nightly seizures? help please

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Hi !

Carlie jae is currently on the ketogenic diet and for the most part it works.

I feel confident that it does help to control her seizures most of the time.

However, lately i have been noticing that Carlie Jae starts to have seizures at

night just after she falls asleep. she cries out and then starts to go into a

tonic

clonic it ends quickly but during the seizure it seems fairly intense and she

does this repeatedly for hours. i usually go to bed around 11:30pm and so i do

not know if it continues.

She then usually has a seizure in the moning around the same time. she is

taking 10mg of frisium/clobazam a day for an aed (right now as I am writing

this I can hear her having a seizure)

any help?suggestions ideas

Thanks Robyn

__________________

Hi I am mom to Carlie Jae 7 years, who was born with cerebral atrophy to her

frontal and temporal lobes. Global dev delays, g-tube fed and cannot walk yet!

.. She has also cental nervous system irritability and intractable seizure

disorder but mostly under control with the ketogenic diet and only one AED.

Carlie Jae has been ketofed since march 2001

Gorgeous red curly hair and a smile that would melt

eventhetoughestofheartsthetoughestofheartsthetough

estofheartsthetoughestofheartsxxx

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