New with lots of questions...

[Guest guest]

Hi All,

I'm new to the group and have a few questions.

My mother was diagnosed with RSD about 2 years ago. This began with

an injury to her right foot. She has had steroid injections, nerve

blocks in her spine, an epidural for 72 hrs, cauterization of some of

the nerves in her spine, and medications throughout. A couple of the

doctors she has seen (there have been 8) have metioned a spinal cord

stimulator implant, but her current doctor is very much against

this. So is workmen's comp, she was injured at work. Has anyone had

one of these done? If so would you mind sharing your

experiences/results? We are getting very different information from

the different doctors and I would like to hear from someone who has

actually experienced it.

We are beginning to realize that this might be a condition that she

lives with the rest of her life. I would like to help do anything

possible to make her quality of life better as well as know how some

people deal with the day to day reality of this situation.

Hoping everyone is having a good day,

Melinda

[Guest guest]

Melinda - Welcome to the group. I'm sorry to hear about your mom but glad that she has such a strong advocate as yourself. Re the spinal cord stimulator (SCS) many of us have them and our results have varied as much as the opinions you have received from the doctors. SOme people have had tremendous success with them and other folks have had less success. I hope that you get a wealth of responses....I'm sure that you will....and that it helps you and your mom in arriving at a decision that works for her. Barbarammelindalynn wrote:

Hi All,I'm new to the group and have a few questions.My mother was diagnosed with RSD about 2 years ago. This began withan injury to her right foot. She has had steroid injections, nerveblocks in her spine, an epidural for 72 hrs, cauterization of some ofthe nerves in her spine, and medications throughout. A couple of thedoctors she has seen (there have been 8) have metioned a spinal cordstimulator implant, but her current doctor is very much againstthis. So is workmen's comp, she was injured at work. Has anyone hadone of these done? If so would you mind sharing yourexperiences/results? We are getting very different information fromthe different doctors and I would like to hear from someone who hasactually experienced it.We are beginning to realize that this might be a condition that shelives with the rest

of her life. I would like to help do anythingpossible to make her quality of life better as well as know how somepeople deal with the day to day reality of this situation.Hoping everyone is having a good day,Melinda

[Guest guest]

Melinda - Welcome to the group. I'm sorry to hear about your mom but glad that she has such a strong advocate as yourself. Re the spinal cord stimulator (SCS) many of us have them and our results have varied as much as the opinions you have received from the doctors. SOme people have had tremendous success with them and other folks have had less success. I hope that you get a wealth of responses....I'm sure that you will....and that it helps you and your mom in arriving at a decision that works for her. Barbarammelindalynn wrote:

Hi All,I'm new to the group and have a few questions.My mother was diagnosed with RSD about 2 years ago. This began withan injury to her right foot. She has had steroid injections, nerveblocks in her spine, an epidural for 72 hrs, cauterization of some ofthe nerves in her spine, and medications throughout. A couple of thedoctors she has seen (there have been 8) have metioned a spinal cordstimulator implant, but her current doctor is very much againstthis. So is workmen's comp, she was injured at work. Has anyone hadone of these done? If so would you mind sharing yourexperiences/results? We are getting very different information fromthe different doctors and I would like to hear from someone who hasactually experienced it.We are beginning to realize that this might be a condition that shelives with the rest

of her life. I would like to help do anythingpossible to make her quality of life better as well as know how somepeople deal with the day to day reality of this situation.Hoping everyone is having a good day,Melinda

[Guest guest]

Melinda,

I agree with Barbara that you are wonderful to support your Mom like you do. Your certainly came to the right group to get info for your Mom. I do not have an SCS, but many here do and when they read your letter will certainly respond! Just want to wish you and your Mom all the best. LOL and Best Wishes!

DawnBARBARA TORREY wrote:

Melinda - Welcome to the group. I'm sorry to hear about your mom but glad that she has such a strong advocate as yourself. Re the spinal cord stimulator (SCS) many of us have them and our results have varied as much as the opinions you have received from the doctors. SOme people have had tremendous success with them and other folks have had less success. I hope that you get a wealth of responses....I'm sure that you will....and that it helps you and your mom in arriving at a decision that works for her. Barbarammelindalynn wrote: Hi All,I'm new to the group and have a few questions.My mother was diagnosed with RSD about 2 years ago. This began withan injury to her right foot. She has had steroid injections, nerveblocks in her spine, an epidural for 72 hrs, cauterization of some ofthe nerves in her spine, and medications throughout. A couple of thedoctors she has seen (there have been 8) have metioned a spinal cordstimulator implant, but her current doctor is very much againstthis. So is workmen's comp, she was injured at work. Has anyone hadone of these done? If so would you mind sharing yourexperiences/results? We are getting very different information fromthe different doctors and I would like to hear from someone who hasactually experienced it.We are beginning to realize that this might be a condition that shelives with the rest

of her life. I would like to help do anythingpossible to make her quality of life better as well as know how somepeople deal with the day to day reality of this situation.Hoping everyone is having a good day,Melinda

[Guest guest]

Welcome Melinda,

There are quite a few here that have those SCS and unfortunately this is going to be a condition that you and she and everyone in your family, will have to learn to live with. You stated that it started in her right foot is this still the only area that is affected?

My name is Lin I live in Oregon have had this since June 2003, and yes you will get more different opinions with each and every different doctor you go to. Is your Mom still able to work?

This is a great group for you and your Mom to get answers to your questions and sometimes to just vent all the frustrations out to people who have had all the frustrations you have had the same experiences.

Anyway Welcome again!

Lin

-- New with lots of questions...

Hi All,I'm new to the group and have a few questions.My mother was diagnosed with RSD about 2 years ago. This began withan injury to her right foot. She has had steroid injections, nerveblocks in her spine, an epidural for 72 hrs, cauterization of some ofthe nerves in her spine, and medications throughout. A couple of thedoctors she has seen (there have been 8) have metioned a spinal cordstimulator implant, but her current doctor is very much againstthis. So is workmen's comp, she was injured at work. Has anyone hadone of these done? If so would you mind sharing yourexperiences/results? We are getting very different information fromthe different doctors and I would like to hear from someone who hasactually experienced it.We are beginning to realize that this might be a condition that shelives with the rest of her life. I would like to help do anythingpossible to make her quality of life better as well as know how somepeople deal with the day to day reality of this situation.Hoping everyone is having a good day,Melinda

[Guest guest]

Welcome Melinda,

There are quite a few here that have those SCS and unfortunately this is going to be a condition that you and she and everyone in your family, will have to learn to live with. You stated that it started in her right foot is this still the only area that is affected?

My name is Lin I live in Oregon have had this since June 2003, and yes you will get more different opinions with each and every different doctor you go to. Is your Mom still able to work?

This is a great group for you and your Mom to get answers to your questions and sometimes to just vent all the frustrations out to people who have had all the frustrations you have had the same experiences.

Anyway Welcome again!

Lin

-- New with lots of questions...

Hi All,I'm new to the group and have a few questions.My mother was diagnosed with RSD about 2 years ago. This began withan injury to her right foot. She has had steroid injections, nerveblocks in her spine, an epidural for 72 hrs, cauterization of some ofthe nerves in her spine, and medications throughout. A couple of thedoctors she has seen (there have been 8) have metioned a spinal cordstimulator implant, but her current doctor is very much againstthis. So is workmen's comp, she was injured at work. Has anyone hadone of these done? If so would you mind sharing yourexperiences/results? We are getting very different information fromthe different doctors and I would like to hear from someone who hasactually experienced it.We are beginning to realize that this might be a condition that shelives with the rest of her life. I would like to help do anythingpossible to make her quality of life better as well as know how somepeople deal with the day to day reality of this situation.Hoping everyone is having a good day,Melinda

[Guest guest]

Hi Melinda! Welcome to the group! I shouldn't have too hard of a time remembering your name, it's my sisters' name too! I don't have any advice to give about the scs, but I want to thank you for being such a great support to your mother. A lot of us rsders don't have that. I think that it's wonderful that you want to find out all the information that you can to help your mother on the day to day living of this lifelong, yes lifelong, decease. How lucky she is to have you. I'm sure you will find all of the information that you need and then some! These people are wonderful! The best group you will ever find. Again, welcome. Gentle hugs to you and your mother, Faith

Hi All, > >I'm new to the group and have a few questions. > >My mother was diagnosed with RSD about 2 years ago. This began with >an injury to her right foot. She has had steroid injections, nerve >blocks in her spine, an epidural for 72 hrs, cauterization of some of >the nerves in her spine, and medications throughout. A couple of the >doctors she has seen (there have been 8) have metioned a spinal cord >stimulator implant, but her current doctor is very much against >this. So is workmen's comp, she was injured at work. Has anyone had >one of these done? If so would you mind sharing your >experiences/results? We are getting very different information from >the different doctors and I would like to hear from someone who has >actually experienced it. > >We are beginning to realize that this might be a condition that she >lives with the rest of her life. I would like to help do anything >possible to make her quality of life better as well as know how some >people deal with the day to day reality of this situation. > >Hoping everyone is having a good day, > >Melinda > > > > > > >

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[Guest guest]

Hi Melinda! Welcome to the group! I shouldn't have too hard of a time remembering your name, it's my sisters' name too! I don't have any advice to give about the scs, but I want to thank you for being such a great support to your mother. A lot of us rsders don't have that. I think that it's wonderful that you want to find out all the information that you can to help your mother on the day to day living of this lifelong, yes lifelong, decease. How lucky she is to have you. I'm sure you will find all of the information that you need and then some! These people are wonderful! The best group you will ever find. Again, welcome. Gentle hugs to you and your mother, Faith

Hi All, > >I'm new to the group and have a few questions. > >My mother was diagnosed with RSD about 2 years ago. This began with >an injury to her right foot. She has had steroid injections, nerve >blocks in her spine, an epidural for 72 hrs, cauterization of some of >the nerves in her spine, and medications throughout. A couple of the >doctors she has seen (there have been 8) have metioned a spinal cord >stimulator implant, but her current doctor is very much against >this. So is workmen's comp, she was injured at work. Has anyone had >one of these done? If so would you mind sharing your >experiences/results? We are getting very different information from >the different doctors and I would like to hear from someone who has >actually experienced it. > >We are beginning to realize that this might be a condition that she >lives with the rest of her life. I would like to help do anything >possible to make her quality of life better as well as know how some >people deal with the day to day reality of this situation. > >Hoping everyone is having a good day, > >Melinda > > > > > > >

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