Re: Re: Pam/ALL

[Guest guest]

Pam, >There is no need to express how much this helps, I gave up this group >because my family was thinking that I was spending too much time on it and I >was focusing on my disease too much, I think I stayed away 2 months and I >felt so alone until finally I said look this group does me more good than >harm, and yes we do talk about the disease it is hard not to, when you are >in pain 24/7. So finally I informed them that I was going back, you people >just don't understand what I am going through I need to have people around >me that understands what a flare up feels like. After the ER fiasco they >were more agreeable to things >Well I hope you have a good weekend and here's to hoping that you have a >pain free day. >Lin

Pam and EVERYONE, I agree 100% with Lin. This group and the people in it have helped me more than any of them know. I have been, and still am, going through so much between family and this disease, that I don't know what I would have done if I hadn't had this group to turn to. Most of the time I just read the posts, but that alone has been a life saver. I get almost no support at home and even my drs have no idea what to do with me anymore. With the exception of this group and the few people I really open up to from the group that I talk to A LOT on the messenger, I'm going it alone; no meds, no treatments, nothing. That's why I'm not always here. Sometimes it's just too hard to sit here and try to keep up with everyone and everything that's going on with them. I try to pop in a couple of times a day to see how everyone is doing, but most of the time I don't talk through the group because I don't want to burden everyone here with all of my family troubles. I jump on the messenger instead. There are a couple of people that I talk with, and I don't want to offend anyone here by signaling out a couple of people and not everyone else who has helped me, but there are two of the most wonderful people that I have ever met that I talk with all the time, that without them, I probably would not be here talking to ANYONE today. They literally saved my life. That's how far down I was. They picked me up, brushed me off and made me feel like I have a purpose for living. Thank you Rhonda and Mark. I LOVE YOU TWO! I don't mean to single Rhonda and Mark out and make it sound like they are the only ones who have helped me, because they aren't. There have been A LOT of other people who have helped me also, like JoAnn, Laurie, Amey, Jo, Barb, N.......the list goes on.....but without Rhonda and Mark, I wouldn't have been here for anyone else to try to help me. I really don't think that they quite understand exactly what they have done, and are still doing, for me. I guess what I'm really trying to say is.......THANK YOU, TO EVERYONE! I am finally starting to feel like I am living again and not just existing. I am starting to look forward to the future and I haven't done that in a long time. So, YES, this group is a GREAT thing, not just a 'good' thing. If anyone ever gets to the point where you just don't feel like talking through the group, that's fine. But please, talk to someone. Get on the messenger or the phone and speak with someone, anyone who has this monster that will understand everything that you are going through. And ALWAYS come on here and READ! That helps so much more than I ever thought it would. You just might be surprised at some of the things you read that will make you say "Hey, that's me today!". That alone will make you feel like YOU ARE NOT ALONE! Most of the time, that's all we need. To see that we are NOT alone in all of this. Wow, I really didn't mean to go on like that. I guess it was just something that I needed to get off of chest. I do feel better for saying all of it though. I hope that everything that I have said will help just one person. If it does, then I guess I will know why I said it. If anyone is still reading all of this and I haven't bored the daylights out of you, lol, I hope and pray that you have a good day, with very low pain. Thanks for listening. I'll get off of the my saopbox now. Lots of love and very gentle hugs to all, Faith P.S. I went back and read this before I sent it and I made myself cry cleansing tears of gratitude. And I did not change one word of this. It's perfect just the way it is. Once again, Thank you ALL from the top of my heart (I didn't bury it at the bottom lol)

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[Guest guest]

That alone will make you feel like YOU ARE NOT ALONE! Most of the time, that's all we need. To see that we are NOT alone in all of this. Wow, I really didn't mean to go on like that. I guess it was just something that I needed to get off of chest. I do feel better for saying all of it though. I hope that everything that I have said will help just one person. If it does, then I guess I will know why I said it. If anyone is still reading all of this and I haven't bored the daylights out of you, lol, I hope and pray that you have a good day, with very low pain. Thanks for listening. I'll get off of the my saopbox now. Lots of love and very gentle hugs to all, Faith P.S. I went back and read this before I sent it and I made myself cry cleansing tears of gratitude. And I did not change one word of this. It's perfect just the way it is. Once again, Thank you ALL from the top of my heart (I didn't bury it at the bottom lol)

That is so true that just by typing it out makes you feel a lot better, I am glad that you didn't change anything in your post because it was just perfect the way it was. I also know that if I am having a horrendous day, that the people in this group are absolutely the best!!

I hope you have a good weekend, since I am not exactly sure who you are, I will keep you in my prayers as the mystery person

Lin

-- Re: Re: Pam/ALL

Pam, >There is no need to express how much this helps, I gave up this group >because my family was thinking that I was spending too much time on it and I >was focusing on my disease too much, I think I stayed away 2 months and I >felt so alone until finally I said look this group does me more good than >harm, and yes we do talk about the disease it is hard not to, when you are >in pain 24/7. So finally I informed them that I was going back, you people >just don't understand what I am going through I need to have people around >me that understands what a flare up feels like. After the ER fiasco they >were more agreeable to things >Well I hope you have a good weekend and here's to hoping that you have a >pain free day. >Lin

Pam and EVERYONE, I agree 100% with Lin. This group and the people in it have helped me more than any of them know. I have been, and still am, going through so much between family and this disease, that I don't know what I would have done if I hadn't had this group to turn to. Most of the time I just read the posts, but that alone has been a life saver. I get almost no support at home and even my drs have no idea what to do with me anymore. With the exception of this group and the few people I really open up to from the group that I talk to A LOT on the messenger, I'm going it alone; no meds, no treatments, nothing. That's why I'm not always here. Sometimes it's just too hard to sit here and try to keep up with everyone and everything that's going on with them. I try to pop in a couple of times a day to see how everyone is doing, but most of the time I don't talk through the group because I don't want to burden everyone here with all of my family troubles. I jump on the messenger instead. There are a couple of people that I talk with, and I don't want to offend anyone here by signaling out a couple of people and not everyone else who has helped me, but there are two of the most wonderful people that I have ever met that I talk with all the time, that without them, I probably would not be here talking to ANYONE today. They literally saved my life. That's how far down I was. They picked me up, brushed me off and made me feel like I have a purpose for living. Thank you Rhonda and Mark. I LOVE YOU TWO! I don't mean to single Rhonda and Mark out and make it sound like they are the only ones who have helped me, because they aren't. There have been A LOT of other people who have helped me also, like JoAnn, Laurie, Amey, Jo, Barb, N.......the list goes on.....but without Rhonda and Mark, I wouldn't have been here for anyone else to try to help me. I really don't think that they quite understand exactly what they have done, and are still doing, for me. I guess what I'm really trying to say is.......THANK YOU, TO EVERYONE! I am finally starting to feel like I am living again and not just existing. I am starting to look forward to the future and I haven't done that in a long time. So, YES, this group is a GREAT thing, not just a 'good' thing. If anyone ever gets to the point where you just don't feel like talking through the group, that's fine. But please, talk to someone. Get on the messenger or the phone and speak with someone, anyone who has this monster that will understand everything that you are going through. And ALWAYS come on here and READ! That helps so much more than I ever thought it would. You just might be surprised at some of the things you read that will make you say "Hey, that's me today!". That alone will make you feel like YOU ARE NOT ALONE! Most of the time, that's all we need. To see that we are NOT alone in all of this. Wow, I really didn't mean to go on like that. I guess it was just something that I needed to get off of chest. I do feel better for saying all of it though. I hope that everything that I have said will help just one person. If it does, then I guess I will know why I said it. If anyone is still reading all of this and I haven't bored the daylights out of you, lol, I hope and pray that you have a good day, with very low pain. Thanks for listening. I'll get off of the my saopbox now. Lots of love and very gentle hugs to all, Faith P.S. I went back and read this before I sent it and I made myself cry cleansing tears of gratitude. And I did not change one word of this. It's perfect just the way it is. Once again, Thank you ALL from the top of my heart (I didn't bury it at the bottom lol)

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