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Barb,

I will and can do that if I have to, But I was just thinking that going to the

press or TV might get the word out about EDS and make it easier to find a Dr

willing to take us on. So how do you interview a Dr.? In person, on the phone?

Do you expect them to already know about EDS or just willing to learn? Do you

ask them straight out if they are willing to go the extra mile to write all the

referrals and papers needed, and make the necessary phone calls, and if they are

willing to fight the insurance? Or do I just tell them I have a child with EDS

are they willing to take him on? And leave it that? I need a Dr that will go the

extra mile. Cindy C.

Re: Question.

Why not? I have done so each time I have had to find a new doctor.

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You need to make sure that Dylan likes this new doctor as well and

that Dylan even has some trust or rapore (sp?) with this new doctor,

so that he can talk to the doctor himself.

I would talk to them on the phone first and if you like the sound etc

of them then make an appointment and you and Dylan go and interview

these docotrs in person (watch and see if this doctor actually

LISTENS to your son when he is talking).

Sharon

> Barb,

> I will and can do that if I have to, But I was just thinking that

going to the press or TV might get the word out about EDS and make it

easier to find a Dr willing to take us on. So how do you interview a

Dr.? In person, on the phone? Do you expect them to already know

about EDS or just willing to learn? Do you ask them straight out if

they are willing to go the extra mile to write all the referrals and

papers needed, and make the necessary phone calls, and if they are

willing to fight the insurance? Or do I just tell them I have a child

with EDS are they willing to take him on? And leave it that? I need a

Dr that will go the extra mile. Cindy C.

> Re: Question.

>

>

>

> Why not? I have done so each time I have had to find a new

doctor.

>

>

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You need to make sure that Dylan likes this new doctor as well and

that Dylan even has some trust or rapore (sp?) with this new doctor,

so that he can talk to the doctor himself.

I would talk to them on the phone first and if you like the sound etc

of them then make an appointment and you and Dylan go and interview

these docotrs in person (watch and see if this doctor actually

LISTENS to your son when he is talking).

Sharon

> Barb,

> I will and can do that if I have to, But I was just thinking that

going to the press or TV might get the word out about EDS and make it

easier to find a Dr willing to take us on. So how do you interview a

Dr.? In person, on the phone? Do you expect them to already know

about EDS or just willing to learn? Do you ask them straight out if

they are willing to go the extra mile to write all the referrals and

papers needed, and make the necessary phone calls, and if they are

willing to fight the insurance? Or do I just tell them I have a child

with EDS are they willing to take him on? And leave it that? I need a

Dr that will go the extra mile. Cindy C.

> Re: Question.

>

>

>

> Why not? I have done so each time I have had to find a new

doctor.

>

>

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