Guest guest Posted July 5, 2005 Report Share Posted July 5, 2005 we use activated characoal all the time for help with die off. Our DAN doctor suggested four times a day during bad times as long as its not within one hour of food or supplements. Hard to do. The characoal expels a lot of gas for Cameron and sometimes helps with spacey and giddiness. , mom to Cameron 3.9 ASD and Peyton 19 months SCD 5 weeks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2005 Report Share Posted July 5, 2005 we use activated characoal all the time for help with die off. Our DAN doctor suggested four times a day during bad times as long as its not within one hour of food or supplements. Hard to do. The characoal expels a lot of gas for Cameron and sometimes helps with spacey and giddiness. , mom to Cameron 3.9 ASD and Peyton 19 months SCD 5 weeks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2005 Report Share Posted July 5, 2005 Hi, Tammy - I have another severely food allergic kid who anaphylaxes, so I sympathize! We don't do fish, because my son seized while on fish oil (even though he had benefits). I give him flaxseed oil (I know that flaxseed is not legal, but hope that the oil is okay), and Neuromins DHA for essential fatty acid sources. I'm also going to start him on black currant oil someday. We actually did the Metametrix fatty acid analysis to help. My son was severely oral motor apraxic before the EFA's. With fish oil, we got great articulation, but seizures and aggressive and self injurious behaviors. Stopped the fish oil, and couldn't understand a word he said. Restarted the above sources of EFA's, and we get the benefits without the negatives. Eggs are another great source of EFA's, if you can do them (we can't). I would avoid the EFA enriched eggs if you have trouble with fish or metals. One of the docs at the Boston DAN (Dr. Buie?) said that the eggs get that way because they feed the chickens fish, and that the fish source might be heavy metal contaminated. HTH, Kathy Re: Re: limited foods > In a message dated 7/5/2005 4:30:07 AM Central Daylight Time, > sheilat@... writes: > > >> When did you have the test done that showed v. high arabinose? >> >> > > Thanks Sheila! > > His GPL test was about 2 months prior to SCD. The arabinose was > 566.(range of 0-47) > > He has not been tested for avocado, but I think I will try some of that > next. He really needs more foods. I usually won't try things unless > they have been tested, he is severely allergic to MOST foods. His > reactions are usually anaphylactic type so I am very careful. I am hoping > the eczema (rashes) will get better after die off, poor little guy itches > a LOT! > > Any ideas on getting good omegas without fish oil and scd compliant? > The fish oil has vit e (which is from soy) and he also has tuna allergy, > so I have opted not to use it, which makes me sick because of all > the wonderful reports I have heard from people using it. > > Oh, and I just started zinc supplementation yesterday, i only used about > 1/4 capsule. > > We give him epsom salt baths(1 cup) every other night. I have bought > activated charcoal > from Kirkmans.....does anyone have any experience with this? Peyton is > 25-26 lbs. > > > Thanks again, > Tammy > (Peyton ASD 2.2)(SCD 7wks)(eczema 2 yrs) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2005 Report Share Posted July 5, 2005 Hi, Tammy - I have another severely food allergic kid who anaphylaxes, so I sympathize! We don't do fish, because my son seized while on fish oil (even though he had benefits). I give him flaxseed oil (I know that flaxseed is not legal, but hope that the oil is okay), and Neuromins DHA for essential fatty acid sources. I'm also going to start him on black currant oil someday. We actually did the Metametrix fatty acid analysis to help. My son was severely oral motor apraxic before the EFA's. With fish oil, we got great articulation, but seizures and aggressive and self injurious behaviors. Stopped the fish oil, and couldn't understand a word he said. Restarted the above sources of EFA's, and we get the benefits without the negatives. Eggs are another great source of EFA's, if you can do them (we can't). I would avoid the EFA enriched eggs if you have trouble with fish or metals. One of the docs at the Boston DAN (Dr. Buie?) said that the eggs get that way because they feed the chickens fish, and that the fish source might be heavy metal contaminated. HTH, Kathy Re: Re: limited foods > In a message dated 7/5/2005 4:30:07 AM Central Daylight Time, > sheilat@... writes: > > >> When did you have the test done that showed v. high arabinose? >> >> > > Thanks Sheila! > > His GPL test was about 2 months prior to SCD. The arabinose was > 566.(range of 0-47) > > He has not been tested for avocado, but I think I will try some of that > next. He really needs more foods. I usually won't try things unless > they have been tested, he is severely allergic to MOST foods. His > reactions are usually anaphylactic type so I am very careful. I am hoping > the eczema (rashes) will get better after die off, poor little guy itches > a LOT! > > Any ideas on getting good omegas without fish oil and scd compliant? > The fish oil has vit e (which is from soy) and he also has tuna allergy, > so I have opted not to use it, which makes me sick because of all > the wonderful reports I have heard from people using it. > > Oh, and I just started zinc supplementation yesterday, i only used about > 1/4 capsule. > > We give him epsom salt baths(1 cup) every other night. I have bought > activated charcoal > from Kirkmans.....does anyone have any experience with this? Peyton is > 25-26 lbs. > > > Thanks again, > Tammy > (Peyton ASD 2.2)(SCD 7wks)(eczema 2 yrs) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2005 Report Share Posted July 5, 2005 Hi, Tammy - I have another severely food allergic kid who anaphylaxes, so I sympathize! We don't do fish, because my son seized while on fish oil (even though he had benefits). I give him flaxseed oil (I know that flaxseed is not legal, but hope that the oil is okay), and Neuromins DHA for essential fatty acid sources. I'm also going to start him on black currant oil someday. We actually did the Metametrix fatty acid analysis to help. My son was severely oral motor apraxic before the EFA's. With fish oil, we got great articulation, but seizures and aggressive and self injurious behaviors. Stopped the fish oil, and couldn't understand a word he said. Restarted the above sources of EFA's, and we get the benefits without the negatives. Eggs are another great source of EFA's, if you can do them (we can't). I would avoid the EFA enriched eggs if you have trouble with fish or metals. One of the docs at the Boston DAN (Dr. Buie?) said that the eggs get that way because they feed the chickens fish, and that the fish source might be heavy metal contaminated. HTH, Kathy Re: Re: limited foods > In a message dated 7/5/2005 4:30:07 AM Central Daylight Time, > sheilat@... writes: > > >> When did you have the test done that showed v. high arabinose? >> >> > > Thanks Sheila! > > His GPL test was about 2 months prior to SCD. The arabinose was > 566.(range of 0-47) > > He has not been tested for avocado, but I think I will try some of that > next. He really needs more foods. I usually won't try things unless > they have been tested, he is severely allergic to MOST foods. His > reactions are usually anaphylactic type so I am very careful. I am hoping > the eczema (rashes) will get better after die off, poor little guy itches > a LOT! > > Any ideas on getting good omegas without fish oil and scd compliant? > The fish oil has vit e (which is from soy) and he also has tuna allergy, > so I have opted not to use it, which makes me sick because of all > the wonderful reports I have heard from people using it. > > Oh, and I just started zinc supplementation yesterday, i only used about > 1/4 capsule. > > We give him epsom salt baths(1 cup) every other night. I have bought > activated charcoal > from Kirkmans.....does anyone have any experience with this? Peyton is > 25-26 lbs. > > > Thanks again, > Tammy > (Peyton ASD 2.2)(SCD 7wks)(eczema 2 yrs) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2005 Report Share Posted July 5, 2005 Thanks , This group is so wonderful and helpful!! Thanks to all of you that have helped me so much. How do you give the charcoal (I can't remember if it is capsules or not, if so do you open them and put in water or what?) Tammy Mom of Peyton (ASD 2,2)(SCD 7wks)(eczema 2yrs) Still having sludge poop.(and very smelly I might add, but not as much grit today) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2005 Report Share Posted July 5, 2005 Thanks , This group is so wonderful and helpful!! Thanks to all of you that have helped me so much. How do you give the charcoal (I can't remember if it is capsules or not, if so do you open them and put in water or what?) Tammy Mom of Peyton (ASD 2,2)(SCD 7wks)(eczema 2yrs) Still having sludge poop.(and very smelly I might add, but not as much grit today) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2005 Report Share Posted July 5, 2005 Thanks , This group is so wonderful and helpful!! Thanks to all of you that have helped me so much. How do you give the charcoal (I can't remember if it is capsules or not, if so do you open them and put in water or what?) Tammy Mom of Peyton (ASD 2,2)(SCD 7wks)(eczema 2yrs) Still having sludge poop.(and very smelly I might add, but not as much grit today) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2005 Report Share Posted July 5, 2005 Thanks Kathy, That is some great info. You are right, no eggs for us either. This group is so nice, because if nothing else you know that you are not the only one with a child that is allergic to EVERYTHING (Peyton can't have any legumes either) I am going to check on the Neuromins DHA, but isn't DHA from fish too? Peyton is allergic to tuna. I really want him to have some EFA's , I think it would help his chronic eczema as well. Anyone else tried the emu oil? Tammy Mom of Peyton (2.2 ASD)(SCD 7wks)(Eczema 2yrs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2005 Report Share Posted July 6, 2005 yes we just open the capsule and put them in water and syringe into his mouth. The funny thing is long ago I thought he'd think it was awful so I was putting it in tomato sauce which he loves, but then I switched to water and he did fine. I measure the water first so I know I don't have to give him many syringes to get it all in. My 19 month old who is also SCD now thinks its some sort of treat (???!!!) and requests black water. , mom to Cameron and Peyton Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2005 Report Share Posted July 6, 2005 yes we just open the capsule and put them in water and syringe into his mouth. The funny thing is long ago I thought he'd think it was awful so I was putting it in tomato sauce which he loves, but then I switched to water and he did fine. I measure the water first so I know I don't have to give him many syringes to get it all in. My 19 month old who is also SCD now thinks its some sort of treat (???!!!) and requests black water. , mom to Cameron and Peyton Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2005 Report Share Posted July 6, 2005 yes we just open the capsule and put them in water and syringe into his mouth. The funny thing is long ago I thought he'd think it was awful so I was putting it in tomato sauce which he loves, but then I switched to water and he did fine. I measure the water first so I know I don't have to give him many syringes to get it all in. My 19 month old who is also SCD now thinks its some sort of treat (???!!!) and requests black water. , mom to Cameron and Peyton Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2005 Report Share Posted July 6, 2005 Hi Tammy, > Any ideas on getting good omegas without fish oil and scd compliant? Besides fish oil and nut goodies (are these okay for him?): Eggs, some good flax oil (Elaine prefers half the rec. dose if using it), I think some use borage oil. Sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2005 Report Share Posted July 6, 2005 Hi Tammy, > Any ideas on getting good omegas without fish oil and scd compliant? Besides fish oil and nut goodies (are these okay for him?): Eggs, some good flax oil (Elaine prefers half the rec. dose if using it), I think some use borage oil. Sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2005 Report Share Posted July 6, 2005 Hi Tammy, > Any ideas on getting good omegas without fish oil and scd compliant? Besides fish oil and nut goodies (are these okay for him?): Eggs, some good flax oil (Elaine prefers half the rec. dose if using it), I think some use borage oil. Sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2005 Report Share Posted July 6, 2005 Tammy - The DHA we use (Martek Neuromins) is from algae. My son does fine on it. He can't do any legumes either (peanuts, soy, peas even!). He started emu oil topically last week (in the TD-LDN from Coastal), and he has done fine. He definitely reacts topically to allergens (with rash, itching, up to eye swelling and hives/wheezing and, of course, behavior) so I feel comfortable that he is tolerating it okay. He can't tolerate TD soy or DMSO, and I knew right away. I haven't done emu oil orally - is anyone using it that way? Someone posted last week or so above using it topically for eczema, I think. Kathy Re: Re: limited foods > Thanks Kathy, > > That is some great info. You are right, no eggs for > us either. This group is so nice, because if nothing > else you know that you are not the only one with > a child that is allergic to EVERYTHING (Peyton can't > have any legumes either) I am going to check on > the Neuromins DHA, but isn't DHA from fish too? > Peyton is allergic to tuna. I really want him to have some > EFA's , I think it would help his chronic eczema as well. > Anyone else tried the emu oil? > > > Tammy > Mom of Peyton (2.2 ASD)(SCD 7wks)(Eczema 2yrs > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2005 Report Share Posted July 6, 2005 Tammy - The DHA we use (Martek Neuromins) is from algae. My son does fine on it. He can't do any legumes either (peanuts, soy, peas even!). He started emu oil topically last week (in the TD-LDN from Coastal), and he has done fine. He definitely reacts topically to allergens (with rash, itching, up to eye swelling and hives/wheezing and, of course, behavior) so I feel comfortable that he is tolerating it okay. He can't tolerate TD soy or DMSO, and I knew right away. I haven't done emu oil orally - is anyone using it that way? Someone posted last week or so above using it topically for eczema, I think. Kathy Re: Re: limited foods > Thanks Kathy, > > That is some great info. You are right, no eggs for > us either. This group is so nice, because if nothing > else you know that you are not the only one with > a child that is allergic to EVERYTHING (Peyton can't > have any legumes either) I am going to check on > the Neuromins DHA, but isn't DHA from fish too? > Peyton is allergic to tuna. I really want him to have some > EFA's , I think it would help his chronic eczema as well. > Anyone else tried the emu oil? > > > Tammy > Mom of Peyton (2.2 ASD)(SCD 7wks)(Eczema 2yrs > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2005 Report Share Posted July 6, 2005 Kathy, Someone told me about a website called Laid in Montana, and they said that she had the purest emu oil. I didn't order due to the soy in the oil, but the topical is pure. Go to the website if you want, and the lady will email you back or call you. I am considering ordering the topical. They do make gelcaps that are fda approved, but as I said they have vitamin E in them which comes from soy. Tammy Peyton asd 2.2 scd 7wks eczema 2yrs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2005 Report Share Posted July 6, 2005 Kathy, Someone told me about a website called Laid in Montana, and they said that she had the purest emu oil. I didn't order due to the soy in the oil, but the topical is pure. Go to the website if you want, and the lady will email you back or call you. I am considering ordering the topical. They do make gelcaps that are fda approved, but as I said they have vitamin E in them which comes from soy. Tammy Peyton asd 2.2 scd 7wks eczema 2yrs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2005 Report Share Posted July 6, 2005 Kathy, Someone told me about a website called Laid in Montana, and they said that she had the purest emu oil. I didn't order due to the soy in the oil, but the topical is pure. Go to the website if you want, and the lady will email you back or call you. I am considering ordering the topical. They do make gelcaps that are fda approved, but as I said they have vitamin E in them which comes from soy. Tammy Peyton asd 2.2 scd 7wks eczema 2yrs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2005 Report Share Posted July 7, 2005 Tammy - Thanks for the info. We can't even do topical soy, unfortunately, at least not at this point. It's amazing what it does to his gut symptoms, and his attention span goes down the tubes. Itchy, too. Too bad. Kathy Re: Re: limited foods > Kathy, > > Someone told me about a website called > Laid in Montana, and they said that she > had the purest emu oil. I didn't order due > to the soy in the oil, but the topical is pure. > Go to the website if you want, and the lady > will email you back or call you. I am considering > ordering the topical. They do make gelcaps that > are fda approved, but as I said they have vitamin > E in them which comes from soy. > > Tammy > Peyton asd 2.2 scd 7wks eczema 2yrs > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2005 Report Share Posted July 7, 2005 Tammy - Thanks for the info. We can't even do topical soy, unfortunately, at least not at this point. It's amazing what it does to his gut symptoms, and his attention span goes down the tubes. Itchy, too. Too bad. Kathy Re: Re: limited foods > Kathy, > > Someone told me about a website called > Laid in Montana, and they said that she > had the purest emu oil. I didn't order due > to the soy in the oil, but the topical is pure. > Go to the website if you want, and the lady > will email you back or call you. I am considering > ordering the topical. They do make gelcaps that > are fda approved, but as I said they have vitamin > E in them which comes from soy. > > Tammy > Peyton asd 2.2 scd 7wks eczema 2yrs > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2005 Report Share Posted July 7, 2005 Tammy - Thanks for the info. We can't even do topical soy, unfortunately, at least not at this point. It's amazing what it does to his gut symptoms, and his attention span goes down the tubes. Itchy, too. Too bad. Kathy Re: Re: limited foods > Kathy, > > Someone told me about a website called > Laid in Montana, and they said that she > had the purest emu oil. I didn't order due > to the soy in the oil, but the topical is pure. > Go to the website if you want, and the lady > will email you back or call you. I am considering > ordering the topical. They do make gelcaps that > are fda approved, but as I said they have vitamin > E in them which comes from soy. > > Tammy > Peyton asd 2.2 scd 7wks eczema 2yrs > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 Hi Kathy, I know what you mean, I can't imagine that I could focus either if I were itchy. I don't think I was clear enough for you about the emu oil. The topical is pure emu oil, but the gelcaps have vitamin e (from soy) in them. Let me know if you use it, I am still considering, it is not at the top of my most wanted supplements yet, but working its way up I think we should all join forces and create our own supplement company...LOL By the way, our children sound so similar, would you mind tellling me what SCD foods your little boy CAN eat, it might help me to know what to try next. (I know everyone is different, but I have read that some people follow the same allergen patterns) Take Care, Tammy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 Hi Kathy, I know what you mean, I can't imagine that I could focus either if I were itchy. I don't think I was clear enough for you about the emu oil. The topical is pure emu oil, but the gelcaps have vitamin e (from soy) in them. Let me know if you use it, I am still considering, it is not at the top of my most wanted supplements yet, but working its way up I think we should all join forces and create our own supplement company...LOL By the way, our children sound so similar, would you mind tellling me what SCD foods your little boy CAN eat, it might help me to know what to try next. (I know everyone is different, but I have read that some people follow the same allergen patterns) Take Care, Tammy Quote Link to comment Share on other sites More sharing options...
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