Guest guest Posted October 11, 2004 Report Share Posted October 11, 2004 Please know that you are always in my thoughts and prayers and you of all people are my strength. I always look for words of encouragement from you and Donna. You are both very strong women that really know how to handle the worst situations. I always tell myself that I wish I was strong like the two of you, especially when I am having real down days! I do not like hearing negative from you, because you are my positive. So snap out of it girl and show me your strength!!! I know you are hurting bad right now, but think positive, you are going to get the help you need and the pain is going to go bye, bye!!!!!! Just be patient my friend and know that my thoughts and prayers will always be with you!!! LOL Always! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2004 Report Share Posted October 11, 2004 Tonia - Awwww thank you. JoAnn and Tricia can vouch for the fact that I do more than my fair share of cussing when I'm on the phone. You probably won't ever see me curse here though. Teel you what? SInce my mother used to ground me for say "sugar" when I was a teenager (she said that she grounded me because that she knew that i was say "sh#t in my head...go figure....I might have just as well gone ahead and said sh#t instead since I got in trouble anyway), I will say SUGAR here. SUGAR SUGAR SUGAR. BarbaraTonia wrote: Barbara, I've got to totally agree here! You are always here for others when they need the support.....now it's time for us to give you the support that you need. I know that the meds are messing you up, mainly because you aren't used to........ If you want to yell, scream, cuss or whatever, feel free to email me privately and do any of all you want....it wouldn't gother me at all! Tonia -------Original Message------- Please know that you are always in my thoughts and prayers and you of all people are my strength. I always look for words of encouragement from you and Donna. You are both very strong women that really know how to handle the worst situations. I always tell myself that I wish I was strong like the two of you, especially when I am having real down days! I do not like hearing negative from you, because you are my positive. So snap out of it girl and show me your strength!!! I know you are hurting bad right now, but think positive, you are going to get the help you need and the pain is going to go bye, bye!!!!!! Just be patient my friend and know that my thoughts and prayers will always be with you!!! LOL Always! Dawn ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2004 Report Share Posted October 11, 2004 OKay. that's it. I'm gonna be a kick butt, whoop yer a$$, tear up the world kinda gal from here on out. And when I'm too pooped out or funky to act like that I'm just gonna yell SUGAR SUGAR SUGAR. Y'all just alk too darn pretty to me sometimes and I can't handle it. Love and much thanks for the support - BarbaraRoepkelaurie@... wrote: Please know that you are always in my thoughts and prayers and you of all people are my strength. I always look for words of encouragement from you and Donna. You are both very strong women that really know how to handle the worst situations. I always tell myself that I wish I was strong like the two of you, especially when I am having real down days! I do not like hearing negative from you, because you are my positive. So snap out of it girl and show me your strength!!! I know you are hurting bad right now, but think positive, you are going to get the help you need and the pain is going to go bye, bye!!!!!! Just be patient my friend and know that my thoughts and prayers will always be with you!!! LOL Always! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2004 Report Share Posted October 11, 2004 Hi Barbara, I am sorry but for the life of me I can't remember what Myositis is? Could you please tell me again. Lin -- Re: Barbara Lin - Between the catheter and the new pain meds, the pain from the RSD is being kept pretty low. The rest of my body feels pretty achy as it deals with the rebound effect of discontinuing the medications. Guess that the docs kept secret the little fact that going off the meds would kick up the myositis. One day at a time. Thanks for your note. Barbara wrote: Barbara, I remember my last week at work, I kept nodding off at my desk and I would fall asleep, at my desk several times during the day. My sister was doing most of the driving by then ( we worked for the same company) and she would be talking to me and the next day I wouldn't remember what she talked about fortunatly she knew what to expect and and would gently remind me that I had mentioned it the other day. I will pray for you that you are able to go back to work soon. As I know that means a lot to you. How is the pain doing? Lin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2004 Report Share Posted October 12, 2004 I know that my "enforced" time at home drives me nuts.. Any projects you've been putting off forever that needs to be done? Last time I had surgery, I spent all my time putting photos in albums, labeling, etc. (Needless to say, hasn't been done since - and that's one of the reasons I love digital!) I also got some language tapes, and learned a little French and Czech (I was going to Slovakia later that year.) Anything to keep busy and divert my attention away from the "trapped" feeling. Maybe you could take an online course or something to keep you busy when you are at home. Hugs, JO Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2004 Report Share Posted October 12, 2004 Lin - It's a disease with no cure that causes the leukocytes to attack the muscle fibers of your body and, in response, cause musce pain, inflammation, and weakening of the muscle tissue as it raises the CK/CPK levels in your bloodstream. If you have it as part of the overall SAME syndrome (which besides myositis also causes arthralgia and edema) that we've talked about, there are a plethora of medications that you can no longer take as they set off the myositis in a really big way. Barbara wrote: Hi Barbara, I am sorry but for the life of me I can't remember what Myositis is? Could you please tell me again. Lin -- Re: Barbara Lin - Between the catheter and the new pain meds, the pain from the RSD is being kept pretty low. The rest of my body feels pretty achy as it deals with the rebound effect of discontinuing the medications. Guess that the docs kept secret the little fact that going off the meds would kick up the myositis. One day at a time. Thanks for your note. Barbara wrote: Barbara, I remember my last week at work, I kept nodding off at my desk and I would fall asleep, at my desk several times during the day. My sister was doing most of the driving by then ( we worked for the same company) and she would be talking to me and the next day I wouldn't remember what she talked about fortunatly she knew what to expect and and would gently remind me that I had mentioned it the other day. I will pray for you that you are able to go back to work soon. As I know that means a lot to you. How is the pain doing? Lin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2004 Report Share Posted October 13, 2004 Barbara, I think this not working is really getting to you, now you are sounding like an old Archies song you know the one intitled Sugar Sugar. Lin -- Re: Barbara Tonia - Awwww thank you. JoAnn and Tricia can vouch for the fact that I do more than my fair share of cussing when I'm on the phone. You probably won't ever see me curse here though. Teel you what? SInce my mother used to ground me for say "sugar" when I was a teenager (she said that she grounded me because that she knew that i was say "sh#t in my head...go figure....I might have just as well gone ahead and said sh#t instead since I got in trouble anyway), I will say SUGAR here. SUGAR SUGAR SUGAR. Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2004 Report Share Posted October 13, 2004 Lin - Well after yesterday's appointment and just one more time of the left hand not knowing (and clearly not caring) what the right hand is doing, well SUGAR SUGAR SUGAR. I am more than sick of this garbage. I'm going to stop here because I'm trying to stay out of a negative place. But I've had it. Turning the phone off and will likely not be writing much unless my mood changes. I'm just sick of all of this. barbara wrote: Barbara, I think this not working is really getting to you, now you are sounding like an old Archies song you know the one intitled Sugar Sugar. Lin -- Re: Barbara Tonia - Awwww thank you. JoAnn and Tricia can vouch for the fact that I do more than my fair share of cussing when I'm on the phone. You probably won't ever see me curse here though. Teel you what? SInce my mother used to ground me for say "sugar" when I was a teenager (she said that she grounded me because that she knew that i was say "sh#t in my head...go figure....I might have just as well gone ahead and said sh#t instead since I got in trouble anyway), I will say SUGAR here. SUGAR SUGAR SUGAR. Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2004 Report Share Posted October 13, 2004 Barb, Don't you dare take that phone off the hook, only I am aloud to do that. I am the queen of that when I get mad or depressed! I know this stinks but you are the one that can always make me laugh and you are such great support.Just know that I am here for you if you need me and I know in my heart that things will get better for you soon. LOL and Prayers Always!!! Dawn BARBARA TORREY wrote: Lin - Well after yesterday's appointment and just one more time of the left hand not knowing (and clearly not caring) what the right hand is doing, well SUGAR SUGAR SUGAR. I am more than sick of this garbage. I'm going to stop here because I'm trying to stay out of a negative place. But I've had it. Turning the phone off and will likely not be writing much unless my mood changes. I'm just sick of all of this. barbara wrote: Barbara, I think this not working is really getting to you, now you are sounding like an old Archies song you know the one intitled Sugar Sugar. Lin -- Re: Barbara Tonia - Awwww thank you. JoAnn and Tricia can vouch for the fact that I do more than my fair share of cussing when I'm on the phone. You probably won't ever see me curse here though. Teel you what? SInce my mother used to ground me for say "sugar" when I was a teenager (she said that she grounded me because that she knew that i was say "sh#t in my head...go figure....I might have just as well gone ahead and said sh#t instead since I got in trouble anyway), I will say SUGAR here. SUGAR SUGAR SUGAR. Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2004 Report Share Posted October 13, 2004 I am sorry that things aren't going well for you write now. i will keep you in my prayers. I was going to ask you what happened yesterday's appointment because I didn't remember, but I think I will let that one go for now, unless you really want to vent, we're here. Lin -- Re: Barbara Lin - Well after yesterday's appointment and just one more time of the left hand not knowing (and clearly not caring) what the right hand is doing, well SUGAR SUGAR SUGAR. I am more than sick of this garbage. I'm going to stop here because I'm trying to stay out of a negative place. But I've had it. Turning the phone off and will likely not be writing much unless my mood changes. I'm just sick of all of this. barbara Quote Link to comment Share on other sites More sharing options...
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