Guest guest Posted April 23, 2002 Report Share Posted April 23, 2002 WELCOME to the list. You will find many loving , caring, knowledgeable, folks here. thanks for joining us . LOVE & HUGS, GrandmomBEV New to the group Hello! My name is Cindy and I am a single mother of 3 children, two of which have CF. My oldest child's name is , she is 12 years old w/cf, my 8 year old son, who's name is Esaias no/cf and my baby boy, Caleb, who is 3 years old w/cf It has been difficult for people to understand our lifestyle and how I can be so organized and emotionally together one minute, then in the same breath, turn into a complete basket case that cries for no reason. I try to explain to people in my life that my heart literally hurts when my children hurt. It is a relief to know that I am, unfortunately, not alone. Thank you.......Cindy/mother of 3 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2002 Report Share Posted April 23, 2002 WELCOME to the list. You will find many loving , caring, knowledgeable, folks here. thanks for joining us . LOVE & HUGS, GrandmomBEV New to the group Hello! My name is Cindy and I am a single mother of 3 children, two of which have CF. My oldest child's name is , she is 12 years old w/cf, my 8 year old son, who's name is Esaias no/cf and my baby boy, Caleb, who is 3 years old w/cf It has been difficult for people to understand our lifestyle and how I can be so organized and emotionally together one minute, then in the same breath, turn into a complete basket case that cries for no reason. I try to explain to people in my life that my heart literally hurts when my children hurt. It is a relief to know that I am, unfortunately, not alone. Thank you.......Cindy/mother of 3 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2002 Report Share Posted April 23, 2002 WELCOME to the list. You will find many loving , caring, knowledgeable, folks here. thanks for joining us . LOVE & HUGS, GrandmomBEV New to the group Hello! My name is Cindy and I am a single mother of 3 children, two of which have CF. My oldest child's name is , she is 12 years old w/cf, my 8 year old son, who's name is Esaias no/cf and my baby boy, Caleb, who is 3 years old w/cf It has been difficult for people to understand our lifestyle and how I can be so organized and emotionally together one minute, then in the same breath, turn into a complete basket case that cries for no reason. I try to explain to people in my life that my heart literally hurts when my children hurt. It is a relief to know that I am, unfortunately, not alone. Thank you.......Cindy/mother of 3 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2002 Report Share Posted April 23, 2002 Cindy, Welcome to the list, I hope you know you can always turn here when you need some help. I hope we can offer you our insight and knowledge and you can offer yours to us too! Love, , mom of Allie 3 w/cf New to the group Hello! My name is Cindy and I am a single mother of 3 children, two of which have CF. My oldest child's name is , she is 12 years old w/cf, my 8 year old son, who's name is Esaias no/cf and my baby boy, Caleb, who is 3 years old w/cf It has been difficult for people to understand our lifestyle and how I can be so organized and emotionally together one minute, then in the same breath, turn into a complete basket case that cries for no reason. I try to explain to people in my life that my heart literally hurts when my children hurt. It is a relief to know that I am, unfortunately, not alone. Thank you.......Cindy/mother of 3 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2002 Report Share Posted April 23, 2002 Cindy, Welcome to the list, I hope you know you can always turn here when you need some help. I hope we can offer you our insight and knowledge and you can offer yours to us too! Love, , mom of Allie 3 w/cf New to the group Hello! My name is Cindy and I am a single mother of 3 children, two of which have CF. My oldest child's name is , she is 12 years old w/cf, my 8 year old son, who's name is Esaias no/cf and my baby boy, Caleb, who is 3 years old w/cf It has been difficult for people to understand our lifestyle and how I can be so organized and emotionally together one minute, then in the same breath, turn into a complete basket case that cries for no reason. I try to explain to people in my life that my heart literally hurts when my children hurt. It is a relief to know that I am, unfortunately, not alone. Thank you.......Cindy/mother of 3 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2002 Report Share Posted April 23, 2002 Cindy, Welcome to the list, I hope you know you can always turn here when you need some help. I hope we can offer you our insight and knowledge and you can offer yours to us too! Love, , mom of Allie 3 w/cf New to the group Hello! My name is Cindy and I am a single mother of 3 children, two of which have CF. My oldest child's name is , she is 12 years old w/cf, my 8 year old son, who's name is Esaias no/cf and my baby boy, Caleb, who is 3 years old w/cf It has been difficult for people to understand our lifestyle and how I can be so organized and emotionally together one minute, then in the same breath, turn into a complete basket case that cries for no reason. I try to explain to people in my life that my heart literally hurts when my children hurt. It is a relief to know that I am, unfortunately, not alone. Thank you.......Cindy/mother of 3 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2002 Report Share Posted April 23, 2002 Hello Cindy! Welcome aboard. You must be a pillar of strength to be a single mom of 3 and 2 wcf. I know what you mean about doing good one minute and then loosing it the next and has been dx for almost 5 years now. These people are great here!! Even with stuff not related to cf. Take Care, Deana Mom to 5 1/2 w cf and 11 no cf >From: " cindy dorvinen " > >Hello! My name is Cindy and I am a single mother of 3 children, two of >which have CF. My oldest child's name is , she is 12 years old >w/cf, my 8 year old son, who's name is Esaias no/cf and my baby boy, Caleb, >who is 3 years old w/cf It has been difficult for people to understand our >lifestyle and how I can be so organized and emotionally together one >minute, then in the same breath, turn into a complete basket case that >cries for no reason. I try to explain to people in my life that my heart >literally hurts when my children hurt. It is a relief to know that I am, >unfortunately, not alone. Thank you.......Cindy/mother of 3 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2002 Report Share Posted April 23, 2002 Hello Cindy! Welcome aboard. You must be a pillar of strength to be a single mom of 3 and 2 wcf. I know what you mean about doing good one minute and then loosing it the next and has been dx for almost 5 years now. These people are great here!! Even with stuff not related to cf. Take Care, Deana Mom to 5 1/2 w cf and 11 no cf >From: " cindy dorvinen " > >Hello! My name is Cindy and I am a single mother of 3 children, two of >which have CF. My oldest child's name is , she is 12 years old >w/cf, my 8 year old son, who's name is Esaias no/cf and my baby boy, Caleb, >who is 3 years old w/cf It has been difficult for people to understand our >lifestyle and how I can be so organized and emotionally together one >minute, then in the same breath, turn into a complete basket case that >cries for no reason. I try to explain to people in my life that my heart >literally hurts when my children hurt. It is a relief to know that I am, >unfortunately, not alone. Thank you.......Cindy/mother of 3 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2002 Report Share Posted April 23, 2002 Hello Cindy! Welcome aboard. You must be a pillar of strength to be a single mom of 3 and 2 wcf. I know what you mean about doing good one minute and then loosing it the next and has been dx for almost 5 years now. These people are great here!! Even with stuff not related to cf. Take Care, Deana Mom to 5 1/2 w cf and 11 no cf >From: " cindy dorvinen " > >Hello! My name is Cindy and I am a single mother of 3 children, two of >which have CF. My oldest child's name is , she is 12 years old >w/cf, my 8 year old son, who's name is Esaias no/cf and my baby boy, Caleb, >who is 3 years old w/cf It has been difficult for people to understand our >lifestyle and how I can be so organized and emotionally together one >minute, then in the same breath, turn into a complete basket case that >cries for no reason. I try to explain to people in my life that my heart >literally hurts when my children hurt. It is a relief to know that I am, >unfortunately, not alone. Thank you.......Cindy/mother of 3 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2002 Report Share Posted April 23, 2002 Cindy your story about being upbeat one day and crying the next sounds like me. We do have A LOT to cry about and only our mind and body knows when is the right time. Not always the appropriate time. Some days I get so frustrated with every day things, work, schedules that it doesn't take much to send me over the edge. Tonight it was my 11 year olds homework and her newest saying, " I don't know how to do this but you are doing it wrong. " GIve me the strength! Lynette 7w/cf and 11 w/ocf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2002 Report Share Posted April 23, 2002 Cindy your story about being upbeat one day and crying the next sounds like me. We do have A LOT to cry about and only our mind and body knows when is the right time. Not always the appropriate time. Some days I get so frustrated with every day things, work, schedules that it doesn't take much to send me over the edge. Tonight it was my 11 year olds homework and her newest saying, " I don't know how to do this but you are doing it wrong. " GIve me the strength! Lynette 7w/cf and 11 w/ocf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2002 Report Share Posted April 23, 2002 Cindy your story about being upbeat one day and crying the next sounds like me. We do have A LOT to cry about and only our mind and body knows when is the right time. Not always the appropriate time. Some days I get so frustrated with every day things, work, schedules that it doesn't take much to send me over the edge. Tonight it was my 11 year olds homework and her newest saying, " I don't know how to do this but you are doing it wrong. " GIve me the strength! Lynette 7w/cf and 11 w/ocf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2002 Report Share Posted April 23, 2002 Lynette, Boy does that sound familiar my daughter says the same thing all of the time about her homework it is a constant battle at our house and I hate to be the one who is always the bad person to make her do it too. I also have many bouts of crying. Lately I have had those crying spell because I have been so amazed and how many people are out there that care about my girls well being. I have had so many nice people do all they can to help us with the Car wash and to help raise money for the CF foundation it has been wonderful. Today a radio station called to interview me about the car wash and I did all I could to hold it back. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2002 Report Share Posted April 23, 2002 Lynette, Boy does that sound familiar my daughter says the same thing all of the time about her homework it is a constant battle at our house and I hate to be the one who is always the bad person to make her do it too. I also have many bouts of crying. Lately I have had those crying spell because I have been so amazed and how many people are out there that care about my girls well being. I have had so many nice people do all they can to help us with the Car wash and to help raise money for the CF foundation it has been wonderful. Today a radio station called to interview me about the car wash and I did all I could to hold it back. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2002 Report Share Posted April 24, 2002 Thanks GRANDMA BEV!! Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2002 Report Share Posted April 24, 2002 Thanks GRANDMA BEV!! Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2002 Report Share Posted April 24, 2002 Thanks GRANDMA BEV!! Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2002 Report Share Posted April 24, 2002 good luck Deb, your doing a super job..thanks from me too LOVE & HUGS, grandmomBEV Re: New to the group Lynette, Boy does that sound familiar my daughter says the same thing all of the time about her homework it is a constant battle at our house and I hate to be the one who is always the bad person to make her do it too. I also have many bouts of crying. Lately I have had those crying spell because I have been so amazed and how many people are out there that care about my girls well being. I have had so many nice people do all they can to help us with the Car wash and to help raise money for the CF foundation it has been wonderful. Today a radio station called to interview me about the car wash and I did all I could to hold it back. Deb A PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2002 Report Share Posted April 24, 2002 good luck Deb, your doing a super job..thanks from me too LOVE & HUGS, grandmomBEV Re: New to the group Lynette, Boy does that sound familiar my daughter says the same thing all of the time about her homework it is a constant battle at our house and I hate to be the one who is always the bad person to make her do it too. I also have many bouts of crying. Lately I have had those crying spell because I have been so amazed and how many people are out there that care about my girls well being. I have had so many nice people do all they can to help us with the Car wash and to help raise money for the CF foundation it has been wonderful. Today a radio station called to interview me about the car wash and I did all I could to hold it back. Deb A PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2002 Report Share Posted April 24, 2002 good luck Deb, your doing a super job..thanks from me too LOVE & HUGS, grandmomBEV Re: New to the group Lynette, Boy does that sound familiar my daughter says the same thing all of the time about her homework it is a constant battle at our house and I hate to be the one who is always the bad person to make her do it too. I also have many bouts of crying. Lately I have had those crying spell because I have been so amazed and how many people are out there that care about my girls well being. I have had so many nice people do all they can to help us with the Car wash and to help raise money for the CF foundation it has been wonderful. Today a radio station called to interview me about the car wash and I did all I could to hold it back. Deb A PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2005 Report Share Posted July 2, 2005 Hello my son has ulcerative colitis and has been on scd diet for 5 weeks. Would love to hear from anyone with our problem.We also want to buy a yogurt maker not sure which one most say done in 12 hours but the book says 24 hours. Do you just let it sit for the next 12 hours or is this a certain kind to get? thanks debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2005 Report Share Posted July 2, 2005 Debbie, I use a heating pad on set Medium and have a clean thermometer close nearby. It stays at about 102* all the time. I put the heating pad on a pottery plate and then put my yogurt container on on the heating pad. I cover it with a clean dishtowel to hold in a litlle of the heat and to keep it dark. I check it about every 4 hours to stir it (for the first day) and check the temp. You have to test the actual temp. of the yogurt - not the container. The container should be made from glass. I let it go for 36 hours total and usually use goat milk and stoneyfield brand plain yogurt as a starter. I believe most of the casein in the yogurt starter is broken down during the yogurt making process. Can anyone help me here? You can also make yogurt out of nuts instead of milk and buy the starter online. If I am doing any og this wrong please let me know. new to the group > Hello my son has ulcerative colitis and has been on scd diet for 5 > weeks. Would love to hear from anyone with our problem.We also want to > buy a yogurt maker not sure which one most say done in 12 hours but the > book says 24 hours. Do you just let it sit for the next 12 hours or is > this a certain kind to get? thanks debbie > > > > > > > For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: > http://www.breakingtheviciouscycle.info > and > http://www.pecanbread.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2005 Report Share Posted July 2, 2005 How great that the heating pad method works so well for you! A couple things I noticed. First, I don't think you're supposed to stir the yogurt as it's culturing - you're supposed to leave it alone and let the bacteria multiply without disturbing them. Taking the temperature is fine, just don't stir. Also, 36 hours is too much. I think it starts losing potency after 30 hours. I usually leave mine for 25 or 26 and it turns out great. If you use cow yogurt for starter, there will be trace amounts of cow dairy casein in there, which, I understand, is different from goat dairy casein - more difficult for the body to process. Making SCD legal yogurt does not destroy casein, just lactose. We use the non-dairy starter. If everyone seems to tolerate it fine, though, I wouldn't worry about it. Cindy mom to asd daughter, 4.5, scd 8 months and a goat yogurt devotee > Debbie, I use a heating pad on set Medium and have a clean thermometer close > nearby. It stays at about 102* all the time. I put the heating pad on a > pottery plate and then put my yogurt container on on the heating pad. I > cover it with a clean dishtowel to hold in a litlle of the heat and to keep > it dark. I check it about every 4 hours to stir it (for the first day) and > check the temp. You have to test the actual temp. of the yogurt - not the > container. The container should be made from glass. I let it go for 36 hours > total and usually use goat milk and stoneyfield brand plain yogurt as a > starter. I believe most of the casein in the yogurt starter is broken down > during the yogurt making process. Can anyone help me here? You can also make > yogurt out of nuts instead of milk and buy the starter online. If I am doing > any og this wrong please let me know. > new to the group > > > > Hello my son has ulcerative colitis and has been on scd diet for 5 > > weeks. Would love to hear from anyone with our problem.We also want to > > buy a yogurt maker not sure which one most say done in 12 hours but the > > book says 24 hours. Do you just let it sit for the next 12 hours or is > > this a certain kind to get? thanks debbie > > > > > > > > > > > > > > For information on the Specific Carbohydrate Diet, please read the book > _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following > websites: > > http://www.breakingtheviciouscycle.info > > and > > http://www.pecanbread.com > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2005 Report Share Posted July 2, 2005 Cindy. Thanks for the tips for my yogurt. Although I think I remember reading on this site somewhere or maybe in a yogurt recipe that if you stir it a few times the first day it thickens a little but, if I'm disturbing the process...I will try to reduce the time to 26 hours and see if it still works as far as potency and thickness goes. Where do you get the non-dairy starter from? Lucy's Kitchen? I'm trying to get rid of the cow's milk so that my daughter doesn't get anymore ear& sinus infections. So far so good. But, I do see trace amounts of it still i some of her foods. She is still very hyper at times but, finally sleeps through the night. new to the group > > > > > > > Hello my son has ulcerative colitis and has been on scd diet for > 5 > > > weeks. Would love to hear from anyone with our problem.We also > want to > > > buy a yogurt maker not sure which one most say done in 12 hours > but the > > > book says 24 hours. Do you just let it sit for the next 12 hours > or is > > > this a certain kind to get? thanks debbie > > > > > > > > > > > > > > > > > > > > > For information on the Specific Carbohydrate Diet, please read > the book > > _Breaking the Vicious Cycle_ by Elaine Gottschall and read the > following > > websites: > > > http://www.breakingtheviciouscycle.info > > > and > > > http://www.pecanbread.com > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2005 Report Share Posted July 2, 2005 I use the Progurt starter from GI ProHealth. http://www.giprohealth.com/Merchant2/merchant.mvc? Screen=PROD&Store_Code=GIProHealth&Product_Code=Progurt&Category_Code =starter It seems expensive, but it lasts a long time, since it's only 1/4 tsp per 1/2 gallon of milk. I honestly don't know about the stirring thing - I thought I'd read not to bother it. Let me know if stirring actually does make it thicker. I drip our yogurt - I start with a gallon of milk and end up with 1/2 gallon of yogurt once it's dripped. It gets nice and thick. If it really does lose potency after 30 hours, then 26 hour yogurt should be much more potent than what you were using. Good luck! Cindy > > > Debbie, I use a heating pad on set Medium and have a clean > > thermometer close > > > nearby. It stays at about 102* all the time. I put the heating pad > > on a > > > pottery plate and then put my yogurt container on on the heating > > pad. I > > > cover it with a clean dishtowel to hold in a litlle of the heat > > and to keep > > > it dark. I check it about every 4 hours to stir it (for the first > > day) and > > > check the temp. You have to test the actual temp. of the yogurt - > > not the > > > container. The container should be made from glass. I let it go > > for 36 hours > > > total and usually use goat milk and stoneyfield brand plain yogurt > > as a > > > starter. I believe most of the casein in the yogurt starter is > > broken down > > > during the yogurt making process. Can anyone help me here? You can > > also make > > > yogurt out of nuts instead of milk and buy the starter online. If > > I am doing > > > any og this wrong please let me know. > > > new to the group > > > > > > > > > > Hello my son has ulcerative colitis and has been on scd diet for > > 5 > > > > weeks. Would love to hear from anyone with our problem.We also > > want to > > > > buy a yogurt maker not sure which one most say done in 12 hours > > but the > > > > book says 24 hours. Do you just let it sit for the next 12 hours > > or is > > > > this a certain kind to get? thanks debbie > > > > > > > > > > > > > > > > > > > > > > > > > > > > For information on the Specific Carbohydrate Diet, please read > > the book > > > _Breaking the Vicious Cycle_ by Elaine Gottschall and read the > > following > > > websites: > > > > http://www.breakingtheviciouscycle.info > > > > and > > > > http://www.pecanbread.com > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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