Re: Metabolic Experts??? What on earth is going on here???/Bill

[Guest guest]

Bill,

Your guess is as good as mine! I have passed on the info to our

neuro and am waiting to hear back, so hopefully they can figure out

the mystery!

Thanks!

Hello all. Well, we are in

day #3 of Langan's 8 day rapid wean from

> > keto and all is, knock on wood, going well. She had one seizure

> > Tuesday night, the night of her first diet change, but nothing

since

> > then. Now for the weirdness....

> >

> > I checked her waking blood ketones (bhb) Tuesday morning before

we

> > started the wean. Remember, she was then on a 2:1 ratio with

> > unlimited fluids for over 2 weeks. 3.8!!! That was higher than

her

> > normal waking ketones on 4:1. What on earth???

> >

> > It gets better. I talked to our dietician and we decided to get

a

> > bedtime BHB also, to just see if maybe the extra food during the

day

> > and then no food overnight was doing something. I checked her 2

1/2

> > hours after her last meal last night, also after a day of

unlimited

> > meats and 1/2 of the fats of the 2:1 ratio, expecting trace

ketones

> > at best. 5.0!!!!! Again, higher than we saw at bedtime on the

4:1

> > ratio.

> >

> > What on earth is going on? I think I posted a while back that

the

> > weekend before we initiated the diet I did a " trial run " with the

> > urine ketosrix and Langan registered large ketones. I was

confused

> > about that but her dietician at the time said it was b/c of the

> > sniffles she had and that it was a good sign that she would go

into

> > ketosis easily. Our current dietician says no way, and from what

I

> > have learned over these past 9 months I have to agree with her.

So

> > what is up with this? Is there some condition that could cause

> > Langan to be in ketosis naturally? Could this be a clue to her

> > seizures? I am so confused!!

> >

> > Thanks!

> >

> > , mom to Langan, 2 yrs old and keto kid since 11/03; on 2:1

> > ratio but undertaking rapid keto wean due to severe persistent

> > metabolic acidosis, but the ketones keep coming!

> >