Guest guest Posted April 13, 2002 Report Share Posted April 13, 2002 Hey , I feel the same way . My son is 8 now and we haven't made a wish yet . I am waiting until he is older or God forbid we see we have to use it sooner ! Crystal, Mom of Ty 8yrs w CF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2002 Report Share Posted April 13, 2002 Hey , I feel the same way . My son is 8 now and we haven't made a wish yet . I am waiting until he is older or God forbid we see we have to use it sooner ! Crystal, Mom of Ty 8yrs w CF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2002 Report Share Posted April 13, 2002 Hello all, I'm new in this group and find it very positive. I should have join it a lot earlier. Thank you all. My son , 13years old with cf, had made his wish when he was 8 years old. We went to Walt Disney for a week and he lived a dream. Even today, he often refers to that magic week and keeps very carefully all the pictures and the souvenirs he brought from there. suffers from a very severe side of cf. He will need a liver transplant in a near future. He often goes to hospital for several weeks. In our case, I'm sure I made the right decision to have him made his wish at that age. now has other wishes and one of them is to live as normal as it can be possible. I think that, as parents, we are the best persons to know when it will be the best for our child (or children) to make their wish come through (or true???) Sorry about my very poor English!!! Thank you all, from Montreal. >From: Tysidtan2@... >Reply-To: cfparents >To: cfparents >Subject: Re: Re: I'm new to the group...but I have alot to >offer. Please r... >Date: Sat, 13 Apr 2002 09:45:05 EDT > >Hey , I feel the same way . My son is 8 now and we haven't made a wish yet >. >I am waiting until he is older or God forbid we see we have to use it >sooner >! Crystal, Mom of Ty 8yrs w CF > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2002 Report Share Posted April 13, 2002 Hey , Welcome to the group. I think I have spoken to you before on another list. I believe you emailed me privately but I was away and my Husband carefully saved my emails and I accidently deleted yours. Mom to Elliot 14mths wcf Colorado...formerly of Montreal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2002 Report Share Posted April 13, 2002 Hi, wish things were better for and will pray they get better !! Crystal, Mom of Ty 8yrs w CF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2002 Report Share Posted April 13, 2002 Hi, wish things were better for and will pray they get better !! Crystal, Mom of Ty 8yrs w CF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2002 Report Share Posted April 14, 2002 Welcome..... I love this group.....I have learned so much! Rosemary in New York with three children with CF - they are 11, 9, 5....... I coined the phrase " BREATHE DAMMIT " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2002 Report Share Posted April 14, 2002 Welcome..... I love this group.....I have learned so much! Rosemary in New York with three children with CF - they are 11, 9, 5....... I coined the phrase " BREATHE DAMMIT " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2002 Report Share Posted April 15, 2002 I feel the same way about waiting . Crystal, Mom of Ty 8yrs W CF Quote Link to comment Share on other sites More sharing options...
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