

I know this isn't much help but if you like you or they can email me

at shazzinoz @ hotmail.com.

Sharon

> Hi all,

>

> I am writing to inquire if anyone has had, or knows of someone with

> Ehlers-Danlos Syndrome who has dealt with the problem of producing

> excessive amounts of mucus. This child's symptoms are similar to

asthma. A

> mucous biopsy revealed nothing. No infections, no allergies. The

child

> has a hard time breathing in and out, and all breathing tests

> showed normal breathing capacity.

>

> The child takes adult doses of Advair - 500, 2 times a day and

combivent, 2

> times a days with minimal results.

>

> If anyone can help please post me at rrogers@a... It doesn't

> matter where you live.....anywhere on this planet!

>

> Thanks,

> Joyce

>

>

[Guest guest]

I make excessive amounts of mucus at times for NO known reason. I am

classified as an allergic asthmatic (and am unsure why) as well as an

Atopic person wiht so many allegies.

I take asthma and allergy medications (Ventolin, Oxis, Pulmicort,

Polaramine, Beconase hayfever nasal spray etc etc).

I have NEVER had any piopsy tests or anythign and no one has ever

said it was anything unusual but I do know it is more than normal.

Has the child been tested for Cystic Fibrosis and other related

disorders??? as these can cause excessive mucus.

I am more worried about not having enouigh as my Mum had Sjogren's

Disease an auto-immune disease of the mucus membranes that halt mucus

production (including tears).

I know this isn't much help but if you like you or they can email me

at shazzinoz @ hotmail.com.

Sharon

> Hi all,

>

> I am writing to inquire if anyone has had, or knows of someone with

> Ehlers-Danlos Syndrome who has dealt with the problem of producing

> excessive amounts of mucus. This child's symptoms are similar to

asthma. A

> mucous biopsy revealed nothing. No infections, no allergies. The

child

> has a hard time breathing in and out, and all breathing tests

> showed normal breathing capacity.

>

> The child takes adult doses of Advair - 500, 2 times a day and

combivent, 2

> times a days with minimal results.

>

> If anyone can help please post me at rrogers@a... It doesn't

> matter where you live.....anywhere on this planet!

>

> Thanks,

> Joyce

>

>

[Guest guest]

I make excessive amounts of mucus at times for NO known reason. I am

classified as an allergic asthmatic (and am unsure why) as well as an

Atopic person wiht so many allegies.

I take asthma and allergy medications (Ventolin, Oxis, Pulmicort,

Polaramine, Beconase hayfever nasal spray etc etc).

I have NEVER had any piopsy tests or anythign and no one has ever

said it was anything unusual but I do know it is more than normal.

Has the child been tested for Cystic Fibrosis and other related

disorders??? as these can cause excessive mucus.

I am more worried about not having enouigh as my Mum had Sjogren's

Disease an auto-immune disease of the mucus membranes that halt mucus

production (including tears).

I know this isn't much help but if you like you or they can email me

at shazzinoz @ hotmail.com.

Sharon

> Hi all,

>

> I am writing to inquire if anyone has had, or knows of someone with

> Ehlers-Danlos Syndrome who has dealt with the problem of producing

> excessive amounts of mucus. This child's symptoms are similar to

asthma. A

> mucous biopsy revealed nothing. No infections, no allergies. The

child

> has a hard time breathing in and out, and all breathing tests

> showed normal breathing capacity.

>

> The child takes adult doses of Advair - 500, 2 times a day and

combivent, 2

> times a days with minimal results.

>

> If anyone can help please post me at rrogers@a... It doesn't

> matter where you live.....anywhere on this planet!

>

> Thanks,

> Joyce

>

>

[Guest guest]

Does the child live in a home where the parent(s) smoke? Or is this a

recent onset sort of issue?

Jill

[Guest guest]

Does the child live in a home where the parent(s) smoke? Or is this a

recent onset sort of issue?

Jill

[Guest guest]

Does the child live in a home where the parent(s) smoke? Or is this a

recent onset sort of issue?

Jill