Re: SUGGESTIONS!- do the diet!

[Guest guest]

I highly recommend the diet no matter what- the fact is that your child is still

not seizure-free and that is a possbility with the diet!!

My son Noah started out with just 1 seizure a week and that progressed into

seizures all day long because of the medications he was taking. He started the

diet shortly after that in March this year, and has been seizure-free since

leaving the hospital. (We just celebrated 6 months seizure-free.) He also gained

so much more in cognitive ability, speech, etc by going on the diet. He has no

developmental delays at all. I know of some kids on the diet that aren't

completely seizure-free yet, but their quality of life is SO much better because

of the diet.

If you have a doctor in support of the diet, that is awesome and RARE. It is

definitely worth a try and not nearly as hard as you might imagine. (You might

also want to check out in the files section on this group- there is a document

about starting the diet that you might find informative.)

Wish you the best!

Mom to Noah- age 3, med-free, and seizure-free on the keto diet

s38992002 s38992002@...> wrote:

I'm still looking for some help in deciding if keto is the way to go

for n. I've been in the site for about a week and noticed

that it seems that most of the kids have many more seizures than

n. He has had a history of seizures since he was born

(preemie with a brain bleed.) They were under control until 8

months of age he developed infantile spasms. Since that he had been

having seizures off and on until March 2004 he started having them

every 7 to 10 days which for me is bad but after reading some of

these messages these poor kids are having them a number of times

daily. I guess what is concering me is that I was the one who asked

my doctor about the diet and he agreed with me. What are your

thoughts as parents and caregivers.

Diane

" The Ketogenic Diet....a realistic treatment option, NOT just a last resort! "

List is for parent to parent support only.

It is important to get medical advice from a professional keto

team!

Subscribe: ketogenic-subscribe

Unsubscribe: ketogenic-unsubscribe

[Guest guest]

Hi Diane

Just my twopenny worth...

I agree with whoever was saying about the medications making things worse - I'm

convinced this has happened to Ben. He actually started to have myoclonics as a

result of starting the Epilim/Depakote. The diet has woken Ben up and as we come

off

those horrible drugs he is improving and improving. When we're drug free I

suspect it

will be even better. If you feel your son is gradually getting more frequent

seizures it

may be worth asking the question could it be due to the drugs? Sorry if you have

already posted about the meds he is on - I'm being lazy and not looking for any

other

posts!

Rose Toms - Mum of Ben (9) in ketosis since Feb 04 and ready for take-off!

[Guest guest]

Bill Barber wrote:

> There are many common negative side effects to the diet. There are

> also

> some rare but very serious, even fatal side effects.

Just curious Bill, what are the fatal ones? Only ones I know of can

potentially come from a few rare pre-existing conditions which should be

screened out before keto is started

[Guest guest]

Bill Barber wrote:

> There are many common negative side effects to the diet. There are

> also

> some rare but very serious, even fatal side effects.

Just curious Bill, what are the fatal ones? Only ones I know of can

potentially come from a few rare pre-existing conditions which should be

screened out before keto is started

[Guest guest]

Bill Barber wrote:

> There are many common negative side effects to the diet. There are

> also

> some rare but very serious, even fatal side effects.

Just curious Bill, what are the fatal ones? Only ones I know of can

potentially come from a few rare pre-existing conditions which should be

screened out before keto is started

[Guest guest]

Even the common side effects can be fatal if not addressed promptly;

diarrhea, constipation, vomiting, dehydration, etc. For the less common

ones, they range from liver failure to kidney stones, to heart problems.

I don't have my old files here right now, but I can vaguely recollect

problems with liver especially. Some of the patients were on concurrent

regimes of one or more medications, so this can also be a hazard when

going on the diet. These were articles from medical journals. Perhaps a

computerized search would be able to locate them?

Some of the children are very young and some are also considered

medically fragile and some are unable to communicate distress.

Even the difficulties of insufficient vitamins and minerals and possible

effects of bone loss and high cholesterol can be serious in the long

term. And for many of us, the diet is long term.

Bill

mmc@... wrote:

> Bill Barber wrote:

>

>

>> There are many common negative side effects to the diet. There are

>>also

>>some rare but very serious, even fatal side effects.

>

>

> Just curious Bill, what are the fatal ones? Only ones I know of can

> potentially come from a few rare pre-existing conditions which should be

> screened out before keto is started

>

>

>

>

[Guest guest]

Even the common side effects can be fatal if not addressed promptly;

diarrhea, constipation, vomiting, dehydration, etc. For the less common

ones, they range from liver failure to kidney stones, to heart problems.

I don't have my old files here right now, but I can vaguely recollect

problems with liver especially. Some of the patients were on concurrent

regimes of one or more medications, so this can also be a hazard when

going on the diet. These were articles from medical journals. Perhaps a

computerized search would be able to locate them?

Some of the children are very young and some are also considered

medically fragile and some are unable to communicate distress.

Even the difficulties of insufficient vitamins and minerals and possible

effects of bone loss and high cholesterol can be serious in the long

term. And for many of us, the diet is long term.

Bill

mmc@... wrote:

> Bill Barber wrote:

>

>

>> There are many common negative side effects to the diet. There are

>>also

>>some rare but very serious, even fatal side effects.

>

>

> Just curious Bill, what are the fatal ones? Only ones I know of can

> potentially come from a few rare pre-existing conditions which should be

> screened out before keto is started

>

>

>

>

[Guest guest]

Even the common side effects can be fatal if not addressed promptly;

diarrhea, constipation, vomiting, dehydration, etc. For the less common

ones, they range from liver failure to kidney stones, to heart problems.

I don't have my old files here right now, but I can vaguely recollect

problems with liver especially. Some of the patients were on concurrent

regimes of one or more medications, so this can also be a hazard when

going on the diet. These were articles from medical journals. Perhaps a

computerized search would be able to locate them?

Some of the children are very young and some are also considered

medically fragile and some are unable to communicate distress.

Even the difficulties of insufficient vitamins and minerals and possible

effects of bone loss and high cholesterol can be serious in the long

term. And for many of us, the diet is long term.

Bill

mmc@... wrote:

> Bill Barber wrote:

>

>

>> There are many common negative side effects to the diet. There are

>>also

>>some rare but very serious, even fatal side effects.

>

>

> Just curious Bill, what are the fatal ones? Only ones I know of can

> potentially come from a few rare pre-existing conditions which should be

> screened out before keto is started

>

>

>

>