Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Good luck ! Let us know about your results! Love Lana " 'Be who you are and say what you feel because those who mind don't matter and those who matter don't mind.' " Dr. Suess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Good luck ! Let us know about your results! Love Lana " 'Be who you are and say what you feel because those who mind don't matter and those who matter don't mind.' " Dr. Suess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Good luck ! Let us know about your results! Love Lana " 'Be who you are and say what you feel because those who mind don't matter and those who matter don't mind.' " Dr. Suess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Hello Everyone! Thanks for everyone's responses to me. Tommorrow is my big day at NIH. Genetics and a skin biopsy and I don't know what else. This has taken 10 months to arrange, finally a diagnosis for EDS or not. Any suggestions? I think I have all my ducks in a row, all the data and history. If anyone has anything elase for me to add, please let me know. Sincerely, S. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 You know I love you girl, best of luck to find your answers. Your on you way finally! Call me when you get home if your up to it. Only suggestion, write everything down you want to ask so you don't forget anything. Don't forget to ask about your meds. You are in way to much pain. Later Buddy Cindy NIH tommorrow Hello Everyone! Thanks for everyone's responses to me. Tommorrow is my big day at NIH. Genetics and a skin biopsy and I don't know what else. This has taken 10 months to arrange, finally a diagnosis for EDS or not. Any suggestions? I think I have all my ducks in a row, all the data and history. If anyone has anything elase for me to add, please let me know. Sincerely, S. To learn more about EDS, visit our website: http://www.ceda.ca ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 You know I love you girl, best of luck to find your answers. Your on you way finally! Call me when you get home if your up to it. Only suggestion, write everything down you want to ask so you don't forget anything. Don't forget to ask about your meds. You are in way to much pain. Later Buddy Cindy NIH tommorrow Hello Everyone! Thanks for everyone's responses to me. Tommorrow is my big day at NIH. Genetics and a skin biopsy and I don't know what else. This has taken 10 months to arrange, finally a diagnosis for EDS or not. Any suggestions? I think I have all my ducks in a row, all the data and history. If anyone has anything elase for me to add, please let me know. Sincerely, S. To learn more about EDS, visit our website: http://www.ceda.ca ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Thanks my buddy Cindy C. Hugs, NIH tommorrow Hello Everyone! Thanks for everyone's responses to me. Tommorrow is my big day at NIH. Genetics and a skin biopsy and I don't know what else. This has taken 10 months to arrange, finally a diagnosis for EDS or not. Any suggestions? I think I have all my ducks in a row, all the data and history. If anyone has anything elase for me to add, please let me know. Sincerely, S. To learn more about EDS, visit our website: http://www.ceda.ca ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Thanks my buddy Cindy C. Hugs, NIH tommorrow Hello Everyone! Thanks for everyone's responses to me. Tommorrow is my big day at NIH. Genetics and a skin biopsy and I don't know what else. This has taken 10 months to arrange, finally a diagnosis for EDS or not. Any suggestions? I think I have all my ducks in a row, all the data and history. If anyone has anything elase for me to add, please let me know. Sincerely, S. To learn more about EDS, visit our website: http://www.ceda.ca ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Thanks my buddy Cindy C. Hugs, NIH tommorrow Hello Everyone! Thanks for everyone's responses to me. Tommorrow is my big day at NIH. Genetics and a skin biopsy and I don't know what else. This has taken 10 months to arrange, finally a diagnosis for EDS or not. Any suggestions? I think I have all my ducks in a row, all the data and history. If anyone has anything elase for me to add, please let me know. Sincerely, S. To learn more about EDS, visit our website: http://www.ceda.ca ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Forgot one thing Cindy C., Love you too!!!!!! NIH tommorrow Hello Everyone! Thanks for everyone's responses to me. Tommorrow is my big day at NIH. Genetics and a skin biopsy and I don't know what else. This has taken 10 months to arrange, finally a diagnosis for EDS or not. Any suggestions? I think I have all my ducks in a row, all the data and history. If anyone has anything elase for me to add, please let me know. Sincerely, S. To learn more about EDS, visit our website: http://www.ceda.ca ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Forgot one thing Cindy C., Love you too!!!!!! NIH tommorrow Hello Everyone! Thanks for everyone's responses to me. Tommorrow is my big day at NIH. Genetics and a skin biopsy and I don't know what else. This has taken 10 months to arrange, finally a diagnosis for EDS or not. Any suggestions? I think I have all my ducks in a row, all the data and history. If anyone has anything elase for me to add, please let me know. Sincerely, S. To learn more about EDS, visit our website: http://www.ceda.ca ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Forgot one thing Cindy C., Love you too!!!!!! NIH tommorrow Hello Everyone! Thanks for everyone's responses to me. Tommorrow is my big day at NIH. Genetics and a skin biopsy and I don't know what else. This has taken 10 months to arrange, finally a diagnosis for EDS or not. Any suggestions? I think I have all my ducks in a row, all the data and history. If anyone has anything elase for me to add, please let me know. Sincerely, S. To learn more about EDS, visit our website: http://www.ceda.ca ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Good luck tomorrow, . I hope everything goes great for you and NIH. All the best, Patti Re: NIH tommorrow To learn more about EDS, visit our website: http://www.ceda.ca ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Good luck tomorrow, . I hope everything goes great for you and NIH. All the best, Patti Re: NIH tommorrow To learn more about EDS, visit our website: http://www.ceda.ca ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Good luck tomorrow, . I hope everything goes great for you and NIH. All the best, Patti Re: NIH tommorrow To learn more about EDS, visit our website: http://www.ceda.ca ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 I just saw that you were going today (?)! That is wonderful! Although I am not in that specific protocol , I have been in others and everyone there has always been absolutely wonderful! The resources at the clinical center are unbelievable and it is all free. I hope that you have a great visit. See if you can utilize them to the max...like any MRI's you need, other consults etc... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 I just saw that you were going today (?)! That is wonderful! Although I am not in that specific protocol , I have been in others and everyone there has always been absolutely wonderful! The resources at the clinical center are unbelievable and it is all free. I hope that you have a great visit. See if you can utilize them to the max...like any MRI's you need, other consults etc... Quote Link to comment Share on other sites More sharing options...
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