Guest guest Posted October 21, 2004 Report Share Posted October 21, 2004 My daughter is 7 and i believe the meds she is on are making things worse. One diagnosis she has gotten is LGS, and it is said to get progressively worse, but what if all the meds is what makes it worse? a had a definate experience with lamictal. As soon as she started it, she started getting myoclonic jerks, i took her off after one week, and the jerks stopped. She has started with the jerks again when she started dilantin in November. I kept her on dilantin, because of a status scare, but am now weaning her. There are some great studies and articles that have proven over and over again about meds making seizures worse especially LGS at Pub Med. Mostly tegretal and trileptal. Even dilantin. The site is: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=PubMed&cmd=Retrieve&list_uids =9578007&dopt=Abstract You can click on the link for related articles and see a whole bunch. My daughter is on trileptal, and has gotten alot worse since she started, so im starting to wonder. Also i have heard seizures are a sign of the brain trying to heal itself. That is why alot of kids can grow out of them, but if there are kids that are really doped up, how can their brain even try? I wish i had the answeres i needed, and i wish there were definates in diagnosing the epilepsys. It sucks. Quote Link to comment Share on other sites More sharing options...
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