Re: general awareness - school

[Guest guest]

My 2-cents, so delete now if uninterested..........I'm going to give it anyway.

Lauretta - you commented that you "hoped that the individual health plan......can be revised". It absolutely can if you want it to be. It's your child, so you can make sure the school has every and all information you want it to have/it needs to keep your child healthy. I assume you have a copy of it, so review it, revise it & call whatever meeting you need to to get it updated to your liking, and allowing for the accommodations your child needs. This does not have to be an "ugly" process, but you do have to be sure that the school does what it needs to. If there is a plan in place to keep your child from getting contaminated/sick, then he won't be sick & missing so much school.

My son w/Celiac also has Down Syndrome, so the Celiac accommodations are already put into his IEP. But, that doesn't mean I don't stay in constant contact with his teachers about it too. I also have 2 other children that are peanut & tree nut allergic, so it is imperative that I communicate with the schools' administrators as well as the teachers, because they don't want one of my children to die at school either. The more help I offer, while supplying information, the more it seems that the staff appreciates it & I feel they then listen better/more to what I'm saying. My mom & both my in-laws are teachers, so I appreciate what is on their plate already - everyday - so when I am addressing one of my kiddos teachers I express my understanding of their situation, and brainstorm with them on what I can do to make it easiest for them to keep my children safe & healthy. It seems that doing this on the front-end, within the first couple days of school, gets everyone on the right track from the beginning, and if they have questions they know they can call or email me. I also very casually, in conversation, "quiz" my son(s) about what is/isn't happening on a daily basis, so I know what I need to follow-up on with the school.

Ok, sorry so long, but I just don't think that any school should make you feel like they are in charge & you're not, especially if you're offering education, help & support.

Thanks to anyone who has actually read this whole thing-

(sorry to the digest readers, but I couldn't delete off the previous posts - must be the new Yahoo format or something)

Re: general awareness

My sentiments exactly. Why does it have to be so hard for a child to go to school and blend in with all the other medically issued. Thank you for sharing. We have a school that has never dealt with celiac issues and who (seemingly) would rather go by what they can find out without our input. We could not even get a 504 out of them. The best we got was an iep at the start of the first year. I am going to go as far as I need to to help our son succeed in school as we all know that any accident can be prevented and it does affect how our children learn when they get mouth ulcers, skin lesions, and stomach pain with diarrea. Well, that said, I thank all of you for reading this and understanding how I feel. Just wish I could get others in our area to help back this meager effort of mine. GOD bless you all in your efforts. Lauretta, mother of adopted 5 yo celiac

On 7/27/06, Candy Cane <candy67cane (AT) yahoo (DOT) com > wrote:

While reading the posts titled Re: accomodation in restaurants/ was Celiac vs IBS article in Self

and comments like this

"Outback Steakhouse has a well-researched GF menu. We have eaten in 8 different Outbacks in our travels. In the less half of them did our server actually know what "gluten-free" meant. Yes, the company took the time *and money* to develop the menu, but I don't see them spending their money to keep up with staff education."

it occurred to me, once again, that general awareness of Celiac is so important. There are other diseases out there that affect many less people but most of us are aware of the disease (for example, sickel cell anemia. I know it primarily affects african-americans. It is hereditary and causes pain.) If the general public knew the basics of celiac (person follows gluten-free diet, can get immediate or long-term reactions from gluten) it would probably be alot easier to get sincere cooperation from restaurants, school cafeterias, and even our own families! : )

[Guest guest]

I appreciate your 2 cents! I have taken into consideration everything that is said on here on this topic. It is very important for me as I do not know what it feels like to have this intolerance, but, the little guy I simply adore cannot suffer any more than he has to. Thank you and God bless. Lauretta

My 2-cents, so delete now if uninterested..........I'm going to give it anyway.

Lauretta - you commented that you " hoped that the individual health plan......can be revised " . It absolutely can if you want it to be. It's your child, so you

can make sure the school has every and all information you want it to have/it needs to keep your child healthy. I assume you have a copy of it, so review it, revise it & call whatever meeting you need to to get it updated to your liking, and allowing for the accommodations your child needs. This does not have to be an " ugly " process, but you do have to be sure that the school does what it needs to. If there is a plan in place to keep your child from getting contaminated/sick, then he won't be sick & missing so much school.

My son w/Celiac also has Down Syndrome, so the Celiac accommodations are already put into his IEP. But, that doesn't mean I don't stay in constant contact with his teachers about it too. I also have 2 other children that are peanut & tree nut allergic, so it is imperative that I communicate with the schools' administrators as well as the teachers, because they don't want one of my children to die at school either. The more help I offer, while supplying information, the more it seems that the staff appreciates it & I feel they then listen better/more to what I'm saying. My mom & both my in-laws are teachers, so I appreciate what is on their plate already - everyday - so when I am addressing one of my kiddos teachers I express my understanding of their situation, and brainstorm with them on what I can do to make it easiest for them to keep my children safe & healthy. It seems that doing this on the front-end, within the first couple days of school, gets everyone on the right track from the beginning, and if they have questions they know they can call or email me. I also very casually, in conversation, " quiz " my son(s) about what is/isn't happening on a daily basis, so I know what I need to follow-up on with the school.

Ok, sorry so long, but I just don't think that any school should make you feel like they are in charge & you're not, especially if you're offering education, help & support.

Thanks to anyone who has actually read this whole thing-

(sorry to the digest readers, but I couldn't delete off the previous posts - must be the new Yahoo format or something)

Re: general awareness

My sentiments exactly. Why does it have to be so hard for a child to go to school and blend in with all the other medically issued. Thank you for sharing. We have a school that has never dealt with celiac issues and who (seemingly) would rather go by what they can find out without our input. We could not even get a 504 out of them. The best we got was an iep at the start of the first year. I am going to go as far as I need to to help our son succeed in school as we all know that any accident can be prevented and it does affect how our children learn when they get mouth ulcers, skin lesions, and stomach pain with diarrea. Well, that said, I thank all of you for reading this and understanding how I feel. Just wish I could get others in our area to help back this meager effort of mine. GOD bless you all in your efforts. Lauretta, mother of adopted 5 yo celiac

While reading the posts titled Re: accomodation in restaurants/ was Celiac vs IBS article in Self

and comments like this

" Outback Steakhouse has a well-researched GF menu. We have eaten in 8 different Outbacks in our travels. In the less half of them did our server actually know what " gluten-free " meant. Yes, the company took the time *and money* to develop the menu, but I don't see them spending their money to keep up with staff education. "

it occurred to me, once again, that general awareness of Celiac is so important. There are other diseases out there that affect many less people but most of us are aware of the disease (for example, sickel cell anemia. I know it primarily affects african-americans. It is hereditary and causes pain.) If the general public knew the basics of celiac (person follows gluten-free diet, can get immediate or long-term reactions from gluten) it would probably be alot easier to get sincere cooperation from restaurants, school cafeterias, and even our own families! : )

[Guest guest]

I appreciate your 2 cents! I have taken into consideration everything that is said on here on this topic. It is very important for me as I do not know what it feels like to have this intolerance, but, the little guy I simply adore cannot suffer any more than he has to. Thank you and God bless. Lauretta

My 2-cents, so delete now if uninterested..........I'm going to give it anyway.

Lauretta - you commented that you " hoped that the individual health plan......can be revised " . It absolutely can if you want it to be. It's your child, so you

can make sure the school has every and all information you want it to have/it needs to keep your child healthy. I assume you have a copy of it, so review it, revise it & call whatever meeting you need to to get it updated to your liking, and allowing for the accommodations your child needs. This does not have to be an " ugly " process, but you do have to be sure that the school does what it needs to. If there is a plan in place to keep your child from getting contaminated/sick, then he won't be sick & missing so much school.

My son w/Celiac also has Down Syndrome, so the Celiac accommodations are already put into his IEP. But, that doesn't mean I don't stay in constant contact with his teachers about it too. I also have 2 other children that are peanut & tree nut allergic, so it is imperative that I communicate with the schools' administrators as well as the teachers, because they don't want one of my children to die at school either. The more help I offer, while supplying information, the more it seems that the staff appreciates it & I feel they then listen better/more to what I'm saying. My mom & both my in-laws are teachers, so I appreciate what is on their plate already - everyday - so when I am addressing one of my kiddos teachers I express my understanding of their situation, and brainstorm with them on what I can do to make it easiest for them to keep my children safe & healthy. It seems that doing this on the front-end, within the first couple days of school, gets everyone on the right track from the beginning, and if they have questions they know they can call or email me. I also very casually, in conversation, " quiz " my son(s) about what is/isn't happening on a daily basis, so I know what I need to follow-up on with the school.

Ok, sorry so long, but I just don't think that any school should make you feel like they are in charge & you're not, especially if you're offering education, help & support.

Thanks to anyone who has actually read this whole thing-

(sorry to the digest readers, but I couldn't delete off the previous posts - must be the new Yahoo format or something)

Re: general awareness

My sentiments exactly. Why does it have to be so hard for a child to go to school and blend in with all the other medically issued. Thank you for sharing. We have a school that has never dealt with celiac issues and who (seemingly) would rather go by what they can find out without our input. We could not even get a 504 out of them. The best we got was an iep at the start of the first year. I am going to go as far as I need to to help our son succeed in school as we all know that any accident can be prevented and it does affect how our children learn when they get mouth ulcers, skin lesions, and stomach pain with diarrea. Well, that said, I thank all of you for reading this and understanding how I feel. Just wish I could get others in our area to help back this meager effort of mine. GOD bless you all in your efforts. Lauretta, mother of adopted 5 yo celiac

While reading the posts titled Re: accomodation in restaurants/ was Celiac vs IBS article in Self

and comments like this

" Outback Steakhouse has a well-researched GF menu. We have eaten in 8 different Outbacks in our travels. In the less half of them did our server actually know what " gluten-free " meant. Yes, the company took the time *and money* to develop the menu, but I don't see them spending their money to keep up with staff education. "

it occurred to me, once again, that general awareness of Celiac is so important. There are other diseases out there that affect many less people but most of us are aware of the disease (for example, sickel cell anemia. I know it primarily affects african-americans. It is hereditary and causes pain.) If the general public knew the basics of celiac (person follows gluten-free diet, can get immediate or long-term reactions from gluten) it would probably be alot easier to get sincere cooperation from restaurants, school cafeterias, and even our own families! : )

[Guest guest]

I appreciate your 2 cents! I have taken into consideration everything that is said on here on this topic. It is very important for me as I do not know what it feels like to have this intolerance, but, the little guy I simply adore cannot suffer any more than he has to. Thank you and God bless. Lauretta

My 2-cents, so delete now if uninterested..........I'm going to give it anyway.

Lauretta - you commented that you " hoped that the individual health plan......can be revised " . It absolutely can if you want it to be. It's your child, so you

can make sure the school has every and all information you want it to have/it needs to keep your child healthy. I assume you have a copy of it, so review it, revise it & call whatever meeting you need to to get it updated to your liking, and allowing for the accommodations your child needs. This does not have to be an " ugly " process, but you do have to be sure that the school does what it needs to. If there is a plan in place to keep your child from getting contaminated/sick, then he won't be sick & missing so much school.

My son w/Celiac also has Down Syndrome, so the Celiac accommodations are already put into his IEP. But, that doesn't mean I don't stay in constant contact with his teachers about it too. I also have 2 other children that are peanut & tree nut allergic, so it is imperative that I communicate with the schools' administrators as well as the teachers, because they don't want one of my children to die at school either. The more help I offer, while supplying information, the more it seems that the staff appreciates it & I feel they then listen better/more to what I'm saying. My mom & both my in-laws are teachers, so I appreciate what is on their plate already - everyday - so when I am addressing one of my kiddos teachers I express my understanding of their situation, and brainstorm with them on what I can do to make it easiest for them to keep my children safe & healthy. It seems that doing this on the front-end, within the first couple days of school, gets everyone on the right track from the beginning, and if they have questions they know they can call or email me. I also very casually, in conversation, " quiz " my son(s) about what is/isn't happening on a daily basis, so I know what I need to follow-up on with the school.

Ok, sorry so long, but I just don't think that any school should make you feel like they are in charge & you're not, especially if you're offering education, help & support.

Thanks to anyone who has actually read this whole thing-

(sorry to the digest readers, but I couldn't delete off the previous posts - must be the new Yahoo format or something)

Re: general awareness

My sentiments exactly. Why does it have to be so hard for a child to go to school and blend in with all the other medically issued. Thank you for sharing. We have a school that has never dealt with celiac issues and who (seemingly) would rather go by what they can find out without our input. We could not even get a 504 out of them. The best we got was an iep at the start of the first year. I am going to go as far as I need to to help our son succeed in school as we all know that any accident can be prevented and it does affect how our children learn when they get mouth ulcers, skin lesions, and stomach pain with diarrea. Well, that said, I thank all of you for reading this and understanding how I feel. Just wish I could get others in our area to help back this meager effort of mine. GOD bless you all in your efforts. Lauretta, mother of adopted 5 yo celiac

While reading the posts titled Re: accomodation in restaurants/ was Celiac vs IBS article in Self

and comments like this

" Outback Steakhouse has a well-researched GF menu. We have eaten in 8 different Outbacks in our travels. In the less half of them did our server actually know what " gluten-free " meant. Yes, the company took the time *and money* to develop the menu, but I don't see them spending their money to keep up with staff education. "

it occurred to me, once again, that general awareness of Celiac is so important. There are other diseases out there that affect many less people but most of us are aware of the disease (for example, sickel cell anemia. I know it primarily affects african-americans. It is hereditary and causes pain.) If the general public knew the basics of celiac (person follows gluten-free diet, can get immediate or long-term reactions from gluten) it would probably be alot easier to get sincere cooperation from restaurants, school cafeterias, and even our own families! : )