Can we stop the diet for a while????Help please

[Guest guest]

It's too difficult really!!!

I try to contact neuro at hospital and they are intouchable so they say I 'll

call you back...and I'm waiting for ages!!!

I'm sure when I 'll got him he 'll say that I have to stop the diet without

checking blood gaz, I'm nearly sure of it!!!

Nath is still vomits, even on ratio 3.1

He drunk 50 ml of jelly water....

He has had 2 big seizures last night...

I give you some news later,thank for beeing there

Carolyn, aël's mum

Re: Can we stop the diet for a while????Help please

Blood gases to check for acidosis as a cause for the vomiting are

definitely required Carolyn, and the other possibility is perhaps med

toxicity. The level of medication required to help a bit with the seizures

may have gone too high for him to cope with - vomiting is a common toxicity

symptom.

You probably are at the point of needing to know exactly what is causing

it, if it is acidosis, then taking him off the diet should rectify this, if

he continues to vomit while not in ketosis, then it may point more to med

toxicity.

Taking away ketones may take away some of the meds potency though, as most

med levels are increased by ketosis, so even then you may have trouble

finding out what was causing what.

Yes, you can take him off, and then restart the diet, never having done it

here though, I cannot comment on how easy that process is - if you do go

ahead with this, I would recommend slowly weaning the diet if possible, as

sudden metabolism changes are possibly not gonna be the best for him right

now.

However, if he is having any sort of adverse diet reaction, you may not be

able to wean slowly...

I know your Drs have been very unsupportive with the diet, perhaps this

time round they will be better, both when it comes to deciding whether to

take him off, and how to go about it? Before making that decision, I

personally would want full blood work to see if there is a definite reason

(like acidosis) for the vomiting, as if you take him off and then restart

it, you will need to be aware of what these reactions have been from, so how

to prevent them happening again - once again though, requiring a Dr's input

and interpretation.

----- Original Message -----

Hello,

aël is still very bad, he vomits every day, he's tired, has rings

under his eyes, can't drink at all,if I give him orange juice he vomits

immediately...The biologist came this mornig and his blood control shows a

lake of iron, and TGP high,I gave him a bit of sugar to see if he's better

he has been better for 1 hour and after sick again!

I'm desesperated!

Could you tell me if I stop the keto diet for a while if it's a

solution?or it will be impossible to take it back?

I'm scared, I'm alone.

He vomits the trileptal too....

H'e has a better control of seizures since the biginning of the diet and

the dose of trileptal but he's still have t c sz.

He's having a seizure now!!!

I leave you, help please

Carolyn, Nath's mum

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