Bad/ - further info!

[Guest guest]

Hi ,

Thanks for all your advice – can you have a quick look at the

following and tell me what you think please?

After my posting to you last night slept without seizures

until 6am this morning – I had given him an extra snack last night

which is 3.5:1 ration of 150 calories – his total calories for a

normal day is 1860 – he is quite a tall boy although he has not grown

taller in the past year and his weight is 34.5 kgs.

From 6am to 7.30am he had 4 T/C seizures.

8am Glucose was 4.5 and ketones were 1.6

9am breakfast

11.15am snack

1pm lunch

3.25pm glucose 3.5 and ketones were 4.6

3.30pm snack

He had a sleep between 4.30pm and 7.15pm and in this time he had 2

small T/C seizures and 1 very tight one.

7.30pm dinner

8.30pm glucose 4.6 and ketones 2.6

9pm he had a t/c seizure – very tight again.

9.35pm I have him an additional snack of 250 calories today.

10.25pm, 11pm, 11.30pm and 12.15am – he had a t/c seizure – all of

them very tight.

12.40am glucose 4.0 and ketones 3.7

12.45am t/c seizure – again very tight.

If he has any more seizures tonight I am going to have to give him

10mg rectal valium – he is so tired. He is also quite clammy at the

moment. He is not running a temperature at all and hasn't done all

through this, but every time that boy tries to sleep he has seizures

at the moment and I can seem to break the cycle.

I will test again in the early hours – but I never know when the

seizures will arrive. I would appreciate your thoughts on the above.

Thanks so much.

Emma.

P.S. Couldn't post this earlier - Yahoo not available - typical!!!

had another seizure at 1.40am and I had to give 10mg rectal

valium. I have tested bloods again this morning (considering he

started having seizures around 6am yesterday morning 5.45am today

glucose 4.5 and ketones are 1.6. Any thoughts!