Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Dear Gloria, I'm very sorry for your pain ad frustration. I understand it, and know it's horrible. I wish you well in uncovering the mysteries that your gut is riddling you with. You'll get many fine answers from this group - please look into them, you'll get better diagnosis here than you'll get in any ER I'll wager. Aside from pancreatitis, (which is definitely one thing that could explain your pain and symptoms), please also do some reading about Gastroparesis and see if perhaps that might be something that could be plaguing you as well. When you say " bloating " , do you also suffer abdominal distention that feels extraordinarily unnatural and last for days, weeks at a time sometimes? Please try to hang in there, there is hope and with good medical care, you can get better and at least manage the pain and the very uncomfortable side effects of that which ails you. So far there's no " easy " cure for CP or Gastroparesis, but to some degree they are manageable, though it's definitely not a picnic - pardon the " food " reference. Haha. Good luck to you Gloria, Peace, Terry in KC << Hello. My name is Gloria and I am 38 years old. I believe I have posted here quite awhile ago. I guess I am now at the end of my rope. For over three years now I have been getting these " attacks " . It usually is during the night and starts as a dull ache right between the ribs where my stomach is. The ache quickly turns into excruciating pain with sweats, nausea and vomitting which then leads to severe chills. These attacks would last anywhere from one to about three hours. Lately the attacks last the same, but I have milder pain for about a day afterward. The pain, again, is beyond belief. I cannot go to hospital during these attacks, because I cannot get off the bathroom floor. Anyway, I have been tested for gall bladder.......hide a scan, and some blood work and several abdominal ultrasounds. I have been seeing a gi doc because I also suffer from GERD and have had two endocinch procedures. I, as well as the docs, feel that the two things are unrelated. I suppose I am asking if these symptoms are close to pancreatitis, and are there any tests I should be asking for? I also suffer from gas and bloating. Any help would be appreciated. Gloria O'Hara >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Dear Gloria, For one I would like to say " Welcome " . Also, I love your name. My oldest sisters name is Gloria Anne. Anyways.......... I am not sure what is causing your pain but, is it sooo simular to mine. I am suffering pancreatitis right now and it is awful but, I am told it can get worse. I wouldn't doubt that it is pancreatitis but...... it is hard to tell. I hope you get better and find out what is going on. I will pray for you. Take care hun. HUGS, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Hello. My name is Gloria and I am 38 years old. I believe I have posted here quite awhile ago. I guess I am now at the end of my rope. For over three years now I have been getting these " attacks " . It usually is during the night and starts as a dull ache right between the ribs where my stomach is. The ache quickly turns into excruciating pain with sweats, nausea and vomitting which then leads to severe chills. These attacks would last anywhere from one to about three hours. Lately the attacks last the same, but I have milder pain for about a day afterward. The pain, again, is beyond belief. I cannot go to hospital during these attacks, because I cannot get off the bathroom floor. Anyway, I have been tested for gall bladder.......hide a scan, and some blood work and several abdominal ultrasounds. I have been seeing a gi doc because I also suffer from GERD and have had two endocinch procedures. I, as well as the docs, feel that the two things are unrelated. I suppose I am asking if these symptoms are close to pancreatitis, and are there any tests I should be asking for? I also suffer from gas and bloating. Any help would be appreciated. Gloria O'Hara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Chronic pancreatitis is an inflammatory disease in which progressive and irreversible structural changes to the pancreas result in a permanent impairment of both the exocrine and endocrine functions. As the pancreas become progressively more scarred, some persons develop diabetes and/or the inability to digest foods, especially fats. Because of the lack of normal pancreatic enzymes, digestion of food and the production of wastes are adversely affected. Abdominal pain is common, especially after eating. Stools become bulky, greasy, foul smelling and tend to float in the water because of their high fat content - a condition known as steatorrhea. The formation of stones in the pancreas is also common. The treatment of chronic pancreatitis depends on 4 factors: the cause of the pancreatitis, the portion of the pancreas involved, the presence or absence os symptoms, and the size of the pancreatic duct. When symptoms are mild or absent ( " silent pancreatitis " ) no treatment is indicated. For persons with disabling symptoms, however, treatment is indicated. Treatment may consist of medications and possibly surgery. The pancreas is a long, slender organ in the upper abdomen. The exocrine area of the pancreas produces digestive juices and the endocrine area makes hormones, such as insulin, that regulate how the body stores and uses food. Both functions are impaired by chronic pancreatitis, an inflammatory disease that causes progressive, irreversible structural changes. Some persons develop diabetes and/or become unable to digest foods, especially fats. The lack of normal pancreatic enzymes adversely affects digestion and waste production. Abdominal pain is common, especially after eating. This illness can make stool bulky, fatty and odiferous (that's " steatorrhea " ), and can cause stones to form in the pancreas. In some 70% to 80% of cases, alcoholism is a factor, but other causes can include duct obstruction, nutritional factors and genetic abnormalities. About 30% of cases have no known cause. Symptoms include severe abdominal pain, weight loss and steatorrhea. When symptoms are mild, no treatment is indicated. When needed, treatment focuses on pain control, relieving duct obstruction, correcting digestive problems, and detecting and managing complications. The choice of treatment for you or for the patient you care about, depends on the cause, the portion of the organ involved, symptoms and duct size. This illness requires individual diagnosis and treatment. Not all patients respond to the same therapy. Treatment may consist of medications and, possibly, surgery. The Journal of Gastrointestinal Surgery reports that surgery for chronic pancreatitis " can be performed safely with minimal morbidity and excellent long-term survival. " Mark E. Armstrong www.top5plus5.com Oregon State Chapter Rep Pancreatitis Association, International New and long....sorry > Hello. My name is Gloria and I am 38 years old. I believe I have > posted here quite awhile ago. I guess I am now at the end of my > rope. For over three years now I have been getting these " attacks " . > It usually is during the night and starts as a dull ache right > between the ribs where my stomach is. The ache quickly turns into > excruciating pain with sweats, nausea and vomitting which then leads > to severe chills. These attacks would last anywhere from one to > about three hours. Lately the attacks last the same, but I have > milder pain for about a day afterward. The pain, again, is beyond > belief. I cannot go to hospital during these attacks, because I > cannot get off the bathroom floor. > Anyway, I have been tested for gall bladder.......hide a scan, and > some blood work and several abdominal ultrasounds. I have been > seeing a gi doc because I also suffer from GERD and have had two > endocinch procedures. I, as well as the docs, feel that the two > things are unrelated. I suppose I am asking if these symptoms are > close to pancreatitis, and are there any tests I should be asking > for? I also suffer from gas and bloating. Any help would be > appreciated. Gloria O'Hara > > > > PANCREATITIS Association, Intl. > Online e-mail group > > To reply to this message hit " reply " or send an e-mail to: Pancreatitis (AT) Yahoo > > To subscribe to this e-mail group, simply send an e-mail to: Pancreatitis-subscribe (AT) Yahoo > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 INTRODUCTION Background: Pancreatitis is an inflammatory process in which pancreatic enzymes autodigest the gland. The gland can sometimes heal without any impairment of function or any morphologic changes. This process is known as acute pancreatitis. It can recur intermittently, contributing to the functional and morphologic loss of the gland. Recurrent attacks are referred to as chronic pancreatitis. Both forms of pancreatitis are present in the ED with acute clinical findings. Pathophysiology: Because the pancreas is located in the retroperitoneal space with no capsule, inflammation can spread easily. In acute pancreatitis, parenchymal edema and peripancreatic fat necrosis occur first. This process is known as acute edematous pancreatitis. When necrosis involves the parenchyma, accompanied by hemorrhage and dysfunction of the gland, the inflammation evolves into hemorrhagic or necrotizing pancreatitis. Pseudocysts and pancreatic abscesses can result from necrotizing pancreatitis because of enzymes being walled off by granulation tissue (ie, pseudocyst formation) or bacterial seeding of pancreatic or peripancreatic tissue (ie, pancreatic abscess formation). An ultrasound or, preferably, a CT scan can be used detect both. The inflammatory process can cause systemic effects because of the presence of cytokines, such as bradykinins and phospholipase A. These cytokines may cause vasodilation, increase in vascular permeability, pain, and leukocyte accumulation in the vessel walls. Fat necrosis may cause hypocalcemia. Pancreatic B cell injury may lead to hyperglycemia. Frequency: In the US: Annual incidence of acute pancreatitis is 19.5 per 100,000 population and chronic pancreatitis is 8.3 per 100,000 population per year. Mortality/Morbidity: Although acute pancreatitis should be noted, chronic pancreatitis has a more severe presentation as episodes recur. Acute respiratory distress syndrome (ARDS), acute renal failure, cardiac depression, hemorrhage, and hypotensive shock all may be systemic manifestations of acute pancreatitis in its most severe form. Race: Annual incidence of acute pancreatitis in Native American persons is 4 per 100,000 population, in white persons is 5.7 per 100,000 population, and in black persons is 20.7 per 100,000 population. Sex: No predilection exists. Age: The risk for African American persons aged 35-64 years is 10 times higher than for any other group. African American persons are at higher risk than white persons in that same age group. Clinical History: The main presentation of acute pancreatitis is epigastric pain or right upper quadrant pain radiating to the back Nausea and/or vomiting Fever Query the patient about recent surgeries and invasive procedures (ie, endoscopic retrograde cholangiopancreatography) or family history of hypertriglyceridemia. Patients frequently have a history of previous biliary colic and binge alcohol consumption, the major causes of acute pancreatitis. Physical: Tachycardia Tachypnea Hypotension Fever Abdominal tenderness, distension, guarding, and rigidity Mild jaundice Diminished or absent bowel sounds Because of contiguous spread of inflammation (effusion) from the pancreas, lung auscultation may reveal basilar rales, especially in the left lung. Occasionally, in the extremities, muscular spasm may be noted secondary to hypocalcemia. Severe cases may have a Grey sign (ie, bluish discoloration of the flanks) and Cullen sign (ie, bluish discoloration of the periumbilical area) caused by the retroperitoneal leak of blood from the pancreas in hemorrhagic pancreatitis. Causes: The major causes are long-standing alcohol consumption and biliary stone disease. In developed countries, the most common cause of acute pancreatitis is alcohol abuse. On the cellular level, ethanol leads to intracellular accumulation of digestive enzymes and their premature activation and release. On the ductal level, ethanol increases the permeability of ductules, which allow enzymes to reach the parenchyma, resulting in pancreatic damage. Ethanol increases the protein content of the pancreatic juice and decreases bicarbonate levels and trypsin inhibitor concentrations. This leads to the formation of protein plugs that block the pancreatic outflow and obstruction. Another major cause of acute pancreatitis is biliary stone disease (eg, cholelithiasis, choledocholithiasis). A biliary stone may lodge in the pancreatic duct or ampulla of Vater and obstruct the pancreatic duct, leading to extravasation of enzymes into the parenchyma. Minor causes of acute pancreatitis Medications, including azathioprine, corticosteroids, sulfonamides, thiazides, furosemides, NSAIDs, mercaptopurine, methyldopa, and tetracyclines Endoscopic retrograde cholangiopancreatography (ERCP) Hypertriglyceridemia (When the triglyceride (TG) level exceeds 1000 mg/U, an episode of pancreatitis is more likely.) Peptic ulcer disease Abdominal or cardiopulmonary bypass surgery, which may insult the gland by ischemia Trauma to the abdomen or back, resulting in sudden compression of the gland against the spine posteriorly Carcinoma of the pancreas, which may lead to pancreatic outflow obstruction Viral infections, including mumps, sackievirus, cytomegalovirus (CMV), hepatitis virus, Epstein-Barr virus (EBV), and rubella Bacterial infections, such as mycoplasma Intestinal parasites, such as ascaris, which can block the pancreatic outflow Pancreas divisum Scorpion and snake bites Vascular factors, such as ischemia or vasculitis DIFFERENTIALS Other Problems to be Considered: Perforated viscus Acute peritonitis Choledocholithiasis Macroamylasemia Macrolipasemia Intestinal obstruction Pancreatic cancer Malabsorption syndromes/processes Workup Lab Studies: A complete blood count (CBC) demonstrates leukocytosis (WBC >12000) with the differential being shifted towards the segmented polymorphs. If blood transfusion is necessary, as in cases of hemorrhagic pancreatitis, obtain type and crossmatch. Measure blood glucose level because it may be elevated from B cell injury in the pancreas. Obtain measurements for BUN, creatine (Cr), and electrolytes (Na, K, Cl, CO2, P, Mg); a great disturbance in the electrolyte balance is usually found, secondary to third spacing of fluids. Measure amylase levels, preferably the Amylase P, which is more specific to pancreatic pathology. Levels more than 3 times higher than normal strongly suggest the diagnosis of acute pancreatitis Lipase levels also are elevated and remain high for 12 days. In patients with chronic pancreatitis (usually caused by alcohol abuse), lipase may be elevated in the presence of a normal serum amylase level Perform liver function tests (eg, alkaline phosphatase, serum glutamic-pyruvic transaminase [sGPT], serum glutamic-oxaloacetic transaminase [sGOT], G-GT) and bilirubin, particularly with biliary origin pancreatitis. Imaging Studies: Perform a plain KUB (Kidneys, ureters, bladder) with the patient in the upright position to exclude viscus perforation (ie, air under the diaphragm). In cases with a recurrent episode of chronic pancreatitis, peripancreatic calcifications may be noted Ultrasound can be used as a screening test. If overlying gas shadows secondary to bowel distention are present, it may not be specific CT scan is the most reliable imaging modality in the diagnosis of acute pancreatitis. The criteria for diagnosis are divided by Balthazar and colleagues into 5 grades, as follows: Grade A - Normal pancreas Grade B - Focal or diffuse gland enlargement Grade C - Intrinsic gland abnormality recognized by haziness on the scan Grade D - Single ill-defined collection or phlegmon Grade E - Two or more ill-defined collections or the presence of gas in or nearby the pancreas Other Tests: Para-aminobenzoic acid test (ie, bentiromide [Chymex] test) for chronic pancreatitis Treatment Emergency Department Care: Most of the cases presenting to the ED are treated conservatively, and approximately 80% respond to such treatment. Fluid resuscitation Monitor accurate intake/output and electrolyte balance of the patient. Crystalloids are used, but other infusions, such as packed red blood cells (PRBCs), are occasionally administered, particularly in the case of hemorrhagic pancreatitis. Central lines and Swan-Ganz catheters are used in patients with severe fluid loss and very low blood pressure. Patients should have nothing by mouth, and a nasogastric tube should be inserted to assure an empty stomach and to keep the GI system at rest. Begin parenteral nutrition if the prognosis is poor and if the patient is going to be kept in the hospital for more than 4 days. Analgesics are used to relieve pain. Meperidine is preferred over morphine because of the greater spastic effect of the latter on the sphincter of Oddi. Antibiotics are used in severe cases associated with septic shock or when the CT scan indicates that a phlegmon of the pancreas has evolved. Other conditions, such as biliary pancreatitis associated with cholangitis, also need antibiotic coverage. The preferred antibiotics are the ones secreted by the biliary system, such as ampicillin and third generation cephalosporins. Continuous oxygen saturation should be monitored by pulse oxymetry and acidosis should be corrected. When tachypnea and pending respiratory failure develops, intubation should be performed. Perform CT-guided aspiration of necrotic areas, if necessary. An ERCP may be indicated for common duct stone removal. Consultations: Consult a general surgeon in the following cases: For phlegmon of the pancreas, surgery can achieve drainage of any abscess or scooping of necrotic pancreatic tissue. It should be followed by postoperative lavage of the pancreatic bed. In patients with hemorrhagic pancreatitis, surgery is indicated to achieve hemostasis, particularly because major vessels may be eroded in acute pancreatitis. Patients who fail to improve despite optimal medical treatment or patients who push the Ranson score even further are taken to the operating room. Surgery in these cases may lead to a better outcome or confirm a different diagnosis. In biliary pancreatitis, a sphincterotomy (ie, surgical emptying of the common bile duct) can relieve the obstruction. A cholecystectomy may be performed to clear the system from any source of biliary stones. Medications The goal of pharmacotherapy is to relieve pain and minimize complications. Drug Category: Antibiotics - Used to cover the microorganisms that may grow in biliary pancreatitis and acute necrotizing pancreatitis. The empiric antibiotic regimen usually is based on the premise that enteric anaerobic and aerobic gram-bacilli microorganisms are often the cause of pancreatic infections. Once culture sensitivities are made, adjustments in the antibiotic regimen can be done. Drug Name Ceftriaxone (Rocephin)- Third-generation cephalosporin with broad-spectrum gram-negative activity; lower efficacy against gram-positive organisms; higher efficacy against resistant organisms. Arrests bacterial growth by binding to one or more penicillin binding proteins. Adult Dose 1-2 g IM/IV once or divided bid Pediatric Dose 50-75 mg/kg/d IM/IV divided q12h Contraindications Documented hypersensitivity Interactions Probenecid may increase levels; coadministration with ethacrynic acid, furosemide, and aminoglycosides may increase nephrotoxicity Pregnancy B - Usually safe but benefits must outweigh the risks. Precautions Adjust dose in renal impairment; caution in breastfeeding women and allergy to penicillin Drug Name Ampicillin (Marcillin, Omnipen)- Bactericidal activity against susceptible organisms. Alternative to amoxicillin when unable to take medication orally. Adult Dose 250-500 IM/IV mg q6h Pediatric Dose 25-50 mg/kg/d IM/IV divided q6-8h Contraindications Documented hypersensitivity; viral mononucleosis Interactions Probenecid and disulfiram elevate levels; allopurinol decreases effects and has additive effects on ampicillin rash; may decrease effects of oral contraceptives Pregnancy B - Usually safe but benefits must outweigh the risks. Precautions Adjust dose in renal failure; evaluate rash and differentiate from hypersensitivity reaction Drug Category: Analgesics - Pain control is essential to quality patient care. It ensures patient comfort, promotes pulmonary toilet, and has sedating properties, which are beneficial for patients who have sustained trauma or have painful lesions. Drug Name Meperidine (Demerol)- Analgesic with multiple actions similar to those of morphine. May produce less constipation, smooth muscle spasm, and depression of cough reflex than similar analgesic doses of morphine. Adult Dose 15-35 mg/h IV; 50-150 mg IM q3-4h Pediatric Dose 1.1-1.8 mg/kg IM q3-4h Contraindications Documented hypersensitivity; MAOIs; upper airway obstruction or significant respiratory depression; during labor when delivery of premature infant is anticipated Interactions Monitor for increased respiratory and CNS depression with coadministration of cimetidine; hydantoins may decrease effects; avoid with protease inhibitors Pregnancy C - Safety for use during pregnancy has not been established. Precautions Caution in head injuries because may increase respiratory depression and CSF pressure (use only if absolutely necessary); caution when using postoperatively and with history of pulmonary disease (suppresses cough reflex; substantially increased dose levels may aggravate or cause seizures because of tolerance, even if no prior history of convulsive disorders; monitor closely for morphine-induced seizure activity if seizure history exists Drug Category: Antibiotics - Used to cover the microorganisms that may grow in biliary pancreatitis and acute necrotizing pancreatitis. The empiric antibiotic regimen usually is based on the premise that enteric anaerobic and aerobic gram-bacilli microorganisms are often the cause of pancreatic infections. Once culture sensitivities are made, adjustments in the antibiotic regimen can be done. Drug Category: Analgesics - Pain control is essential to quality patient care. It ensures patient comfort, promotes pulmonary toilet, and has sedating properties, which are beneficial for patients who have sustained trauma or have painful lesions. Followup Further Inpatient Care: Transfer patients with Ranson scores of 0-2 to a hospital floor. Transfer patients with Ranson scores 3-5 to an intensive care unit. Transfer patients with Ranson scores higher than 5 to an intensive care unit with emergency surgery as a possibility. Further Outpatient Care: The patient should be followed routinely with physical examination and amylase and lipase assays. Complications: Infected pancreatic necrosis may result from seeding of bacteria into the inflammation. An acute pseudocyst is an effusion of pancreatic juice that is walled off by granulation tissue after an episode of acute pancreatitis. Hemorrhage into the GI tract retroperitoneum or the peritoneal cavity is possible because of erosion of large vessels. Intestinal obstruction or necrosis may occur. Common bile duct obstruction may be caused by a pancreatic abscess, pseudocyst, or biliary stone that caused the pancreatitis. An internal pancreatic fistula from pancreatic duct disruption or a leaking pancreatic pseudocyst may occur. Prognosis: Ranson developed a series of different criteria for the severity of acute pancreatitis. Present on admission Older than 55 years WBC higher than 16,000 per mcL Blood glucose higher than 200 mg/dL Serum lactate dehydrogenase (LDH) more than 350 IU/L SGOT (ie, aspartate aminotransferase [AST]) greater than 250 IU/L Developing during the first 48 hours Hematocrit fall more than 10% BUN increase more than 8 mg/dL Serum calcium less than 8 mg/dL Arterial oxygen saturation less than 60 mm Hg Base deficit higher than 4 mEq/L Estimated fluid sequestration higher than 600 mL A Ranson score of 0-2 has a minimal mortality rate. A Ranson score of 3-5 has a 10%-20% mortality rate. A Ranson score higher than 5 has a mortality rate of more than 50% and is associated with more systemic complications. Patient Education: Educate patients about the disease and advise then to avoid alcohol in binge amounts and to discontinue any risk factor, such as fatty meals and abdominal trauma. I hope this finds you and yours well Mark E. Armstrong www.top5plus5.com Oregon State Chapter Rep Pancreatitis Association, International New and long....sorry > Hello. My name is Gloria and I am 38 years old. I believe I have > posted here quite awhile ago. I guess I am now at the end of my > rope. For over three years now I have been getting these " attacks " . > It usually is during the night and starts as a dull ache right > between the ribs where my stomach is. The ache quickly turns into > excruciating pain with sweats, nausea and vomitting which then leads > to severe chills. These attacks would last anywhere from one to > about three hours. Lately the attacks last the same, but I have > milder pain for about a day afterward. The pain, again, is beyond > belief. I cannot go to hospital during these attacks, because I > cannot get off the bathroom floor. > Anyway, I have been tested for gall bladder.......hide a scan, and > some blood work and several abdominal ultrasounds. I have been > seeing a gi doc because I also suffer from GERD and have had two > endocinch procedures. I, as well as the docs, feel that the two > things are unrelated. I suppose I am asking if these symptoms are > close to pancreatitis, and are there any tests I should be asking > for? I also suffer from gas and bloating. Any help would be > appreciated. Gloria O'Hara > > > > PANCREATITIS Association, Intl. > Online e-mail group > > To reply to this message hit " reply " or send an e-mail to: Pancreatitis (AT) Yahoo > > To subscribe to this e-mail group, simply send an e-mail to: Pancreatitis-subscribe (AT) Yahoo > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Dear Gloria I am sorry you have been so sick! It sure sounds like something with the pancreas to me. What you describe sounds like the sphincter of Oddi spasms! While you might not have pancreatitis yet, the two are two different problems, if it is sphincter of Oddi, you will wind up with pancreatitis if they don't treat it. I have chronic pancreatitis caused by sphincter of Oddi dysfunction (SOD) and it took 14 years to be diagnosed! This needs to be brought to the attention of your doc immediately. These spasms have a pain that is absolutely unbelievable! I call it the " pain from the sky " with no awarning, etc. etc. it just happens. I am glad you have posted because there are lots and lots of folks on here who can give you some advice as to where to go from here. Take care Kaye In pancreatitis@y..., " gloriaohara " wrote: > Hello. My name is Gloria and I am 38 years old. I believe I have > posted here quite awhile ago. I guess I am now at the end of my > rope. For over three years now I have been getting these " attacks " . > It usually is during the night and starts as a dull ache right > between the ribs where my stomach is. The ache quickly turns into > excruciating pain with sweats, nausea and vomitting which then leads > to severe chills. These attacks would last anywhere from one to > about three hours. Lately the attacks last the same, but I have > milder pain for about a day afterward. The pain, again, is beyond > belief. I cannot go to hospital during these attacks, because I > cannot get off the bathroom floor. > Anyway, I have been tested for gall bladder.......hide a scan, and > some blood work and several abdominal ultrasounds. I have been > seeing a gi doc because I also suffer from GERD and have had two > endocinch procedures. I, as well as the docs, feel that the two > things are unrelated. I suppose I am asking if these symptoms are > close to pancreatitis, and are there any tests I should be asking > for? I also suffer from gas and bloating. Any help would be > appreciated. Gloria O'Hara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Kaye, What did they do to treat your sphincter of oddi dysfunction (SOD)? I have read a lot about it (at the suggestion of some on the board) and it really sounds like my problem. The God awful pain that comes from nowhere and is unlike any other pain. My is under my right rib (where I think my gallbladder used to be). I've only had one attack of acute panc in Jan 2000 (diagnosed by lab work), but I've had tons of others that sure felt like it. I've had 3 ERCPs and 2 sphincterotomies. For the most part I had nothing but occasional mild, nagging pain from Nov 2000 to Oct 2001. Since Oct 2001, I've had about 8-10 attacks but I haven't gone to the hospital with any. I've also begun having an increase in the lingering, naggy, sort of pain in between the attacks. I'm debating on whether to go back to my GI (he's 100 miles away) or just keep ignoring it and hope it goes away once again. In a message dated 3/20/02 1:39:25 PM Central Standard Time, kfortenb@... writes: > Dear Gloria > > I am sorry you have been so sick! It sure sounds like something with > the pancreas to me. What you describe sounds like the sphincter of > Oddi spasms! While you might not have pancreatitis yet, the two are > two different problems, if it is sphincter of Oddi, you will wind up > with pancreatitis if they don't treat it. I have chronic > pancreatitis caused by sphincter of Oddi dysfunction (SOD) and it > took 14 years to be diagnosed! This needs to be brought to the > attention of your doc immediately. These spasms have a pain that is > absolutely unbelievable! I call it the " pain from the sky " with no > awarning, etc. etc. it just happens. > > I am glad you have posted because there are lots and lots of folks on > here who can give you some advice as to where to go from here. > > Take care > > Kaye > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 > Dear Gloria, > > I'm very sorry for your pain ad frustration. I understand it, and know it's > horrible. I wish you well in uncovering the mysteries that your gut is > riddling you with. > > You'll get many fine answers from this group - please look into them, you'll > get better diagnosis here than you'll get in any ER I'll wager. Aside from > pancreatitis, (which is definitely one thing that could explain your pain and > symptoms), please also do some reading about Gastroparesis and see if perhaps > that might be something that could be plaguing you as well. When you say > " bloating " , do you also suffer abdominal distention that feels > extraordinarily unnatural and last for days, weeks at a time sometimes? > > Please try to hang in there, there is hope and with good medical care, you > can get better and at least manage the pain and the very uncomfortable side > effects of that which ails you. So far there's no " easy " cure for CP or > Gastroparesis, but to some degree they are manageable, though it's definitely > not a picnic - pardon the " food " reference. Haha. > > Good luck to you Gloria, > Peace, > Terry in KC > > In a message dated 3/20/02 9:57:10 AM, gloriaohara@h... writes: > > << Hello. My name is Gloria and I am 38 years old. I believe I have > posted here quite awhile ago. I guess I am now at the end of my > rope. For over three years now I have been getting these " attacks " . > It usually is during the night and starts as a dull ache right > between the ribs where my stomach is. The ache quickly turns into > excruciating pain with sweats, nausea and vomitting which then leads > to severe chills. These attacks would last anywhere from one to > about three hours. Lately the attacks last the same, but I have > milder pain for about a day afterward. The pain, again, is beyond > belief. I cannot go to hospital during these attacks, because I > cannot get off the bathroom floor. > Anyway, I have been tested for gall bladder.......hide a scan, and > some blood work and several abdominal ultrasounds. I have been > seeing a gi doc because I also suffer from GERD and have had two > endocinch procedures. I, as well as the docs, feel that the two > things are unrelated. I suppose I am asking if these symptoms are > close to pancreatitis, and are there any tests I should be asking > for? I also suffer from gas and bloating. Any help would be > appreciated. Gloria O'Hara >> Gloria: As far as GERD is concerned, I underwent Endo Cinch a year ago. It helped for jusyt five months. Rather than try it again, my GI doc advised me to have the full surgical procedure. I did just that on 11/08 and have been virtually reflux free ever since. It's so great to be able to lied down!! -E Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Hi Gloria, BOY !! You sound like me. My pain is very very similar to yours. I had my gallbladder out in June 2001 then I developed that pain in thre recovery room. They think that it is a spasm of the sphincter of Oddi. Apparently this can be a complication of the surgery or some people have that just because they are prone to it, not related to the GB at all. I know the pain that you speak of, it is unbearable. My doc told me that SOD ( spincter of oddi ) pain is like that in addition, pancreatic spasms can cause pain but that is more between your center ribs and the belly button. Only one definite way to dx this is thru a ERCP when they check the manometry pressure readings. And the ERCP presents with it;s own set of problems. How long have you had this ? Does anything give relief ? have you tried Levsin under the tongue when you have one of these attacks as I call them ? It has helped me. Lily New and long....sorry > Hello. My name is Gloria and I am 38 years old. I believe I have > posted here quite awhile ago. I guess I am now at the end of my > rope. For over three years now I have been getting these " attacks " . > It usually is during the night and starts as a dull ache right > between the ribs where my stomach is. The ache quickly turns into > excruciating pain with sweats, nausea and vomitting which then leads > to severe chills. These attacks would last anywhere from one to > about three hours. Lately the attacks last the same, but I have > milder pain for about a day afterward. The pain, again, is beyond > belief. I cannot go to hospital during these attacks, because I > cannot get off the bathroom floor. > Anyway, I have been tested for gall bladder.......hide a scan, and > some blood work and several abdominal ultrasounds. I have been > seeing a gi doc because I also suffer from GERD and have had two > endocinch procedures. I, as well as the docs, feel that the two > things are unrelated. I suppose I am asking if these symptoms are > close to pancreatitis, and are there any tests I should be asking > for? I also suffer from gas and bloating. Any help would be > appreciated. Gloria O'Hara > > > > PANCREATITIS Association, Intl. > Online e-mail group > > To reply to this message hit " reply " or send an e-mail to: Pancreatitis (AT) Yahoo > > To subscribe to this e-mail group, simply send an e-mail to: Pancreatitis-subscribe (AT) Yahoo > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 All of the pain started about three and a half years ago. I was told to try nitroglycerin under the tongue but was told the side effect would be a migraine, and I suffer from those enough already. Also my doc gave me maxaalt and told me that these attacks were abdominal migraines........I knew they weren't and needless to say the meds did not work. So far the only thing to get relief from these attacks is time. The only way I get through one is that I know the worst of it will end eventually. I am just so tired of them. It is almost always during the middle of the night and I dread going to bed at times. Anyway, I really want to thank you all for your sweet replies. I have gotten some wonderful information from you. I just need to find a way to approach my doc so he will actually believe me or at least do some tests. Gloria .. How > long have you had this ? Does anything give relief ? have you tried Levsin > under the tongue when you have one of these attacks as I call them ? It has > helped me. > Lily > New and long....sorry > > > > Hello. My name is Gloria and I am 38 years old. I believe I have > > posted here quite awhile ago. I guess I am now at the end of my > > rope. For over three years now I have been getting these " attacks " . > > It usually is during the night and starts as a dull ache right > > between the ribs where my stomach is. The ache quickly turns into > > excruciating pain with sweats, nausea and vomitting which then leads > > to severe chills. These attacks would last anywhere from one to > > about three hours. Lately the attacks last the same, but I have > > milder pain for about a day afterward. The pain, again, is beyond > > belief. I cannot go to hospital during these attacks, because I > > cannot get off the bathroom floor. > > Anyway, I have been tested for gall bladder.......hide a scan, and > > some blood work and several abdominal ultrasounds. I have been > > seeing a gi doc because I also suffer from GERD and have had two > > endocinch procedures. I, as well as the docs, feel that the two > > things are unrelated. I suppose I am asking if these symptoms are > > close to pancreatitis, and are there any tests I should be asking > > for? I also suffer from gas and bloating. Any help would be > > appreciated. Gloria O'Hara > > > > > > > > PANCREATITIS Association, Intl. > > Online e-mail group > > > > To reply to this message hit " reply " or send an e-mail to: > Pancreatitis@Y... > > > > To subscribe to this e-mail group, simply send an e-mail to: > Pancreatitis-subscribe@Y... > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2002 Report Share Posted March 21, 2002 I think it would be easier to get a new doctor. Have you thought of that. ? What good is a doctor who doesnt listen to you? from Canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2002 Report Share Posted March 21, 2002 Gloria, I get my attacks at night as well or very early am when it is still dark. I found that if I eat fat it causes an attack almost 10 hours later so stay away from fat ! Tell your Doc that you want to try the Levsin under the tongue. The worst thing that will happen is that he will say no and you have lost nothing by asking. It does NOT cause headaches. I tried the nitro too, did nothing for me but the Levsin does. I don't think I could go without taking a Levsin during an attack. How do you do it, suffering thru one of those would be shear hell. I would rather have a cow then put up with an attack and no Levsin. Your a hero. Lily New and long....sorry > > > > > > > Hello. My name is Gloria and I am 38 years old. I believe I have > > > posted here quite awhile ago. I guess I am now at the end of my > > > rope. For over three years now I have been getting > these " attacks " . > > > It usually is during the night and starts as a dull ache right > > > between the ribs where my stomach is. The ache quickly turns into > > > excruciating pain with sweats, nausea and vomitting which then > leads > > > to severe chills. These attacks would last anywhere from one to > > > about three hours. Lately the attacks last the same, but I have > > > milder pain for about a day afterward. The pain, again, is beyond > > > belief. I cannot go to hospital during these attacks, because I > > > cannot get off the bathroom floor. > > > Anyway, I have been tested for gall bladder.......hide a scan, and > > > some blood work and several abdominal ultrasounds. I have been > > > seeing a gi doc because I also suffer from GERD and have had two > > > endocinch procedures. I, as well as the docs, feel that the two > > > things are unrelated. I suppose I am asking if these symptoms are > > > close to pancreatitis, and are there any tests I should be asking > > > for? I also suffer from gas and bloating. Any help would be > > > appreciated. Gloria O'Hara > > > > > > > > > > > > PANCREATITIS Association, Intl. > > > Online e-mail group > > > > > > To reply to this message hit " reply " or send an e-mail to: > > Pancreatitis@Y... > > > > > > To subscribe to this e-mail group, simply send an e-mail to: > > Pancreatitis-subscribe@Y... > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2002 Report Share Posted March 24, 2002 Louie, Thanks for the advice. I saw my surgeon for my 3 months post-op visit on Thursday. I had a roux-en-y gastric bypass (for weight loss) in December. He told me if I keep having problems to let him know and he will set up an MRCP. He said I can never have a regular ERCP again because of the gastric bypass. He said my stomach is now closed off and you can't get to the pancreas by going down my throat anymore. He said they would have to go in laparscopically and insert the camera through a small incision. I told him my theory that I have sphincter of oddi dsyfunction and that the pain is caused from the spasms. I told him I don't think it has gotten bad enough yet to actually cause a full blown attack of pancreatitis. He said SOD does sound like a definite possibility and that was when he told me if the episodes continue he will schedule an MRCP. I had two episodes this weekend - one Friday night and one Saturday night. They lasted a lot longer this time, but never got to the highest level of pain. The other ones lasted only 20 minutes but the pain had to be a 9 or 10. These episodes lasted about an hour or so each. The pain would wax and wane and ranged from about a 4 to an 8. Both of these episodes produced pain in the center of my abdomen (which I've never had before) along with the pain under my right rib and through to my back. I haven't seen my GI since about Feb 01. I will call my surgeon Monday and see about setting up the MRCP. An ultrasound I had in March 2000 (2 months after the first attack) showed my bile duct was dilated at 5 mm. I don't recall what the bile duct should be so I'm not sure if 5 mm is that much above normal. In a message dated 3/24/02 6:07:55 PM Central Standard Time, Ehall@... writes: > , > Since you have had so many attacks and the pain is now more lingering, I > think you should consult with you your GI doc, even if it's only by phone > since you are so far away and see ehat he has to say. They may need to see > you since you have had so many attacks and the pain is becoming more & more > lingering. Even if you don't want to go see him since he is so far away, > maybe he could give you some info and what's going on over the phone. It's > worth a try. > Take Care, > Louie in WV > Re: Re: New and long....sorry > > > Kaye, > What did they do to treat your sphincter of oddi dysfunction (SOD)? I > have > read a lot about it (at the suggestion of some on the board) and it > really > sounds like my problem. The God awful pain that comes from nowhere and > is > unlike any other pain. My is under my right rib (where I think my > gallbladder used to be). I've only had one attack of acute panc in Jan > 2000 > (diagnosed by lab work), but I've had tons of others that sure felt like > it. > I've had 3 ERCPs and 2 sphincterotomies. For the most part I had nothing > but > occasional mild, nagging pain from Nov 2000 to Oct 2001. Since Oct 2001, > > I've had about 8-10 attacks but I haven't gone to the hospital with any. > > I've also begun having an increase in the lingering, naggy, sort of pain > in > between the attacks. I'm debating on whether to go back to my GI (he's > 100 > miles away) or just keep ignoring it and hope it goes away once again. > > > > > In a message dated 3/20/02 1:39:25 PM Central Standard Time, > kfortenb@... writes: > > > > Dear Gloria > > > > I am sorry you have been so sick! It sure sounds like something with > > the pancreas to me. What you describe sounds like the sphincter of > > Oddi spasms! While you might not have pancreatitis yet, the two are > > two different problems, if it is sphincter of Oddi, you will wind up > > with pancreatitis if they don't treat it. I have chronic > > pancreatitis caused by sphincter of Oddi dysfunction (SOD) and it > > took 14 years to be diagnosed! This needs to be brought to the > > attention of your doc immediately. These spasms have a pain that is > > absolutely unbelievable! I call it the " pain from the sky " with no > > awarning, etc. etc. it just happens. > > > > I am glad you have posted because there are lots and lots of folks on > > here who can give you some advice as to where to go from here. > > > > Take care > > > > Kaye > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2002 Report Share Posted March 24, 2002 Louie, An MRCP is an MRI that looks at the pancreas and ducts. It is non-invasive. In a message dated 3/24/02 7:23:40 PM Central Standard Time, Ehall@... writes: > , > What is a MRCP exactly. The reason I'm asking is because I can't have a > ERCP since I had a Whipple done in 94 and I'm not put back togather the > same way, as the took out part of my pancreas, part of my stomach and part > of my intestines, so no more ERCP for me. Just CT scan which never show up > anything new. > Take Care > Louie in WV > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2002 Report Share Posted March 24, 2002 Louie, An MRCP is an MRI that looks at the pancreas and ducts. It is non-invasive. In a message dated 3/24/02 7:23:40 PM Central Standard Time, Ehall@... writes: > , > What is a MRCP exactly. The reason I'm asking is because I can't have a > ERCP since I had a Whipple done in 94 and I'm not put back togather the > same way, as the took out part of my pancreas, part of my stomach and part > of my intestines, so no more ERCP for me. Just CT scan which never show up > anything new. > Take Care > Louie in WV > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2002 Report Share Posted March 24, 2002 Louie, An MRCP is an MRI that looks at the pancreas and ducts. It is non-invasive. In a message dated 3/24/02 7:23:40 PM Central Standard Time, Ehall@... writes: > , > What is a MRCP exactly. The reason I'm asking is because I can't have a > ERCP since I had a Whipple done in 94 and I'm not put back togather the > same way, as the took out part of my pancreas, part of my stomach and part > of my intestines, so no more ERCP for me. Just CT scan which never show up > anything new. > Take Care > Louie in WV > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2002 Report Share Posted March 24, 2002 Louie, An MRCP is a version of an MRI and is non-invasive. How did you fare after your Whipple in 1994. Did your CP get worse or improve and how long of a recovery did you have after surgery? Joan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2002 Report Share Posted March 24, 2002 In a message dated 3/24/02 8:23:35 PM Eastern Standard Time, Ehall@... writes: > Hey Louie, As a fellow Whipple survivor, does you navel have a sideways smile too? Best wishes Poncho - GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2002 Report Share Posted March 24, 2002 In a message dated 3/24/02 8:23:35 PM Eastern Standard Time, Ehall@... writes: > Hey Louie, As a fellow Whipple survivor, does you navel have a sideways smile too? Best wishes Poncho - GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2002 Report Share Posted March 24, 2002 In a message dated 3/24/02 8:23:35 PM Eastern Standard Time, Ehall@... writes: > Hey Louie, As a fellow Whipple survivor, does you navel have a sideways smile too? Best wishes Poncho - GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2002 Report Share Posted March 24, 2002 , Since you have had so many attacks and the pain is now more lingering, I think you should consult with you your GI doc, even if it's only by phone since you are so far away and see ehat he has to say. They may need to see you since you have had so many attacks and the pain is becoming more & more lingering. Even if you don't want to go see him since he is so far away, maybe he could give you some info and what's going on over the phone. It's worth a try. Take Care, Louie in WV Re: Re: New and long....sorry Kaye, What did they do to treat your sphincter of oddi dysfunction (SOD)? I have read a lot about it (at the suggestion of some on the board) and it really sounds like my problem. The God awful pain that comes from nowhere and is unlike any other pain. My is under my right rib (where I think my gallbladder used to be). I've only had one attack of acute panc in Jan 2000 (diagnosed by lab work), but I've had tons of others that sure felt like it. I've had 3 ERCPs and 2 sphincterotomies. For the most part I had nothing but occasional mild, nagging pain from Nov 2000 to Oct 2001. Since Oct 2001, I've had about 8-10 attacks but I haven't gone to the hospital with any. I've also begun having an increase in the lingering, naggy, sort of pain in between the attacks. I'm debating on whether to go back to my GI (he's 100 miles away) or just keep ignoring it and hope it goes away once again. In a message dated 3/20/02 1:39:25 PM Central Standard Time, kfortenb@... writes: > Dear Gloria > > I am sorry you have been so sick! It sure sounds like something with > the pancreas to me. What you describe sounds like the sphincter of > Oddi spasms! While you might not have pancreatitis yet, the two are > two different problems, if it is sphincter of Oddi, you will wind up > with pancreatitis if they don't treat it. I have chronic > pancreatitis caused by sphincter of Oddi dysfunction (SOD) and it > took 14 years to be diagnosed! This needs to be brought to the > attention of your doc immediately. These spasms have a pain that is > absolutely unbelievable! I call it the " pain from the sky " with no > awarning, etc. etc. it just happens. > > I am glad you have posted because there are lots and lots of folks on > here who can give you some advice as to where to go from here. > > Take care > > Kaye > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2002 Report Share Posted March 24, 2002 , What is a MRCP exactly. The reason I'm asking is because I can't have a ERCP since I had a Whipple done in 94 and I'm not put back togather the same way, as the took out part of my pancreas, part of my stomach and part of my intestines, so no more ERCP for me. Just CT scan which never show up anything new. Take Care Louie in WV Re: Re: New and long....sorry > > > Kaye, > What did they do to treat your sphincter of oddi dysfunction (SOD)? I > have > read a lot about it (at the suggestion of some on the board) and it > really > sounds like my problem. The God awful pain that comes from nowhere and > is > unlike any other pain. My is under my right rib (where I think my > gallbladder used to be). I've only had one attack of acute panc in Jan > 2000 > (diagnosed by lab work), but I've had tons of others that sure felt like > it. > I've had 3 ERCPs and 2 sphincterotomies. For the most part I had nothing > but > occasional mild, nagging pain from Nov 2000 to Oct 2001. Since Oct 2001, > > I've had about 8-10 attacks but I haven't gone to the hospital with any. > > I've also begun having an increase in the lingering, naggy, sort of pain > in > between the attacks. I'm debating on whether to go back to my GI (he's > 100 > miles away) or just keep ignoring it and hope it goes away once again. > > > > > In a message dated 3/20/02 1:39:25 PM Central Standard Time, > kfortenb@... writes: > > > > Dear Gloria > > > > I am sorry you have been so sick! It sure sounds like something with > > the pancreas to me. What you describe sounds like the sphincter of > > Oddi spasms! While you might not have pancreatitis yet, the two are > > two different problems, if it is sphincter of Oddi, you will wind up > > with pancreatitis if they don't treat it. I have chronic > > pancreatitis caused by sphincter of Oddi dysfunction (SOD) and it > > took 14 years to be diagnosed! This needs to be brought to the > > attention of your doc immediately. These spasms have a pain that is > > absolutely unbelievable! I call it the " pain from the sky " with no > > awarning, etc. etc. it just happens. > > > > I am glad you have posted because there are lots and lots of folks on > > here who can give you some advice as to where to go from here. > > > > Take care > > > > Kaye > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2002 Report Share Posted March 24, 2002 , What is a MRCP exactly. The reason I'm asking is because I can't have a ERCP since I had a Whipple done in 94 and I'm not put back togather the same way, as the took out part of my pancreas, part of my stomach and part of my intestines, so no more ERCP for me. Just CT scan which never show up anything new. Take Care Louie in WV Re: Re: New and long....sorry > > > Kaye, > What did they do to treat your sphincter of oddi dysfunction (SOD)? I > have > read a lot about it (at the suggestion of some on the board) and it > really > sounds like my problem. The God awful pain that comes from nowhere and > is > unlike any other pain. My is under my right rib (where I think my > gallbladder used to be). I've only had one attack of acute panc in Jan > 2000 > (diagnosed by lab work), but I've had tons of others that sure felt like > it. > I've had 3 ERCPs and 2 sphincterotomies. For the most part I had nothing > but > occasional mild, nagging pain from Nov 2000 to Oct 2001. Since Oct 2001, > > I've had about 8-10 attacks but I haven't gone to the hospital with any. > > I've also begun having an increase in the lingering, naggy, sort of pain > in > between the attacks. I'm debating on whether to go back to my GI (he's > 100 > miles away) or just keep ignoring it and hope it goes away once again. > > > > > In a message dated 3/20/02 1:39:25 PM Central Standard Time, > kfortenb@... writes: > > > > Dear Gloria > > > > I am sorry you have been so sick! It sure sounds like something with > > the pancreas to me. What you describe sounds like the sphincter of > > Oddi spasms! While you might not have pancreatitis yet, the two are > > two different problems, if it is sphincter of Oddi, you will wind up > > with pancreatitis if they don't treat it. I have chronic > > pancreatitis caused by sphincter of Oddi dysfunction (SOD) and it > > took 14 years to be diagnosed! This needs to be brought to the > > attention of your doc immediately. These spasms have a pain that is > > absolutely unbelievable! I call it the " pain from the sky " with no > > awarning, etc. etc. it just happens. > > > > I am glad you have posted because there are lots and lots of folks on > > here who can give you some advice as to where to go from here. > > > > Take care > > > > Kaye > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2002 Report Share Posted March 24, 2002 , What is a MRCP exactly. The reason I'm asking is because I can't have a ERCP since I had a Whipple done in 94 and I'm not put back togather the same way, as the took out part of my pancreas, part of my stomach and part of my intestines, so no more ERCP for me. Just CT scan which never show up anything new. Take Care Louie in WV Re: Re: New and long....sorry > > > Kaye, > What did they do to treat your sphincter of oddi dysfunction (SOD)? I > have > read a lot about it (at the suggestion of some on the board) and it > really > sounds like my problem. The God awful pain that comes from nowhere and > is > unlike any other pain. My is under my right rib (where I think my > gallbladder used to be). I've only had one attack of acute panc in Jan > 2000 > (diagnosed by lab work), but I've had tons of others that sure felt like > it. > I've had 3 ERCPs and 2 sphincterotomies. For the most part I had nothing > but > occasional mild, nagging pain from Nov 2000 to Oct 2001. Since Oct 2001, > > I've had about 8-10 attacks but I haven't gone to the hospital with any. > > I've also begun having an increase in the lingering, naggy, sort of pain > in > between the attacks. I'm debating on whether to go back to my GI (he's > 100 > miles away) or just keep ignoring it and hope it goes away once again. > > > > > In a message dated 3/20/02 1:39:25 PM Central Standard Time, > kfortenb@... writes: > > > > Dear Gloria > > > > I am sorry you have been so sick! It sure sounds like something with > > the pancreas to me. What you describe sounds like the sphincter of > > Oddi spasms! While you might not have pancreatitis yet, the two are > > two different problems, if it is sphincter of Oddi, you will wind up > > with pancreatitis if they don't treat it. I have chronic > > pancreatitis caused by sphincter of Oddi dysfunction (SOD) and it > > took 14 years to be diagnosed! This needs to be brought to the > > attention of your doc immediately. These spasms have a pain that is > > absolutely unbelievable! I call it the " pain from the sky " with no > > awarning, etc. etc. it just happens. > > > > I am glad you have posted because there are lots and lots of folks on > > here who can give you some advice as to where to go from here. > > > > Take care > > > > Kaye > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2002 Report Share Posted March 24, 2002 , Thanks for your answer so quickly. I can't have an MRI either as my implanted pain pump is metal and I also have metal clips in my neck and head from Embolzation on my left extrenal corrodid artery. This was experimental surgery for miagraines, I was only the 5 to have it done and naturally I was the only one to have problems with it , so they don't do this surgery anymore. But at least it did help. Thanks again, Louie in WV Re: Re: New and long....sorry Louie, An MRCP is an MRI that looks at the pancreas and ducts. It is non-invasive. In a message dated 3/24/02 7:23:40 PM Central Standard Time, Ehall@... writes: > , > What is a MRCP exactly. The reason I'm asking is because I can't have a > ERCP since I had a Whipple done in 94 and I'm not put back togather the > same way, as the took out part of my pancreas, part of my stomach and part > of my intestines, so no more ERCP for me. Just CT scan which never show up > anything new. > Take Care > Louie in WV > Quote Link to comment Share on other sites More sharing options...
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