Guest guest Posted August 1, 2006 Report Share Posted August 1, 2006 Have you ever been tested for myositis? Undiagnosed celiacs can develope myositis. I was dx with polymyositis in 98. I am going through testing for celiac right now. Myositis covers 4 diseases, inclusion body myositis-the most rare and hardest to treat, polymyositis-affects all the muscles in the body, dermatomyositis-affects the muscles and skin leaving you weak, rashes, joint pain and more, and juvenile myositis'. JM is the same as the others, just depending on the age you are dx. Testing for myositis are easy. You can have a blood test on your muscle enzymes, or CPK. Normal is around 100, mine was 3200 at dx and has been up to 6500. The do follow that test up with muscle biopsies which are minimally invasive, and EMG and sometimes mri's. I went years with no dx and a bunch of doctors telling me it was all in my head. The test isn't in the 'normal' blood panel so it never showed up in routine testing and at the time, didn't show up under the autoimmune panel-not sure if it does now. Myositis are usually treated by rhuematologists. See if your gp can run the blood test and then refer you to a rhuemy if necessary. Hope you get some answers soon. The unknown if far more scary. Hugs, Zanna http://groups.yahoo.com/group/Art_on_A_Budget/ My daily rantings! www.zannasstory.blogspot.com My picture trail: www.picturetrail.com/xanadoodles Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2006 Report Share Posted August 1, 2006 Have you ever been tested for myositis? Undiagnosed celiacs can develope myositis. I was dx with polymyositis in 98. I am going through testing for celiac right now. Myositis covers 4 diseases, inclusion body myositis-the most rare and hardest to treat, polymyositis-affects all the muscles in the body, dermatomyositis-affects the muscles and skin leaving you weak, rashes, joint pain and more, and juvenile myositis'. JM is the same as the others, just depending on the age you are dx. Testing for myositis are easy. You can have a blood test on your muscle enzymes, or CPK. Normal is around 100, mine was 3200 at dx and has been up to 6500. The do follow that test up with muscle biopsies which are minimally invasive, and EMG and sometimes mri's. I went years with no dx and a bunch of doctors telling me it was all in my head. The test isn't in the 'normal' blood panel so it never showed up in routine testing and at the time, didn't show up under the autoimmune panel-not sure if it does now. Myositis are usually treated by rhuematologists. See if your gp can run the blood test and then refer you to a rhuemy if necessary. Hope you get some answers soon. The unknown if far more scary. Hugs, Zanna http://groups.yahoo.com/group/Art_on_A_Budget/ My daily rantings! www.zannasstory.blogspot.com My picture trail: www.picturetrail.com/xanadoodles Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2006 Report Share Posted August 15, 2006 Is casien the same as lactose? If they take out the casien, is the lactose gone too? We are only eliminating dairy until our intestines heal.......hopefully we will all be able to go back to dairy eventually. Zanna http://groups.yahoo.com/group/Art_on_A_Budget/ My daily rantings! www.zannasstory.blogspot.com My picture trail: www.picturetrail.com/xanadoodles Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2006 Report Share Posted August 15, 2006 > > Is casien the same as lactose? If they take out the casien, is the lactose gone too? We are only eliminating dairy until our intestines heal.......hopefully we will all be able to go back to dairy eventually. > > Zanna casein = milk protein lactose = milk sugar usually problems with a protein are an allergy (not always) and lactose intolerance is a problem breaking down the sugar. lactase - the enzyme that helps digest the sugar - is produced in the tips of the villi, so if you lose the tips - i.e. celiac consuming gluten - you often lose the ability make lactase and digest lactose. Maureen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2006 Report Share Posted August 15, 2006 > Is casien the same as lactose? If they take out the casien, is the > lactose gone too? We are only eliminating dairy until our > intestines heal.......hopefully we will all be able to go back to > dairy eventually. Casein is a milk protein, lactose is a milk sugar. Butter is made from cream, which has very little lactose, anyhow. Even when lactose bound me up tighter than a drum, I was fine with butter. Everyone is different, of course, and YMMV. ygg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2006 Report Share Posted August 15, 2006 Lactose intolerance is caused by the lack of the enzyme Lactase. Lactase is produced in the tips of the villi in the small intestine. When not enough lactase is being produced, ingested lactose is not broken down by the body. Consequently, the lactose molecule passes into the large intestine where there is an abundance of natural bacteria. This bacteria then 'feeds' on the lactose molecule. This causes fermentation in the large intestine producing the horrible rumbling, diarrhea, & gas associated with lactose intolerance. Lactaid (and other brands) are Lactase enzyme in a caplet form (or drops, etc.). By taking lactase supplement, lactose can be broken down properly during the digestion process. With untreated celiac disease, the tips of the villi are blunted and can not produce enough, if any, lactase enzyme. Once the villi heal, lactase can be produced again. This is why it is recommended that newly diagnosed celiacs cut lactose out of their diets for approximately 6 months. Also, the amount of lactase produced decreases with age. I hope this helps explain things! > > How can we understand lactose intolerance ? > > Bahar > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2006 Report Share Posted August 15, 2006 Lactose intolerance is caused by the lack of the enzyme Lactase. Lactase is produced in the tips of the villi in the small intestine. When not enough lactase is being produced, ingested lactose is not broken down by the body. Consequently, the lactose molecule passes into the large intestine where there is an abundance of natural bacteria. This bacteria then 'feeds' on the lactose molecule. This causes fermentation in the large intestine producing the horrible rumbling, diarrhea, & gas associated with lactose intolerance. Lactaid (and other brands) are Lactase enzyme in a caplet form (or drops, etc.). By taking lactase supplement, lactose can be broken down properly during the digestion process. With untreated celiac disease, the tips of the villi are blunted and can not produce enough, if any, lactase enzyme. Once the villi heal, lactase can be produced again. This is why it is recommended that newly diagnosed celiacs cut lactose out of their diets for approximately 6 months. Also, the amount of lactase produced decreases with age. I hope this helps explain things! > > How can we understand lactose intolerance ? > > Bahar > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2006 Report Share Posted August 15, 2006 Lactose intolerance is caused by the lack of the enzyme Lactase. Lactase is produced in the tips of the villi in the small intestine. When not enough lactase is being produced, ingested lactose is not broken down by the body. Consequently, the lactose molecule passes into the large intestine where there is an abundance of natural bacteria. This bacteria then 'feeds' on the lactose molecule. This causes fermentation in the large intestine producing the horrible rumbling, diarrhea, & gas associated with lactose intolerance. Lactaid (and other brands) are Lactase enzyme in a caplet form (or drops, etc.). By taking lactase supplement, lactose can be broken down properly during the digestion process. With untreated celiac disease, the tips of the villi are blunted and can not produce enough, if any, lactase enzyme. Once the villi heal, lactase can be produced again. This is why it is recommended that newly diagnosed celiacs cut lactose out of their diets for approximately 6 months. Also, the amount of lactase produced decreases with age. I hope this helps explain things! > > How can we understand lactose intolerance ? > > Bahar > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2006 Report Share Posted August 15, 2006 Hi again! About lactose in yogurt... Yogurt is tolerated by some with minor lactose intolerance. This is because of the live cultures/bacteria that is used in the process. These cultures breakdown the lactose in the yogurt, which in turn changes it from a liquid to the consistency you see in yogurt. Beccause the lactose has been partially broken down prior to eating it, the body is not required to produce as much lactase to breakdown the lactose remaining in the yogurt. Same goes for hard cheeses. The harder the cheese, the less lactose it contains. I am borderline lactose intolerant. I can eat yogurt, cheeses and small amounts of dairy (ice cream, yum!) with no ill effects. However, I can not handle a glass of milk or cream soups without taking a lactase supplement. > > > > How can we understand lactose intolerance ? > > > > Bahar > > > Quote Link to comment Share on other sites More sharing options...
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