Low Dose Transdermal Maltrexone/Autism

[Guest guest]

Hi!

Anyone out there heard of or using low dose maltrexone? I've just heard

that Dr. McDandless is doing a study of this " cream " and that other DAN Dr's

are also testing it.

Any info would be appreciated.

Thank you,

Pat

Wow! High dose vitamin A, I love it! (slightly OT)

Hi folks,

Ackerman once said, she would pay

anything just to get into the body of her son

to see what its' like to be autistic.

I found this link that explains so many reasons

for my sons' autistic behaviors!

(I have a low functioning 4 year old and a

high functioning 2 year old)

It's incredible! Why didn't I think of it sooner?

Lack of depth perception and stereoscopic vision,

poor muscular control for visual tracking/focusing

etc would explain most of my kids' autistic behaviors!

(transition tantrums/lying limp on the ground,

peculiar running (turning head side to side),

inability to catch ball,

low attention span, visual stims,

lack of social skills, lack of imitative pretend play,

self taught spelling, perfectionism, rigidity,

does not run/extremely careful 2 year old, etc etc)

See link:

http://www.asw4autism.org/vision.htm

Wow! Ephiphany! This article allows me more empathy as a mother

It's not that my kids do not want to follow instructions, they cannot

Hmm.. now we see the " why " s, now what?

Thanks to super mom Katrina Chin who

told me about Megson's high dose vitamin A protocol

we tried it on 5/18/5 and in less than 1 week, we see great results

(it's true this is no controlled experiment

we are doing a kazillion other things

(HBOT 6/18/5, SCD diet re-started from scratch 6/9/5,

TD-DMPS since 8/8/04, etc)

but we feel improvements are due to vitamin A

since we saw them before we started HBOT

-by now (about 1 month), when I give my son verbal instructions,

his compliance/response is IMMEDIATE! It used to

be he did not hear me and require many repeats and

physical prompting

-increased rate of acquistion of mastered skills in ABA from 1/month

average to 17 in June

-getting 100% on block imitation: as if he finally has 3D vision and

can see " front " or " back "

-improved long distance vision noted by 6/12 (and quick response)

-by 6/2 sustained attention when he unloads entire laundry from dryer

(before this he would " forget " half way and require a zillion

verbal/physical reminders/load

-by 5/30 allows himself to be cuddled for long time (he used to

say " stop it " after a few seconds)

-etc..slightly more varied language (due to HBOT?)

I've also heard good things of high dose vit A protocol from other

moms on abmd yahoo group:

" I have noticed more of a calm, longer attention span, seeing things

that he may not have seen before.details of trees.. "

another mom notes:

" Visual stims significantly reduced [they required more than just this

protocol to entirely eliminate, but this was the first step],

increased language, especially in spontaneity of use of words rather

than gestures, significant reduction in echolalic speech, increased

social interaction and pretend play. "

This is what we did.

(ask your DAN! Doctor about it, I'm no Dr.)

I gave about 200,000+ IU vitamin A (~40 drops)

for once a day for ONLY 2 DAYS

1 toll free to order from Klaire lab

http://www.protherainc.com/prod/proddetail.asp?id=V060-01

http://www.tahoma-

clinic.com/shop/product_info.php/manufacturers_id/23/products_id/31?

I got mine from Dr.Bob $15 I think

and then stayed with ~1 drop/day

at the end of ~1 month

we gave prescribed (compounded)

bethanocol(=urocholine)

http://www.picmc.com/bethanecol.html

as outlined by Megson protocol

http://www.vaccinationnews.com/DailyNews/August2001/IsAutG-

AlphaEtc.htm

http://www.megson.com/HYPOTHESIS/MEDICAL_HYPOTHESIS_ARTICLE.html

after 1 week, my son had a very very red face

and lethargic, fever, but in good mood. Was that a side effect? We

don't know.

ask your Dr. about side effects!

by now we are still giving 1 drop (=5000IU) vitamin A

and 2x/day bethanochol.. this is 2 months now

next, I will check out Dr. (not seen her yet)

http://www.drjulieryan.com/vision_therapy.html

to confirm if these vision problems truly exist

in my kids and if they need vision therapy

http://www.visiontherapystories.org/vision_autism.html

I imagine as mercury affects the muscles of

Gross, fine motor and GI smooth muscles,

Mercury also affects the controlling of eye muscles.

Thus we hope chelation will help in the long run.

But I think high dose vitamin A is doing something

as a quick (and cheap!) intervention. I imagine (we've not yet done)

vision therapy will be strengthening exercises.

Anyone who has done vision therapy or has more insight

on this topic please enlighten me.

I am just an excited mom, stumbled upon this idea

and theorizing

Jzin

On a quest to be a more accepting mother

while refusing to accept autism

D, age 4, LFA, SCD since 12/03

V, age 2, HFA, official SCD with intro 6/9/05

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

http://health.groups.yahoo.com/group/Autism_LDN

Is the link to the new group.

Jody

mom to -6 and -8

SCD 30 months

[Guest guest]

http://health.groups.yahoo.com/group/Autism_LDN

Is the link to the new group.

Jody

mom to -6 and -8

SCD 30 months

[Guest guest]

http://health.groups.yahoo.com/group/Autism_LDN

Is the link to the new group.

Jody

mom to -6 and -8

SCD 30 months