Re: Fw: FLU vaccine and Kathy

[Guest guest]

Is Gabatril Vigabatrin? If so when Rohan was on it he had

a partial satatus episode like the one Kathy described with .

I must say though that Vigabatrin was one of the most successful

AEDs for Rohan.

Kathy it's so nice to see a post from you. How is doing?

Are you with the keto cafe too?

Hope things are fine with you guys.

Saro

kathy j irwin wrote:

>Barbara -- I don't get to post much. I have no idea if the flu vaccine

>or gabitril could be the culprit, but this reaction sounds like our

>experience with Gabitril. was in a coma-like state with eyes open.

>The most scared I have ever been on this journey. We rushed to the doc,

>only because he was closer than the ER. After about an hour he was

>better & the docs thought it was some type seizure that we've never seen.

> We had just stepped up his dose on the Gabitril (you know the

>drill....working our way up to a therapeutic level). The next day he was

>so lethargic that he couldn't stand. That's when we blamed the gabitril,

>eliminated it & have never seen that again (Thank the LORD!).

>Kathy - 's mom

>

>On Thu, 14 Oct 2004 12:23:12 -0400 " Barbara Swoyer "

>bswoyer@...> writes:

>

>

>>From a former list member re: the flu vaccine, her experience...

>>Barb Swoyer, Jake's mom

>>

>> FLU vaccine

>>I'm not on the keto list anymore, but was wondering if you could

>>post something in there for me. It's regarding the flu shot.

>> had the flu shot at 4:30 on Tue. We ended up in the ER at

>>8:30PM. couldn't walk for almost 4 hours. He had horrible

>>vertigo and literally could not walk. He was spaced out,

>>quiet,lethargic, wouldn't eat, and had an increase in myoclonic

>>seizures/and twitches. He scared the living #$@ out of us. By 9:00PM

>>, he was walking around and eating and talking away! We, as well as

>>the neurologist believe it was a reaction to the flu vaccine (mind

>>you, he DIDN'T have a reaction last year). also had his

>>gabitril 10 minutes after the vaccine which the neurologist said

>>could also have created the reaction. A nurse in the ER said that

>>several colleges from the ER had reactions to the vaccine

>>(headaches, sick in bed) this year when they hadn't before. I just

>>thought I'd forward this info to give you a " heads up " in case it

>>happens to any of your children.

>>

>>Take care,

>>Emma

>>

>>

>>

>>

>>

[Guest guest]

Hey Saro -- is doing well -- almost 5 years on the k.diet but we'd

like to wean... just too scared. My life has gotten very busy, so I'm

not on the cafe & can't read here as much as I'd like. I'm not sure

about the gabitril and vigabatrin being the same. Is Rohan doing well --

is he a teenager now? Wow, how time flies!

Kathy - 's mom

On Fri, 15 Oct 2004 09:37:37 +0100 Jay sanal@...> writes:

>

> Is Gabatril Vigabatrin? If so when Rohan was on it he had

> a partial satatus episode like the one Kathy described with .

> I must say though that Vigabatrin was one of the most successful

> AEDs for Rohan.

>

> Kathy it's so nice to see a post from you. How is doing?

> Are you with the keto cafe too?

> Hope things are fine with you guys.

> Saro

>

>

> kathy j irwin wrote:

>

> >Barbara -- I don't get to post much. I have no idea if the flu

> vaccine

> >or gabitril could be the culprit, but this reaction sounds like

> our

> >experience with Gabitril. was in a coma-like state with eyes

> open.

> >The most scared I have ever been on this journey. We rushed to the

> doc,

> >only because he was closer than the ER. After about an hour he

> was

> >better & the docs thought it was some type seizure that we've never

> seen.

> > We had just stepped up his dose on the Gabitril (you know the

> >drill....working our way up to a therapeutic level). The next day

> he was

> >so lethargic that he couldn't stand. That's when we blamed the

> gabitril,

> >eliminated it & have never seen that again (Thank the LORD!).

> >Kathy - 's mom

> >

> >On Thu, 14 Oct 2004 12:23:12 -0400 " Barbara Swoyer "

> >bswoyer@...> writes:

> >

> >

> >>From a former list member re: the flu vaccine, her experience...

> >>Barb Swoyer, Jake's mom

> >>

> >> FLU vaccine

> >>I'm not on the keto list anymore, but was wondering if you could

> >>post something in there for me. It's regarding the flu shot.

> >> had the flu shot at 4:30 on Tue. We ended up in the ER at

> >>8:30PM. couldn't walk for almost 4 hours. He had horrible

> >>vertigo and literally could not walk. He was spaced out,

> >>quiet,lethargic, wouldn't eat, and had an increase in myoclonic

> >>seizures/and twitches. He scared the living #$@ out of us. By

> 9:00PM

> >>, he was walking around and eating and talking away! We, as well

> as

> >>the neurologist believe it was a reaction to the flu vaccine (mind

>

> >>you, he DIDN'T have a reaction last year). also had his

> >>gabitril 10 minutes after the vaccine which the neurologist said

> >>could also have created the reaction. A nurse in the ER said that

>

> >>several colleges from the ER had reactions to the vaccine

> >>(headaches, sick in bed) this year when they hadn't before. I

> just

> >>thought I'd forward this info to give you a " heads up " in case it

>

> >>happens to any of your children.

> >>

> >>Take care,

> >>Emma

> >>

> >>

> >>

> >>

> >>