This site - the good, the bad and the ugly

[Guest guest]

This is such a busy site and we get so many good messages, but also

plenty of bad and ugly ones! We seem to suffer from what I call

the " angry young man syndrome " - thats not to say the people posting

are necessarily young or male, but many do seem very angry - that is,

they take an aggressive tone which I for one really don't appreciate!

Many of us here have coped with rosacea for many years and have found

time and time again that what suits one may be disastrous for

another. Its a case of trying things out gradually and discovering

what works and what doesn't in your own particular case.

From experience I'd advise against going out and buying a whole bunch

of supplements and potions and using them all together. Just try one

thing at a time - that way you get to see what really helps and what

may just be a waste of your hard earned cash.

Finally, lets keep this pain in the backside condition in

perspective - it may make you feel wretched at times but there are

far worse things we could be suffering from!

[Guest guest]

That must be referring to my reply to Steve. My apologies to Jill

and everyone. It's one thing for a person to come in and say " Well

folks, here's what worked for me....... " But it's another thing to

come in and say you're all wrong, the derms are all wrong, and this

is the only thing that will ever work for you all.

I really don't think my derms are prescribing things to make money.

They both have more patients than they can handle, one has a two

month waiting list to get an appointment. She is prescibing things

to the best of her knowledge. It's true many derms don't know that

much about cea, and certainly not as much as Dr. Nase, but some

do have a reasonable knowledge of it. And I think mine knows more

about cea and the skin in general than Steve Australia. Nothing

personal Steve, just my opinion.

Well I'm off to play golf this afternoon. It will be a great test

for Clinique Super City Block spf 25. Luckily we don't have much sun

in So California today.

This is such a busy site and we get so many good messages, but also

plenty of bad and ugly ones! We seem to suffer from what I call

the " angry young man syndrome " - thats not to say the people posting

are necessarily young or male, but many do seem very angry - that is,

they take an aggressive tone which I for one really don't appreciate!

[Guest guest]

That must be referring to my reply to Steve. My apologies to Jill

and everyone. It's one thing for a person to come in and say " Well

folks, here's what worked for me....... " But it's another thing to

come in and say you're all wrong, the derms are all wrong, and this

is the only thing that will ever work for you all.

I really don't think my derms are prescribing things to make money.

They both have more patients than they can handle, one has a two

month waiting list to get an appointment. She is prescibing things

to the best of her knowledge. It's true many derms don't know that

much about cea, and certainly not as much as Dr. Nase, but some

do have a reasonable knowledge of it. And I think mine knows more

about cea and the skin in general than Steve Australia. Nothing

personal Steve, just my opinion.

Well I'm off to play golf this afternoon. It will be a great test

for Clinique Super City Block spf 25. Luckily we don't have much sun

in So California today.

This is such a busy site and we get so many good messages, but also

plenty of bad and ugly ones! We seem to suffer from what I call

the " angry young man syndrome " - thats not to say the people posting

are necessarily young or male, but many do seem very angry - that is,

they take an aggressive tone which I for one really don't appreciate!

[Guest guest]

That must be referring to my reply to Steve. My apologies to Jill

and everyone. It's one thing for a person to come in and say " Well

folks, here's what worked for me....... " But it's another thing to

come in and say you're all wrong, the derms are all wrong, and this

is the only thing that will ever work for you all.

I really don't think my derms are prescribing things to make money.

They both have more patients than they can handle, one has a two

month waiting list to get an appointment. She is prescibing things

to the best of her knowledge. It's true many derms don't know that

much about cea, and certainly not as much as Dr. Nase, but some

do have a reasonable knowledge of it. And I think mine knows more

about cea and the skin in general than Steve Australia. Nothing

personal Steve, just my opinion.

Well I'm off to play golf this afternoon. It will be a great test

for Clinique Super City Block spf 25. Luckily we don't have much sun

in So California today.

This is such a busy site and we get so many good messages, but also

plenty of bad and ugly ones! We seem to suffer from what I call

the " angry young man syndrome " - thats not to say the people posting

are necessarily young or male, but many do seem very angry - that is,

they take an aggressive tone which I for one really don't appreciate!

[Guest guest]

good insight, jill. last night i watched a rather

moving ER episode (i'm easily swayed by mass media).

in this episode, a six year old orphan was dying of

AIDS, a father lost his son to some horrifying

accident, and most poignantly - it depicted the aging

of two women in particular - one, was disoriented and

reaching for comfort by clinging to things she had

done in the past, and another was losing her memory -

had left the lights on, the fridge open, the faucet

running.

what a way of putting things in perspective. i

couldn't help but think about how i have reacted to

being diagnosed - idle, depressed, confused. many

people in this group depict the same emotions -

pulling oneself into a shell, afraid to live for fear

that it will trigger a hot, flaming reaction.

in the past few months, i have withdrawn from my

friends, the sunlight, from foods i once enjoyed, the

sweet light haze that comes from a couple drinks.

i have held my tongue, afraid to reach out for help,

cast weary glances into the mirror, at a face i once

felt was beautiful. i have cried and rolled over

inside myself with sadness.

and when all the grief is spent, there is still one

truth that remains - there is so much life left to

live. i think about my future, the fifty odd years

that are waiting to be formed, of growing old with

someone who loves me, flush-faced or otherwise. i am

angry with myself for surrendering these last few

months to this disease, for feeling as though there

was little else.

there is so much more, and the elderly woman on this

particular episode, or my mother as she plants in her

garden on Memorial Day, would give anything to have

back the youth and zest that i have now. things could

be so much worse.

any one of us could happen upon a terrible accident

tomorrow. and i am not sure about the rest, but when i

go i do not want to be remembered as the girl who

continually pressed her hands to her cheeks to feel if

they were hot, i want to be remembered for my

laughter. that its, really. just my laughter. and i've

spent the last few months taking myself so seriously,

making everything so grave, that i have forgotten to

laugh.

rosacea? that's funny - well, i guess my friends will

have to call me " Rosie " from now on. at least i will

never have to waste money on blush ever again.

sorry this is so long, its just the waxing

philosophical poet in me coming out this memorial day.

sandy

__________________________________________________

[Guest guest]

good insight, jill. last night i watched a rather

moving ER episode (i'm easily swayed by mass media).

in this episode, a six year old orphan was dying of

AIDS, a father lost his son to some horrifying

accident, and most poignantly - it depicted the aging

of two women in particular - one, was disoriented and

reaching for comfort by clinging to things she had

done in the past, and another was losing her memory -

had left the lights on, the fridge open, the faucet

running.

what a way of putting things in perspective. i

couldn't help but think about how i have reacted to

being diagnosed - idle, depressed, confused. many

people in this group depict the same emotions -

pulling oneself into a shell, afraid to live for fear

that it will trigger a hot, flaming reaction.

in the past few months, i have withdrawn from my

friends, the sunlight, from foods i once enjoyed, the

sweet light haze that comes from a couple drinks.

i have held my tongue, afraid to reach out for help,

cast weary glances into the mirror, at a face i once

felt was beautiful. i have cried and rolled over

inside myself with sadness.

and when all the grief is spent, there is still one

truth that remains - there is so much life left to

live. i think about my future, the fifty odd years

that are waiting to be formed, of growing old with

someone who loves me, flush-faced or otherwise. i am

angry with myself for surrendering these last few

months to this disease, for feeling as though there

was little else.

there is so much more, and the elderly woman on this

particular episode, or my mother as she plants in her

garden on Memorial Day, would give anything to have

back the youth and zest that i have now. things could

be so much worse.

any one of us could happen upon a terrible accident

tomorrow. and i am not sure about the rest, but when i

go i do not want to be remembered as the girl who

continually pressed her hands to her cheeks to feel if

they were hot, i want to be remembered for my

laughter. that its, really. just my laughter. and i've

spent the last few months taking myself so seriously,

making everything so grave, that i have forgotten to

laugh.

rosacea? that's funny - well, i guess my friends will

have to call me " Rosie " from now on. at least i will

never have to waste money on blush ever again.

sorry this is so long, its just the waxing

philosophical poet in me coming out this memorial day.

sandy

__________________________________________________

[Guest guest]

good insight, jill. last night i watched a rather

moving ER episode (i'm easily swayed by mass media).

in this episode, a six year old orphan was dying of

AIDS, a father lost his son to some horrifying

accident, and most poignantly - it depicted the aging

of two women in particular - one, was disoriented and

reaching for comfort by clinging to things she had

done in the past, and another was losing her memory -

had left the lights on, the fridge open, the faucet

running.

what a way of putting things in perspective. i

couldn't help but think about how i have reacted to

being diagnosed - idle, depressed, confused. many

people in this group depict the same emotions -

pulling oneself into a shell, afraid to live for fear

that it will trigger a hot, flaming reaction.

in the past few months, i have withdrawn from my

friends, the sunlight, from foods i once enjoyed, the

sweet light haze that comes from a couple drinks.

i have held my tongue, afraid to reach out for help,

cast weary glances into the mirror, at a face i once

felt was beautiful. i have cried and rolled over

inside myself with sadness.

and when all the grief is spent, there is still one

truth that remains - there is so much life left to

live. i think about my future, the fifty odd years

that are waiting to be formed, of growing old with

someone who loves me, flush-faced or otherwise. i am

angry with myself for surrendering these last few

months to this disease, for feeling as though there

was little else.

there is so much more, and the elderly woman on this

particular episode, or my mother as she plants in her

garden on Memorial Day, would give anything to have

back the youth and zest that i have now. things could

be so much worse.

any one of us could happen upon a terrible accident

tomorrow. and i am not sure about the rest, but when i

go i do not want to be remembered as the girl who

continually pressed her hands to her cheeks to feel if

they were hot, i want to be remembered for my

laughter. that its, really. just my laughter. and i've

spent the last few months taking myself so seriously,

making everything so grave, that i have forgotten to

laugh.

rosacea? that's funny - well, i guess my friends will

have to call me " Rosie " from now on. at least i will

never have to waste money on blush ever again.

sorry this is so long, its just the waxing

philosophical poet in me coming out this memorial day.

sandy

__________________________________________________

[Guest guest]

There is a definite stereotype that is developing. A new list member joins

and in a flurry of emails announcing that they can cure us all. Those who

have been around the group for a while realise that only one somewhat

naive could post such a message. For starters they have no idea of the

width and breadth of the symptoms of rosacea, nor the life experiences of

a large group. Let alone each persons' search for relief through

conventional and unconventional methods. Add to that the number of

well read people on the list and you get a huge number of rosacea

experiences that you are suggesting you can cure.

One can look back at various passionate threads like aspartame, harsh

anti-demodex preparations (from a MD nonetheless), colloidal silver, cave

man diet, `relax and it will all go away', aloe vera, to see that these

theories haven't lasted the distance.

We all need to think outside our box and new information and debate is the

way to do this. So lets see what, if any, can be extracted from these

`angry young men'.

In order to get anywhere, we need to progress past the limp ideas and get

to real substance.

cheers,

davidp.

--

Pascoe, dp@..., South Perth, Western Australia

Monday, May 28, 2001, 5:30:43 PM, you wrote:

jbc> This is such a busy site and we get so many good messages, but also

jbc> plenty of bad and ugly ones! We seem to suffer from what I call

jbc> the " angry young man syndrome " - thats not to say the people posting

jbc> are necessarily young or male, but many do seem very angry - that is,

jbc> they take an aggressive tone which I for one really don't appreciate!

[Guest guest]

There is a definite stereotype that is developing. A new list member joins

and in a flurry of emails announcing that they can cure us all. Those who

have been around the group for a while realise that only one somewhat

naive could post such a message. For starters they have no idea of the

width and breadth of the symptoms of rosacea, nor the life experiences of

a large group. Let alone each persons' search for relief through

conventional and unconventional methods. Add to that the number of

well read people on the list and you get a huge number of rosacea

experiences that you are suggesting you can cure.

One can look back at various passionate threads like aspartame, harsh

anti-demodex preparations (from a MD nonetheless), colloidal silver, cave

man diet, `relax and it will all go away', aloe vera, to see that these

theories haven't lasted the distance.

We all need to think outside our box and new information and debate is the

way to do this. So lets see what, if any, can be extracted from these

`angry young men'.

In order to get anywhere, we need to progress past the limp ideas and get

to real substance.

cheers,

davidp.

--

Pascoe, dp@..., South Perth, Western Australia

Monday, May 28, 2001, 5:30:43 PM, you wrote:

jbc> This is such a busy site and we get so many good messages, but also

jbc> plenty of bad and ugly ones! We seem to suffer from what I call

jbc> the " angry young man syndrome " - thats not to say the people posting

jbc> are necessarily young or male, but many do seem very angry - that is,

jbc> they take an aggressive tone which I for one really don't appreciate!

[Guest guest]

There is a definite stereotype that is developing. A new list member joins

and in a flurry of emails announcing that they can cure us all. Those who

have been around the group for a while realise that only one somewhat

naive could post such a message. For starters they have no idea of the

width and breadth of the symptoms of rosacea, nor the life experiences of

a large group. Let alone each persons' search for relief through

conventional and unconventional methods. Add to that the number of

well read people on the list and you get a huge number of rosacea

experiences that you are suggesting you can cure.

One can look back at various passionate threads like aspartame, harsh

anti-demodex preparations (from a MD nonetheless), colloidal silver, cave

man diet, `relax and it will all go away', aloe vera, to see that these

theories haven't lasted the distance.

We all need to think outside our box and new information and debate is the

way to do this. So lets see what, if any, can be extracted from these

`angry young men'.

In order to get anywhere, we need to progress past the limp ideas and get

to real substance.

cheers,

davidp.

--

Pascoe, dp@..., South Perth, Western Australia

Monday, May 28, 2001, 5:30:43 PM, you wrote:

jbc> This is such a busy site and we get so many good messages, but also

jbc> plenty of bad and ugly ones! We seem to suffer from what I call

jbc> the " angry young man syndrome " - thats not to say the people posting

jbc> are necessarily young or male, but many do seem very angry - that is,

jbc> they take an aggressive tone which I for one really don't appreciate!

[Guest guest]

I really appreciate 's thoughtful and sane response to recent events on

this board.

Having said that, I must also say that I really appreciate the fact that this

board exists. To say that

it has helped me tremendously would be a huge understatement. I was diagnosed

about a month and a half

ago by a dermatologist who told me, and this is a direct quote, " You have

rosacea. It's a skin condition

caused by weather extremes and stress, things like that. I'll prescribe some

antibiotics and this topical

ointment called Metrocream and you come back in two or three weeks and we'll see

how you're doing. " When

I asked if she had any literature or anything I could read about rosacea, she

said " No, but you can do a

search on the Internet. " Wasn't that helpful?? So I told her I would do that if

she would write it down

for me so I would know how to spell it. Then when I went back for my second

appointment, I got the sad

feeling that I now know more about rosacea than she does (she said my constantly

bloodshot eyes have

nothing to do rosacea), despite the fact that she said that a large number of

her patients suffer from

rosacea. She's nice, and undoubtedly well-meaning, but it's very discouraging.

You all have helped me SO

much more than she has. So thanks to all, and especially to for getting

this board going and

continuing to be a voice of reason and knowledge.

Best wishes to all-

Avril

Pascoe wrote:

> There is a definite stereotype that is developing. A new list member joins

> and in a flurry of emails announcing that they can cure us all. Those who

> have been around the group for a while realise that only one somewhat

> naive could post such a message. For starters they have no idea of the

> width and breadth of the symptoms of rosacea, nor the life experiences of

> a large group. Let alone each persons' search for relief through

> conventional and unconventional methods. Add to that the number of

> well read people on the list and you get a huge number of rosacea

> experiences that you are suggesting you can cure.

>

> One can look back at various passionate threads like aspartame, harsh

> anti-demodex preparations (from a MD nonetheless), colloidal silver, cave

> man diet, `relax and it will all go away', aloe vera, to see that these

> theories haven't lasted the distance.

>

> We all need to think outside our box and new information and debate is the

> way to do this. So lets see what, if any, can be extracted from these

> `angry young men'.

>

> In order to get anywhere, we need to progress past the limp ideas and get

> to real substance.

>

> cheers,

> davidp.

> --

> Pascoe, dp@..., South Perth, Western Australia

>

> Monday, May 28, 2001, 5:30:43 PM, you wrote:

>

> jbc> This is such a busy site and we get so many good messages, but also

> jbc> plenty of bad and ugly ones! We seem to suffer from what I call

> jbc> the " angry young man syndrome " - thats not to say the people posting

> jbc> are necessarily young or male, but many do seem very angry - that is,

> jbc> they take an aggressive tone which I for one really don't appreciate!

>

> --

> Please read the list highlights before posting to the whole group. See

http://rosacea.ii.net/toc.html

>

> To leave the list send any email to

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