Re: new to the KGD

August 3, 2004

,

Matt went off his food totally but as the diet went on his appetite came

back.Hope this helps.It is really hard in the beginning but it does get better,

Nicola

August 3, 2004

,

Matt went off his food totally but as the diet went on his appetite came

back.Hope this helps.It is really hard in the beginning but it does get better,

Nicola

August 3, 2004

,

Matt went off his food totally but as the diet went on his appetite came

back.Hope this helps.It is really hard in the beginning but it does get better,

Nicola

August 3, 2004

,

Welcome, you've found a wonderful group of people here, my daughter

recently went on the keto diet as of May 1st, so I'm still getting lots

of info from this group, there are some very well informed parents on

here. we went through the non eating phase and still do with Stella

(who is 5) I definitley think it is the high keytones, I know if stella

has a bad day and doesn't eat due to lots of seizues, her keytones go

way up, and then she flat out refuses to eat. Try getting fluids in

him lots of h20. What ratio is he on? And do you have a glucometer at

home to check his blood sugar levels, if so where is he? sometimes

I've seen Stella pretty out of it and won't eat due to being

hyperglycemic.

Make smoothies so he can drink them and they will be a complete meal so

even if he gets something in him it's better than nothing. Or the

cheesecake dish, it's pretty sweet if you use the stevia, or other

alternative sugar, the kids seem to enjoy that. Stella likes it when I

freeze the whipped cream with protein powder and either coconut oil

(she now gets MCT oil so I use that) with a little fruit mixed in or

bakers chocolate. When she's feeling bad that's a good one to make too.

Best of luck to you

amanda-mom to stella, age 5, started keto diet May 10th, still waiting

on her miracle. Weaned diazepam, and starting the long process of

weaning lamictal (nasty process). Also on diamox, failed 11 meds and

now thinking of VNS surgery. Also,Anisa who is normal and healthy,

other than going through the preteen years.

> Hi to everyone-

> I just want to take a minute and introduce my self. I have a two

> year old soon, who was just started on the diet last Tuesday. We

> have had a pretty rocky start, but I am already seeing a vast

> improvement in his seizures. I am very commited to making this work

> for him. He has several different types of generalized seizures

> that, until last week, wiped him out. He was sleeping all the time.

> We have been through 5 different meds, and he has tollerated them

> very poorly, so the doc's and I agreed that something else must be

> done. He was admitted fort he initionation period, which was suppose

> to be 3 days. I had started motifing his diet a bit, cutting out the

> big carbs (bread, pasta, fruit juice) but other than he was eatting

> normal on the sunday befor he was admitted. We we got in the an he

> was already in ketosis (4+). He was very sick, throwing up and

> lethargic the first two days of his admit. Then his doc decided he

> was in to deep of ketosis so he had an IV with a little gloucose and

> fluids in it. He got some better, but still has not perked up, and I

> am really struggling to get him to eat...he just has no appitite.

> Does anyone have any suggestions on how to incourage him to eat?

> Well that is our story (short version). I would apperciate all the

> advise I ccan get. Thanks for letting me join your group.

>

> " The Ketogenic Diet....a realistic treatment option, NOT just a last

> resort! "

>

> List is for parent to parent support only.

> It is important to get medical advice from a

> professional keto team!

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August 3, 2004