RE: nikki&garrett

[Guest guest]

Hi.

I don't write often, either, but I can just say that, like many other

families here, I'm sure, we have a very similar story as you all. Our

son Tyler, now 3, had drop seizures, we thought he had epilepsy due to

cerebral palsy for a short while, then he was diagnosed as having

Angelman's syndrome. It's a unique disorder, but the diet has worked

marvelously for him! NO seizures for 5 months, and he began to walk

shortly after being seizure free! Glad to hear you're having such great

results, too!

McNeil

CheeseCake Recipe

What a blessing this site is. Thank you to all that participate. I

have not posted anything until now. But I faithfully check it once a

week.

Just a brief description on us and how we've been blessed by the

diet. Garrett's intial diagnosis was in Oct of 2000. We didn't get

the drop seizure diagnosis until January of 2001. What a hell it was

just proving to the medical community that there was something going

on! And we thought once we had the epilepsy diagnosis we had the

answer! HA How young and innocent we were! :-)Anyhow, at that point

we began the journey of looking for a fix, a control. Since that

point we've gone through several years with out control and a variety

of meds. He has since also been diagnosed as being autistic and

having sensory issues. We have watched our fearless, funny, brave,

imaginative little boy slowly over time turn into a zombie. He was on

525 mg of Lamictal & 3 mg of Clonazepam every day and the control the

meds had over the seizures were beginning to slip away. We had an

option, continue to increase meds or try the diet. Thank you God for

having us try the diet!

My son began the diet in July of this year. Garrett had his first EEG

since the diet in August. Only 30 days after starting the diet and it

was NORMAL! Normal! I don't think anyone other than other parents of

children w/epilepsy can really understand. At that time he was still

on a very low dose of meds. We have since removed all meds (last

week!) and are seeing some break out seizures. But I have the faith

that these too will dissipate as soon as his system adjusts to no

meds. First time in 4 years! But boy what a difference. We have our

son back. Everyone who knew him before comments on the HUGE change. I

could gush on and give thanks forever. My advice to anyone one on the

diet is don't give up hope. Only you know what's right for your

child.

My whole reason for posting tonight was to get the Cheesecake recipe.

His birthday party is scheduled for Saturday and the dietician has

not gotten it to me at this point. Any help anyone could provide

would be greatly appreciated.

Thanks in advance, Toni mother to Garrett, keto kid since July 2004,

drug free since October 2004.

" The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

List is for parent to parent support only.

It is important to get medical advice from a

professional keto team!

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