We did it!

[Guest guest]

I've only posted a few times, but my little Chase received his

STARband yesterday from CHOA in Atlanta. He did awesome and I'm so

proud of him! He never made a single peep when the orthotist was

trying the band on and off, making his adjustments. And today, Chase

seems to be his normal jovial self. He doesn't even seem to realize

he has it on. I am so releived! I had been so worried but now I

realize that he is going to be just fine. It has taken me seeing him

with his STARband to realize that my precious little boy is still

inside....nothing has changed at all. He just has a little hat on his

head! This group has been the biggest support for me during the last

several months. Thanks everyone

Dena, mom to Chase (7 1/2 months)

[Guest guest]

I am glad that he took to it so well.

From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of denascherer

Sent: Saturday, August 19, 2006

7:11 PM

Plagiocephaly

Subject: We did it!

I've only posted a few times, but my little Chase

received his

STARband yesterday from CHOA in Atlanta.

He did awesome and I'm so

proud of him! He never made a single peep when the orthotist was

trying the band on and off, making his adjustments. And today, Chase

seems to be his normal jovial self. He doesn't even seem to realize

he has it on. I am so releived! I had been so worried but now I

realize that he is going to be just fine. It has taken me seeing him

with his STARband to realize that my precious little boy is still

inside....nothing has changed at all. He just has a little hat on his

head! This group has been the biggest support for me during the last

several months. Thanks everyone

Dena, mom to Chase (7 1/2 months)

[Guest guest]

That's wonderful Dena!!!! I am so glad Chase is adjusting well!!! How did he do in the night?

Post some pics so wee can see how precious he is!!!!!!

JEN

Mommy to 4...and 1 more!!!!

Luli - Tort/Plagio - Hanger Band - CA

"Luli"

www.babiesonline.com/babies/j/jens5th/

[Guest guest]

That is great that he is doing so well. It's often surprising how

well babies adapt to things.

Keep us updated.

Jen

(24.5 mo), tort resolved, Hanger Band Grad

(4.5 years)

>

> I've only posted a few times, but my little Chase received his

> STARband yesterday from CHOA in Atlanta. He did awesome and I'm

so

> proud of him! He never made a single peep when the orthotist was

> trying the band on and off, making his adjustments. And today,

Chase

> seems to be his normal jovial self. He doesn't even seem to

realize

> he has it on. I am so releived! I had been so worried but now I

> realize that he is going to be just fine. It has taken me seeing

him

> with his STARband to realize that my precious little boy is still

> inside....nothing has changed at all. He just has a little hat on

his

> head! This group has been the biggest support for me during the

last

> several months. Thanks everyone

>

> Dena, mom to Chase (7 1/2 months)

>

[Guest guest]

It's exciting, we've been truly Blessed.

Well done and CONGRATULATIONS!!!

:-)

[Guest guest]

GSE is grapefruit seed extract. There is grape extract, and this is not the same

thing. Oil of Oregano is a supplement that is a tincture/processed to the point

of high potency. I use Nature's Answer Oil of Oregano because it is alcohol

free. I put the drops of GSE or OoO into empty veg. capsules. Dosing is very

individual, and I would not recommend doing this until you've done a fair amount

of research and know what you are getting your child into. There are so many

factors involved and these kids are so fragile. Culturelle is an easy one, you

can buy it online, it is a probiotic and you could begin this one as soon as you

wanted. You can give enzymes and these products in the same day, just not at the

same time. I'd read up on probiotics, enzymes and natural

antibacterial/antiviral/yeast agents prior to beginning, so you get the best,

most appropriate dosing and timing for your child. We had detoxed gently with

Ojibwa tea prior to doing these other things. Our current dosage is not what we

started out dosing so many years ago. One thing that I've not read anywhere but

here, with this group, and has proved very very valuable is this, when dosing

antiviral, antibiotic or yeast treatments, incorporating a couple of No Fenol at

the same time. We use Candidase and Digest Gold and other things too, but

remember it does no good to attack these things if you aren't moving them out,

and moving them out in a gentle way that doesn't overwhelm the kidneys and liver

(which, other than sweating, is how you excrete all the good and bad). Good

luck,

Re: WE DID IT!

Hi

Reading your story has brought me much hope for my son. Thank you. Our first

DAN! appointment is coming up. It has been 2 1/2 long months anitcipating this

day (Tuesday). In short, my son is 12yrs old and is diagnosed moderate autistic.

He talks(average) and writes and reads beautifully. Socially his behaviour is

affected pretty badly (very shy), his speech is there but without meaningful

conversations. He will ask and talk and ask in short sentences. He gets by. He

repeats hiself and gets anxious and gets really mad when we don't give him the

" right answers " . He often reflects back on past events(halloween, birthdays,

etc.) and talks about them and gets upset (he screams no more halloween !, no

more b-day!) all day long. He is also an extremely very picky eater. Certain

foods he can't even look at ,ex.: meat and things that have a lot of sauce and

strong in smell. His diet is minimum.

Because of his age we are hoping that it is not too late to get him recovered

and get started in cleaning his gut. It is very difficult to know where to start

and what to target. This is all very new to us. Very draining and confusing. The

internet has helped me start the process with the enzyme and a supplement. The

gfcf diet we have been on it for the last 3 weeks, we get better with time(very

difficult when they are older and picky eaters to begin with).

I am hoping that one day I will able to write a happy story and tell you all

how beautifully and fluently my son is talking....it seem so far away.

Heleni

ammattson <ammattson@...> wrote:

Thank you. I understand what you are saying with regards to giving him a

supplement that is " supposed to help " and yet isn't yielding any improvement in

the area that most concerns you. Could be the supplement, could be the state he

is in, maybe unable to absorb the nutrient, which with the taurine issue is what

I as a parent, would think. We use Kirkman Cod Liver oil, dosing per Dr. Megson.

We use Nordic Naturals Pro DHA 1 capsule daily. But these weren't given until

we'd been on enzymes and done some gentle detox for quite some time.

We've done numerous things to deal with the viral issues. Initially it was the

Ojibwa tea alone, then we incorporated enzymes, then we began rotating Olive

Leaf extract in and out of his daily regimen. During this time, although we knew

there was a viral issue, we weren't sure " which " virus/es. There were several

that I suspected and confess that when I approached multiple local doctors in

the State where I live, I was the recipient of much eye rolling and negative

comments. It wasn't until I found Dr. Goldberg that I found a captive

audience for my suppositions and also found someone with the ability to test for

these suspected culprits. One of the nasties I suspected was CMV, which 5 years

ago was a qualifying statement for a parent to the looney bin. Talking me

through my reasoning for these viral " Suspects " we narrowed it down to a few I

feared, a few he suspected and ran the tests. The result was one that both of us

agreed initially, was highly suspect, and

really 5 years ago wasn't even recognized as a virus by a majority of the

pediatric medical community. That is, HHV6, herpes 6. At that time there were 8

known strains. The most familiar are Herpes 1 and 2. The main drug used was

Valtrex. No long term studies on it's affects on children, no dosing schedule

for the pediatric community established, no nothing. It was an adult drug, that

doctors, at there discretion used on kids. The only modifying direction was to

rinse off the blue dye that coats the pills. There wasn't even a dose small

enough made for children, we just cut up the pill per the Doctors' directions.

We saw changes, but this is not a road I would ever go down again, either with

that Doctor or that drug. We left that practice after a very severe falling out

(he was pushing SSRI's) (Again there were no long term studies on children under

5, which my son was, and the research I'd done all said that if you took a

person off the SSRI too soon, you had worse issues

than before the drug was begun. The Doctor did not want to prescribe the drug

for behavioral issues, ph has never been that sort of child, he wanted to do

it as part of his standard operating protocol for these kids. He was one of the

early ones to acknowledge it was reduced blood flow in the brain, due to these

viral and bacterial infections that caused these developmental issues, and he

was using the SSRI's to open up the vessels to accommodate/increase blood flow

in the brain.)

Now, here was our argument in a nutshell as I can recall from memory,

Me: If there is reduced blood flow in the brain, due to this viral infection

and possible other bacterial issues, didn't the body reduce blood flow to

protect his brain?

Doctor Goldberg: Yes.

Me: Since it's been six months and the viral load has not gone down at all on

the Valtrex, why would I open up the blood flow with an SSRI and allow this

virus and other bacteria access to his brain tissue for which they have an

affinity? The body is amazing, and if it shut down the blood flow, shouldn't I

be working on addressing the underlying cause of that? And, if I do that

successfully, won't the vessels and subsequent blood flow increase

automatically?

Doctor: In theory, but it's possible without using the SSRI's the blood flow

won't increase at all.

Me: Since we've not had the viral load go down at all yet, isn't it premature

to open these floodgates? What if what we let in, does irreparable damage to

ph's brain?

Doctor: I'VE HUNDREDS OF PATIENTS FOR WHOM I USE THIS PROTOCAL! (My husband

was with me, he's a cop, and he literally came to stand between me and the

Doctor. I've learned, never trust a Doctor that attempts to bully, however

gently or aggressively)

Me: Well, if you've hundreds of patients, how many patients have successfully

gone off the SSRI's and are completely healed?

Doctor: I CAN'T TREAT YOUR SON ANY LONGER IF YOU ARE GOING TO QUESTION MY

JUDGMENT. YOU BROUGHT HIM HERE, YOU ASKED FOR MY HELP, YOU DO WHAT YOU WANT.

Me: Well, if you won't be reasonable about not allowing the SSRI's, then we'll

leave your practice, but ph is on Valtrex, how do we wean him off? (all

along we'd been told how dangerous it would be to go cold turkey. we'd seen some

scary side effects and had wanted to stop the dosing on several occasions)

Doctor: I'll help you reduce his dosage comfortably.

As we left, and paid for the visit, I asked the nurse " isn't it true, the

research, that if you go off SSRI's too soon, you end up with worse problems

than before beginning? " She said yes. I then asked " isn't it true that there are

no long term studies of the effects of SSRI's on children under the age of 5? "

Again she said yes. " How many patients of Dr. Goldberg's have successfully gone

off of all medications and been completely healed? " She said " one " . At that

point I said we're out of here. We left, and yeah, when it came time to wean

ph off, the nurse for the office, sent an email that said when the

prescription ran out, just stop the medication. Armed with the knowledge we were

dealing with Herpes 6, I then looked for other treatments and Doctors to address

this virus. The virus does any number of things, some affect the vision. Here's

the thing. These kids are so fragile with regards to nutrient absorption, that

they are leaching nutrients from very rich sources

in their bodies to make up the deficits. The eyes are very nutrient rich, as

are the bones. We knew ph had osteopenia, so we knew his body was leaching

nutrients from his bones, but if they were leaching them from his eyes, then

could we not only stop the vision issues, but actually reverse them? According

to the Optometrist we consulted, No. But the Ophthalmologist/Vision specialist

we consulted, said, Maybe. Looking for a Doctor to address the viral issue, the

vision issue and the gut issue, we found Dr. Megson. Under her care we've

used Monolaurin. Alternating Monolaurin with Olive Leaf extract. We saw no

difference in the viral load until we introduced (all during the same summer)

enzymedica products. We began using Virastop, and to address the subsequent

yeast issues that occur when you address a viral issue, we also incorporated

Digest Gold and Candidase. We're up to 9 capsules 2 times a day of Virastop

combined with either one 300mg. Monolaurin capsule or

10 drops of liquid Olive Leaf extract in an empty veg. based capsule. Plus one

No Fenol, one vit. C caplet, 3 Digest Gold and 1 Candidase. That is his viral

protocol. The bacterial and yeast are different. I really feel ph's vision

stopped deteriorating when we began building up his ability to absorb nutrients

from his diet. His osteopenia is no longer. I think ph's vision improved

with the viral protocol as it does affect the vision, and the vision therapy and

prescription lenses combined with the irlen color tint helped him progress. He

outgrew/improved in his vision through several pairs of glasses, to the point

where he now no longer requires glasses. His vision is 20/25. We'll continue

what we're doing, and God willing it will improve even beyond that mark. But,

the cone/rod issue with his eyes, the sideways glancing he did as a toddler, the

tracking issues, which made reading a daily event fraught with tears, are no

longer.

For ph, we were at one point, prior to beginning of enzymes,down to pork,

rice, water and salt and pepper to taste for every meal. These were the only

things he didn't get red ears, eczema, and so many other symptoms/reactions

from. Eventually the diet has expanded, with the help of enzymes. Child can now

eat bananas and oranges without turning into Dr. Jekle and Mr. Hyde, a day I

wasn't sure would ever come. In fact, he can even eat whole oats, perhaps he

doesn't have Celiac's after all. His osteopenia and other issues were all

present and accounted for in various tests prior to our biomed intervention. The

regular kid fare/kid diet wasn't doing anything for him. He was a mess. So, it

wasn't a stretch for me to do such a radical elimination diet the way I did so

many years ago. I'd read many books, and knew if I did this right, if I built up

his gut to absorb nutrients, eventually he'd be able to eat just about anything.

Child eats like a horse, and it's a beautiful

thing. He is a perfect weight and building muscle.

His 16 means we're well on our way. He's not shown any nutritional

deficiencies in years, blood tests verify this fact. But, 60 % of the immune

system is in the gut, and I know that mucosal coating in his gut is a major

player. I hope this helps. Good luck, and again Thank you for the

Congratulations. We're walking on air.

---------------------------------

Looking for a X-Mas gift? Everybody needs a Flickr Pro Account!

[Guest guest]

Wow very helpful info. thank you. I am very prepared for our Tuesday appointment

with our DAN!. I will be placing my Culturelle online immediately and for all

the other items I will take your advice and get guidance from our DAN! so that I

don't harm my child. I don't know enough and I haven't done enough research. I

have to admit, at times, the research confuses more. So much to absorb. If I

can please ask you one more question, if my son is not 100% gfcf, can I still

introduce to him the probiotic Culturelle? Thanks again .

Heleni

ammattson <ammattson@...> wrote:

GSE is grapefruit seed extract. There is grape extract, and this is

not the same thing. Oil of Oregano is a supplement that is a tincture/processed

to the point of high potency. I use Nature's Answer Oil of Oregano because it is

alcohol free. I put the drops of GSE or OoO into empty veg. capsules. Dosing is

very individual, and I would not recommend doing this until you've done a fair

amount of research and know what you are getting your child into. There are so

many factors involved and these kids are so fragile. Culturelle is an easy one,

you can buy it online, it is a probiotic and you could begin this one as soon as

you wanted. You can give enzymes and these products in the same day, just not at

the same time. I'd read up on probiotics, enzymes and natural

antibacterial/antiviral/yeast agents prior to beginning, so you get the best,

most appropriate dosing and timing for your child. We had detoxed gently with

Ojibwa tea prior to doing these other things. Our

current dosage is not what we started out dosing so many years ago. One thing

that I've not read anywhere but here, with this group, and has proved very very

valuable is this, when dosing antiviral, antibiotic or yeast treatments,

incorporating a couple of No Fenol at the same time. We use Candidase and Digest

Gold and other things too, but remember it does no good to attack these things

if you aren't moving them out, and moving them out in a gentle way that doesn't

overwhelm the kidneys and liver (which, other than sweating, is how you excrete

all the good and bad). Good luck,

Re: WE DID IT!

Hi

Reading your story has brought me much hope for my son. Thank you. Our first

DAN! appointment is coming up. It has been 2 1/2 long months anitcipating this

day (Tuesday). In short, my son is 12yrs old and is diagnosed moderate autistic.

He talks(average) and writes and reads beautifully. Socially his behaviour is

affected pretty badly (very shy), his speech is there but without meaningful

conversations. He will ask and talk and ask in short sentences. He gets by. He

repeats hiself and gets anxious and gets really mad when we don't give him the

" right answers " . He often reflects back on past events(halloween, birthdays,

etc.) and talks about them and gets upset (he screams no more halloween !, no

more b-day!) all day long. He is also an extremely very picky eater. Certain

foods he can't even look at ,ex.: meat and things that have a lot of sauce and

strong in smell. His diet is minimum.

Because of his age we are hoping that it is not too late to get him recovered

and get started in cleaning his gut. It is very difficult to know where to start

and what to target. This is all very new to us. Very draining and confusing. The

internet has helped me start the process with the enzyme and a supplement. The

gfcf diet we have been on it for the last 3 weeks, we get better with time(very

difficult when they are older and picky eaters to begin with).

I am hoping that one day I will able to write a happy story and tell you all how

beautifully and fluently my son is talking....it seem so far away.

Heleni

ammattson <ammattson@...> wrote:

Thank you. I understand what you are saying with regards to giving him a

supplement that is " supposed to help " and yet isn't yielding any improvement in

the area that most concerns you. Could be the supplement, could be the state he

is in, maybe unable to absorb the nutrient, which with the taurine issue is what

I as a parent, would think. We use Kirkman Cod Liver oil, dosing per Dr. Megson.

We use Nordic Naturals Pro DHA 1 capsule daily. But these weren't given until

we'd been on enzymes and done some gentle detox for quite some time.

We've done numerous things to deal with the viral issues. Initially it was the

Ojibwa tea alone, then we incorporated enzymes, then we began rotating Olive

Leaf extract in and out of his daily regimen. During this time, although we knew

there was a viral issue, we weren't sure " which " virus/es. There were several

that I suspected and confess that when I approached multiple local doctors in

the State where I live, I was the recipient of much eye rolling and negative

comments. It wasn't until I found Dr. Goldberg that I found a captive

audience for my suppositions and also found someone with the ability to test for

these suspected culprits. One of the nasties I suspected was CMV, which 5 years

ago was a qualifying statement for a parent to the looney bin. Talking me

through my reasoning for these viral " Suspects " we narrowed it down to a few I

feared, a few he suspected and ran the tests. The result was one that both of us

agreed initially, was highly suspect, and

really 5 years ago wasn't even recognized as a virus by a majority of the

pediatric medical community. That is, HHV6, herpes 6. At that time there were 8

known strains. The most familiar are Herpes 1 and 2. The main drug used was

Valtrex. No long term studies on it's affects on children, no dosing schedule

for the pediatric community established, no nothing. It was an adult drug, that

doctors, at there discretion used on kids. The only modifying direction was to

rinse off the blue dye that coats the pills. There wasn't even a dose small

enough made for children, we just cut up the pill per the Doctors' directions.

We saw changes, but this is not a road I would ever go down again, either with

that Doctor or that drug. We left that practice after a very severe falling out

(he was pushing SSRI's) (Again there were no long term studies on children under

5, which my son was, and the research I'd done all said that if you took a

person off the SSRI too soon, you had worse issues

than before the drug was begun. The Doctor did not want to prescribe the drug

for behavioral issues, ph has never been that sort of child, he wanted to do

it as part of his standard operating protocol for these kids. He was one of the

early ones to acknowledge it was reduced blood flow in the brain, due to these

viral and bacterial infections that caused these developmental issues, and he

was using the SSRI's to open up the vessels to accommodate/increase blood flow

in the brain.)

Now, here was our argument in a nutshell as I can recall from memory,

Me: If there is reduced blood flow in the brain, due to this viral infection and

possible other bacterial issues, didn't the body reduce blood flow to protect

his brain?

Doctor Goldberg: Yes.

Me: Since it's been six months and the viral load has not gone down at all on

the Valtrex, why would I open up the blood flow with an SSRI and allow this

virus and other bacteria access to his brain tissue for which they have an

affinity? The body is amazing, and if it shut down the blood flow, shouldn't I

be working on addressing the underlying cause of that? And, if I do that

successfully, won't the vessels and subsequent blood flow increase

automatically?

Doctor: In theory, but it's possible without using the SSRI's the blood flow

won't increase at all.

Me: Since we've not had the viral load go down at all yet, isn't it premature to

open these floodgates? What if what we let in, does irreparable damage to

ph's brain?

Doctor: I'VE HUNDREDS OF PATIENTS FOR WHOM I USE THIS PROTOCAL! (My husband was

with me, he's a cop, and he literally came to stand between me and the Doctor.

I've learned, never trust a Doctor that attempts to bully, however gently or

aggressively)

Me: Well, if you've hundreds of patients, how many patients have successfully

gone off the SSRI's and are completely healed?

Doctor: I CAN'T TREAT YOUR SON ANY LONGER IF YOU ARE GOING TO QUESTION MY

JUDGMENT. YOU BROUGHT HIM HERE, YOU ASKED FOR MY HELP, YOU DO WHAT YOU WANT.

Me: Well, if you won't be reasonable about not allowing the SSRI's, then we'll

leave your practice, but ph is on Valtrex, how do we wean him off? (all

along we'd been told how dangerous it would be to go cold turkey. we'd seen some

scary side effects and had wanted to stop the dosing on several occasions)

Doctor: I'll help you reduce his dosage comfortably.

As we left, and paid for the visit, I asked the nurse " isn't it true, the

research, that if you go off SSRI's too soon, you end up with worse problems

than before beginning? " She said yes. I then asked " isn't it true that there are

no long term studies of the effects of SSRI's on children under the age of 5? "

Again she said yes. " How many patients of Dr. Goldberg's have successfully gone

off of all medications and been completely healed? " She said " one " . At that

point I said we're out of here. We left, and yeah, when it came time to wean

ph off, the nurse for the office, sent an email that said when the

prescription ran out, just stop the medication. Armed with the knowledge we were

dealing with Herpes 6, I then looked for other treatments and Doctors to address

this virus. The virus does any number of things, some affect the vision. Here's

the thing. These kids are so fragile with regards to nutrient absorption, that

they are leaching nutrients from very rich sources

in their bodies to make up the deficits. The eyes are very nutrient rich, as are

the bones. We knew ph had osteopenia, so we knew his body was leaching

nutrients from his bones, but if they were leaching them from his eyes, then

could we not only stop the vision issues, but actually reverse them? According

to the Optometrist we consulted, No. But the Ophthalmologist/Vision specialist

we consulted, said, Maybe. Looking for a Doctor to address the viral issue, the

vision issue and the gut issue, we found Dr. Megson. Under her care we've

used Monolaurin. Alternating Monolaurin with Olive Leaf extract. We saw no

difference in the viral load until we introduced (all during the same summer)

enzymedica products. We began using Virastop, and to address the subsequent

yeast issues that occur when you address a viral issue, we also incorporated

Digest Gold and Candidase. We're up to 9 capsules 2 times a day of Virastop

combined with either one 300mg. Monolaurin capsule or

10 drops of liquid Olive Leaf extract in an empty veg. based capsule. Plus one

No Fenol, one vit. C caplet, 3 Digest Gold and 1 Candidase. That is his viral

protocol. The bacterial and yeast are different. I really feel ph's vision

stopped deteriorating when we began building up his ability to absorb nutrients

from his diet. His osteopenia is no longer. I think ph's vision improved

with the viral protocol as it does affect the vision, and the vision therapy and

prescription lenses combined with the irlen color tint helped him progress. He

outgrew/improved in his vision through several pairs of glasses, to the point

where he now no longer requires glasses. His vision is 20/25. We'll continue

what we're doing, and God willing it will improve even beyond that mark. But,

the cone/rod issue with his eyes, the sideways glancing he did as a toddler, the

tracking issues, which made reading a daily event fraught with tears, are no

longer.

For ph, we were at one point, prior to beginning of enzymes,down to pork,

rice, water and salt and pepper to taste for every meal. These were the only

things he didn't get red ears, eczema, and so many other symptoms/reactions

from. Eventually the diet has expanded, with the help of enzymes. Child can now

eat bananas and oranges without turning into Dr. Jekle and Mr. Hyde, a day I

wasn't sure would ever come. In fact, he can even eat whole oats, perhaps he

doesn't have Celiac's after all. His osteopenia and other issues were all

present and accounted for in various tests prior to our biomed intervention. The

regular kid fare/kid diet wasn't doing anything for him. He was a mess. So, it

wasn't a stretch for me to do such a radical elimination diet the way I did so

many years ago. I'd read many books, and knew if I did this right, if I built up

his gut to absorb nutrients, eventually he'd be able to eat just about anything.

Child eats like a horse, and it's a beautiful

thing. He is a perfect weight and building muscle.

His 16 means we're well on our way. He's not shown any nutritional deficiencies

in years, blood tests verify this fact. But, 60 % of the immune system is in the

gut, and I know that mucosal coating in his gut is a major player. I hope this

helps. Good luck, and again Thank you for the Congratulations. We're walking on

air.

---------------------------------

Looking for a X-Mas gift? Everybody needs a Flickr Pro Account!

[Guest guest]

Not being totally GFCF won't impact the Culturelle. The concern sometimes goes

in the other direction, as the Culturelle has very small amounts of casein/whey

in it. I'm glad the information was useful.

Re: WE DID IT!

Hi

Reading your story has brought me much hope for my son. Thank you. Our first

DAN! appointment is coming up. It has been 2 1/2 long months anitcipating this

day (Tuesday). In short, my son is 12yrs old and is diagnosed moderate autistic.

He talks(average) and writes and reads beautifully. Socially his behaviour is

affected pretty badly (very shy), his speech is there but without meaningful

conversations. He will ask and talk and ask in short sentences. He gets by. He

repeats hiself and gets anxious and gets really mad when we don't give him the

" right answers " . He often reflects back on past events(halloween, birthdays,

etc.) and talks about them and gets upset (he screams no more halloween !, no

more b-day!) all day long. He is also an extremely very picky eater. Certain

foods he can't even look at ,ex.: meat and things that have a lot of sauce and

strong in smell. His diet is minimum.

Because of his age we are hoping that it is not too late to get him recovered

and get started in cleaning his gut. It is very difficult to know where to start

and what to target. This is all very new to us. Very draining and confusing. The

internet has helped me start the process with the enzyme and a supplement. The

gfcf diet we have been on it for the last 3 weeks, we get better with time(very

difficult when they are older and picky eaters to begin with).

I am hoping that one day I will able to write a happy story and tell you all

how beautifully and fluently my son is talking....it seem so far away.

Heleni

ammattson <ammattson@...> wrote:

Thank you. I understand what you are saying with regards to giving him a

supplement that is " supposed to help " and yet isn't yielding any improvement in

the area that most concerns you. Could be the supplement, could be the state he

is in, maybe unable to absorb the nutrient, which with the taurine issue is what

I as a parent, would think. We use Kirkman Cod Liver oil, dosing per Dr. Megson.

We use Nordic Naturals Pro DHA 1 capsule daily. But these weren't given until

we'd been on enzymes and done some gentle detox for quite some time.

We've done numerous things to deal with the viral issues. Initially it was the

Ojibwa tea alone, then we incorporated enzymes, then we began rotating Olive

Leaf extract in and out of his daily regimen. During this time, although we knew

there was a viral issue, we weren't sure " which " virus/es. There were several

that I suspected and confess that when I approached multiple local doctors in

the State where I live, I was the recipient of much eye rolling and negative

comments. It wasn't until I found Dr. Goldberg that I found a captive

audience for my suppositions and also found someone with the ability to test for

these suspected culprits. One of the nasties I suspected was CMV, which 5 years

ago was a qualifying statement for a parent to the looney bin. Talking me

through my reasoning for these viral " Suspects " we narrowed it down to a few I

feared, a few he suspected and ran the tests. The result was one that both of us

agreed initially, was highly suspect, and

really 5 years ago wasn't even recognized as a virus by a majority of the

pediatric medical community. That is, HHV6, herpes 6. At that time there were 8

known strains. The most familiar are Herpes 1 and 2. The main drug used was

Valtrex. No long term studies on it's affects on children, no dosing schedule

for the pediatric community established, no nothing. It was an adult drug, that

doctors, at there discretion used on kids. The only modifying direction was to

rinse off the blue dye that coats the pills. There wasn't even a dose small

enough made for children, we just cut up the pill per the Doctors' directions.

We saw changes, but this is not a road I would ever go down again, either with

that Doctor or that drug. We left that practice after a very severe falling out

(he was pushing SSRI's) (Again there were no long term studies on children under

5, which my son was, and the research I'd done all said that if you took a

person off the SSRI too soon, you had worse issues

than before the drug was begun. The Doctor did not want to prescribe the drug

for behavioral issues, ph has never been that sort of child, he wanted to do

it as part of his standard operating protocol for these kids. He was one of the

early ones to acknowledge it was reduced blood flow in the brain, due to these

viral and bacterial infections that caused these developmental issues, and he

was using the SSRI's to open up the vessels to accommodate/increase blood flow

in the brain.)

Now, here was our argument in a nutshell as I can recall from memory,

Me: If there is reduced blood flow in the brain, due to this viral infection

and possible other bacterial issues, didn't the body reduce blood flow to

protect his brain?

Doctor Goldberg: Yes.

Me: Since it's been six months and the viral load has not gone down at all on

the Valtrex, why would I open up the blood flow with an SSRI and allow this

virus and other bacteria access to his brain tissue for which they have an

affinity? The body is amazing, and if it shut down the blood flow, shouldn't I

be working on addressing the underlying cause of that? And, if I do that

successfully, won't the vessels and subsequent blood flow increase

automatically?

Doctor: In theory, but it's possible without using the SSRI's the blood flow

won't increase at all.

Me: Since we've not had the viral load go down at all yet, isn't it premature

to open these floodgates? What if what we let in, does irreparable damage to

ph's brain?

Doctor: I'VE HUNDREDS OF PATIENTS FOR WHOM I USE THIS PROTOCAL! (My husband

was with me, he's a cop, and he literally came to stand between me and the

Doctor. I've learned, never trust a Doctor that attempts to bully, however

gently or aggressively)

Me: Well, if you've hundreds of patients, how many patients have successfully

gone off the SSRI's and are completely healed?

Doctor: I CAN'T TREAT YOUR SON ANY LONGER IF YOU ARE GOING TO QUESTION MY

JUDGMENT. YOU BROUGHT HIM HERE, YOU ASKED FOR MY HELP, YOU DO WHAT YOU WANT.

Me: Well, if you won't be reasonable about not allowing the SSRI's, then we'll

leave your practice, but ph is on Valtrex, how do we wean him off? (all

along we'd been told how dangerous it would be to go cold turkey. we'd seen some

scary side effects and had wanted to stop the dosing on several occasions)

Doctor: I'll help you reduce his dosage comfortably.

As we left, and paid for the visit, I asked the nurse " isn't it true, the

research, that if you go off SSRI's too soon, you end up with worse problems

than before beginning? " She said yes. I then asked " isn't it true that there are

no long term studies of the effects of SSRI's on children under the age of 5? "

Again she said yes. " How many patients of Dr. Goldberg's have successfully gone

off of all medications and been completely healed? " She said " one " . At that

point I said we're out of here. We left, and yeah, when it came time to wean

ph off, the nurse for the office, sent an email that said when the

prescription ran out, just stop the medication. Armed with the knowledge we were

dealing with Herpes 6, I then looked for other treatments and Doctors to address

this virus. The virus does any number of things, some affect the vision. Here's

the thing. These kids are so fragile with regards to nutrient absorption, that

they are leaching nutrients from very rich sources

in their bodies to make up the deficits. The eyes are very nutrient rich, as

are the bones. We knew ph had osteopenia, so we knew his body was leaching

nutrients from his bones, but if they were leaching them from his eyes, then

could we not only stop the vision issues, but actually reverse them? According

to the Optometrist we consulted, No. But the Ophthalmologist/Vision specialist

we consulted, said, Maybe. Looking for a Doctor to address the viral issue, the

vision issue and the gut issue, we found Dr. Megson. Under her care we've

used Monolaurin. Alternating Monolaurin with Olive Leaf extract. We saw no

difference in the viral load until we introduced (all during the same summer)

enzymedica products. We began using Virastop, and to address the subsequent

yeast issues that occur when you address a viral issue, we also incorporated

Digest Gold and Candidase. We're up to 9 capsules 2 times a day of Virastop

combined with either one 300mg. Monolaurin capsule or

10 drops of liquid Olive Leaf extract in an empty veg. based capsule. Plus one

No Fenol, one vit. C caplet, 3 Digest Gold and 1 Candidase. That is his viral

protocol. The bacterial and yeast are different. I really feel ph's vision

stopped deteriorating when we began building up his ability to absorb nutrients

from his diet. His osteopenia is no longer. I think ph's vision improved

with the viral protocol as it does affect the vision, and the vision therapy and

prescription lenses combined with the irlen color tint helped him progress. He

outgrew/improved in his vision through several pairs of glasses, to the point

where he now no longer requires glasses. His vision is 20/25. We'll continue

what we're doing, and God willing it will improve even beyond that mark. But,

the cone/rod issue with his eyes, the sideways glancing he did as a toddler, the

tracking issues, which made reading a daily event fraught with tears, are no

longer.

For ph, we were at one point, prior to beginning of enzymes,down to pork,

rice, water and salt and pepper to taste for every meal. These were the only

things he didn't get red ears, eczema, and so many other symptoms/reactions

from. Eventually the diet has expanded, with the help of enzymes. Child can now

eat bananas and oranges without turning into Dr. Jekle and Mr. Hyde, a day I

wasn't sure would ever come. In fact, he can even eat whole oats, perhaps he

doesn't have Celiac's after all. His osteopenia and other issues were all

present and accounted for in various tests prior to our biomed intervention. The

regular kid fare/kid diet wasn't doing anything for him. He was a mess. So, it

wasn't a stretch for me to do such a radical elimination diet the way I did so

many years ago. I'd read many books, and knew if I did this right, if I built up

his gut to absorb nutrients, eventually he'd be able to eat just about anything.

Child eats like a horse, and it's a beautiful

thing. He is a perfect weight and building muscle.

His 16 means we're well on our way. He's not shown any nutritional

deficiencies in years, blood tests verify this fact. But, 60 % of the immune

system is in the gut, and I know that mucosal coating in his gut is a major

player. I hope this helps. Good luck, and again Thank you for the

Congratulations. We're walking on air.

---------------------------------

Looking for a X-Mas gift? Everybody needs a Flickr Pro Account!

[Guest guest]

What dose? Thanks - Sunny

> >

> > What works well for Herpes Virus?

>

>

> Lysine

>

> Dana

>

[Guest guest]

Hi ,

I'm very late reading this thread because I'm out of the country on

holiday and only check e-mail occasionally. I did bring my son's

medical records on pen drive, so was able to look up the dates of his

three serum IgA tests. His numbers also doubled during biomed

treatment – just like your son

In 2005 (when he was a toddler) I begged for him to be tested for

celiac, which came back negative. But it did uncover his " immune

dysfunction " to which the doctor said there was no cure and he would

just be a sick kid and a sick adult. His serum IgA at that point was

6. There was some mention about special blood for transfusion, but no

other info.

In 2006 he was diagnosed with ASD (which was just another on top of a

bunch of other " unconnected " medical dx's) and I got a new

pediatrician who was an up and coming biomed practitioner. She said

his IgA numbers COULD be improved by supporting his immune system with

diet and supplements. Getting my son healthy was my main goal,

recovering autism wasn't even on the radar at the time. Six months

later his IgA went up to 8 and a year after that it was 13.

He's pretty much recovered from everything now and just has a few

biochemical imbalances to straighten out. He's due for another blood

draw when return to the USA, so I plan to toss in another IgA test at

that time.

When I get time, I'm going to read carefully through this whole thread

and consider trying Virastop to boost his IgA levels a bit more.

May I contact you to chat sometime in the future? Did you ever have

any urinary neopterine tests performed? I'd be interested in comparing

results.

Regards,

[Guest guest]

I would love to hear from you, and really am quite interested in learning what

your son's levels are now. Thank you for replying.

Re: WE DID IT!

Hi ,

I'm very late reading this thread because I'm out of the country on

holiday and only check e-mail occasionally. I did bring my son's

medical records on pen drive, so was able to look up the dates of his

three serum IgA tests. His numbers also doubled during biomed

treatment - just like your son

In 2005 (when he was a toddler) I begged for him to be tested for

celiac, which came back negative. But it did uncover his " immune

dysfunction " to which the doctor said there was no cure and he would

just be a sick kid and a sick adult. His serum IgA at that point was

6. There was some mention about special blood for transfusion, but no

other info.

In 2006 he was diagnosed with ASD (which was just another on top of a

bunch of other " unconnected " medical dx's) and I got a new

pediatrician who was an up and coming biomed practitioner. She said

his IgA numbers COULD be improved by supporting his immune system with

diet and supplements. Getting my son healthy was my main goal,

recovering autism wasn't even on the radar at the time. Six months

later his IgA went up to 8 and a year after that it was 13.

He's pretty much recovered from everything now and just has a few

biochemical imbalances to straighten out. He's due for another blood

draw when return to the USA, so I plan to toss in another IgA test at

that time.

When I get time, I'm going to read carefully through this whole thread

and consider trying Virastop to boost his IgA levels a bit more.

May I contact you to chat sometime in the future? Did you ever have

any urinary neopterine tests performed? I'd be interested in comparing

results.

Regards,

[Guest guest]

I have just been catching up on some old e-mail posts.

This post is absolutely remarkable. My 3-year-old neuro came out as

having an IGA level of 6 (just from basic bloodwork, not serum).

We refuse to go to an immunologost at this point b/c we know they

will just rag on us for not vaccinating him (he got up to and

uncluding 4 mos. He was 2 months old when his 30-month old brother

lost it all overnight. I wish Baby Brother got none but he got 15 too

many)

IGA deficiency runs in my family.

I just figured out that my son definitely has a phenol intolerance

because has red cheeks when he eats stuff like red grapes, chocolate,

and tomatoes.

Dad has been very slow in accepting that the " easy " one has major

issues. Child #2 is also a complete %#* & @ & % about taking

supplements, unlike his brother w/autism.

Any suggestions you have would be truly appreciated; we are giving

probiotics and are in the process of scheduling an IGG antibodies

test so we can put out the fires that are causing the red cheeks. I

need to start omitting these foods or giving him No Phenol before

this turns into something NASTY:add/adhd, asthma, etc.

God forbid I am I am making homemade KETCHUP for " the big " one (he is

on SCD) while the other one is slipping away before my very eyes.

Sorry for the melodrama, but that is how it feels right now.

Thanks for reading.

MS

>

> No, this is one test that a Doctor needs to order. If you ask for a

panel, they'll test the IgA, but you need the Serum IgA test to get

the most accurate assessment. There is IgG, IgA, IgM and IgE.These

tests all measure the functioning of the immune system. IgA is the

first line of defense to the body, it is the coating that lines you

from head to toe and when you encounter a foreign substance it is

your body's first line of defense. The range for normal is 34-305. To

have low IgA is common, 1 in 300 tested have low IgA. I

write " tested " because the numbers could be higher, but not everyone

is tested. To have IgA that is essentially non-detectable is rare and

serious. Statistically speaking these kids often end up with numerous

auto immune diseases at a very young age, and the diseases are quite

aggressive. The problem is that the rest of the immune system kicks

into high gear to compensate for this missing defense and after time,

turns on itself. Well, with the mucosal paint missing in his gut, the

now porous nature of his stomach allow all sorts of dangerous things

to pass through the lining. Unlike a gut injury, which numerous

Autistic children have, what ph had, this is a chronic, according

to the Doctors, impossible to fix, issue. They said there was no

known way to stimulate the IgA, at those undetectable levels to start

producing IgA again at normal levels. One of my first early

challenges to Doctors was to Dr. Steihm the Head of Immunology at

UCLA, I asked " it's never been done? " and he responded " there are a

few recorded cases, but there is no known cause for the immune system

to turn off or back on, your son was probably born that way " . So,

these past years I've tried all sorts of things, including expressing

my colostrum and breastmilk after was born, to try and

stimulate his IgA by giving him mine. You see, that is part of the

problem. With such low levels, you run the risk of anaphylactic

shock, in fact his medic alert bracelet says if he's in need of a

blood transfusion he must have washed red blood cells. I gave him my

colostrum and breastmilk after talking to Dr. Megson about the

potential of it rebooting his immune system. She'd heard of a handful

of kids having their IgA come back online, but agreed I ran the risk

of ph going into shock. Although the reasoning I used was, I

breastfed him as an infant, this isn't anything new, and if he was

born this way, his body will already recognize and not reject my IgA.

Still, a risk, and I slept with him for weeks and then had an extra

baby monitor in his room and would check on him after each time I fed

during the night. But, after 14 mo. of expressing my

breastmilk, his IgA levels were at their lowest, 3. I was so upset.

This was the test done the summer before last. So, when we had the

test done this October, it was just a benchmark test.

> WE DID IT!

>

> I apologize for the caps but I'm literally about to jump out of

my skin

> here. I'm so excited. I can't jump, knee injury, but if I could I

would. We

> did it. What we've been working on for 6 almost 7 years now.

ph's IgA,

> the oh so important serum IgA INCREASED! The head of immunology, 4

> specialists and dozens of other Doctors and Scientists said it

couldn't be

> done. We more than doubled it! For those of you new and not

familiar, ph

> my son, now age 9, was diagnosed Autistic moderate/severe

depending on who

> was doing the diagnosing at age 3. We knew well before that, that

we had

> issues, but it took a long time to get the ball rolling, and when

it did

> start to roll, it rolled in all sorts of directions. With the

Autism

> diagnosis, came many other diagnosis. We've been to specialists

all over the

> Country. One of our main issues has been ph's IgA deficiency.

He

> produced 7, then 5, then 3 on IgA serum tests. Basically it was

> non-detectable. We did the whole medic alert bracelets, bottled

water, even

> let those idiots at UCLA give him all sorts of pneumococal

vaccines, to the

> degree he developed impaired polysaccharide responsiveness,

meaning no

> matter how many times they vaccinated him, he wouldn't carry the

titers. He

> was so incredibly ill and so incredibly fragile. But, what all

the doctors

> said was that he was " missing part of his immune

system " " probably born that

> way " " no way to reverse it " " statistically children end up with

multiple

> auto immune diseases at very early ages " " there's nothing you can

do "

> " isolate him " . My Mission in Life has been to reboot or boost his

immune

> system to the degree he can fight all these multiple viruses and

bacteria he

> has residing in his body that produce all these Autistic

behaviors. Every

> underlying issue we addressed we'd see one more Autistic behavior

disappear.

> Well, now I've PROOF! It can be Reversed. ph's IgA , Serum

IgA is 16!

> We've more than doubled it, if you look at how it dipped in the

test prior

> to this one, to a 3, we've actually increased by more than five

times over.

> I'm so Excited I can't STAND IT! Just want to burst. Would love

to go out

> and celebrate, but like everyone else, supplements, therapies and

Doctors

> have exhausted us financially. BUT OH SO WORTH IT! I'D DO IT

AGAIN IN A

> HEARTBEAT, and will continue to do this, even if it means giving

up my

> house, which is a very real possibility at the moment. We had

these tests

> done during the trip to Virginia in October. The results came

early last

> month, but honestly, I was too exhausted and not mentally up, to

open the

> envelopes. But, I had to open them to get some documents for

ph's IEP

> meeting this morning, during which we learned ph is right on

target for

> his grade level (he is mainstreamed with his peers) and will do

the regular

> Star testing in the Spring. Oh, and his eyes improved to the

degree he only

> needs to use color overlays, those expensive irlen lens with the

> prescription, his eyes have finally improved to the degree he no

longer

> needs the glasses. Thank you Cod Liver Oil, decreasing viral load

and vision

> therapy. HHV6 levels have actually gone up, but I'm looking at

this viral

> thing in a whole new way. We're using large doses of Virastop and

I mean

> large and we've seen improvements across the board. And honestly,

that is

> the only major change we've introduced since the last IgA test

and this

> recent one. That's it, so what does it mean that the measurements

show an

> increase but the IgA is up too. I don't know exactly what all

this means,

> but I do know we are doing what the Doctors, and I mean heads of

dept's at

> University Hospitals said was impossible. , our 2 year old,

has some

> issues, but I'll compose a more comprehensive email later, for

those that

> are interested. It's exciting, we've been truly Blessed.

>

>