Re: Keppra Wean Questions- -ne

[Guest guest]

Hi --thanks for the info--helps a lot! So glad Noah is

doing SOOO TERRIFIC! Can't wait to hear more updates! And you're

looking at weaning the diet after a year?--wow! Wish us luck as we

begin the Keppra wean in a few weeks!!

ne

> >

> > Hi all,

> >

> > Been monitoring the posts for awhile now when I can snatch a

> > moment. Seems like anytime I post it's always with more

questions

> > so I just wanted to first say: To all that are experiencing

great

> > success with the diet both with seizure control and

developmental

> > strides for your kids--keep those wonderful stories coming! To

> all

> > those still working so hard to gain/keep seizure control for

your

> > kids--keep up the hard work, your kids are so worth the effort!

> >

> > Here's the background to the question:

> > As for our daughter, (age 4 and 1st seizure on 12-6-04 and

> > keto kid since 7-19-04 and seizure free since 7-1-04) we are

still

> > so excited to say that continues to do extremely well on

the

> > diet. started the diet on 2 meds--Depakote (1125mg/day)

and

> > Keppra (125mg/day). Keppra we had started just 2 weeks before

the

> > diet as our neuro was out of the country and had her

longest

> > T/C (7 minutes). As of yesterday (10-4-04) took her last

> > depakote pill (pending a 2 week monitoring period); we had been

> > lowering 125mg per week beginning on Day 2 of diet initiation

and

> > then for the last 375mg (ie last 3 pills) we weaned 125 mg per

two

> > week period (1 week to lower blood levels and 1 week for

> > observation). Now we have the 125mg of Keppra to wean. Just

> spoke

> > with our neuro today who wants us to wait to wean the Keppra

until

> > our appointment and EEG on November 19th (ie 6 weeks). I of

> course

> > want to start the wean in about 2 weeks after we make sure she

> > maintains seizure control with no depakote. The debate centers

on

> > whether her 2 weeks of being seizure free prior to diet

initiation

> > on July 19th was due to the addition of the 125 mg of keppra or

> > whether it was because we had begun in earnest changing 's

> diet

> > to include only those foods on the diet (although not limiting

her

> > portions).

> >

> >

> > Any advice, information on how your kids faired weaning off

> keppra,

> > or questions to consider given this brief overview would be very

> > much appreciated.

> >

> > Thanks again!!

> >

> > ne and Mike

> >

> >

> >

> >

> >

> > " The Ketogenic Diet....a realistic treatment option, NOT just

a

> last resort! "

> >

> > List is for parent to parent support only.

> > It is important to get medical advice from a

> professional keto team!

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> >

> >