having more children??

[Guest guest]

I am a working mother and always wanted TWO kids. When we had our 2nd AND she

had CF we stopped. Would I have had more if she didn't have CF??????????

[Guest guest]

Hello~

I am brand new to this list. My son is 7 1/2 months old. I only

have a quick moment to post and I have a question. Since Isaac was

born, we knew we wanted more children. Most of the posts I have read

here, if the parents have more than one child, their youngest has

CF. Maybe this is because once they found out they both carry the

gene, they didn't want to risk it by having another child. I was

just wondering about everyone's opinion on this matter. Did you

choose not to have more children due to this? If you do have more

children, was this a hard decision for you? Please explain. Thank

you very much. I hope to write more soon.

Lori

mother of Isaac/7 months old

[Guest guest]

we plan on having another child! i believe there will be a cure and doctors

know so much now !! and im raising shianne with cf if i have another child

with cf i will be ahead of the game and know what to expects people might

disagree but i do plan on having another child in a couple of years.

christy ( 16 months old shainne w cf ) from Indiana

[Guest guest]

WELCOME We are very happy your here. I look forward to seeing you post

again.

It is a really great group to chat-visit with

LOVE & HUGS, grandmomBEV

having more children??

Hello~

I am brand new to this list. My son is 7 1/2 months old. I only

have a quick moment to post and I have a question. Since Isaac was

born, we knew we wanted more children. Most of the posts I have read

here, if the parents have more than one child, their youngest has

CF. Maybe this is because once they found out they both carry the

gene, they didn't want to risk it by having another child. I was

just wondering about everyone's opinion on this matter. Did you

choose not to have more children due to this? If you do have more

children, was this a hard decision for you? Please explain. Thank

you very much. I hope to write more soon.

Lori

mother of Isaac/7 months old

PLEASE do not post religious emails to the list.

-------------------------------------------

The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

--------------------------------------------------

[Guest guest]

Hi Lori...

Welcome to the group. For us we would love to have

more children (we have 2 girls and would love a boy).

But the time that it takes to care for a child with CF

not to mention the expense is just not something that

we could do right now. I don't like to see my

daughter so ill and I don't know if I am willing to

risk that we might have another CF child. My daughter

was only dx 8 months ago, and my opinion may change

but for nowthat is how I feel. I salute the mothers

and fathers on here who have more than one CF child or

children with more than just a diagnosis of CF. I

don't know how you do it.

Kim (mother of 2 w/CF and Kira 6 w/o CF)

--- Beverley Donelson bevd@...> wrote:

> WELCOME We are very happy your here. I look forward

> to seeing you post

> again.

> It is a really great group to chat-visit with

>

> LOVE & HUGS, grandmomBEV

>

> having more children??

>

>

> Hello~

> I am brand new to this list. My son is 7 1/2 months

> old. I only

> have a quick moment to post and I have a question.

> Since Isaac was

> born, we knew we wanted more children. Most of the

> posts I have read

> here, if the parents have more than one child, their

> youngest has

> CF. Maybe this is because once they found out they

> both carry the

> gene, they didn't want to risk it by having another

> child. I was

> just wondering about everyone's opinion on this

> matter. Did you

> choose not to have more children due to this? If

> you do have more

> children, was this a hard decision for you? Please

> explain. Thank

> you very much. I hope to write more soon.

> Lori

> mother of Isaac/7 months old

>

>

>

> PLEASE do not post religious emails to the list.

>

>

> -------------------------------------------

>

>

> The opinions and information exchanged on this list

> should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY

> MEDICATIONS OR

> TREATMENTS.

>

> --------------------------------------------------

>

>

>

[Guest guest]

Lori,

a quick response to your post. My oldest has CF. My youngest does not. I

have two children. Our faith doesn't permit us to use any form of birth control,

except perhaps natural family planning which is considered by many, a gamble.

We are not actively trying to have more children but are open to whatever God

gives us. Hope this helps.

Love,

P.S. welcome to the list.

having more children??

Hello~

I am brand new to this list. My son is 7 1/2 months old. I only

have a quick moment to post and I have a question. Since Isaac was

born, we knew we wanted more children. Most of the posts I have read

here, if the parents have more than one child, their youngest has

CF. Maybe this is because once they found out they both carry the

gene, they didn't want to risk it by having another child. I was

just wondering about everyone's opinion on this matter. Did you

choose not to have more children due to this? If you do have more

children, was this a hard decision for you? Please explain. Thank

you very much. I hope to write more soon.

Lori

mother of Isaac/7 months old

PLEASE do not post religious emails to the list.

-------------------------------------------

The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

--------------------------------------------------

[Guest guest]

It's amazing how many people who are new to this list ask this question.

It's a hot topic and there are issues associated with it that are really

quite private and individual based on people's personal views about

reproduction. I am not going to get into that issue.

I personally think about this everyday. I have two beautiful girls,

Isabelle 3 1/2 years old without CF and Emma 20 months with CF. I am one

of six kids and I have not always enjoyed being in a large family (it's

hard when one of them is extremely dominating and manipulative) but I

wanted to have three kids. I particularly wanted to experience raising

both a boy and a girl ... so this question eats at me daily. I really

don't know that I have settled on a solution yet. I do know that if I

ever get pregnant again, we will have the child but the chances are

pretty slim this will occur as I have severe endometriosis that requires

me to be on birth control to regulate so I would have to purposely go off

birth control to get pregnant.

I just discussed this with my brother over the weekend. We drove 2 1/2

hours to visit my parents and had a lot of time to talk. I explained all

the things that go through my mind. The fact that if Emma should leave

us early, Isabelle will become an only child. She has a lot of cousins

but there is something about your own brother or sister that is special.

This thought saddens me as much as the thought of losing Emma. I want my

girls to be there for each other and support each other in the way

parents never seem to be able to achieve. At the same time, Emma's

eating problems are very emotionally draining. Could I actually deal

with a baby on top of dealing with Emma's rigorous eating and CPT

schedule? What would I do when Emma has to be hospitalized? Isabelle is

older and we have friends and family members that can help out with her.

It wouldn't be so easy with an infant to do this. Isabelle also needs

attention. She's having some problems at the moment with peeing in her

pants. I never seem to have enough time to spend with her. I would have

even less if there was another child in the picture. Financially, we are

doing okay right now. Another child might really rock the boat

financially. Yet, every day I think about having another. It doesn't

make sense. i haven't even mentioned the whole issue of what if the next

one has CF as well. That is really a big issue (obviously). Everyday I

think about it. I think realistically I need to accept what I have been

given and be happy with the joy I already have in my life. My brother

thinks that having another would take time that both of my girls already

need away. Still, things don't always seem complete. My hats are off to

those on the list with multiple children, one of whom have CF and

especially to those who have more than one with CF. I barely have time

for everything going on in my life already. I can't imagine what your

lives are like.

I met a woman at the GI clinic today (she works there) whose husband is

double delta F508 and is 30 years old. It made me feel good.

- mom to Emma 20 months w/cf and Isabelle 3 1/2 years wo/cf

On Thu, 04 Apr 2002 20:36:51 -0000 " loriroshawn " loriroshawn@...>

writes:

> Hello~

> I am brand new to this list. My son is 7 1/2 months old. I only

> have a quick moment to post and I have a question. Since Isaac was

> born, we knew we wanted more children. Most of the posts I have

> read

> here, if the parents have more than one child, their youngest has

> CF. Maybe this is because once they found out they both carry the

> gene, they didn't want to risk it by having another child. I was

> just wondering about everyone's opinion on this matter. Did you

> choose not to have more children due to this? If you do have more

> children, was this a hard decision for you? Please explain. Thank

> you very much. I hope to write more soon.

> Lori

> mother of Isaac/7 months old

>

>

>

[Guest guest]

I have a 1 yr old who was born 2.5 months premature due to the CF related

meconium ileus

blockage. He was in the NICU for 10 weeks and jsut had a g-tube placed due to

poor weight

gain. We went through hell and my son went through hell and back. He was in

pain, alone in the

NICU at night, couldn't eat for weeks, has had so many tests, etc. I will NOT

go through that

again. I personally think it is irresponsible to have more CF children. They

have such a hard

road ahead of them that it seems cruel to me to knowingly give birth to a CF

baby. I know there

are many who will disagree.

When my husband and I want more children (at least 3 years away), we will try

naturally and

then terminate at 14 weeks if we learn the DNA test comes up positive for CF.

If that doesn't

produce a CF free baby after 1 try, we will do IVF with preimplantation genetic

diagnosis and

only implant eggs that are CF free. Pricey but better than going through 2

terminations. Or we

could adopt. Years away so we have plenty of time to think about it.

Hope that helps.

> Hello~

> I am brand new to this list. My son is 7 1/2 months old. I only

> have a quick moment to post and I have a question. Since Isaac was

> born, we knew we wanted more children. Most of the posts I have read

> here, if the parents have more than one child, their youngest has

> CF. Maybe this is because once they found out they both carry the

> gene, they didn't want to risk it by having another child. I was

> just wondering about everyone's opinion on this matter. Did you

> choose not to have more children due to this? If you do have more

> children, was this a hard decision for you? Please explain. Thank

> you very much. I hope to write more soon.

> Lori

> mother of Isaac/7 months old

[Guest guest]

I have three children, the youngest has cf. My husband and I decided

that three was our limit while I was pregnant with the youngest,

before we " had a clue " about cf.

Had my first born been the one with cf, I probably would not have

tried to conceive more. To me, the risk would have been too great to

gamble. Knowingly risking passing on the defective gene to my child

would make me cringe with guilt. Of course, it's impossible to say

for certain what I actually would have done if in that position - I

really, really wanted children.

Some people think that it's selfish to have another child after

having one with cf. I think that it is selfish to have children to

begin with - it is the ultimate show of selfishness to create another

human that will mirror our own likeness. So we are all naturally

selfish. In my opinion, it is just different variations in degree of

selfishness.

Ultimately, what others have chosen will not really make any impact

on the decision that you make, just offer some relief from anxiety

for whatever decision you come to. And there's really nothing wrong

with that. Whatever you do decide, you can rest assured that someone

has tread that path before you. That is one comfort of the cfparents

list, you are never the only one who's had to struggle with this

decision, you are not alone.

~

> Hello~

> I am brand new to this list. My son is 7 1/2 months old. I only

> have a quick moment to post and I have a question. Since Isaac was

> born, we knew we wanted more children. Most of the posts I have

read

> here, if the parents have more than one child, their youngest has

> CF. Maybe this is because once they found out they both carry the

> gene, they didn't want to risk it by having another child. I was

> just wondering about everyone's opinion on this matter. Did you

> choose not to have more children due to this? If you do have more

> children, was this a hard decision for you? Please explain. Thank

> you very much. I hope to write more soon.

> Lori

> mother of Isaac/7 months old

[Guest guest]

This is the first time I've posted so I hope I'm doing it right

I too walked in your shoes! My " baby " (who will be ONE next week) went

through the same exact thing, relatively. He was borne 2 months early,

didn't

poop for five days after emergency C-section, docs did surgery. Our Jack

presented with meconium ileus, ileostomy, genetic test for CF, and then " did

his time " in the NICU recovering from ileostomy and reattachment 4 weeks

later. I

cannot tell you how difficult time this was for me and my husband and I

thank the " powers that be " that our baby Jack will probably not remember any

of it...

The one thing I know for sure is that I DO NOT WANT TO GO THROUGH IT AGAIN.

I WILL not go through it again. Jack's diagnosis has changed me for the

better, but I don't think I could ever survive a repeat scenario.

I agree with you completely that it's unfair to bring another CF baby into

our crazy world, and I would hate to have another child with this disease,

being that a cure seems eons away. I have great fears about

cross-contamination. I will NOT compromise our almost-healthy (recently

cultured positive for Staph and Klebsiella) by bringing

I am adamant about not doing the fertility drug thing. I have a long and

terrible history of cancer in my family and have a close young (40 year-old)

friend that is battling aggressive breast cancer (she said that the

fertility drugs she was on ---with no baby result--were the " kiss of

death " ). Hopefully you are young enough to not have to do the fertility

drug thing.

I am 35 and it took me nearly a year of " deliberate " sex to get pregnant. I

WILL NOT be going through any scientific ways (IVF) for our son to have a

CF-free sibling nor will I be playing the roulette wheel. ly, I don't

want to have the responsibility of selective reduction should I go the IVF

route.

I know that having one child very prematurely predisposes you to future

premature births (that in itself is difficult enough...apnea, long NICU

stays, lack of bonding, pumping breastmilk at home every three hours, etc.)

and my body and mind are not up to a repeat scenario.... EVER AGAIN!!

I am hoping that my husband comes around to the idea of adoption (which I am

VERY much for). My son's CF doctor jokingly told me today that if we were

to adopt, that we should look into a Japanese child (nearly 0% chance of CF

in their ethnicity), which I already knew! He also told me of a couple from

Manhattan that recently adopted a child from New Jersey that was diagnosed,

POST-adoption, with Cystic Fibrosis.

I wish that the answers to all of our questions about ourselves, our kids

and our families were easy and correct... but, we must live and learn and

gather as much knowledge along the way as possible!

Paige

Mum to Jack (who will be ONE on April 11th, 2002....how time does fly!)

I think I may have put too much of my personal self and insights into this

mail

Re: having more children??

> I have a 1 yr old who was born 2.5 months premature due to the CF related

meconium ileus

> blockage. He was in the NICU for 10 weeks and jsut had a g-tube placed

due to poor weight

> gain. We went through hell and my son went through hell and back. He was

in pain, alone in the

> NICU at night, couldn't eat for weeks, has had so many tests, etc. I will

NOT go through that

> again. I personally think it is irresponsible to have more CF children.

They have such a hard

> road ahead of them that it seems cruel to me to knowingly give birth to a

CF baby. I know there

> are many who will disagree.

>

> When my husband and I want more children (at least 3 years away), we will

try naturally and

> then terminate at 14 weeks if we learn the DNA test comes up positive for

CF. If that doesn't

> produce a CF free baby after 1 try, we will do IVF with preimplantation

genetic diagnosis and

> only implant eggs that are CF free. Pricey but better than going through

2 terminations. Or we

> could adopt. Years away so we have plenty of time to think about it.

>

> Hope that helps.

>

>

> > Hello~

> > I am brand new to this list. My son is 7 1/2 months old. I only

> > have a quick moment to post and I have a question. Since Isaac was

> > born, we knew we wanted more children. Most of the posts I have read

> > here, if the parents have more than one child, their youngest has

> > CF. Maybe this is because once they found out they both carry the

> > gene, they didn't want to risk it by having another child. I was

> > just wondering about everyone's opinion on this matter. Did you

> > choose not to have more children due to this? If you do have more

> > children, was this a hard decision for you? Please explain. Thank

> > you very much. I hope to write more soon.

> > Lori

> > mother of Isaac/7 months old

>

>

>

> PLEASE do not post religious emails to the list.

>

>

> -------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

>

>

[Guest guest]

My daughter was premature by 2 months weighting 3 pounds and 2 ounces.

had to have emergency c-section

My daughter had to have meconium plug. Spent 5 wks in hospital to grow

basically.

Was hard to deal with but shianne was very healthy never had any other

problems was dig. When a week old and that was hard to deal with two. We

knew nothing about cf and its alot to take in and learn. but you do it and

keep learning.

i was an only child and i hated my family situation was not the best and it

would have been nice to had a sibling to go thru life growing up with a

sis/brother there is a special bond there and i want my daughter to have

that. and i think its all in gods hands and he will do whats right. he

already did something right he chose all you great parents to take care of

his special angels. he had to choose all of you carefully. and find the

right parent who would love and accept the child and i can tell he found

some great parents!!!

christy ( 16 months old shianne ) from Indiana

[Guest guest]

Lori,

The way my husband puts it, he wanted four children, I wanted two, and we

compromised, on two!

Actually, we had a huge debate about having more than one child. After

carefully considering overseas adoption, within Australia adoption,

fostering etc, we decided that we would have another child of our own, and

then look at adoption etc again later. And WHAM!, we got a beautiful girl

called Sian, who has CF.

My husband had a vasectomy when Sian was two or three. A few weeks ago, he

brought up the subject of extra children again. (At the moment, I'm leaning

towards within Australia adoption, because I want a little boy called Keegan

ph! Those of you on Conncoll will know why....)

Much love and Hugs

Mum to Cate 9yrs wocf and Sian 5 1/2yrs wcf

Canberra Australia

[Guest guest]

Hi Lori,

I don't generally post much, I am usually just a lurker. Our oldest child

has CF he is no 8. He was dx at 3, he is very healthy. When Josh was first

dx we said no more children. We didn't think emotionally we could handle it.

Then a year went by and we started thinking more about it. WE felt that CF

took so much from Josh that we wouldn't let it take the opportunity to have a

sibling.

This decision was very difficult as we definetly didn't want 2 children to

suffer with CF, I know most don't agree but once we decided that we would

terminate the pregnancy if the baby had CF we went ahead with our plans to

have another baby. Thankfully we didn't have to make that awful decision.

We have a 3 year old boy now who is a carrier for the gene, but does not have

CF. We aren't having anymore children now. We have our two fabulous boys

and we are very happy.

I have to admit that the second pregnancy was extremely stressful in the

begining. I don't know if I would have been able to go through with

termination if the baby did have CF. But I am so happy we weren't put in

that situation.

We just fel that we couldn't let CF take away the opportunity of another

child.

Good luck

Mom to Josh 8 wcf and Sam 3 nocf

[Guest guest]

,

I always thought about the 'what if Liam is left alone' thing, and

truthfully I still do. I know we wont have any more children but that will

be my one regret as a bitter twisted old ladyLOL. I know I never want

another one with Cf and we did do prenatal diagnosis (another story) but for

us the 'natural' way was not one we were going to risk. I think we all have

this will we wont we, I know lots that do.

Liam 7 wocf & Eilish 4wcf

Re: having more children??

> It's amazing how many people who are new to this list ask this question.

> It's a hot topic and there are issues associated with it that are really

> quite private and individual based on people's personal views about

> reproduction. I am not going to get into that issue.

>

> I personally think about this everyday. I have two beautiful girls,

> Isabelle 3 1/2 years old without CF and Emma 20 months with CF. I am one

> of six kids and I have not always enjoyed being in a large family (it's

> hard when one of them is extremely dominating and manipulative) but I

> wanted to have three kids. I particularly wanted to experience raising

> both a boy and a girl ... so this question eats at me daily. I really

> don't know that I have settled on a solution yet. I do know that if I

> ever get pregnant again, we will have the child but the chances are

> pretty slim this will occur as I have severe endometriosis that requires

> me to be on birth control to regulate so I would have to purposely go off

> birth control to get pregnant.

>

> I just discussed this with my brother over the weekend. We drove 2 1/2

> hours to visit my parents and had a lot of time to talk. I explained all

> the things that go through my mind. The fact that if Emma should leave

> us early, Isabelle will become an only child. She has a lot of cousins

> but there is something about your own brother or sister that is special.

> This thought saddens me as much as the thought of losing Emma. I want my

> girls to be there for each other and support each other in the way

> parents never seem to be able to achieve. At the same time, Emma's

> eating problems are very emotionally draining. Could I actually deal

> with a baby on top of dealing with Emma's rigorous eating and CPT

> schedule? What would I do when Emma has to be hospitalized? Isabelle is

> older and we have friends and family members that can help out with her.

> It wouldn't be so easy with an infant to do this. Isabelle also needs

> attention. She's having some problems at the moment with peeing in her

> pants. I never seem to have enough time to spend with her. I would have

> even less if there was another child in the picture. Financially, we are

> doing okay right now. Another child might really rock the boat

> financially. Yet, every day I think about having another. It doesn't

> make sense. i haven't even mentioned the whole issue of what if the next

> one has CF as well. That is really a big issue (obviously). Everyday I

> think about it. I think realistically I need to accept what I have been

> given and be happy with the joy I already have in my life. My brother

> thinks that having another would take time that both of my girls already

> need away. Still, things don't always seem complete. My hats are off to

> those on the list with multiple children, one of whom have CF and

> especially to those who have more than one with CF. I barely have time

> for everything going on in my life already. I can't imagine what your

> lives are like.

>

> I met a woman at the GI clinic today (she works there) whose husband is

> double delta F508 and is 30 years old. It made me feel good.

>

> - mom to Emma 20 months w/cf and Isabelle 3 1/2 years wo/cf

>

>

> On Thu, 04 Apr 2002 20:36:51 -0000 " loriroshawn " loriroshawn@...>

> writes:

> > Hello~

> > I am brand new to this list. My son is 7 1/2 months old. I only

> > have a quick moment to post and I have a question. Since Isaac was

> > born, we knew we wanted more children. Most of the posts I have

> > read

> > here, if the parents have more than one child, their youngest has

> > CF. Maybe this is because once they found out they both carry the

> > gene, they didn't want to risk it by having another child. I was

> > just wondering about everyone's opinion on this matter. Did you

> > choose not to have more children due to this? If you do have more

> > children, was this a hard decision for you? Please explain. Thank

> > you very much. I hope to write more soon.

> > Lori

> > mother of Isaac/7 months old

> >

> >

> >

[Guest guest]

Hi Lori

Our daughter is 2 w/cf and she is our firstborn. Deciding to try

for a second child was a scary decision but not that hard as we knew we

wanted a sibling for and I feel hopeful for the future of CF

treatment even though some days I feel a little less optimistic. I had a CVS

done at 11 weeks and waiting 2 days for the results seemed to take forever

but luckily we were told our son was just a carrier. It is a really

stressful time but for us it was well worth it.

Sandy mum to 2 w/cf and 5mths

having more children??

> Hello~

> I am brand new to this list. My son is 7 1/2 months old. I only

> have a quick moment to post and I have a question. Since Isaac was

> born, we knew we wanted more children. Most of the posts I have read

> here, if the parents have more than one child, their youngest has

> CF. Maybe this is because once they found out they both carry the

> gene, they didn't want to risk it by having another child. I was

> just wondering about everyone's opinion on this matter. Did you

> choose not to have more children due to this? If you do have more

> children, was this a hard decision for you? Please explain. Thank

> you very much. I hope to write more soon.

> Lori

> mother of Isaac/7 months old

>

>

>

> PLEASE do not post religious emails to the list.

>

>

> -------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

>

>

[Guest guest]

SOUNDS to me like GOD picked you as a perfect parent for your precious one

too. have a great weekend with your lovely family

LOVE & HUGS, grandmomBEV

Re: Re: having more children??

My daughter was premature by 2 months weighting 3 pounds and 2 ounces.

had to have emergency c-section

My daughter had to have meconium plug. Spent 5 wks in hospital to grow

basically.

Was hard to deal with but shianne was very healthy never had any other

problems was dig. When a week old and that was hard to deal with two. We

knew nothing about cf and its alot to take in and learn. but you do it and

keep learning.

i was an only child and i hated my family situation was not the best and it

would have been nice to had a sibling to go thru life growing up with a

sis/brother there is a special bond there and i want my daughter to have

that. and i think its all in gods hands and he will do whats right. he

already did something right he chose all you great parents to take care of

his special angels. he had to choose all of you carefully. and find the

right parent who would love and accept the child and i can tell he found

some great parents!!!

christy ( 16 months old shianne ) from Indiana

PLEASE do not post religious emails to the list.

-------------------------------------------

The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

--------------------------------------------------

[Guest guest]

Just wanted to bring up something that cut me a bit. Had to calm down

before I started writing - but still a bit upset.

Not to agree or disagree with those who choose to terminate a pregnancy due

a positive CF result. That is your choice to make and your decision to

live with.

We all know CF is genetic...So, God forbid that you have a child with a

congenital defect.

I have a close friend had a wonderful first pregnancy...but, in her ninth

month she suffered from abruptcia placenta. Long story short - her placenta

pulled from the uterus and was delivered before her daughter. As her child

did without oxygen long enough to do damage - she gave birth to a beautiful

baby...diagnosed with severe cerebral palsy at birth and a year later was

found to be legally blind. She died 2 years ago at the age of 10. Who is

to determine the quality of her life?

My daughter can see me - her's couldn't. My daughter can walk - her's

couldn't. My daughter can talk - her's couldn't...see where I am going

here?

We all take a chance when we make the ultimate decision to bring a child

into this world. With the shape this place is in right now, there are

those who believe it is not right to bring 'any' child into it.

There are babies born jones'n for crack because their mother was an addict.

There are babies born blind because their mother couldn't put down that 5th

of Jack s. There are babies born only to be beat just because they

cry...THAT is cruel.

Being blessed with the opportunity to have a child - simply because you

want to hold, love, cherish & protect them...that is the most wonderful

gift that YOU can be given.

I can't comprehend not having my daughter. She truly is the light of my

life. Has CF changed my outlook on life..hers as well as mine? Sure. I

can pretty much guarantee we all can say yes to that. Has it taught me to

treasure things that I otherwise would have missed? You bet. Do I thank my

Maker for each day I have been blessed to share with my child? I don't

think that needs an answer.

Wish everyone the best.

Take care.

, Momma to (Holmes) (3.5 yow/cf)

[Guest guest]

God bless you !! You have said it all !! Everyone should be blessed with

there child because of all the reasons you said and those who cannot have

children at all!!

God bless you!!

christy (16 month old shianne w/cf)

[Guest guest]

Along the same lines...

When Zachary was first diagnosed, I was feeling mighty sorry for

myself. Then a friend whose baby was one month older had a tragedy:

her baby died of SIDS. I have not complained since, and I don't let

myself feel sorry for myself anymore. There are always people who

are going to have a worse situation. I cannot imagine life without

Zachary, and I am sure he will continue to bless my life.

Amy, mom to Zachary (6 months, wcf) and (4 yo, w/o cf)

>

> Just wanted to bring up something that cut me a bit. Had to calm

down

> before I started writing - but still a bit upset.

> Not to agree or disagree with those who choose to terminate a

pregnancy due

> a positive CF result. That is your choice to make and your

decision to

> live with.

>

> We all know CF is genetic...So, God forbid that you have a child

with a

> congenital defect.

>

> I have a close friend had a wonderful first pregnancy...but, in her

ninth

> month she suffered from abruptcia placenta. Long story short - her

placenta

> pulled from the uterus and was delivered before her daughter. As

her child

> did without oxygen long enough to do damage - she gave birth to a

beautiful

> baby...diagnosed with severe cerebral palsy at birth and a year

later was

> found to be legally blind. She died 2 years ago at the age of 10.

Who is

> to determine the quality of her life?

> My daughter can see me - her's couldn't. My daughter can walk -

her's

> couldn't. My daughter can talk - her's couldn't...see where I am

going

> here?

>

> We all take a chance when we make the ultimate decision to bring a

child

> into this world. With the shape this place is in right now, there

are

> those who believe it is not right to bring 'any' child into it.

>

> There are babies born jones'n for crack because their mother was an

addict.

> There are babies born blind because their mother couldn't put down

that 5th

> of Jack s. There are babies born only to be beat just

because they

> cry...THAT is cruel.

>

> Being blessed with the opportunity to have a child - simply because

you

> want to hold, love, cherish & protect them...that is the most

wonderful

> gift that YOU can be given.

>

> I can't comprehend not having my daughter. She truly is the light

of my

> life. Has CF changed my outlook on life..hers as well as mine?

Sure. I

> can pretty much guarantee we all can say yes to that. Has it

taught me to

> treasure things that I otherwise would have missed? You bet. Do I

thank my

> Maker for each day I have been blessed to share with my child? I

don't

> think that needs an answer.

>

> Wish everyone the best.

> Take care.

> , Momma to (Holmes) (3.5 yow/cf)

[Guest guest]

This is just such a personal decision. I do not think there are any right

or wrong choices, just the choice that is right for you. Everyone has

different experiences with cf which help us make our decisions of what is

right, wrong, or that we can live with. Some people with cf are very very

healthy, others are very very ill, and some of us know more about the

disease than others, so I don't think it is fair of any of us to judge

another for the decision they ultimately make. I think I will personally

email the person that posed the original question, because I think you are

all tired of hearing my story, but I also know that with all the wonderful

support I received, there were still a few disturbing comments. I guess

what I am trying to say, is be careful about what we say about this topic

because some comments can be very hurtful.

Melinda - son 3 wcf and sister 26 wcf and baby boy due in 5 weeks wcf

Re: Re: having more children??

Just wanted to bring up something that cut me a bit. Had to calm down

before I started writing - but still a bit upset.

Not to agree or disagree with those who choose to terminate a pregnancy

due

a positive CF result. That is your choice to make and your decision to

live with.

We all know CF is genetic...So, God forbid that you have a child with a

congenital defect.

I have a close friend had a wonderful first pregnancy...but, in her ninth

month she suffered from abruptcia placenta. Long story short - her

placenta

pulled from the uterus and was delivered before her daughter. As her

child

did without oxygen long enough to do damage - she gave birth to a

beautiful

baby...diagnosed with severe cerebral palsy at birth and a year later was

found to be legally blind. She died 2 years ago at the age of 10. Who is

to determine the quality of her life?

My daughter can see me - her's couldn't. My daughter can walk - her's

couldn't. My daughter can talk - her's couldn't...see where I am going

here?

We all take a chance when we make the ultimate decision to bring a child

into this world. With the shape this place is in right now, there are

those who believe it is not right to bring 'any' child into it.

There are babies born jones'n for crack because their mother was an

addict.

There are babies born blind because their mother couldn't put down that

5th

of Jack s. There are babies born only to be beat just because they

cry...THAT is cruel.

Being blessed with the opportunity to have a child - simply because you

want to hold, love, cherish & protect them...that is the most wonderful

gift that YOU can be given.

I can't comprehend not having my daughter. She truly is the light of my

life. Has CF changed my outlook on life..hers as well as mine? Sure. I

can pretty much guarantee we all can say yes to that. Has it taught me to

treasure things that I otherwise would have missed? You bet. Do I thank

my

Maker for each day I have been blessed to share with my child? I don't

think that needs an answer.

Wish everyone the best.

Take care.

, Momma to (Holmes) (3.5 yow/cf)

[Guest guest]

I aggree with and Amy. I'm the mother of a son of 13 years old with

cf and the fact that he might not be here for a very long life pushes me to

enjoy every moments I share with him. 11 years ago, I met with a father who

had lost his young son in a car accident. Knowing the sadness I was living

about my son's illness, that person told me this: " Knowing your son might

not be there for a very long time, you can tell him and show him how you

love him, but in my case, my child being healthy,I took for granted that he

was going to be here for always but if I knew his life would have been

short, I would have enjoy his presence and give him love a lot more ... "

>

>Reply-To: cfparents

>To: cfparents

>Subject: Re: having more children??

>Date: Sat, 06 Apr 2002 02:01:57 -0000

>

>Along the same lines...

>

>When Zachary was first diagnosed, I was feeling mighty sorry for

>myself. Then a friend whose baby was one month older had a tragedy:

>her baby died of SIDS. I have not complained since, and I don't let

>myself feel sorry for myself anymore. There are always people who

>are going to have a worse situation. I cannot imagine life without

>Zachary, and I am sure he will continue to bless my life.

>

>Amy, mom to Zachary (6 months, wcf) and (4 yo, w/o cf)

>

>

> >

> > Just wanted to bring up something that cut me a bit. Had to calm

>down

> > before I started writing - but still a bit upset.

> > Not to agree or disagree with those who choose to terminate a

>pregnancy due

> > a positive CF result. That is your choice to make and your

>decision to

> > live with.

> >

> > We all know CF is genetic...So, God forbid that you have a child

>with a

> > congenital defect.

> >

> > I have a close friend had a wonderful first pregnancy...but, in her

>ninth

> > month she suffered from abruptcia placenta. Long story short - her

>placenta

> > pulled from the uterus and was delivered before her daughter. As

>her child

> > did without oxygen long enough to do damage - she gave birth to a

>beautiful

> > baby...diagnosed with severe cerebral palsy at birth and a year

>later was

> > found to be legally blind. She died 2 years ago at the age of 10.

>Who is

> > to determine the quality of her life?

> > My daughter can see me - her's couldn't. My daughter can walk -

>her's

> > couldn't. My daughter can talk - her's couldn't...see where I am

>going

> > here?

> >

> > We all take a chance when we make the ultimate decision to bring a

>child

> > into this world. With the shape this place is in right now, there

>are

> > those who believe it is not right to bring 'any' child into it.

> >

> > There are babies born jones'n for crack because their mother was an

>addict.

> > There are babies born blind because their mother couldn't put down

>that 5th

> > of Jack s. There are babies born only to be beat just

>because they

> > cry...THAT is cruel.

> >

> > Being blessed with the opportunity to have a child - simply because

>you

> > want to hold, love, cherish & protect them...that is the most

>wonderful

> > gift that YOU can be given.

> >

> > I can't comprehend not having my daughter. She truly is the light

>of my

> > life. Has CF changed my outlook on life..hers as well as mine?

>Sure. I

> > can pretty much guarantee we all can say yes to that. Has it

>taught me to

> > treasure things that I otherwise would have missed? You bet. Do I

>thank my

> > Maker for each day I have been blessed to share with my child? I

>don't

> > think that needs an answer.

> >

> > Wish everyone the best.

> > Take care.

> > , Momma to (Holmes) (3.5 yow/cf)

>

_________________________________________________________________

MSN Photos est le moyen le plus simple de partager, modifier et imprimer vos

photos préférées. http://photos.msn.fr/Support/WorldWide.aspx

[Guest guest]

Well said, Melinda.

%^%^%^%^%^%^%^%^%^%^%^%^%^%

mama to , 18 mo wCF and SZ Alpha, and , 3.5 yo SZ Alpha, no CF

> RE: Re: having more children??

>

> This is just such a personal decision. I do not think there are any

right

> or wrong choices, just the choice that is right for you. Everyone has

> different experiences with cf which help us make our decisions of what

is

> right, wrong, or that we can live with. Some people with cf are very

very

> healthy, others are very very ill, and some of us know more about the

> disease than others, so I don't think it is fair of any of us to judge

> another for the decision they ultimately make. I think I will

personally

> email the person that posed the original question, because I think you

are

> all tired of hearing my story, but I also know that with all the

wonderful

> support I received, there were still a few disturbing comments. I

guess

> what I am trying to say, is be careful about what we say about this

topic

> because some comments can be very hurtful.

>

> Melinda - son 3 wcf and sister 26 wcf and baby boy due in 5 weeks wcf

[Guest guest]

Lori,

I am a Mom of 3 kids and 2 of our kids have CF. We had all 3 of our kids when

we found out about the CF. I did want to have one more child but after

finding out about the CF I changed my mind. It is hard enough taking care of

2 with CF that I didn't want to see what it would be like to have 3. Deb A

[Guest guest]

In a message dated 4/5/2002 5:09:23 AM Central Standard Time, chki25@...

writes:

> My daughter was premature by 2 months weighting 3 pounds and 2 ounces.

>

> had to have emergency c-section

>

> My daughter had to have meconium plug. Spent 5 wks in hospital to grow

> basically.

>

> Was hard to deal with but shianne was very healthy never had any other

> problems was dig. When a week old and that was hard to deal with two. We

> knew nothing about cf and its alot to take in and learn. but you do it and

>

> keep learning.

>

> i was an only child and i hated my family situation was not the best and it

>

> would have been nice to had a sibling to go thru life growing up with a

> sis/brother there is a special bond there and i want my daughter to have

> that. and i think its all in gods hands and he will do whats right. he

> already did something right he chose all you great parents to take care of

> his special angels. he had to choose all of you carefully. and find the

>

> right parent who would love and accept the child and i can tell he found

> some great parents!!!

>

> christy ( 16 months old shianne ) from Indiana

>

Christy,

That was really SWEET!! Thank you! Deb A