Guest guest Posted October 13, 2004 Report Share Posted October 13, 2004 Hi. My name is Line, I live in Denmark and I'm mother of Anton (almost 5) and Flora (7 months). Flora was diagnosed with infantile spasms when she was 4 months old. So far, no underlying cause of the epilepsy has been found. We have tried several drugs; Vigabatrin, Prednisone, Rivotril (benzodiazepine), Topimax, and - as of today - Deprakine (valproate). Rivotril has reduced the spasms, but she is weaned off that now because we were supposed to start the ketogenic diet yesterday. Unfortunately that didn't happen, but we hope to start it next thursday instead. I would very much like to hear about other parents experiences with starting the ketogenic diet in children as young as Flora (is it hard to introduce ketocal?, when and how do you introduce " ordinary " food?), and in children with infantile spasms (did it reduce spasms?, did you see any improvement of psychomotor development?). Hope to hear from you soon. Line Quote Link to comment Share on other sites More sharing options...
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