Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 Hi , Many people get incorrect IBS diagnoses. I know I did. I only discovered gluten was my problem while doing Atkins diet. Suddenly all the painful attacks, reflux, bloating etc.. went away. When I started adding things like bran back in my old symptoms returned. I wish I had a blood test or biopsy before going gluten free. I've tried a gluten challenge and only lasted a couple days. Back when I was eating gluten high fiber foods like nuts, bran and popcorn would leave me in serious pain. After being gluten free I can eat things like nuts with no problems. I would contact your doctor and ask for a full celiac panel. Good luck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 Hi , Many people get incorrect IBS diagnoses. I know I did. I only discovered gluten was my problem while doing Atkins diet. Suddenly all the painful attacks, reflux, bloating etc.. went away. When I started adding things like bran back in my old symptoms returned. I wish I had a blood test or biopsy before going gluten free. I've tried a gluten challenge and only lasted a couple days. Back when I was eating gluten high fiber foods like nuts, bran and popcorn would leave me in serious pain. After being gluten free I can eat things like nuts with no problems. I would contact your doctor and ask for a full celiac panel. Good luck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 Hi , Many people get incorrect IBS diagnoses. I know I did. I only discovered gluten was my problem while doing Atkins diet. Suddenly all the painful attacks, reflux, bloating etc.. went away. When I started adding things like bran back in my old symptoms returned. I wish I had a blood test or biopsy before going gluten free. I've tried a gluten challenge and only lasted a couple days. Back when I was eating gluten high fiber foods like nuts, bran and popcorn would leave me in serious pain. After being gluten free I can eat things like nuts with no problems. I would contact your doctor and ask for a full celiac panel. Good luck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 Hi , A lot of us have found our Celiac/gluten intolerance diagnosis by following that thread of information until we arrived at the right spot. I was tracing down information on hypothyroidism myself. The first piece of advice is to get all of the testing done before you try a gluten-free diet. Once you eliminate gluten, the markers won’t show up in the blood test. It doesn’t take long in some people for the damage to the small intestine to reverse either, rendering that “gold standard” biopsy a false negative. The second piece of advice is to insist on the testing even if your doctor says that you don’t look like a Celiac. We’re not all under-weight or sick all the time. I don’t mind having Celiac disease. Eliminating gluten seems a simple and clear solution to me. IBS seems so much more vague and hard to treat. Laurie lbilyeu@... From: SillyYaks [mailto:SillyYaks ] On Behalf Of zeebyrd Sent: Wednesday, July 26, 2006 11:05 AM To: SillyYaks Subject: Hello - new to group Hello everyone, I just joined the group. I've been doing some research on bran sensitivity, which led me to wheat sensitivity, which led me to celiac disease. I thought I'd join your group to learn a little more. I have IBS (irritable bowel syndrome). I recently discovered that I cannot tolerate bran cereal. I might as well starve myself than eat it. The pain, bloating and related symptoms are unbearable!!! So, I started searching for info about bran sensitivity. In my search for info, I found that as far as food sensitivities go, wheat sensitivity is one of the major ones for people with IBS. I never knew this! I also read that some people are wrongly diagnosed with IBS, when they may have wheat sensitivity or celiac disease. So, all this leads me to wanting to learn more before I see my doctor. (I will be making an appointment shortly.) I have read so many health problems that are caused by wheat sensitivity that its almost unbelievable to me. I have a number of them - which makes me wonder... I'm not self-diagnosing, just wondering. Its definitely something to see a specialist about! So, if anyone has any info about IBS, wheat sensitivity, and celiac disease - or can point me to good resources online, I would be very grateful. There's so much info out there, and I'm still sorting through it all. Thank you for letting me join the group. I hope to learn a lot in the process. I'm not sure if I want to become a permanent " fixture " of the group - as I'm not sure which is worse, IBS or celiac - I guess each has its pitfalls depending on the individual. (Although, I do realize that celiac is much more damaging to your body!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 I agree completely on KEEP EATING gluten until you get tested. Even if it makes you sick, eat it. > > Hi , > > A lot of us have found our Celiac/gluten intolerance diagnosis by following > that thread of information until we arrived at the right spot. I was tracing > down information on hypothyroidism myself. > > > > The first piece of advice is to get all of the testing done before you try a > gluten-free diet. Once you eliminate gluten, the markers won't show up in > the blood test. It doesn't take long in some people for the damage to the > small intestine to reverse either, rendering that " gold standard " biopsy a > false negative. The second piece of advice is to insist on the testing even > if your doctor says that you don't look like a Celiac. We're not all > under-weight or sick all the time. > > > > I don't mind having Celiac disease. Eliminating gluten seems a simple and > clear solution to me. IBS seems so much more vague and hard to treat. > > > > Laurie > > > _____ > > From: SillyYaks [mailto:SillyYaks ] On Behalf > Of zeebyrd > Sent: Wednesday, July 26, 2006 11:05 AM > To: SillyYaks > Subject: Hello - new to group > > > > Hello everyone, > > I just joined the group. I've been doing some > research on bran sensitivity, which led me to wheat > sensitivity, which led me to celiac disease. I > thought I'd join your group to learn a little more. > > I have IBS (irritable bowel syndrome). I recently > discovered that I cannot tolerate bran cereal. I > might as well starve myself than eat it. The pain, > bloating and related symptoms are unbearable!!! So, I > started searching for info about bran sensitivity. > > In my search for info, I found that as far as food > sensitivities go, wheat sensitivity is one of the > major ones for people with IBS. I never knew this! > > I also read that some people are wrongly diagnosed > with IBS, when they may have wheat sensitivity or > celiac disease. So, all this leads me to wanting to > learn more before I see my doctor. (I will be making > an appointment shortly.) > > I have read so many health problems that are caused by > wheat sensitivity that its almost unbelievable to me. > I have a number of them - which makes me wonder... > I'm not self-diagnosing, just wondering. Its > definitely something to see a specialist about! > > So, if anyone has any info about IBS, wheat > sensitivity, and celiac disease - or can point me to > good resources online, I would be very grateful. > There's so much info out there, and I'm still sorting > through it all. > > Thank you for letting me join the group. I hope to > learn a lot in the process. I'm not sure if I want to > become a permanent " fixture " of the group - as I'm not > sure which is worse, IBS or celiac - I guess each has > its pitfalls depending on the individual. (Although, > I do realize that celiac is much more damaging to your > body!) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 I think it is definately worth looking into. IBS was one of the incorrect diagnoses I got before finding out I realy had Celiac Disease. > > Hello everyone, > > I just joined the group. I've been doing some > research on bran sensitivity, which led me to wheat > sensitivity, which led me to celiac disease. I > thought I'd join your group to learn a little more. > > I have IBS (irritable bowel syndrome). I recently > discovered that I cannot tolerate bran cereal. I > might as well starve myself than eat it. The pain, > bloating and related symptoms are unbearable!!! So, I > started searching for info about bran sensitivity. > > In my search for info, I found that as far as food > sensitivities go, wheat sensitivity is one of the > major ones for people with IBS. I never knew this! > > I also read that some people are wrongly diagnosed > with IBS, when they may have wheat sensitivity or > celiac disease. So, all this leads me to wanting to > learn more before I see my doctor. (I will be making > an appointment shortly.) > > I have read so many health problems that are caused by > wheat sensitivity that its almost unbelievable to me. > I have a number of them - which makes me wonder... > I'm not self-diagnosing, just wondering. Its > definitely something to see a specialist about! > > So, if anyone has any info about IBS, wheat > sensitivity, and celiac disease - or can point me to > good resources online, I would be very grateful. > There's so much info out there, and I'm still sorting > through it all. > > Thank you for letting me join the group. I hope to > learn a lot in the process. I'm not sure if I want to > become a permanent " fixture " of the group - as I'm not > sure which is worse, IBS or celiac - I guess each has > its pitfalls depending on the individual. (Although, > I do realize that celiac is much more damaging to your > body!) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 Hello, My name is Gayle and I am also new to the group. I have been just readling the wealth of information for weeks (the funniest by far was the ants in the bed). But anyway, I felt the need to reply to this because of my history. My husband was diagnosed with ibs 10 years ago. He never had a celiac test - we didn't know about celiac. My daughter 3 years ago, started with severe headaches, fatique, severe tummyaches. Her gi said, they were spasms because of her short stature her organs were growing faster than her body. (she was in the 10th percentile in height all of her life) and without further testing put her on a medication, which wasn't working. Her neurologist (after an mri said, childhood migraines and told us to remove any offending foods. to make a long story short. She went from dr to dr with no ease in her pain. An ent had us remove her toncils in hopes that her headaches would be gone. other tests pointed to hypothyroidism - everything always was expainable. An allergist said, NO FOOD ALLERGIES. OUR LAST HOPE - I called her a witch dr. She had us eliminate all her foods and reintroduce. SHE GOT 100% BETTER. I went back to the gi and said it's food. Not knowing that you need to be eating gluten for any tests to be accurate. DO NOT REMOVE YOUR WHEAT BEFORE BEING TESTED FOR CELIAC! I still have problems, I am almost positive my daughter has celiac, she has the gene, after some research, I discovered lupas, dh and celiac in my husbands family (cousins in poland, etc) Unfortunately, my whole house went gluten free and no one tests positive. And I was the horrible mother that subjected my daughter to 6 weeks of torture and put her back on gluten for the biopsy which came back negative. Thankfully I was smart enough to refuse, when my dr said to stay on the gluten and continue testing. for what, I don't care if she has celiac, I know she cannot eat the gluten. My gi still refuses to diagnose with celiac. and without that diagnosis, the school and her family dr don't take her or me seriously - they want proof she has any kind of allergy and all allergy and rast testing came back negative. My point is....please convince your dr to get tested. don't take no for an answer. Many drs don't believe that you could have celiac without all the right symtoms. Good luck. Gayle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 Hello, My name is Gayle and I am also new to the group. I have been just readling the wealth of information for weeks (the funniest by far was the ants in the bed). But anyway, I felt the need to reply to this because of my history. My husband was diagnosed with ibs 10 years ago. He never had a celiac test - we didn't know about celiac. My daughter 3 years ago, started with severe headaches, fatique, severe tummyaches. Her gi said, they were spasms because of her short stature her organs were growing faster than her body. (she was in the 10th percentile in height all of her life) and without further testing put her on a medication, which wasn't working. Her neurologist (after an mri said, childhood migraines and told us to remove any offending foods. to make a long story short. She went from dr to dr with no ease in her pain. An ent had us remove her toncils in hopes that her headaches would be gone. other tests pointed to hypothyroidism - everything always was expainable. An allergist said, NO FOOD ALLERGIES. OUR LAST HOPE - I called her a witch dr. She had us eliminate all her foods and reintroduce. SHE GOT 100% BETTER. I went back to the gi and said it's food. Not knowing that you need to be eating gluten for any tests to be accurate. DO NOT REMOVE YOUR WHEAT BEFORE BEING TESTED FOR CELIAC! I still have problems, I am almost positive my daughter has celiac, she has the gene, after some research, I discovered lupas, dh and celiac in my husbands family (cousins in poland, etc) Unfortunately, my whole house went gluten free and no one tests positive. And I was the horrible mother that subjected my daughter to 6 weeks of torture and put her back on gluten for the biopsy which came back negative. Thankfully I was smart enough to refuse, when my dr said to stay on the gluten and continue testing. for what, I don't care if she has celiac, I know she cannot eat the gluten. My gi still refuses to diagnose with celiac. and without that diagnosis, the school and her family dr don't take her or me seriously - they want proof she has any kind of allergy and all allergy and rast testing came back negative. My point is....please convince your dr to get tested. don't take no for an answer. Many drs don't believe that you could have celiac without all the right symtoms. Good luck. Gayle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 Many of us have been misdiagnosed, Gayle. My misdiagnosed IBS led me to get cancer. GF living and herbal supplements have helped me heal so that I am now cancer free and feel normal, except for food intolerances and the gluten free part. Testing can sometimes give you a negative, but you can still be celiac. Listen to your body and the evidence that is before you. You spend a lot more time with your family than your Doctor does. Tara -----Original Message-----From: SillyYaks [mailto:SillyYaks ] On Behalf Of Gayle BSent: July 26, 2006 2:39 PMTo: SillyYaks Subject: Re: Hello - new to group Hello, My name is Gayle and I am also new to the group. I have been just readling the wealth of information for weeks (the funniest by far was the ants in the bed). But anyway, I felt the need to reply to this because of my history. My husband was diagnosed with ibs 10 years ago. He never had a celiac test - we didn't know about celiac. My daughter 3 years ago, started with severe headaches, fatique, severe tummyaches. Her gi said, they were spasms because of her short stature her organs were growing faster than her body. (she was in the 10th percentile in height all of her life) and without further testing put her on a medication, which wasn't working. Her neurologist (after an mri said, childhood migraines and told us to remove any offending foods. to make a long story short. She went from dr to dr with no ease in her pain. An ent had us remove her toncils in hopes that her headaches would be gone. other tests pointed to hypothyroidism - everything always was expainable. An allergist said, NO FOOD ALLERGIES. OUR LAST HOPE - I called her a witch dr. She had us eliminate all her foods and reintroduce. SHE GOT 100% BETTER. I went back to the gi and said it's food. Not knowing that you need to be eating gluten for any tests to be accurate. DO NOT REMOVE YOUR WHEAT BEFORE BEING TESTED FOR CELIAC! I still have problems, I am almost positive my daughter has celiac, she has the gene, after some research, I discovered lupas, dh and celiac in my husbands family (cousins in poland, etc) Unfortunately, my whole house went gluten free and no one tests positive. And I was the horrible mother that subjected my daughter to 6 weeks of torture and put her back on gluten for the biopsy which came back negative. Thankfully I was smart enough to refuse, when my dr said to stay on the gluten and continue testing. for what, I don't care if she has celiac, I know she cannot eat the gluten. My gi still refuses to diagnose with celiac. and without that diagnosis, the school and her family dr don't take her or me seriously - they want proof she has any kind of allergy and all allergy and rast testing came back negative. My point is....please convince your dr to get tested. don't take no for an answer. Many drs don't believe that you could have celiac without all the right symtoms. Good luck. Gayle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 Many of us have been misdiagnosed, Gayle. My misdiagnosed IBS led me to get cancer. GF living and herbal supplements have helped me heal so that I am now cancer free and feel normal, except for food intolerances and the gluten free part. Testing can sometimes give you a negative, but you can still be celiac. Listen to your body and the evidence that is before you. You spend a lot more time with your family than your Doctor does. Tara -----Original Message-----From: SillyYaks [mailto:SillyYaks ] On Behalf Of Gayle BSent: July 26, 2006 2:39 PMTo: SillyYaks Subject: Re: Hello - new to group Hello, My name is Gayle and I am also new to the group. I have been just readling the wealth of information for weeks (the funniest by far was the ants in the bed). But anyway, I felt the need to reply to this because of my history. My husband was diagnosed with ibs 10 years ago. He never had a celiac test - we didn't know about celiac. My daughter 3 years ago, started with severe headaches, fatique, severe tummyaches. Her gi said, they were spasms because of her short stature her organs were growing faster than her body. (she was in the 10th percentile in height all of her life) and without further testing put her on a medication, which wasn't working. Her neurologist (after an mri said, childhood migraines and told us to remove any offending foods. to make a long story short. She went from dr to dr with no ease in her pain. An ent had us remove her toncils in hopes that her headaches would be gone. other tests pointed to hypothyroidism - everything always was expainable. An allergist said, NO FOOD ALLERGIES. OUR LAST HOPE - I called her a witch dr. She had us eliminate all her foods and reintroduce. SHE GOT 100% BETTER. I went back to the gi and said it's food. Not knowing that you need to be eating gluten for any tests to be accurate. DO NOT REMOVE YOUR WHEAT BEFORE BEING TESTED FOR CELIAC! I still have problems, I am almost positive my daughter has celiac, she has the gene, after some research, I discovered lupas, dh and celiac in my husbands family (cousins in poland, etc) Unfortunately, my whole house went gluten free and no one tests positive. And I was the horrible mother that subjected my daughter to 6 weeks of torture and put her back on gluten for the biopsy which came back negative. Thankfully I was smart enough to refuse, when my dr said to stay on the gluten and continue testing. for what, I don't care if she has celiac, I know she cannot eat the gluten. My gi still refuses to diagnose with celiac. and without that diagnosis, the school and her family dr don't take her or me seriously - they want proof she has any kind of allergy and all allergy and rast testing came back negative. My point is....please convince your dr to get tested. don't take no for an answer. Many drs don't believe that you could have celiac without all the right symtoms. Good luck. Gayle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 Many of us have been misdiagnosed, Gayle. My misdiagnosed IBS led me to get cancer. GF living and herbal supplements have helped me heal so that I am now cancer free and feel normal, except for food intolerances and the gluten free part. Testing can sometimes give you a negative, but you can still be celiac. Listen to your body and the evidence that is before you. You spend a lot more time with your family than your Doctor does. Tara -----Original Message-----From: SillyYaks [mailto:SillyYaks ] On Behalf Of Gayle BSent: July 26, 2006 2:39 PMTo: SillyYaks Subject: Re: Hello - new to group Hello, My name is Gayle and I am also new to the group. I have been just readling the wealth of information for weeks (the funniest by far was the ants in the bed). But anyway, I felt the need to reply to this because of my history. My husband was diagnosed with ibs 10 years ago. He never had a celiac test - we didn't know about celiac. My daughter 3 years ago, started with severe headaches, fatique, severe tummyaches. Her gi said, they were spasms because of her short stature her organs were growing faster than her body. (she was in the 10th percentile in height all of her life) and without further testing put her on a medication, which wasn't working. Her neurologist (after an mri said, childhood migraines and told us to remove any offending foods. to make a long story short. She went from dr to dr with no ease in her pain. An ent had us remove her toncils in hopes that her headaches would be gone. other tests pointed to hypothyroidism - everything always was expainable. An allergist said, NO FOOD ALLERGIES. OUR LAST HOPE - I called her a witch dr. She had us eliminate all her foods and reintroduce. SHE GOT 100% BETTER. I went back to the gi and said it's food. Not knowing that you need to be eating gluten for any tests to be accurate. DO NOT REMOVE YOUR WHEAT BEFORE BEING TESTED FOR CELIAC! I still have problems, I am almost positive my daughter has celiac, she has the gene, after some research, I discovered lupas, dh and celiac in my husbands family (cousins in poland, etc) Unfortunately, my whole house went gluten free and no one tests positive. And I was the horrible mother that subjected my daughter to 6 weeks of torture and put her back on gluten for the biopsy which came back negative. Thankfully I was smart enough to refuse, when my dr said to stay on the gluten and continue testing. for what, I don't care if she has celiac, I know she cannot eat the gluten. My gi still refuses to diagnose with celiac. and without that diagnosis, the school and her family dr don't take her or me seriously - they want proof she has any kind of allergy and all allergy and rast testing came back negative. My point is....please convince your dr to get tested. don't take no for an answer. Many drs don't believe that you could have celiac without all the right symtoms. Good luck. Gayle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 Welcome & Gayle, I am currently reading a book called Dangerous Grains by Braly, MD & Ron Hoggan, MA and I highly recomend it. I got it from my local library. It talks about "the benefits of a guten-free diet in relieving & preventing ailments associated with celiac disease, gluten sensitivity and more than 200 chronic illnesses and condition". It's a real eye opener. Michele >> Hello everyone,> > I just joined the group. I've been doing some> research on bran sensitivity, which led me to wheat> sensitivity, which led me to celiac disease. I> thought I'd join your group to learn a little more.> > I have IBS (irritable bowel syndrome). I recently> discovered that I cannot tolerate bran cereal. I> might as well starve myself than eat it. The pain,> bloating and related symptoms are unbearable!!! So, I> started searching for info about bran sensitivity.> > In my search for info, I found that as far as food> sensitivities go, wheat sensitivity is one of the> major ones for people with IBS. I never knew this!> > I also read that some people are wrongly diagnosed> with IBS, when they may have wheat sensitivity or> celiac disease. So, all this leads me to wanting to> learn more before I see my doctor. (I will be making> an appointment shortly.)> > I have read so many health problems that are caused by> wheat sensitivity that its almost unbelievable to me. > I have a number of them - which makes me wonder... > I'm not self-diagnosing, just wondering. Its> definitely something to see a specialist about!> > So, if anyone has any info about IBS, wheat> sensitivity, and celiac disease - or can point me to> good resources online, I would be very grateful. > There's so much info out there, and I'm still sorting> through it all.> > Thank you for letting me join the group. I hope to> learn a lot in the process. I'm not sure if I want to> become a permanent "fixture" of the group - as I'm not> sure which is worse, IBS or celiac - I guess each has> its pitfalls depending on the individual. (Although,> I do realize that celiac is much more damaging to your> body!)> > > Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (7) 5b. Re: Hello - new to group Posted by: "Gayle B" gaylesgang@... gaylesgang Wed Jul 26, 2006 12:25 pm (PST) Hello,My name is Gayle and I am also new to the group. I have been just readling the wealth of information for weeks (the funniest by far was the ants in the bed). But anyway, I felt the need to reply to this because of my history.My husband was diagnosed with ibs 10 years ago. He never had a celiac test - we didn't know about celiac.My daughter 3 years ago, started with severe headaches, fatique, severe tummyaches. Her gi said, they were spasms because of her short stature her organs were growing faster than her body. (she was in the 10th percentile in height all of her life) and without further testing put her on a medication, which wasn't working. Her neurologist (after an mri said, childhood migraines and told us to remove any offending foods. to make a long story short. She went from dr to dr with no ease in her pain. An ent had us remove her toncils in hopes that her headaches would be gone. other tests pointed to hypothyroidism - everything always was expainable. An allergist said, NO FOOD ALLERGIES. OUR LAST HOPE - I called her a witch dr. She had us eliminate all her foods and reintroduce. SHE GOT 100% BETTER. I went back to the gi and said it's food. Not knowing that you need to be eating gluten for any tests to be accurate. DO NOT REMOVE YOUR WHEAT BEFORE BEING TESTED FOR CELIAC! I still have problems, I am almost positive my daughter has celiac, she has the gene, after some research, I discovered lupas, dh and celiac in my husbands family (cousins in poland, etc) Unfortunately, my whole house went gluten free and no one tests positive. And I was the horrible mother that subjected my daughter to 6 weeks of torture and put her back on gluten for the biopsy which came back negative. Thankfully I was smart enough to refuse, when my dr said to stay on the gluten and continue testing. for what, I don't care if she has celiac, I know she cannot eat the gluten.My gi still refuses to diagnose with celiac. and without that diagnosis, the school and her family dr don't take her or me seriously - they want proof she has any kind of allergy and all allergy and rast testing came back negative.My point is....please convince your dr to get tested. don't take no for an answer. Many drs don't believe that you could have celiac without all the right symtoms. Good luck.Gayle Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 Welcome & Gayle, I am currently reading a book called Dangerous Grains by Braly, MD & Ron Hoggan, MA and I highly recomend it. I got it from my local library. It talks about "the benefits of a guten-free diet in relieving & preventing ailments associated with celiac disease, gluten sensitivity and more than 200 chronic illnesses and condition". It's a real eye opener. Michele >> Hello everyone,> > I just joined the group. I've been doing some> research on bran sensitivity, which led me to wheat> sensitivity, which led me to celiac disease. I> thought I'd join your group to learn a little more.> > I have IBS (irritable bowel syndrome). I recently> discovered that I cannot tolerate bran cereal. I> might as well starve myself than eat it. The pain,> bloating and related symptoms are unbearable!!! So, I> started searching for info about bran sensitivity.> > In my search for info, I found that as far as food> sensitivities go, wheat sensitivity is one of the> major ones for people with IBS. I never knew this!> > I also read that some people are wrongly diagnosed> with IBS, when they may have wheat sensitivity or> celiac disease. So, all this leads me to wanting to> learn more before I see my doctor. (I will be making> an appointment shortly.)> > I have read so many health problems that are caused by> wheat sensitivity that its almost unbelievable to me. > I have a number of them - which makes me wonder... > I'm not self-diagnosing, just wondering. Its> definitely something to see a specialist about!> > So, if anyone has any info about IBS, wheat> sensitivity, and celiac disease - or can point me to> good resources online, I would be very grateful. > There's so much info out there, and I'm still sorting> through it all.> > Thank you for letting me join the group. I hope to> learn a lot in the process. I'm not sure if I want to> become a permanent "fixture" of the group - as I'm not> sure which is worse, IBS or celiac - I guess each has> its pitfalls depending on the individual. (Although,> I do realize that celiac is much more damaging to your> body!)> > > Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (7) 5b. Re: Hello - new to group Posted by: "Gayle B" gaylesgang@... gaylesgang Wed Jul 26, 2006 12:25 pm (PST) Hello,My name is Gayle and I am also new to the group. I have been just readling the wealth of information for weeks (the funniest by far was the ants in the bed). But anyway, I felt the need to reply to this because of my history.My husband was diagnosed with ibs 10 years ago. He never had a celiac test - we didn't know about celiac.My daughter 3 years ago, started with severe headaches, fatique, severe tummyaches. Her gi said, they were spasms because of her short stature her organs were growing faster than her body. (she was in the 10th percentile in height all of her life) and without further testing put her on a medication, which wasn't working. Her neurologist (after an mri said, childhood migraines and told us to remove any offending foods. to make a long story short. She went from dr to dr with no ease in her pain. An ent had us remove her toncils in hopes that her headaches would be gone. other tests pointed to hypothyroidism - everything always was expainable. An allergist said, NO FOOD ALLERGIES. OUR LAST HOPE - I called her a witch dr. She had us eliminate all her foods and reintroduce. SHE GOT 100% BETTER. I went back to the gi and said it's food. Not knowing that you need to be eating gluten for any tests to be accurate. DO NOT REMOVE YOUR WHEAT BEFORE BEING TESTED FOR CELIAC! I still have problems, I am almost positive my daughter has celiac, she has the gene, after some research, I discovered lupas, dh and celiac in my husbands family (cousins in poland, etc) Unfortunately, my whole house went gluten free and no one tests positive. And I was the horrible mother that subjected my daughter to 6 weeks of torture and put her back on gluten for the biopsy which came back negative. Thankfully I was smart enough to refuse, when my dr said to stay on the gluten and continue testing. for what, I don't care if she has celiac, I know she cannot eat the gluten.My gi still refuses to diagnose with celiac. and without that diagnosis, the school and her family dr don't take her or me seriously - they want proof she has any kind of allergy and all allergy and rast testing came back negative.My point is....please convince your dr to get tested. don't take no for an answer. Many drs don't believe that you could have celiac without all the right symtoms. Good luck.Gayle Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 Welcome & Gayle, I am currently reading a book called Dangerous Grains by Braly, MD & Ron Hoggan, MA and I highly recomend it. I got it from my local library. It talks about "the benefits of a guten-free diet in relieving & preventing ailments associated with celiac disease, gluten sensitivity and more than 200 chronic illnesses and condition". It's a real eye opener. Michele >> Hello everyone,> > I just joined the group. I've been doing some> research on bran sensitivity, which led me to wheat> sensitivity, which led me to celiac disease. I> thought I'd join your group to learn a little more.> > I have IBS (irritable bowel syndrome). I recently> discovered that I cannot tolerate bran cereal. I> might as well starve myself than eat it. The pain,> bloating and related symptoms are unbearable!!! So, I> started searching for info about bran sensitivity.> > In my search for info, I found that as far as food> sensitivities go, wheat sensitivity is one of the> major ones for people with IBS. I never knew this!> > I also read that some people are wrongly diagnosed> with IBS, when they may have wheat sensitivity or> celiac disease. So, all this leads me to wanting to> learn more before I see my doctor. (I will be making> an appointment shortly.)> > I have read so many health problems that are caused by> wheat sensitivity that its almost unbelievable to me. > I have a number of them - which makes me wonder... > I'm not self-diagnosing, just wondering. Its> definitely something to see a specialist about!> > So, if anyone has any info about IBS, wheat> sensitivity, and celiac disease - or can point me to> good resources online, I would be very grateful. > There's so much info out there, and I'm still sorting> through it all.> > Thank you for letting me join the group. I hope to> learn a lot in the process. I'm not sure if I want to> become a permanent "fixture" of the group - as I'm not> sure which is worse, IBS or celiac - I guess each has> its pitfalls depending on the individual. (Although,> I do realize that celiac is much more damaging to your> body!)> > > Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (7) 5b. Re: Hello - new to group Posted by: "Gayle B" gaylesgang@... gaylesgang Wed Jul 26, 2006 12:25 pm (PST) Hello,My name is Gayle and I am also new to the group. I have been just readling the wealth of information for weeks (the funniest by far was the ants in the bed). But anyway, I felt the need to reply to this because of my history.My husband was diagnosed with ibs 10 years ago. He never had a celiac test - we didn't know about celiac.My daughter 3 years ago, started with severe headaches, fatique, severe tummyaches. Her gi said, they were spasms because of her short stature her organs were growing faster than her body. (she was in the 10th percentile in height all of her life) and without further testing put her on a medication, which wasn't working. Her neurologist (after an mri said, childhood migraines and told us to remove any offending foods. to make a long story short. She went from dr to dr with no ease in her pain. An ent had us remove her toncils in hopes that her headaches would be gone. other tests pointed to hypothyroidism - everything always was expainable. An allergist said, NO FOOD ALLERGIES. OUR LAST HOPE - I called her a witch dr. She had us eliminate all her foods and reintroduce. SHE GOT 100% BETTER. I went back to the gi and said it's food. Not knowing that you need to be eating gluten for any tests to be accurate. DO NOT REMOVE YOUR WHEAT BEFORE BEING TESTED FOR CELIAC! I still have problems, I am almost positive my daughter has celiac, she has the gene, after some research, I discovered lupas, dh and celiac in my husbands family (cousins in poland, etc) Unfortunately, my whole house went gluten free and no one tests positive. And I was the horrible mother that subjected my daughter to 6 weeks of torture and put her back on gluten for the biopsy which came back negative. Thankfully I was smart enough to refuse, when my dr said to stay on the gluten and continue testing. for what, I don't care if she has celiac, I know she cannot eat the gluten.My gi still refuses to diagnose with celiac. and without that diagnosis, the school and her family dr don't take her or me seriously - they want proof she has any kind of allergy and all allergy and rast testing came back negative.My point is....please convince your dr to get tested. don't take no for an answer. Many drs don't believe that you could have celiac without all the right symtoms. Good luck.Gayle Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
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