Re: Should We Sit Tight for a While?/

[Guest guest]

,

Thanks for responding! To answer your question, we check Langan's

blood ketones (BHB) pretty regularly and she has remained in ketosis

so far. I don't know if she'll come out as her body adjusts to the

2:1 ratio or not, but as we are coming off of keto she will

eventually be out of ketosis. We are doing the wean slowly, just

like with the meds, so we don't put too much pressure on her little

body.

We could probably lower calories now without much problem. Langan

is getting so much food on this lower ratio that she is never hungry

any more, something I never thought I would see happen on keto! But

since we're coming off the diet for medical reasons, we'll keep

calories where we are and see how things go. I am sad to come off

keto but the acidosis with her was just too dangerous and

uncontrollable. I hate to go back to the meds, but at least for now

it is our only choice. We're just hoping to keep the meds to a

minimum, and to see how she does on the specific carb diet once we

get completely off keto.

I hope all goes well with ! You are right- this diet is art and

not science. But the people in this group are real life savewrs.

We would have never made it these past 8 months without them.

Take care!

> Hello all. Well, per the neuro's ok, we lowered Langan to a 2:1

> ratio on Saturday. Wow! What a difference in food! But for the

> scale, I would swear she wasn't even on keto any more. She gets

more

> fruit now than I think she ate BEFORE the diet. And she is loving

it!

>

> On to the not so great part: After 13 days seizure free (on 3:1

> ratio and small amount of trileptal), she had a sz Saturday

night.

> She spit out most of her trileptal dose a few hours before, so I

have

> no idea whether it was that or the new ratio or her adjusting to

the

> new ratio. Ugh. Last night, she woke up and looked like she was

> going to have a sz, but she seemed to " shake it off " and went back

to

> sleep. So who knows. I don't want to increase the meds, esp.

since

> she is also waking up at night with what appears to be tummy pain

and

> I worry that it is the meds, but at the same time I am not sure

what

> to do. We are coming off keto b/c of the acidosis, so it is only

a

> matter of time, but when it comes to the meds I am all about

delay,

> delay, delay.

>

> I took BHB levels and they are strange- really low before bed and

> then large in the morning????? That is the total opposite of how

> they have been. I wonder if they are low at night b/c of all the

> extra carbs during the day and then are getting higher overnight

when

> she's not eating??? Any thoughts from the keto experts out there?

>

> Also, do you get withdrawal when coming down off of keto, like you

do

> with the meds? I am trying to decide whether the sz and the

almost

> sz last night could be withdrawal or whether we need to up the

> trileptal. Should I just hold tight for a week and see if things

> settle? That 13 days spoiled me....

>

> Thanks!

>

> , mom to Langan, 2 yrs old and keto kid since 11/03; med free

> 4/2/04 until this month, now coming off keto due to metabolic

> acidosis and on 2:1 ratio and small amount of trileptal.

>

>

>

> " The Ketogenic Diet....a realistic treatment option, NOT just a

last resort! "

>

> List is for parent to parent support only.

> It is important to get medical advice from a

professional keto team!

> Subscribe: ketogenic-subscribe

> Unsubscribe: ketogenic-unsubscribe

>

>

>

>

>