Guest guest Posted July 18, 2004 Report Share Posted July 18, 2004 My advice would be just to stop the wean for a few weeks, I wouldn't immediately add dose back, will just make it harder to take away next time. But I sure wouldn't keep dropping more right now either. Give him 2-3 weeks to stabilize (remember, the last little bit is always the hardest), if he doesn't come back within 2-3 weeks then try adding back half of what you just took away this doesn't necessarily mean his body needs the drugs, just that that last drop was too much jafsmum wrote: > Looking for advice. Isaac has only been on kd for one month but has > done so well it was breathtaking! We have our boy back! We've been > weaning his valproic acid and are down to one dose of 125mg a day. > He has had a seizure or two a few days after every decrease so when > he had one on day five of this last decrease I wasn't overly > concerned. However on day six he had a day and evening of seizures > (had to give Ativan to allow him to rest), and I wondered about the > heat and humidity. The next day he appeared to be back in the > syndrome -- unable to be alone, clingy, wailing, perseverative, > unable to walk, slumped over, drawn, dissapeared inside himself. > Now a few days later he's not any better and I'm thinking he must > not be ready to come off the valproic acid. He was perfect on 125mg > 2Xday. I'm supposed to drop the last dose tommorrow, leaving him > medication free, but I don't think I can. I'm going to call the doc > and ask about reinstating the last decrease instead at least keeping > things the same. I don't want to do anything rash though. If he'd > just had a few simple seizures I would persist with the plan, it's > the return of the symdromy symptoms that has me very worried. > ly I'm really worried that the diet isn't going to work again. > Does the diet ever work like the start of a new med. We almost > always got a good effect on the initiation of a new drug and then > the seizures would break through and the increasing to toxic levels > would begin. I'm not sure I can bear losing him again. Anyone have > any words of wisdom? > > Thanks > Kathleen > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last > resort! " > > List is for parent to parent support only. > It is important to get medical advice from a > professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
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