Does the plagiocephaly go away on its own?...Our pediatrician will not approve

[Guest guest]

Does anyone have experience with Plagiocephaly going away on its own?

My 15 week old daugher has torticollis and plagiocephaly and the

physical therapist is saying she needs a DOC band but the pediatrician

is saying lets revisit the issue when she is 6 months old and won't

approve. Isn't it better to fix it early? Can the head fix itself once

they start sitting up? It doesn't seem possible. Thanks for all your

help!!!

[Guest guest]

The younger the better but if you do have to wait till 6 months that

is still a good age. But of course the younger the better.

Haylee

mom to andre doc band grad

>

> Does anyone have experience with Plagiocephaly going away on its

own?

> My 15 week old daugher has torticollis and plagiocephaly and the

> physical therapist is saying she needs a DOC band but the

pediatrician

> is saying lets revisit the issue when she is 6 months old and won't

> approve. Isn't it better to fix it early? Can the head fix itself

once

> they start sitting up? It doesn't seem possible. Thanks for all your

> help!!!

>

[Guest guest]

Hello and welcome to this group. The story about plagio fixing

it'self is a myth. The proof for that is that this group has over

6000 members.

Like said, the younger you start the better. I would see if you

can't find a new ped that will take care of things.

Sandy Willow's Mom (6-2-2003)

Torticollis resolved (02-2004)

Cranio Germany Grad (02-2004)

www.geocities.com/samipa74/Willow_Lanette.html

www.palmerfamily.armedforcesfamilies.com

www.drmy.net/spalmer

>

> Does anyone have experience with Plagiocephaly going away on its

own?

> My 15 week old daugher has torticollis and plagiocephaly and the

> physical therapist is saying she needs a DOC band but the

pediatrician

> is saying lets revisit the issue when she is 6 months old and won't

> approve. Isn't it better to fix it early? Can the head fix itself

once

> they start sitting up? It doesn't seem possible. Thanks for all your

> help!!!

>

[Guest guest]

If you doubt your pedi, either get a second opinion or find a CT (if one is nearby), most (if not all) will do a consultation for free. Then you can educate your pedi.

Amy (SC)>

> Does anyone have experience with Plagiocephaly going away on its own? > My 15 week old daugher has torticollis and plagiocephaly and the > physical therapist is saying she needs a DOC band but the pediatrician > is saying lets revisit the issue when she is 6 months old and won't > approve. Isn't it better to fix it early? Can the head fix itself once > they start sitting up? It doesn't seem possible. Thanks for all your > help!!!>

For more plagio info, go to

www.plagiocephaly.org/support

[Guest guest]

HI and welcome to the group. As you have already been told, plagio

does not go away on its own. It does take some sort of intervention

whether that be a band/helmet or aggressive repositioning. Depending

on the severity of your child's flatness, she is still young enough to

start repositioning to get her head rounded. Even if you are

intending to band your dd, repo is a good idea for the time it takes

to get thru the apps and the casting/fitting process. There is a

wealth of information on repo in our files section under Repositioning

Headquarters. Ideally you want to keep you child off her flatspot as

much as possible. Change her position in the crib, use things to prop

her up onto the rounded side so she doesn't rest on the flat spot.

Try not to use the swing or bouncy seat. There is a great chair

called a Bumbo that you can get at Target or online at

www.bumboseat.com. Please let me know if you would like m ore info on

repositioning. I repo'ed my dd's fairly mild plagio and now 2 rs

later I can hardly tell she was ever flat.

As far as your pede, if you are unhappy with him/her, I would suggest

getting a second opinion or swithing pede's altogether. A mother has

to be able to trust the things her pede tells her and if you don't

then you need a new one.

HTH

Becky

, repo grad

Pittsburgh, PA

>

> Does anyone have experience with Plagiocephaly going away on its

own?

> My 15 week old daugher has torticollis and plagiocephaly and the

> physical therapist is saying she needs a DOC band but the

pediatrician

> is saying lets revisit the issue when she is 6 months old and won't

> approve. Isn't it better to fix it early? Can the head fix itself

once

> they start sitting up? It doesn't seem possible. Thanks for all your

> help!!!

>

[Guest guest]

Hi! I am a relatively new to this group and I am here to tell you that no, it

does not fix

itself after they start to sit up. My pediatrician also kept putting me off and

now I am just

getting my Starband and Genevieve is 10 months old, which is on the late side.

Genevieve

crept early and crawled early and was never laying on her head (while awake)

from about 5

months on and her head is still flat enough for Blue Cross's " medically

necessary " cut off. I

did change pediatricians and I am still really angry at my first pediatrician.

She sticks by

her opinion that she made no mistakes, and if she had at least sent me to a

physical

therapist at 10 weeks when I first pointed out the flattening, Genevieve might

have

avoided the helmet.

You are lucky you are looking into things now! If I were you I would have your

baby

looked at by a specialist and have her measured. Many of the suppliers of the

helmets will

measure a baby without charging! (At least the people at Stellar in Pasadena CA

are great

and will measure). That way you can see how bad things are. Then you could try

repositioning for a month (this is easier when the baby is younger because they

actually

stay still at night when they sleep.) Then remeasure and see if there has been

any change.

But if there is no improvement, then I would go ahead and make appointments to

get

started. In LA at least, the helmet makers and the specialists all seem to be

pretty booked

up. They saw us quickly only because my pediatrician had put us off for months

and we

ended up getting started when Genevieve was 9 months old - which is late. That

is the

last time I will let a doctor put me off my instincts.

Good luck!!

.

> >

> > Does anyone have experience with Plagiocephaly going away on its

> own?

> > My 15 week old daugher has torticollis and plagiocephaly and the

> > physical therapist is saying she needs a DOC band but the

> pediatrician

> > is saying lets revisit the issue when she is 6 months old and won't

> > approve. Isn't it better to fix it early? Can the head fix itself

> once

> > they start sitting up? It doesn't seem possible. Thanks for all your

> > help!!!

> >

>

[Guest guest]

But is it too late to start with strictly repositioning? Our

daughter seems so active to unless she is sleeping it is difficult

to keep her off that side. We try to do a lot of tummy time. I hate

to put her in the helmet if I can correct it on my own with things

like repositioning but I also don't wan to wait until it's too late.

Mother of le, 15 weeks old, tort and plagio

Phoenix, AZ area

> > >

> > > Does anyone have experience with Plagiocephaly going away on

its

> > own?

> > > My 15 week old daugher has torticollis and plagiocephaly and

the

> > > physical therapist is saying she needs a DOC band but the

> > pediatrician

> > > is saying lets revisit the issue when she is 6 months old and

won't

> > > approve. Isn't it better to fix it early? Can the head fix

itself

> > once

> > > they start sitting up? It doesn't seem possible. Thanks for

all your

> > > help!!!

> > >

> >

>

[Guest guest]

> > >

> > > Does anyone have experience with Plagiocephaly going away on

its

> > own?

> > > My 15 week old daugher has torticollis and plagiocephaly and

the

> > > physical therapist is saying she needs a DOC band but the

> > pediatrician

> > > is saying lets revisit the issue when she is 6 months old and

won't

> > > approve. Isn't it better to fix it early? Can the head fix

itself

> > once

> > > they start sitting up? It doesn't seem possible. Thanks for

all your

> > > help!!!

> > >

> >

>

[Guest guest]

Almost 4 months is not too late to start with repositioning. I

started m dd's repo at 3.5 months and our other repo mid, Christie,

started her dd's repo at 5 or 5.5 months and we both had great

success. This is a good time to start because you have a little

time to ry the repo and look for progress but you can set a re-

evaluation date that is still early enough that you can get your dd

banded if that's what you want to do.

That's great that she is getting more active, but i am sure she

still spends more time than you think resting on the flat of her

head. Do you still cradle her or hold her at all whiule she is

feeling? What about naps? There are still plenty of opportunities

for repo. Please check out the Photos section under Before and After

Pictures/Repositioned and look for picures of " S. " (my dd)

and " Remy " (Christie's dd) and you can see the progress that was

made with repo.

HTH

Becky

, repo grad

Pittsburgh, PA

> > > >

> > > > Does anyone have experience with Plagiocephaly going away on

> its

> > > own?

> > > > My 15 week old daugher has torticollis and plagiocephaly and

> the

> > > > physical therapist is saying she needs a DOC band but the

> > > pediatrician

> > > > is saying lets revisit the issue when she is 6 months old

and

> won't

> > > > approve. Isn't it better to fix it early? Can the head fix

> itself

> > > once

> > > > they start sitting up? It doesn't seem possible. Thanks for

> all your

> > > > help!!!

> > > >

> > >

> >

>

[Guest guest]

I cannot really answer your question but I will say that if your daughter sleeps

for a good

long period at night, and you reposition at night, it should start to correct.

My specialist

gave me research that indicated repositioning can be as effective as the helmet.

However,

if your daughter is flat to one side, you should not put her on a memory foam.

This will

not exert the pressure needed on the non-flat side to even things out. Position

her with

wedges or, as my specialist advised, rice filled pantyhose or knee-highs. Keep

the non-

flat side down to the mattress, stick the rice-filled pantyhose wedged under the

flat side

so she is slightly leaning away from the flat side. Also, it helps to get some

of these items

under the flat-side shoulder as well. Lots of tummy time of just plain carrying

her around

during the day will keep her off her head. I know that carrying a child

around can be very

tiring, but get yourself a baby bjorn and just wear her around. It is true that

her neck may

get tired, but they develop so quickly and their muscles adapt so quickly that

she will be

strong enough in no time.

Good luck! You can do it!!

.

> > > >

> > > > Does anyone have experience with Plagiocephaly going away on

> its

> > > own?

> > > > My 15 week old daugher has torticollis and plagiocephaly and

> the

> > > > physical therapist is saying she needs a DOC band but the

> > > pediatrician

> > > > is saying lets revisit the issue when she is 6 months old and

> won't

> > > > approve. Isn't it better to fix it early? Can the head fix

> itself

> > > once

> > > > they start sitting up? It doesn't seem possible. Thanks for

> all your

> > > > help!!!

> > > >

> > >

> >

>