Should We Sit Tight for a While?

August 23, 2004

Hello all. Well, per the neuro's ok, we lowered Langan to a 2:1

ratio on Saturday. Wow! What a difference in food! But for the

scale, I would swear she wasn't even on keto any more. She gets more

fruit now than I think she ate BEFORE the diet. And she is loving it!

On to the not so great part: After 13 days seizure free (on 3:1

ratio and small amount of trileptal), she had a sz Saturday night.

She spit out most of her trileptal dose a few hours before, so I have

no idea whether it was that or the new ratio or her adjusting to the

new ratio. Ugh. Last night, she woke up and looked like she was

going to have a sz, but she seemed to " shake it off " and went back to

sleep. So who knows. I don't want to increase the meds, esp. since

she is also waking up at night with what appears to be tummy pain and

I worry that it is the meds, but at the same time I am not sure what

to do. We are coming off keto b/c of the acidosis, so it is only a

matter of time, but when it comes to the meds I am all about delay,

delay, delay.

I took BHB levels and they are strange- really low before bed and

then large in the morning????? That is the total opposite of how

they have been. I wonder if they are low at night b/c of all the

extra carbs during the day and then are getting higher overnight when

she's not eating??? Any thoughts from the keto experts out there?

Also, do you get withdrawal when coming down off of keto, like you do

with the meds? I am trying to decide whether the sz and the almost

sz last night could be withdrawal or whether we need to up the

trileptal. Should I just hold tight for a week and see if things

settle? That 13 days spoiled me....

Thanks!

, mom to Langan, 2 yrs old and keto kid since 11/03; med free

4/2/04 until this month, now coming off keto due to metabolic

acidosis and on 2:1 ratio and small amount of trileptal.

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