Re: Very tired and down - sorry

[Guest guest]

Thank Bonnie - I have been in touch with Profs secretary and I am on

the cancellation list, but have to bear in mind the 2 hour drive to

get there still of course. All I can do is wait and hope. Thanks for

your thoughst Darl, hope you are okay.

Love and hugs.....Jo

xxx

[Guest guest]

Oh Jo,

Is there any way that Mac can get you admitted to the hospital for

pain relief and SLEEP (i mean with IV meds and a proper bed (with the

air circulation matresses etc (like they use for those who are in bed

for a long time to prevent bed sores etc) and full rest of your arm

and body and SLEEP as well as anythign else you can get while in

hospital (if you are admitted I would get both Mac and the hospital

to call PRof. Bird and tell him that you have been admitted for pain

relief and control as your EDS has gotten to a point of being so out

of control that you are out of there league and need his URGENT help.

You may find that as you are an inpatient you may get help sooner (if

possible is there anyway Mac or antoher docotr you or he knows can

get you admitted to the hospital that prof. Bird or Proif. Grahame

attends? and then hit them with needing to see him while you are an

inpatient (this can get you to see him a LOT quicker as you are

instead fitted intoa TOTALLY different set of books and appointments

and are seen WHILE you are an inpatient.

Just a thought Jo as this way AT LEAST you may get some relief and

some help!!!!

Your Friend

Sharon ;'-<

> Well it is currently almost 3am here and I am yet again wide awake

> and unable to even contemplate lying on my bed as I'm in so much

pain

> already and lying down only subluxes some other part of my body. I

> have taken enough pain meds to knock out an elephant without any

> effects and have been given some sleeping pills by my GP that don't

> make me sleepy, just cause incredible dizziness and make me

> hallucinate - at this present time I will swear blind there is a

> snake on my desk.

>

> My body is just screaming. The left wrist is throbbing in the rigid

> splint, and deathly white, my left shoulder is sitting subluxed

> anteriorly, my neck is misaligned again causing my hands keep going

> numb and deathly white and my legs just feel like useless lumps of

> lead and are shaking with the pain as if someone has wired them up

to

> the national electricity grid. I don't care what any doctor in the

> world says right now - EDS hurts!

>

> The past week I have not been to bed before 4am because of my fear

of

> lying in pain and I haven't slept for more than an hour in months.

> I'm at the end of my tether with this pain and yet my pain

management

> clinic will not touch me until I have been assessed by Professor

Bird

> and I can't see him for at least another 3 months - due to waiting

> lists and medical ineptitude I've already been waiting 18 months. :-

(

>

> I'm sorry for the whinge...but I really am just feeling very tried,

> in agony and completely hopeless. I am so tired. I am so sore. I am

> so fed up with all of this...I am currently hoping for sleep, but

all

> I really want is to wake up from this nightmare....

>

> Thank you for letting me vent and my apologies for being pathetic.

>

> Love and hugs....Jo

> xxx